Subjects -> OCCUPATIONS AND CAREERS (Total: 33 journals)
Showing 1 - 23 of 23 Journals sorted alphabetically
Advances in Developing Human Resources     Hybrid Journal   (Followers: 33)
American Journal of Pastoral Counseling     Hybrid Journal  
BMC Palliative Care     Open Access   (Followers: 39)
British Journal of Guidance & Counselling     Hybrid Journal   (Followers: 22)
Career Development and Transition for Exceptional Individuals     Hybrid Journal   (Followers: 10)
Career Development Quarterly     Hybrid Journal   (Followers: 5)
Community Development     Hybrid Journal   (Followers: 25)
Entrepreneurship Research Journal     Hybrid Journal   (Followers: 16)
Field Actions Science Reports     Open Access  
Formation emploi     Open Access  
Health Care Analysis     Hybrid Journal   (Followers: 17)
Human Resource Development Review     Hybrid Journal   (Followers: 33)
Industrial and Organizational Psychology     Hybrid Journal   (Followers: 28)
International Journal for Educational and Vocational Guidance     Hybrid Journal   (Followers: 9)
International Journal for Quality in Health Care     Hybrid Journal   (Followers: 41)
International Journal of Work Innovation     Hybrid Journal   (Followers: 2)
Journal of Career Assessment     Hybrid Journal   (Followers: 9)
Journal of Career Development     Hybrid Journal   (Followers: 12)
Journal of Human Capital     Full-text available via subscription   (Followers: 14)
Journal of Human Development and Capabilities : A Multi-Disciplinary Journal for People-Centered Development     Hybrid Journal   (Followers: 24)
Journal of Multicultural Counseling and Development     Hybrid Journal   (Followers: 7)
Journal of Psychological Issues in Organizational Culture     Hybrid Journal   (Followers: 8)
Journal of Vocational Behavior     Hybrid Journal   (Followers: 28)
Neurocritical Care     Hybrid Journal   (Followers: 17)
Palliative & Supportive Care     Hybrid Journal   (Followers: 37)
Performance Improvement Quarterly     Hybrid Journal   (Followers: 3)
Professions and Professionalism     Open Access   (Followers: 9)
Recherches & éducations     Open Access  
Rehabilitation Counseling Bulletin     Hybrid Journal   (Followers: 3)
Trabajo : Revista de la Asociación Estatal de Centros Universitarios de Relaciones Laborales y Ciencias del Trabajo     Open Access  
Vocations and Learning     Hybrid Journal   (Followers: 9)
Work and Occupations     Hybrid Journal   (Followers: 55)
Work, Employment & Society     Hybrid Journal   (Followers: 50)
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Palliative & Supportive Care
Journal Prestige (SJR): 0.611
Citation Impact (citeScore): 1
Number of Followers: 37  
 
  Hybrid Journal Hybrid journal (It can contain Open Access articles)
ISSN (Print) 1478-9515 - ISSN (Online) 1478-9523
Published by Cambridge University Press Homepage  [394 journals]
  • PAX volume 19 issue 1 Cover and Front matter
    • PubDate: 2021-02-01T00:00:00.000Z
      DOI: 10.1017/S1478951521000341
      Issue No: Vol. 19, No. 1 (2021)
       
  • A COVID-19 Obituary
    • Authors: William Breitbart
      Pages: 1 - 2
      PubDate: 2021-02-01T00:00:00.000Z
      DOI: 10.1017/S1478951521000043
      Issue No: Vol. 19, No. 1 (2021)
       
  • The development of a nomogram to determine the frequency of elevated risk
           for non-medical opioid use in cancer patients
    • Authors: Sriram Yennurajalingam; Tonya Edwards, Joseph Arthur, Zhanni Lu, Elif Erdogan, Jimi S. Malik, Syed Mujtaba Ali Naqvi, Jimin Wu, Diane D. Liu, Janet L. Williams, David Hui, Suresh K. Reddy, Eduardo Bruera
      Pages: 3 - 10
      Abstract: ObjectiveNon-medical opioid use (NMOU) is a growing crisis. Cancer patients at elevated risk of NMOU (+risk) are frequently underdiagnosed. The aim of this paper was to develop a nomogram to predict the probability of +risk among cancer patients receiving outpatient supportive care consultation at a comprehensive cancer center.Method3,588 consecutive patients referred to a supportive care clinic were reviewed. All patients had a diagnosis of cancer and were on opioids for pain. All patients were assessed using the Edmonton Symptom Assessment Scale (ESAS), Screener and Opioid Assessment for Patients with Pain (SOAPP-14), and CAGE-AID (Cut Down-Annoyed-Guilty-Eye Opener) questionnaires. “+risk” was defined as an SOAPP-14 score of ≥7. A nomogram was devised based on the risk factors determined by the multivariate logistic regression model to estimate the probability of +risk.Results731/3,588 consults were +risk. +risk was significantly associated with gender, race, marital status, smoking status, depression, anxiety, financial distress, MEDD (morphine equivalent daily dose), and CAGE-AID score. The C-index was 0.8. A nomogram was developed and can be accessed at https://is.gd/soappnomogram. For example, for a male Hispanic patient, married, never smoked, with ESAS scores for depression = 3, anxiety = 3, financial distress = 7, a CAGE score of 0, and an MEDD score of 20, the total score is 9 + 9+0 + 0+6 + 10 + 23 + 0+1 = 58. A nomogram score of 58 indicates the probability of +risk of 0.1.Significance of resultsWe established a practical nomogram to assess the +risk. The application of a nomogram based on routinely collected clinical data can help clinicians establish patients with +risk and positively impact care planning.
      PubDate: 2021-02-01T00:00:00.000Z
      DOI: 10.1017/S1478951520000322
      Issue No: Vol. 19, No. 1 (2021)
       
  • Assessing delirium with nursing care instruments: Evaluation of the
           cognitive and associated domains
    • Authors: Leonie Bode; Simon Fuchs, Samuel Gehrke, Jutta Ernst, Maria Schubert, David Garcia Nuñez, Roland von Känel, Soenke Boettger
      Pages: 11 - 16
      Abstract: ObjectiveNursing instruments have the potential for daily screening of delirium; however, they have not yet been evaluated. Therefore, after assessing the functional domains of the electronic Patient Assessment — Acute Care (ePA-AC), this study evaluates the cognitive and associated domains.MethodsIn this prospective cohort study in the intensive care unit, 277 patients were assessed and 118 patients were delirious. The impacts of delirium on the cognitive domains, consciousness and cognition, communication and interaction, in addition to respiration, pain, and wounds were determined with simple logistic regressions and their respective odds ratios (ORs).ResultsDelirium was associated with substantial impairment throughout the evaluated domains. Delirious patients were somnolent (OR 6), their orientation (OR 8.2–10.6) and ability to acquire knowledge (OR 5.5–11.6) were substantially impaired, they lost the competence to manage daily routines (OR 8.2–22.4), and their attention was compromised (OR 12.8). In addition, these patients received psychotropics (OR 3.8), were visually impaired (OR 1.8), unable to communicate their needs (OR 5.6–7.6), displayed reduced self-initiated activities (OR 6.5–6.9) and challenging behaviors (OR 6.2), as well as sleep–wake disturbances (OR 2.2–5), Furthermore, delirium was associated with mechanical ventilation, abdominal/thoracic injuries or operations (OR 4.2–4.4), and sensory perception impairment (OR 3.9–5.8).Significance of resultsDelirium caused substantial impairment in cognitive and associated domains. In addition to the previously described functional impairments, these findings will aid the implementation of nursing instruments in delirium screening.
      PubDate: 2021-02-01T00:00:00.000Z
      DOI: 10.1017/S1478951520000620
      Issue No: Vol. 19, No. 1 (2021)
       
  • Developing a consensus definition of psychosocial complexity in cancer
           patients using Delphi methods
    • Authors: A. Casellas-Grau; C. Jordán de Luna, J. Maté, C. Ochoa, E.C. Sumalla, F. Gil
      Pages: 17 - 27
      Abstract: ObjectiveCancer is one of the biggest health challenges of our times, affecting all the personal areas of a patient. The interrelationships between these areas and the need for multidisciplinary care require the assessment of psychosocial complexity in cancer patients. The main aim of this study was to reach a consensus on the general definition of psychosocial complexity in cancer and its main elements according to the experts in the field.MethodA Delphi study was performed, which first involved a comprehensive review of the literature to create a questionnaire that was validated by two expert panels. The first panel consisted of intra-institutional experts, while the second included extra-institutional experts in the field. The study included three more rounds: (1) validation of the questionnaire by the internal panel, (2) discussion of the results and resolving discrepancies, and (3) validation of the questionnaire by the external panel.ResultsAfter the four-round Delphi process, we obtained a consensus definition of psychosocial complexity in cancer patients, as well as of its main factors: medical–physical, social-family, psychological, and spiritual. A 21-indicators list and its 8-indicators brief version were also proposed as indicators of psychosocial complexity.Significance of resultsWe present a definition of psychosocial complexity in cancer patients that has been agreed by experts, also establishing its four factors: medical–physical, social-family, psychological, and spiritual. This has led to the development of a list of indicators (and its brief version) that, after a validation process, could help health professionals to identify patients with high psychosocial complexity to provide them an optimal care.
      PubDate: 2021-02-01T00:00:00.000Z
      DOI: 10.1017/S1478951520000784
      Issue No: Vol. 19, No. 1 (2021)
       
  • Toward a clinical model for patient spiritual journeys in supportive and
           palliative care: Testing a concept of human spirituality and associated
           recursive states
    • Authors: Rebecca Johnson; Joshua Hauser, Linda Emanuel
      Pages: 28 - 33
      Abstract: ObjectiveIn 2015, a Chaplaincy Research Consortium generated a model of human spirituality in the palliative care context to further chaplaincy research. This article investigates the clinical fit of (a) the model's fundamental premise of universal human spirituality and (b) its 4 proposed stage descriptors (Discovery, Dialogue, Struggle, and Arrival).MethodFirst, we collected qualitative data from an interdisciplinary palliative care focus group. Participants (n = 5) shared responses to the statement “the human spirit has essential commonalities across [ … ] groups and [ … ] attributes.” Participants also shared vignettes of spiritual care, and 48 vignettes illustrating patients’ spiritual journeys were subsequently taken from the transcript of that group. Second, we invited different mixed discipline palliative care professionals (n = 9) to individually card sort these vignettes to the model's 4 stage descriptors; we conducted pattern analysis on the results. We then administered a third step, convening six physicians to complete the card sort again, this time allowing designation of cards to one or two of the 4 stage descriptors.ResultsFocus group participants were supportive of the model's all-encompassing definition of spirituality. The concept of “connectedness” was a shared focus for all participants, connectedness and spirituality appearing almost synonymous. Pattern analysis of assigned 48 vignettes to the 4 stages showed stronger consensus around Discovery and Arrival than Struggle and Dialogue. Results of the additional card sort suggested Struggle and Dialogue involve oscillation and are harder to think of as a steady state as distinct from processes associated with Discovery or Arrival.Significance of results“Connectedness” is a productive concept for modeling human spiritual experience near the end of life. As one healthcare professional said: “this connectedness piece is [ … ] what I always look for … ” Although further work is needed to understand struggle and dialogue elements in peoples’ spiritual journeys, discovery and arrival shared consensus among participants.
      PubDate: 2021-02-01T00:00:00.000Z
      DOI: 10.1017/S1478951520000607
      Issue No: Vol. 19, No. 1 (2021)
       
  • Theory-driven role model stories improve palliative care knowledge among a
           diverse older population
    • Authors: Deborah F. Hoe; Kayla Johari, Anna Rahman, Susan Enguidanos
      Pages: 34 - 40
      Abstract: ObjectiveTo test the effectiveness of theoretically driven role model video stories in improving knowledge of palliative care among a diverse sample of older adults.MethodWe developed three 3–4 min long theoretically driven role model video stories. We then recruited cognitively intact, English-speaking adults aged 50 and older from senior centers, assisted living, and other community-based sites in the greater Los Angeles area. Using a pretest–posttest study design, we surveyed participants using the 13-item Palliative Care Knowledge Scale (PaCKS) and also asked participants about their intentions to enroll in palliative care should the need arise. Participants first completed the pretest, viewed the three videos, then completed the posttest comprised of the same set of questions.ResultsPaCKS score improved from an average of 4.5 at baseline to 10.0 following video screening (t(126) = 12.0, p < 0.001). Intentions to enroll oneself or a family member in palliative care rose by 103% (χ2 = 7.8, p < 0.01) and 110% (χ2 = 7.5, p < 0.01), respectively. Regression analysis revealed that participants who believed the role models are real people (β = 2.6, SE = 1.2, p < 0.05) significantly predicted higher change in PaCKS score. Conversely, participants with prior knowledge of, or experience with, palliative care (β = −5.9, SE = 0.8, p < 0.001), non-whites (β = −3.6, SE = 0.9, p < 0.001), and widows (β = −2.9, SE = 1.1, p < 0.01) significantly predicted lower changes in PaCKS score.Significance of resultsThis study suggests that theoretically driven role model video stories may be an effective strategy to improve palliative care knowledge. Role model video stories of diverse palliative care patients provide one way to mitigate health literacy barriers to palliative care knowledge.
      PubDate: 2021-02-01T00:00:00.000Z
      DOI: 10.1017/S1478951520000310
      Issue No: Vol. 19, No. 1 (2021)
       
  • Associations between unmet palliative care needs and cognitive impairment
           in a sample of diverse, community-based older adults
    • Authors: Elissa Kozlov; Matthew J. Wynn, M. Carrington Reid, Charles R. Henderson Jr., XinQi Dong, Jo Anne Sirey
      Pages: 41 - 45
      Abstract: ObjectiveGiven a large number of community-based older adults with mild cognitive impairment, it is essential to better understand the relationship between unmet palliative care (PC) needs and mild cognitive impairment in community-based samples.MethodParticipants consisted of adults ages 60+ receiving services at senior centers located in New York City. The Montreal Cognitive Assessment (MoCA) and the Unmet Palliative Care Needs screening tool were used to assess participants’ cognitive status and PC needs.ResultsOur results revealed a quadratic relationship between unmet PC needs and mild cognitive impairment, controlling for gender, living status, and age. Participants with either low or high MoCA scores reported lower PC needs than participants with average MoCA scores, mean difference of the contrast (low and high vs. middle) = 2.15, P = 0.08.Significance of resultsThis study is a first step toward elucidating the relationship between cognitive impairment and PC needs in a diverse community sample of older adults. More research is needed to better understand the unique PC needs of older adults with cognitive impairment living in the community.
      PubDate: 2021-02-01T00:00:00.000Z
      DOI: 10.1017/S1478951520000395
      Issue No: Vol. 19, No. 1 (2021)
       
  • What would people think' Perceived social norms, willingness to serve
           as a surrogate, and end-of-life treatment decisions
    • Authors: Rachael Spalding; JoNell Strough, Barry Edelstein
      Pages: 46 - 54
      Abstract: BackgroundPopulation aging has increased the prevalence of surrogate decision making in healthcare settings. However, little is known about factors contributing to the decision to become a surrogate and the surrogate medical decision-making process in general. We investigated how intrapersonal and social-contextual factors predicted two components of the surrogate decision-making process: individuals’ willingness to serve as a surrogate and their tendency to select various end-of-life treatments, including mechanical ventilation and palliative care options.MethodAn online sample (N = 172) of adults made hypothetical surrogate decisions about end-of-life treatments on behalf of an imagined person of their choice, such as a parent or spouse. Using self-report measures, we investigated key correlates of willingness to serve as surrogate (e.g., decision-making confidence, willingness to collaborate with healthcare providers) and choice of end-of-life treatments.ResultsViewing service as a surrogate as a more typical practice in healthcare was associated with greater willingness to serve. Greater decision-making confidence, greater willingness to collaborate with patients’ physicians, and viewing intensive, life-sustaining end-of-life treatments (e.g., mechanical ventilation) as more widely accepted were associated with choosing more intensive end-of-life treatments.Significance of resultsThe current study's consideration of both intrapersonal and social-contextual factors advances knowledge of two key aspects of surrogate decision making — the initial decision to serve as surrogate, and the surrogate's selection of various end-of-life treatment interventions. Providers can use information about the role of these factors to engage with surrogates in a manner that better facilitates their decision making. For instance, providers can be sensitive to potential cultural differences in surrogate decision-making tendencies or employing decision aids that bolster surrogates’ confidence in their decisions.
      PubDate: 2021-02-01T00:00:00.000Z
      DOI: 10.1017/S1478951520000401
      Issue No: Vol. 19, No. 1 (2021)
       
  • Spirituality and quality of life in women with breast cancer: The role of
           hope and educational attainment
    • Authors: Saeed Pahlevan Sharif; Rebecca H. Lehto, Mohammadreza Amiri, Ashraf Sadat Ahadzadeh, Hamid Sharif Nia, Ali Akbar Haghdoost, Fatemeh Khoshnavay Fomani, Amir Hossein Goudarzian
      Pages: 55 - 61
      Abstract: ObjectiveThis study investigated relationships among spirituality, hope, and overall quality of life in Muslim women with breast cancer in Malaysia.MethodA cross-sectional descriptive design with a convenience sample of 145 Malay patients was used. The mediating role of hope in the relationship between spirituality and quality of life as well as the moderating effect of education level on the spirituality hope link were examined.ResultsParticipants with higher self-reported spirituality reported more hope (b = 6.345, p < 0.001) and higher levels of quality of life (b = 1.065, p < 0.001). Higher educational attainment weakened relationships between spirituality and hope (b = −1.460, p < 0.001).Significance of resultsThe role of advanced education in contributing to lessened hope in relation to spirituality emphasizes the importance of skilled and personalized spiritual counseling in the respective socio-cultural religious context.
      PubDate: 2021-02-01T00:00:00.000Z
      DOI: 10.1017/S1478951520000383
      Issue No: Vol. 19, No. 1 (2021)
       
  • Relationship between the religious attitudes of women with gynecologic
           cancer and mental adjustment to cancer
    • Authors: Mesude Duman; Yeter Durgun Ozan, Özlem Doğan Yüksekol
      Pages: 62 - 68
      Abstract: ObjectiveThis study was conducted to determine the relationship between religious attitudes of Muslim women with gynecologic cancer and mental adjustment to cancer.MethodsDesigned as a descriptive relational study, this study was conducted with 123 patients with gynecologic cancer. A personal information form, prepared in accordance with the literature, the Religious Attitude Scale (RAS), and the Mental Adjustment to Cancer Scale (MACS) were used as data collection tools. The data were assessed using descriptive statistics, Pearson's correlation analysis, and linear regression analysis.ResultsA positive correlation was determined between the RAS score and the fighting spirit subscale of the MACS (r = 0.65, p < 0.001). A negative correlation was found between the helplessness/hopelessness and anxious preoccupation subscales of the MACS and the RAS score (r = −0.40, p < 0.001; r = −0.30, p < 0.001, respectively).Significance of resultsThe present results are helpful in understanding the influence of religious attitudes on the mental adjustment to gynecologic cancer patients. The results can serve as a reference for nursing education and clinical healthcare practice. Palliative healthcare providers can participate in improved care by recognizing spiritual needs and by advocating for attention to spiritual needs as a routine part of cancer care.
      PubDate: 2021-02-01T00:00:00.000Z
      DOI: 10.1017/S1478951520000619
      Issue No: Vol. 19, No. 1 (2021)
       
  • “Truly holistic'” Differences in documenting physical and
           psychosocial needs and hope in Portuguese palliative patients
    • Authors: Miguel Julião; Maria Ana Sobral, Paula Calçada, Bárbara Antunes, Baltazar Nunes, Ana Bragança, Daniela Runa, Paulo Faria de Sousa, Harvey Max Chochinov, Eduardo Bruera
      Pages: 69 - 74
      Abstract: ObjectivePalliative care (PC) aims to improve patients' and families' quality of life through an approach that relieves physical, psychosocial, and spiritual suffering, although the latter continues to be under-assessed and under-treated. This study aimed to describe the prevalence of physical, psychosocial, and hope assessments documented by a PC team in the first PC consultation.MethodThe retrospective descriptive analysis of all first PC consultations registered in our anonymized database (December 2018–January 2020), searching for written documentation regarding (1) Edmonton Symptom Assessment Scale (ESAS) physical subscale (pain, tiredness, nausea, drowsiness, appetite, shortness of breath, constipation, insomnia, and well-being), (2) the single question “Are you depressed'” (SQD), (3) the question “Do you feel anxious'” (SQA), (4) feeling a burden, (5) hope-related concerns, (6) the dignity question (DQ), and (7) will to live (WtL).ResultsOf the 174 total of patients anonymously registered in our database, 141 PC home patients were considered for analysis; 63% were male, average age was 70 years, the majority had malignancies (82%), with a mean performance status of 52%. Evidence of written documentation was (1) ESAS pain (96%), tiredness (89%), nausea (89%), drowsiness (79%), appetite (89%), shortness of breath (82%), constipation (74%), insomnia (72%), and well-being (52%); (2) the SQD (39%); (3) the SQA (11%); (4) burden (26%); (5) hope (11%); (6) the DQ (33%); and (7) WtL (33%).Significant differences were found between the frequencies of all documented items of the ESAS physical subscale (29%), and all documented psychosocial items (SQD + SQA + burden + DQ) (1%), hope (11%), and WtL (33%) (p = 0.0000; p = 0.0005; p = 0.0181, respectively).Significance of resultsThere were differences between documentation of psychosocial, hope, and physical assessments after the first PC consultation, with the latter being much more frequent. Further research using multicenter data is now required to help identify barriers in assessing and documenting non-physical domains of end-of-life experience.
      PubDate: 2021-02-01T00:00:00.000Z
      DOI: 10.1017/S1478951520000413
      Issue No: Vol. 19, No. 1 (2021)
       
  • Cross-cultural validation of the Cancer Stigma Scale in the general
           Japanese population
    • Authors: Emi Takeuchi; Daisuke Fujisawa, Rina Miyawaki, Hiroko Yako-Suketomo, Koichiro Oka, Masaru Mimura, Miyako Takahashi
      Pages: 75 - 81
      Abstract: BackgroundThe stigma associated with cancer has negative impacts on cancer patients as well as the general public, who have a potential risk of cancer. To the best of our knowledge, a validated measure to assess cancer stigma among the general Japanese population does not exist.MethodWe translated the Cancer Stigma Scale (CASS) — a 25-item self-administered scale to evaluate stigma related to cancer — into Japanese and examined its psychometric properties. The Japanese version of CASS (J-CASS) was validated among a sample of the general Japanese population through an online survey to validate its test–retest reliability, internal consistency, and concurrent validity.ResultsA total of 319 responses were included in the analysis. An exploratory factor analysis eliminated two original items but showed a six-factor model (Awkwardness, Severity, Avoidance, Policy Opposition, Personal Responsibility, and Financial Discrimination), which was similar to the original scale. Cronbach's alpha for each factor was satisfactory, ranging from 0.81 to 0.91. The internal correlation coefficients were above 0.70, except for Policy Opposition. The total and subtotal scores of each factor of the J-CASS were significantly associated with respondents’ age, gender, familiarity with cancer patients, and social desirability, demonstrating the scales’ good concurrent validity. A substantial proportion of the participants selected “unsure” for some items of the scale, suggesting a further need for refining the scale.Significance of resultsThis study demonstrated that J-CASS is a reliable and valid measure for evaluating misconceptions and stigma toward cancer in the general Japanese population.
      PubDate: 2021-02-01T00:00:00.000Z
      DOI: 10.1017/S1478951520000486
      Issue No: Vol. 19, No. 1 (2021)
       
  • Sustainable implementation of advance care planning in Asia: An
           interpretive-systemic framework for national development
    • Authors: Andy Hau Yan Ho; Priya Lall, Woan Shin Tan, Paul Victor Patinadan, Lok Hang Wong, Oindrila Dutta, Weng Sun Pang, Chan Kee Low, Josip Car
      Pages: 82 - 92
      Abstract: ObjectivesA qualitative interpretive-systemic focus group study was conducted to examine the developmental and implementational underpinnings of Asia's first national Advance Care Planning (ACP) programme constituted in Singapore.Methods63 physicians, nurses, medical social workers, and allied health workers who actively rendered ACP were purposively recruited across seven major public hospitals and specialist centers.ResultsFramework analysis revealed 19 themes, organized into 5 categories including Life and Death Culture, ACP Coordination, ACP Administration, ACP Outcomes, and Sustainability Shift. These categories and themes formed an Interpretive-Systemic Framework of Sustainable ACP, which reflects the socio-cultural, socio-political, and socio-spiritual contexts that influence ACP provision, highlighting the need to adopt a public health strategy for enhancing societal readiness for end-of-life conversations.Significance of resultsThe Interpretive-Systemic Framework of Sustainable ACP underscores the importance of health policy, organizational structure, social discourse, and shared meaning in ACP planning and delivery so as to support and empower care decision-making among terminally ill Asian patients and their families facing mortality.
      PubDate: 2021-02-01T00:00:00.000Z
      DOI: 10.1017/S1478951520000590
      Issue No: Vol. 19, No. 1 (2021)
       
  • Dying concerns in young parents with advanced cancer (PWAC): A scoping
           review
    • Authors: Cinzia Caparso; Joel Appel, Ramona Benkert
      Pages: 93 - 102
      Abstract: BackgroundAdvanced cancer in young parents (PWAC) can increase dying concerns, the fluctuating thoughts, or feelings, conscious, or unconscious, about an approaching death by a person facing a terminal illness or a family member coping with the impending death of a loved one. However, limited research has been conducted to identify dying concerns in an ill parent as the research has focused on older adults.ObjectiveOur goal was to identify dying concerns that PWAC are expressing and to understand how these concerns affect measurable outcomes.MethodCINHAL, MEDLINE, PsychARTICLES, PsycINFO, Social Work s, Health Source: Nursing/Academic Edition, and Psychology and Behavioral Sciences Collection were searched. Articles included were samples of PWAC, peer-reviewed, and published within the last 10 years. Elderly or pediatric populations, PWAC with adult children, and early-stage cancer were excluded. The initial search resulted in 1,526 articles, 18 were identified as potentially relevant. Fourteen articles were identified and reviewed.ResultsPWAC expressed concerns for their children (n = 11), concerns for their co-parent (n = 4), and personal concerns (n = 11). Additionally, PWAC have decreased quality of life, have significant emotional and psychological distress, and have increased family dysfunction in relation to their concerns. Samples limit the generalizability of the findings. Majority of the articles consisted of White, upper, middle-class (n = 8) women (n = 7) diagnosed with breast cancer (n = 11) within nuclear families (n = 11).Significance of resultsDying concerns are described in the literature from a fairly narrow sample of PWAC. Future research should focus on recruiting participants from diverse backgrounds, genders, diagnosis types, and non-nuclear families. Identifying concerns for the co-parent would also add to the understanding of dying concerns.
      PubDate: 2021-02-01T00:00:00.000Z
      DOI: 10.1017/S1478951520000309
      Issue No: Vol. 19, No. 1 (2021)
       
  • A review of psychosocial interventions targeting families of children with
           cancer
    • Authors: Anna Koumarianou; Artemis E. Symeonidi, Antonis Kattamis, Katerina Linardatou, George P. Chrousos, Christina Darviri
      Pages: 103 - 118
      Abstract: ObjectivePsychosocial interventions in families of children with cancer are considered an effective way of empowering family members to tackle the complex hurdles they face. The ability of parents to develop adaptive coping strategies during the child's treatment is not only important to their own mental and physical health, but also to their child's well-being and long-term adjustment with the disease.MethodsThe aim of this review was to evaluate the existing literature for the period from 2009 to 2017 on psychosocial interventions targeting families of children with cancer. We searched the PubMed database using the following combination of keywords: “cancer AND children AND (intervention OR training) AND (mothers OR primary caregivers OR parents OR fathers OR siblings).”ResultsAfter careful evaluation of 995 papers, 17 full-text papers were found to match our criteria (12 randomized controlled trials and 5 quasi-experimental studies). The quality of the studies was assessed using the Delphi score questionnaire, and the score of the reviewed studies ranged from 3 to 5. The findings suggest that most interventions reduced distress and improved coping strategies among participants. Interventions, mainly cognitive behavioral therapy and problem-solving skills training targeting maternal distress, were associated with improved adjustment outcomes in mothers of children with cancer.Significance of resultsPsychosocial interventions are helpful, and efforts should be made to promote them in a larger scale. Protocols should be implemented to ensure that all parents benefit. Computer-assisted methods may provide additional benefit by improving cancer-related knowledge and cancer-related communication.
      PubDate: 2021-02-01T00:00:00.000Z
      DOI: 10.1017/S1478951520000449
      Issue No: Vol. 19, No. 1 (2021)
       
  • striae+cutis:+A+case+report+on+how+physical+skin+complaints+unveiled+end-of-life+total+experience&rft.title=Palliative+&+Supportive+Care&rft.issn=1478-9515&rft.date=2021&rft.volume=19&rft.spage=119&rft.epage=121&rft.aulast=Julião&rft.aufirst=Miguel&rft.au=Miguel+Julião&rft.au=Paula+Calçada,+Vasco+Coelho+Macias,+Pedro+Mendes-Bastos&rft_id=info:doi/10.1017/S1478951520000693">Beyond striae cutis: A case report on how physical skin complaints
           unveiled end-of-life total experience
    • Authors: Miguel Julião; Paula Calçada, Vasco Coelho Macias, Pedro Mendes-Bastos
      Pages: 119 - 121
      Abstract: BackgroundEnd-of-life is a unique and multidimensional experience, and physical complaints can reveal other areas of distress.MethodA case report of a woman with terminal cancer with painful and deforming skin striae cared by a multidisciplinary team.ResultsAfter initially treating her physical pain, other end-of-life psychosocial, spiritual, and existential aspects could be addressed.Significance of resultsPhysical distress can unveil other essential areas of end-of-life experience when multidisciplinary teams caring for the terminally ill patients use holistic approaches.
      PubDate: 2021-02-01T00:00:00.000Z
      DOI: 10.1017/S1478951520000693
      Issue No: Vol. 19, No. 1 (2021)
       
  • Farmer's market
    • Authors: Keerthi Gondy
      Pages: 122 - 122
      PubDate: 2021-02-01T00:00:00.000Z
      DOI: 10.1017/S147895152000053X
      Issue No: Vol. 19, No. 1 (2021)
       
  • Angels and their demons
    • Authors: Ila Mulasi
      Pages: 123 - 124
      PubDate: 2021-02-01T00:00:00.000Z
      DOI: 10.1017/S1478951520000553
      Issue No: Vol. 19, No. 1 (2021)
       
  • Of wintry walks to recovery
    • Authors: Julia H. Miao
      Pages: 125 - 125
      PubDate: 2021-02-01T00:00:00.000Z
      DOI: 10.1017/S147895152000142X
      Issue No: Vol. 19, No. 1 (2021)
       
  • Comparing the Hospital Anxiety and Depression Scale to the Brief Edinburgh
           Depression Scale for identifying cases of major depressive disorder in
           advanced cancer palliative patients – CORRIGENDUM
    • Authors: Oscar Rodríguez-Mayoral; Adriana Peña-Nieves, Silvia Allende-Pérez, Mari Lloyd-Williams
      Pages: 126 - 126
      PubDate: 2021-02-01T00:00:00.000Z
      DOI: 10.1017/S1478951520000991
      Issue No: Vol. 19, No. 1 (2021)
       
 
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