 Subjects -> DISABILITY (Total: 103 journals)
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- To say (sexual fetish)… or not to say (sexual fetish). That is the
question-
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Authors: Robert John Searle
Abstract: In a recent report the author wrote about a service user, the author was challenged by the service user’s advocate in respect of the author’s use of the term “sexual fetish”. The author was informed of the advocate’s fears in respect of people involved in the service user’s future care and support needs feeling uncomfortable and possibly stigmatising someone having a sexual fetish. Consequently, the author was asked to change their wording from “sexual fetish” to “sensory need”. The purpose of this study/paper aims to highlight best practice regarding the most appropriate wording for individuals with sexual fetishes. A review of the available evidence was ascertained. A review of British Psychological Society guidelines and recent research highlights that what were once called “perversions” must be destigmatised, which will not be achieved if people continue to sweep the term fetish under the metaphorical carpet. It is the author’s sincere hope that use of the term “sexual fetish” embraces and normalises people’s sexual fetish and results in heightened awareness and de-stigmatisation of what is essentially a reference to an element of the wonderful and pleasurable world of sexual behaviour.
Citation: Advances in Mental Health and Intellectual Disabilities
PubDate: 2023-11-24
DOI: 10.1108/AMHID-08-2023-0032
Issue No: Vol. ahead-of-print, No. ahead-of-print (2023)
- Project ECHO-AIDD: recommendations for care of adults with intellectual
and developmental disabilities-
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Authors: Olivia Mendoza, Anupam Thakur, Ullanda Niel, Kendra Thomson, Yona Lunsky, Nicole Bobbette
Abstract: This study aims to describe patients presented in an interprofessional, virtual education program focused on the mental health of adults with intellectual and developmental disabilities (IDD), as well as present interprofessional recommendations for care. In this retrospective chart review, descriptive statistics were used to describe patients. Content analysis was used to analyze interprofessional recommendations. The authors used the H.E.L.P. (health, environment, lived experience and psychiatric disorder) framework to conceptualize and analyze the interprofessional recommendations. Themes related to the needs of adults with IDD are presented according to the H.E.L.P. framework. Taking a team-based approach to care, as well as ensuring care provider knowledge of health and social histories, may help better tailor care. This project draws on knowledge presented in a national interprofessional and intersectoral educational initiative, the first in Canada to focus on this population.
Citation: Advances in Mental Health and Intellectual Disabilities
PubDate: 2023-11-01
DOI: 10.1108/AMHID-06-2023-0019
Issue No: Vol. ahead-of-print, No. ahead-of-print (2023)
- Forensic mental health intellectual and developmental disability service:
an analysis of referral patterns and comparison with community mental
health intellectual disability (MHID) services in Ireland-
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Authors: Afwan Abdul Wahab, Calvin Har, Sarah Casey, Hugh Ramsay, Brendan McCormack, Niamh Mulryan, Anita Ambikapathy, Anthony Kearns
Abstract: The purpose of this study is to analyse the characteristics of all the referrals to the forensic MHIDD service over the past five years and to compare these characteristics to the cohort of service users attending the three general MHID services based in Dublin which are Service 1, Service 2 and Service 3. This is a cross-sectional study of adults attending the three generic MHID services and the national forensic MHIDD service. The medical files of service users attending the MHID services were reviewed, and data such as age, gender, level of intellectual disability and psychiatric diagnoses were extracted and compiled into a database. The forensic MHIDD service has since its inception maintained a database of all referrals received and reviewed. The characteristics data needed were extracted from the forensic MHIDD database. All these data were then analysed using the Statistical Package for Social Sciences (SPSS). The majority of the three MHID service users were in the moderate to profound range of intellectual disability, while the majority of the cases assessed by forensic MHIDD had normal IQ, borderline IQ and mild intellectual disability with 66.1%. The prevalence of neurodevelopmental disorder, schizophrenia and emotionally unstable personality disorder in the forensic MHIDD is comparable to the three MHID services. The prevalence of depression, bipolar affective disorder (BPAD), anxiety disorder and obsessive-compulsive disorder (OCD) is higher in the three MHID services than in the forensic MHIDD service. The FHMIDD received referrals at a greater level of overall ability, with two-thirds of the service users having mild intellectual disability to normal IQ. The prevalence of neurodevelopmental disorder such as ASD and schizophrenia is comparable between the forensic MHIDD and the three MHID services. There is a higher prevalence of depression, BPAD, anxiety disorder and OCD in the three MHID services as compared to the forensic MHIDD service.
Citation: Advances in Mental Health and Intellectual Disabilities
PubDate: 2023-11-01
DOI: 10.1108/AMHID-06-2023-0020
Issue No: Vol. ahead-of-print, No. ahead-of-print (2023)
- Assessing adherence to National Institute for Health and Care Excellence
dementia assessment and diagnosis guidelines in adults with intellectual
disability: a retrospective cohort study-
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Authors: Caroline Duncan, Ewan Wilkinson, Sujeet Jaydeokar, Daniel James Acton
Abstract: This study aims to evaluate the dementia assessment and diagnosis care provided to adults with intellectual disability. The authors selected recommendations from the National Institute for Health and Care Excellence (NICE) standards which could be evidenced in clinical notes and aimed to identify characteristics which may be associated with improved adherence to these recommendations. The study population was adults with an intellectual disability who were diagnosed with dementia between January 2019 and December 2022 by a UK-based intellectual disability service. Data to demonstrate adherence to selected recommendations and demographic and clinical characteristics were extracted from electronic patient records. The authors identified 41 individuals. A mean of six of the eight recommendations were adhered to. There was low adherence with structural imaging to support dementia subtype diagnosis (9 individuals, 22%). This may be linked with the low percentage of people diagnosed with vascular dementia (1 individual, 2%) despite a national figure of 20%. No demographic or clinical characteristics were associated with level of adherence recorded. The authors found incomplete recording of diagnostic clinical coding in electronic patient records. This may disadvantage this population, as they cannot be readily identified for post diagnostic support or resource allocation. To the best of the authors’ knowledge, this is the first study to examine adherence to these NICE guidelines in this population.
Citation: Advances in Mental Health and Intellectual Disabilities
PubDate: 2023-11-01
DOI: 10.1108/AMHID-07-2023-0022
Issue No: Vol. ahead-of-print, No. ahead-of-print (2023)
- Adherence to care and treatment review policy and impact on length of stay
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Authors: Lucy Jade Jones, Ceri Woodrow
Abstract: The purpose of this clinical audit was to review the adherence to the 2017 care and treatment review policy across two NHS assessment and treatment units. Care and treatment reviews should be offered to people with an intellectual disability and/or autism who are at risk of admission into a mental health hospital. Admission and discharge data was collected across two assessment and treatment units between January 2019 and December 2022. Adherence to the care and treatment review policy was also reviewed as was length of inpatient stay. A retrospective evaluation was conducted. Triangulation of data was collected via the trusts’ electronic patient record system and NHS analytics team. Descriptive statistics, Mann–Whitney U test and a one-way ANOVA with post hoc tests were used in the analysis. An increase in behaviours of challenge and deterioration of mental health were the main reasons for admission. Forty-nine percent (30) of those admitted to the assessment and treatment units accessed a care and treatment review. Care and treatment reviews were more frequently provided for individuals experiencing longer inpatient stays. There is limited evidence relating to outcomes and impact of care and treatment reviews. Further research is required to explore effectiveness of care and treatment reviews to understand benefits and appropriately prioritise resource.
Citation: Advances in Mental Health and Intellectual Disabilities
PubDate: 2023-10-24
DOI: 10.1108/AMHID-07-2023-0023
Issue No: Vol. ahead-of-print, No. ahead-of-print (2023)
- Universal Needs Based Resource Assessment (UNBRA) an objective approach to
evaluate resources needed to support people with intellectual disability
in an inpatient setting-
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Authors: Susanne Meddings, Mahesh Odiyoor, Holly Eick, Katie Kavanagh, Sujeet Jaydeokar
Abstract: There are no existing tools to capture resources needed to support people with intellectual disability in an inpatient setting on an individual patient basis. The purpose of this paper is to describe the development of a new tool called Universal Needs Based Resource Assessment (UNBRA). Using the Delphi method, focus groups were used to generate factors determining resource use. From these, themes were identified, a scoring system was created and the UNBRA tool was developed. This was piloted in two NHS inpatient units and modified following feedback. The UNBRA tool holistically assesses resource requirements of an individual with intellectual disability supported in an inpatient setting. It considers ten factors grouped into the six themes of staffing, indirect work, clinical/ multi-disciplinary work, incidents, carer link activity and discharge process. UNBRA scores allow intra- and interpersonal comparison as well as comparison between units and can support resource allocation and operational decision-making. To the best of the authors’ knowledge, there is no suitable existing tool to capture individual resource requirements of patients in intellectual inpatient settings. The development of the UNBRA tool fills this gap.
Citation: Advances in Mental Health and Intellectual Disabilities
PubDate: 2023-09-11
DOI: 10.1108/AMHID-05-2023-0015
Issue No: Vol. ahead-of-print, No. ahead-of-print (2023)
- A survey of therapists’ experience of ending therapy with people with
intellectual disabilities-
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Authors: Yasmine Dunn, S.J. (Ash) Summers, Dave Dagnan
Abstract: A range of adaptations and therapy processes have been explored in relation to therapy with people with intellectual disabilities; however, there remain a few areas of therapy practice that have not yet been considered in depth. This study aims to report the results of an online survey of the practice of therapists working with people with intellectual disabilities in managing endings in therapy. Thirty-one therapists working with people with intellectual disabilities responded to an online survey. The data were analysed using reflexive thematic analysis. Three superordinate themes were identified: Theme 1 was “preparing for a therapeutic ending” with subordinate themes of “planning early”, “providing boundaries” and “validating feelings”; Theme 2 was “providing a therapeutic ending”, with subordinate themes of “a collaborative decision” and “fostering growth”; and the third theme was “post-ending issues” in which participants acknowledged a “spectrum of emotion”, and, in the case of difficult endings, a sense of “unfinished business”. This is the first systematic exploration of therapy endings as described by therapists working with people with intellectual disabilities. The authors discuss implications for practice and further areas of research.
Citation: Advances in Mental Health and Intellectual Disabilities
PubDate: 2023-07-21
DOI: 10.1108/AMHID-04-2023-0012
Issue No: Vol. ahead-of-print, No. ahead-of-print (2023)
- The effectiveness of positive behaviour support in reducing challenging
behaviour and increasing quality of life for individuals with intellectual
disability-
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Authors: Katherine Dewey, Sean Evans, Sarah Horsley, Ellis Baker
Abstract: Intensive support teams (ISTs) are often poorly understood, despite reports of their effectiveness in managing behaviour that challenges for individuals with an intellectual disability. This paper aims to contribute to the understanding of ISTs through evaluating one IST’s process and their use of positive behaviour support (PBS) as an intervention. Participants were obtained from the ISTs discharge database, and pre- and post-intervention data from these participants was used for analysis. Three-paired sample t-tests found that there were significant differences between pre- and post-scores on the behaviour problem inventory, Health of the Nation Outcomes Scale for people with Learning Disabilities and periodic service reviews, which measure quality of targeted, individualised support. This indicates that challenging behaviour frequency and severity were lower post-intervention, quality of life improved post-intervention and staff teams implemented recommended strategies more consistently by the end of the intervention. This service evaluation captured data over seven-year period, which helps to contribute to the understanding of the effectiveness of ISTs and the PBS framework.
Citation: Advances in Mental Health and Intellectual Disabilities
PubDate: 2023-06-14
DOI: 10.1108/AMHID-03-2023-0007
Issue No: Vol. ahead-of-print, No. ahead-of-print (2023)
- Evaluating the use of videoconferencing for handover and MDT meetings
within an intensive support team-
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Authors: Elizabeth Megan Mehmet, Jason Lines
Abstract: This study aims to evaluate the use of videoconferencing when conducting multi-disciplinary team (MDT) and handover meetings within an NHS Adult Learning Disabilities Intensive Support Team (IST). The IST have been conducting MDT and handover meetings “virtually” since the start of the COVID-19 pandemic in March 2020, in line with government guidance. It is pertinent to evaluate the effectiveness of using videoconferencing, as the move to flexible, remote working is detailed within the NHS Long Term Plan. Participants were members of the IST. A mixed methods approach using an online questionnaire collected participant’s views relating to the use of videoconferencing when conducting MDT and handover meetings, in comparison to previous face-to-face meetings. The questionnaire considered five key areas: accessibility, environment and communication, organisation, continuation of care and data protection and confidentiality. Results were collated and analysed. Improvements were reported relating to accessibility, as the virtual format allowed for easier attendance, provided greater flexibility in attending and inviting key stakeholders. A reduced sense of team connectedness was reported, related to the virtual environment. The majority of participants reported that they wish to continue to have the option to attend meetings virtually in future. There are no previous papers evaluating the use of videoconferencing within ISTs during the COVID-19 pandemic. This study suggests that the use of videoconferencing to conduct MDT and handover meetings is effective within the IST and highlights points for consideration moving forward.
Citation: Advances in Mental Health and Intellectual Disabilities
PubDate: 2023-05-22
DOI: 10.1108/AMHID-04-2023-0013
Issue No: Vol. ahead-of-print, No. ahead-of-print (2023)
- Attachment, psychological health and interpersonal functioning: a
comparison of clinical and non-clinical groups of people with intellectual
disability-
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Authors: Lucy Bateman, Andrea Flood, Deanna Jayne Gallichan, Leonardo De Pascalis
Abstract: Insecure and unresolved attachments have been linked to poorer psychological health and interpersonal functioning for people with intellectual disabilities (IDs), but research in this area is limited, especially for adults. Studies using the Adult Attachment Projective (AAP) have been restricted to clinical samples, where insecure and unresolved attachments are typically more prevalent. The purpose of this study is to compare clinical and non-clinical groups of adults with IDs on the AAP, plus measures of psychological health and interpersonal functioning, to investigate whether group differences found in the typically developing population are also present for adults with IDs. A cross-sectional, between-group design was used. Adults with IDs (clinical group n = 11 and non-clinical group n = 13) completed measures of attachment, psychological distress/positive well-being and interpersonal functioning. Attachment classifications were compared in the clinical versus non-clinical groups. Measures of psychological distress, positive well-being and interpersonal functioning were compared between those with insecure-organised versus unresolved classifications. No participants were classified as secure, and there were high rates of unresolved attachment. There were no differences between clinical and non-clinical groups with regards to the distribution of insecure-organised (i.e. dismissing or preoccupied) versus unresolved classifications. There were no differences between groups with regards to psychological distress, positive well-being or interpersonal functioning. The authors consider limitations in the method of group differentiation and suggest further research to better understand the development of internal working models of attachment in this population. To the best of the authors’ knowledge, this study is one of only three to examine attachment state of mind in adults with IDs using the AAP and the first to examine differences between clinical and non-clinical groups.
Citation: Advances in Mental Health and Intellectual Disabilities
PubDate: 2023-05-17
DOI: 10.1108/AMHID-04-2023-0011
Issue No: Vol. ahead-of-print, No. ahead-of-print (2023)
- Eye movement desensitisation and reprocessing as a treatment for PTSD,
trauma, and trauma related symptoms in children with intellectual
disabilities: a general review-
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Authors: Chloe Louise Williamson, Kelly Rayner-Smith
Abstract: This paper aims to discuss the utility of eye movement desensitization and reprocessing (EMDR) therapy as a treatment for children with intellectual disabilities (ID) who have experienced trauma. Relevant National Institute for Health and Care Excellence (NICE) guidance and literature were reviewed to provide support for the use of EMDR as a treatment for trauma in children with ID. There is a growing body of evidence which demonstrates that EMDR therapy is successful for the treatment of trauma in adults and children. However, for children with ID, the research is limited despite those with ID being more likely than non-disabled peers to experience trauma such as abuse or neglect. EMDR can only be facilitated by trained mental health nurses, psychiatrists, psychologists (clinical, forensic, counselling or educational) or occupational therapists or social workers with additional training. Finally, general practitioners who are experienced in psychotherapy or psychological trauma and have accreditation. Therefore, this highlights that there may be a lack of trained staff to facilitate this intervention and that those who are generally working with the client closely and long term such as learning disability nurses are not able to conduct this intervention. This paper presents an account of NICE guidance and evidence of the efficacy of EMDR as a treatment for adults, children and those with ID.
Citation: Advances in Mental Health and Intellectual Disabilities
PubDate: 2023-05-10
DOI: 10.1108/AMHID-02-2023-0005
Issue No: Vol. ahead-of-print, No. ahead-of-print (2023)
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Hybrid journal (It can contain Open Access articles)
