 Subjects -> DISABILITY (Total: 103 journals)
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- Health impacts of the COVID-19 pandemic among Canadians living with
disabilities
Authors: Md Kamrul Islam; Lars K. Hallstrom
Abstract: The devastating impact of the COVID-19 pandemic on general health has received extensive attention in recent research. However, limited attention has been given to examining the health impacts of the pandemic among people living with disabilities. This study examines the impact of the COVID-19 pandemic on three aspects of health among Canadians living with a disability: (1) perceived physical health, (2) perceived mental health, and (3) unmet healthcare needs during the pandemic. We utilized crowdsourcing data from Statistics Canada’s Impacts of COVID-19 on Canadians Living with Long-term Conditions and Disabilities, 2020 Survey. The total sample size for our study was 8,872 and included males and females who were 15 years and older. To examine the health impacts of the pandemic, we calibrated a multivariable logistic regression. We found that respondents living with a disability had higher odds of experiencing negative impacts from the pandemic on their physical and mental health and have more unmet healthcare needs than those without a disability. Youth (15–24 years) living with a disability had 4.11 times higher odds of experiencing poor physical health during the pandemic than older adults (65 years and older) without a disability. Similarly, respondents aged 25-44 years and 45-64 years living with a disability also had higher odds of experiencing poor physical health (5.34 times and 5.68 times respectively) during the pandemic than older adults without a disability. The health impacts of the pandemic among those living with disabilities were found to differ significantly by age cohorts.
PubDate: Thu, 14 Sep 2023 00:00:00 +000
- Toward an Obsessive-Compulsive Madtime
Authors: Drew McEwan
Abstract: Acute experiences of obsessive-compulsive distress both speed up time in the frantic repetition of the obsession and compulsion, and cause delays and slowed progression through the necessary activities of daily life. Both inwardly fast and outwardly slow, experiences of obsessions and compulsions, medicalized as obsessive-compulsive disorder (OCD), present a paradoxical temporality marked by repetition in an ongoing present in deferral of a feared future. Through first-person lived experience and literary analysis, this article considers the specific ways that obsessive-compulsive madtime is lived and rhetorically constructed. I consider my recollection of a period of intense obsessive-compulsive distress as a way to story the experience of mad temporality from a personal, situated location. I then look to how the narrator in John Green’s 2017 young adult novel Turtles All the Way Down rhetorically figures obsessive-compulsive madtime through sentence and paragraph structure in dialogue with her obsessive and compulsive thoughts. I argue that obsessive-compulsive madtime functions as a doubled perspective of self and logic, but also as a doubled perspective in temporality whereby repetition forestalls a future due to the inability to find a reassuring sense of memory and completion. Obsessive-compulsive madtime proves an informative place from which to think through the overlapping experience of madtime and normative, sane time, and being in anxious narrative tension with futurity in the present.
PubDate: Thu, 14 Sep 2023 00:00:00 +000
- Ethical key learnings from participant observation with people with
communication support needs
Authors: Deborah L. Lutz
Abstract: Despite ongoing advancement of inclusive research methodologies that allow people with disabilities to control, create and take ownership of the research process, the experiences of people with intellectual disabilities who use little or no verbal speech to communicate are underrepresented in research studies. A method with potential to facilitate their research participation is participant observation. Ethical concerns and questions, however, may intimidate or discourage researchers in using the method with people with communication support needs. In this article, I use ethnographic field notes and personal reflections about working as a participant observer with people with communication support needs. I describe and analyse three points of consideration in using the method to draw out ethical key learnings, which revolve around (1) the influence of third parties, (2) observing the person in the absence and presence of research participants, and (3) balancing views on research participants. I end the article with a discussion about the ethical key learnings and argue that participant observation can provide researchers with a considerable amount of time to become familiar with people’s communication preferences, but that they need to be committed to reflecting on and resolving the ethical tensions and questions they experience in researching with people with communication support needs.
PubDate: Thu, 14 Sep 2023 00:00:00 +000
- Using Technology to Enhance Services and Supports for Children and Youth
with Disabilities and Medical Complexity and their Families in Canada: A
Scoping Review
Authors: Alison J. Gerlach; Amarens Matthiesen, Kim Bulkeley, Katie Gibbs
Abstract: In Canada and internationally, the use of technology to enhance community-based health and developmental services and supports with children and youth has increased dramatically as a result of the COVID-19 pandemic. In the Canadian context, how technology-enabled supports and services have developed and can be integrated as a long-term option in addition to in-person services requires further examination. This scoping review maps out existing and emerging themes in Canadian research published on how different technology modalities are being used in home and community settings with children and youth with disabilities and medical complexity and their families. A literature search conducted across seven databases between 2011 and 2023 resulted in potentially relevant publications, of which 12 met the inclusion criteria. The findings provide insights into how various technologies are being used and combined in order to provide parenting training and coaching and timely access to assessments in a continuum of care without the burden of travel time and costs. Also, the potential of technology to create peer support networks both for parents and older youth with disabilities. These findings can inform funding bodies and community organizations serving this population in undertaking in depth and critical analyses of how technology can be further integrated into hybrid models of service delivery. Further research and actions are also needed to address issues of digital equity.
PubDate: Thu, 14 Sep 2023 00:00:00 +000
- Malevolent or Benevolent Brushstrokes': Exploring the Depiction of
Disability in Renaissance Paintings Using a Critical Disability Studies
Lens
Authors: Fiona J. Moola; Stephanie Posa, Ron Buliung
Abstract: It may be important to situate disability historically to move toward understanding the rise of contemporary and often dominant ableist approaches to thinking about and representing disability today. The arts serve as “living artifacts” which store historical ideas about disabled bodies. Using a critical disability studies (CDS) lens, we explored the historical depiction of disability through Renaissance paintings created between 1300 and 1700. Our formal and semiotic analysis suggests that disability was depicted in ways that reinforce a medicalized notion. Malevolent representations seem to focus on the notion that a disabled body exists in service to an able-bodied other, the healing of disability by a god, or disability as a source of entertainment. In contrast, disability and tenderness may be seen as a more benevolent portrayal but not without paternalism and infantilization. Although paintings of children were few, disabled children were depicted in a more compassionate and vulnerable light than disabled adults, perhaps highlighting differing degrees of acceptance on the basis of age. Our use CDS in this paper highlights the problematic persistence of biomedicalization and pathologizing in Renaissance art. We encourage further use of CDS perspectives in art history analysis in the future, given the potential to generate emancipatory artistic movements and new conversations about bodies in space and time.
PubDate: Thu, 14 Sep 2023 00:00:00 +000
- Early twentieth century women reading through disability and illness:
Letters to Canadian novelist Ralph Connor
Authors: Grace O'Hanlon
Abstract: Ralph Connor was a well-known novelist in the first decade of the twentieth century. Many people read his popular fiction novels around the world. Perhaps owing to his popularity and penchant for keeping correspondence, his collected papers, held the Archives and Special Collections at the University of Manitoba in Winnipeg, Canada, include over six hundred fan letters. I examined these letters with the intention of exploring women’s responses to popular fiction of the era and the reasons they were reading. As I read the letters, a recurring theme emerged in letters penned by women: they described the role of reading in their lives in relation to their personal experiences with disabilities and chronic illness. Others wrote about the experience of reading to their mothers, sisters, or friends with disabilities. These fan letters are the voices of women with disabilities who were relegated to the margins of society. Ultimately, the letters reveal the role of reading as a leisure activity, a vocation, and a social outlet in the lives of early twentieth century women who identified themselves as invalids, shut-ins, and bedbound.
PubDate: Thu, 14 Sep 2023 00:00:00 +000
- Between disability studies and études sur le handicap: 40 years of
access, translation and education issues
Authors: Patricia Bérubé
Abstract: The emergence of the discipline of disability studies primarily took place in English Canada, the United States and England during the 1980s. While the Society for Disability Studies was founded in Maryville, Tennessee in 1982, it was not until 2004 that the Canadian Disability Studies Association (CDSA-AÉCH) was founded. Despite the fact that this association is bilingual, this long lapse of time before its creation is representative of a larger issue: forty years after the arrival of this discipline in the Anglo-Saxon world, it is clear the Quebec and Franco-Canadian literature is lacking on this specific topic. This article aims to encourage social awareness of these issues of access, translation, and education. It is through my perspective as a researcher, activist and Francophone Québécoise neurodivergent woman that I wish to propose avenues of reflection to problematize the absence of bachelor's degree programs in this discipline in French.
PubDate: Thu, 14 Sep 2023 00:00:00 +000
- Review of DisAppearing: Encounters in Disability Studies
Authors: Stephanie Hannam-Swain
Abstract: DisAppearing: Encounters in Disability Studies, brings together twenty-three pieces of work from disability scholars, activists and artists, which demonstrate how the “...complex universe of disability often disappears from view” (p1). The creative works encourage critical thinking around the dominant framings of disability, how it is experienced, observed and narrated, within a variety of contexts.
PubDate: Thu, 14 Sep 2023 00:00:00 +000
- Review of Care Work: Dreaming Disability Justice
Authors: Claire Whiddington-Sadlowski
Abstract: Piepzna-Samarasinha’s book is compelling as she writes her essays in a personal, relatable, and realistic manner. She speaks to her audience of fellow disabled QTBIPOC comrades and normatively-minded and -bodied people who want to provide community support. Instead of presenting her disability as an “illness that she overcame,” she wrote about collective struggle and community building.
PubDate: Thu, 14 Sep 2023 00:00:00 +000
- Review of Disability and the Posthuman: Bodies, Technology, and Cultural
Futures
Authors: Luana Adriano Araújo
Abstract: Whilst acknowledging that there is a possible clash between posthumanism and disability – especially regarding the connections between eradication of disabilities and transhumanist assertions –, Murray argues that critical strands of both disabilities studies and posthumanism studies present a large common area, which involves “a critique of humanist norms; a recognition of complex embodiment; and a commitment to intersectionality and inclusive practice among them” (p. 20).
PubDate: Thu, 14 Sep 2023 00:00:00 +000
- Review of How to Communicate: Poems
Authors: Kristin Snoddon
Abstract: John Lee Clark’s How to Communicate is a collection of poems by the famed deafblind writer, educator, and agent of the Protactile movement. This movement is an ongoing process of tactile language emergence among deafblind community members in the USA that is also spreading to other countries.
PubDate: Thu, 14 Sep 2023 00:00:00 +000
- Création d’une communauté réunissant les études queer sur le
handicap : leçons tirées de l’escargot
Authors: Harvey Humphrey; Jen Slater, Edmund Coleman-Fountain, Charlotte Jones
Abstract: Cet article décrit le Queer Disability Studies Network (Réseau d’études queer sur le handicap), un espace créé pour les universitaires et les militantes et militants des études queer sur le handicap afin de bénéficier de solidarités, au sein des études sur le handicap, queer, trans et intersexe, en particulier pour les personnes marginalisées en raison de la queerphobie, de la transphobie, de l’intersexephobie et du capacitisme. Cet espace permettrait aussi d’alimenter les échanges d’idées d’une discipline à l’autre. Le réseau a été créé pour s’opposer à l’institutionnalisation d’idées qui délégitimiseraient les vies et les identités trans au sein du milieu universitaire et offre un espace de solidarité et de résistance au sein de l’université néolibérale capacitiste. L’article fournit une explication des origines du réseau. Puis, il utilise le motif de l’escargot symbolisant le réseau pour organiser les apprentissages des études trans, queer, intersexes et sur le handicap en un ensemble de « leçons » pour les groupes cherchant à développer des solidarités au sein des communautés universitaires et militantes. Ces leçons soulèvent des questions cruciales liées aux concepts de 1) chez-soi, 2) temporalités et mobilités et 3) incarnations et vulnérabilités. Nous concluons en discutant des implications de ces leçons pour la pratique des solidarités et des politiques de coalition en des temps contestés.
PubDate: Thu, 14 Sep 2023 00:00:00 +000
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