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Sexuality and Disability
Journal Prestige (SJR): 0.477
Citation Impact (citeScore): 1
Number of Followers: 16  
 
  Hybrid Journal Hybrid journal (It can contain Open Access articles)
ISSN (Print) 1573-6717 - ISSN (Online) 0146-1044
Published by Springer-Verlag Homepage  [2469 journals]
  • Sexual and Reproductive Health Experiences, Knowledge and Associations: A
           Neglected Issue Among Adults with Spinal Cord Injury in Sri Lanka

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      Abstract: Abstract Sexual and reproductive health (SRH) of persons with spinal cord injury (SCI) is important yet less addressed in South Asia. We assessed their SRH related experiences, SRH knowledge and factors associated with such knowledge in Sri Lanka. A cross-sectional study was conducted among rehabilitated and community integrated SCI persons, identified through data sources maintained in the three main rehabilitation hospitals. A postal questionnaire retrieved information on SRH related experiences, problems faced and knowledge on improving SRH. Mean knowledge scores were compared to assess factors significantly associated with knowledge. Majority of the 159 respondents were males (89.3%) and injury at thoracic level (69.4%). After SCI, divorce/separation had been higher than in the general population; 67.1% felt sexual desire, which was consistent with higher frequency of sexual activity and the degree of sexual pleasure, but not with their confidence in satisfying partner, which was most likely due to urinary leakage and poor erection & ejaculation. Majority were unaware of the ability to reproduce (54.1%); on autonomic dysreflexia (87.4%) and management (96.2%); methods for improving erection (60.6–66.9%) and ejaculation (93.7%) in males; and vaginal lubrication in females (82.4%). Higher education, experiences in SRH and access to information were associated with good knowledge. Experiences as well as overall knowledge on SRH related to SCI were poor in Sri Lanka. Sexual education which appeared to influence their SRH knowledge, should be addressed through rehabilitation process.
      PubDate: 2022-09-06
       
  • The Effect of BETTER-Based Sex Counseling on Sexual Quality of Life in
           Infertile Women: a Randomized Controlled Clinical Trial

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      Abstract: Abstract The present research was performed to determine the effect of BETTER-based sex counseling on sexual quality of life in women with primary female infertility. This study is a randomized clinical trial performed on 80 infertile women. BETTER-based sex counseling was performed in the experimental group. A demographic questionnaire, female sexual function index, sexual quality of life-female questionnaire, and researcher-made sexual self-efficacy questionnaire were used to collect data. The control and test groups were evaluated for the mentioned variables in three times (baseline, 4 weeks, and 8 weeks after the intervention). The mean scores for sexual function, sexual self-efficacy, and marital-sexual satisfaction were significantly increased in the test groups four and eight weeks after intervention as compared to the baseline (P < .001). In the control group, these changes were significant only in sexual-marital satisfaction (P < .001). A significant difference statistically was observed between the test and control groups concerning outcome variables at four and eight week-time intervals (P < .001). The results indicate that BETTER-based sex counseling was efficient in the improvement of the sexual life of infertile women. Therefore, this study is recommended to be used in improving the sexual quality of life in women with primary female infertility.
      PubDate: 2022-09-01
       
  • Nurses and Midwives Role in Patient Sexual Health Assessment: A
           Cross-Sectional Study

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      Abstract: Abstract A cross-sectional exploratory study was conducted to assess nurses and midwives’ attitudes and beliefs towards addressing patients' sexual health. A convenient sample of 305 nurses and midwives (professionals and students) were recruited from University Hospitals in Lebanon. The Sexuality Attitude and Belief Survey (SABS) was used and data about barriers to sexual assessment, sexual education and sociodemographic characteristics were collected. The sample included nursing students, 30.1%, staff nurses, 61.2%, and midwives, 8.6%. The mean age was 26.8 years, and 83.7% were females. Only 28.4% of the total sample received sexual health education, and 12.5% reported taking patients' sexual history. The total SABS score was 48.4, which is relatively high. Most nurses and midwives (72.2%) stated that they do not spend time discussing patients' sexual concerns, viewing sexuality as 'too private an issue to discuss' (68.9%). In parallel, a minority had the belief that patients expect nurses to ask about their sexual concerns (32.7%) and felt confident in their abilities to address patients' sexual issues (30.3%). SABS score was significantly associated with the participants' gender, status, care unit, sexual health education and history taking. This study provided a preliminary appraisal of Lebanese nurses' and midwives' approaches towards patients' sexual health assessment and highlighted the obstacles that hinder appropriate sexual health practice. Based on the findings, there is a need for initiatives at the level of education and practice to develop nurses and midwives' competence and improve patient outcomes.
      PubDate: 2022-09-01
       
  • The Sexual and Emotional Life Experiences Reported by Brazilian Men with
           

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      Abstract: Abstract This study explored the sexual and emotional experiences of male patients with head and neck cancer. This study utilized a clinical-qualitative method. Twelve patients with head and neck cancer were recruited to participate in the research through in-depth semi-directed interviews with open-ended questions recorded. Data was collected at the radiotherapy of a Brazilian hospital. All patients demonstrated negative impacts on the dynamics of affective and sexual relationships caused by a serious disease. Data revealed that impacts mainly affect “The felt/lived body”, and “The affective-sexual body”. Requiring, then, an “Elaboration of the grief of the bodily and sexual changes”. Considering, evaluating and proposing care for a sexual and emotional aspects of patients with head and neck cancer is essential for the creation and implementation of comprehensive health measures, especially in terms of quality of life for patients.
      PubDate: 2022-09-01
       
  • Interventions on Sexuality for Adolescents with Autism Spectrum Disorder:
           A Systematic Review

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      Abstract: Abstract Sexuality and intimate relationships are topics of interest to adolescents and young adults with Autism Spectrum Disorder (ASD). Given their relative difficulties to the social dimension, several intervention programs have been developed to meet this demand, but the complexity of the reality experienced by these young people limits the effectiveness of these intervention programs. To find the effects of different intervention programs to influence the development of sexuality and sexual health of adolescents with ASD and determine the impact of these interventions on the parents, through a systematic review. Literature review conducted on November 27, 2019 in the psycINFO, Pubmed, web of science and CINAHL databases. Intervention programs consisting solely of teaching sessions improve the knowledge of the youth. However, when they also included a direct approach or homework, behavioral effects were also observable. Parent-focused intervention programs resulted in a slight increase in parents’ comfort level and ability to interact well with their youth. Intervention programs targeting school-based workers appear to have a limited effect, having good concrete results with youth for some workers and no results for others, while intervention programs targeting health professionals have no conclusive results. The results of the literature review are not very transferable to practice because of the low level of evidence in the articles included, however, they offer an interesting starting point. Further research is needed to equip health professionals to intervene in sexuality after youth with ASD.
      PubDate: 2022-09-01
       
  • A Survey of Latin American Rehabilitation Professionals on Addressing
           Sexuality-Related Concerns After Spinal Cord Injury

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      Abstract: Abstract To examine rehabilitation professionals’ training and education, attitudes, beliefs or misconceptions, and assessment of issues related to sexuality in individuals with Spinal Cord Injury (SCI) and their romantic partners. 318 healthcare professionals from Latin America (LA) who worked with individuals with SCI completed an online survey. 99.0% affirmed that sexuality is an issue that should be addressed during the rehabilitation of people with SCI. 86.0% reported being asked questions about sexuality after SCI by their patients and/or their partners, but only 33.2% of the professionals affirmed that it was very likely for them to initiate a conversation about the topic. Only 35.4% reported discussing sexuality issues with patients and their partners as a regular practice; further, 61.5% of the sample reported not being prepared at a scientific, therapeutic, and/or educational level to be able to advise people with SCI in the area of sexuality. 95.9% indicated they would be interested in attending courses, seminars, or conferences tailored to the topic of sexuality after SCI. Participants agreed nearly unanimously (96.8%) that it would be easier to discuss sexuality with people with SCI and their partners if they had more training on this topic, which they believed should have been received during their undergraduate (63.5%) and advanced (34.9%) studies. Findings provide insight into the way sexuality is addressed and attended to in the field of rehabilitation in LA and inform initiatives to improve the provision of care in the realm of sexuality for individuals after SCI.
      PubDate: 2022-09-01
       
  • The Impact of Mindfulness Therapy on Sexual Satisfaction in Couples Living
           with Neurological Disabilities: A Phenomenological Analysis of a Single
           Case

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      Abstract: Abstract Research regarding sexuality following neurological disabilities has focused on either men or women separately, without considering couples and how intimate relationships may be influenced. The purpose of this case study was to investigate the effects of a modified 8-week mindfulness intervention on sexual satisfaction in a couple where one partner was living with Multiple Sclerosis (MS). One couple with the female living with relapsing remitting MS and an able-bodied male participated in the study. The mindfulness intervention was administered to the couple via a booklet and the mindfulness exercises were explained verbally after the baseline interview. The booklet contained a total of eight mindfulness-based exercises for each week of the intervention. The mindfulness exercises from week one to week five were to be completed individually while Sensate Focus exercises from week six to eight were completed as a couple. The exercises were carried out by the couple at home. In addition, the intervention included a psycho-education session at week five of the intervention. Data was collected through an in-depth phenomenological interview of the couple, conducted at baseline and following the completion of the 8-week intervention. The couple reported an improvement in communication, understanding, and awareness. Sensate Focus exercises enhanced intimacy between the couple. The findings of this study show promise for mindfulness-based therapies to enhance sexual satisfaction in couples living with neurological disabilities.
      PubDate: 2022-09-01
       
  • Marital Satisfaction and Sexual Quality of Life of Patients with
           Amyotrophic Lateral Sclerosis (ALS)

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      Abstract: Abstract Sexuality is among the subjects that individuals diagnosed with ALS do not talk about. Focusing on the physical problems caused by the disease, condemnation, and contempt for the sexuality of the sick individual may prevent the patient from expressing one’s wishes and problems. The fact that the quality of sexual life can affect marital satisfaction is a widely accepted topic. This study was conducted to determine the relationship between sexual quality of life and marital satisfaction in individuals diagnosed with ALS. Fifty-two individuals diagnosed with ALS were included in this descriptive cross-sectional study. The patients’ SQLQ (Sexual Quality of Life Questionnaire) scores were low and Marriage Satisfaction Scores (MSS) were moderate. A statistically significant negative correlation was found between the Sexual Life Quality Questionnaire (SQLQ) and age and marital satisfaction self sub-dimension. Health professionals should consider the sexuality dimension in patient care treatment and include sexual rehabilitation in their treatment plans.
      PubDate: 2022-08-29
       
  • Healthcare Professionals' Perspectives on Integrating Reproductive and
           Acute Mental Healthcare

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      Abstract: Abstract Objective: Access to trauma-informed sexual and reproductive health services (SRHS) among persons with mental illness (MI) is inadequate and may contribute to health disparities among this population. This qualitative study investigated health professionals' perspectives of SRHS delivery to patients receiving care at a behavioral health hospital. Methods: Semi-structured interviews were conducted in a convenience sample of 26 mental health professionals recruited from one behavioral health hospital. Interviews assessed participants' perceptions of current SRHS offerings, barriers, and opportunities to implement patient-centered SRHS at the hospital. A constant comparison thematic analysis was employed. Results: Participants noted patients' overlapping sexual and reproductive health (SRH) and mental health needs. Most participants indicated clinical responsibility to address these needs. However, participants stated they infrequently provided SRHS because of structural barriers within the healthcare system. Barriers included a lack of hospital policy and health professional education on SRH. Some participants who navigated around these barriers reported using an existing SRH screening tool. Conclusions: Patients receiving care at this behavioral health hospital have unmet SRHS needs. This lack of care may undermine the health of patients with MI. Addressing system level gaps requires clinical re-prioritization. Promising approaches to address this gap include reverse-integrated care models and improved SRHS training of health professionals.
      PubDate: 2022-08-22
       
  • From the Editor of Sexuality and Disability: Reflection

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      PubDate: 2022-08-09
       
  • Sexuality Support After Spinal Cord Injury: What is Provided in Australian
           Practice Settings'

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      Abstract: Abstract This study sought to understand what sexuality support Australian health professionals currently provide to people with spinal cord injury (SCI) and their perspectives on what changes may better support the sexuality needs of people with SCI. Australian Health professionals who had worked with people with SCI within the last 10 years were invited to participate in an online survey. Results were analyzed using content analysis and descriptive statistics. The 39 participants were from a range of health professions including medical, allied health, nursing, and peer support. Participants worked in various service settings, with the highest frequency in the community (33%) or inpatient rehabilitation (28%). Analysis indicated 85% of participants had provided sexuality support, however this provision was rarely routine. Discussing sexuality education topics were reported to be routinely provided for less than 16% of participants. Overall, 32% of participants felt sexuality was addressed ‘not well at all’ in their workplace. Qualitative analysis of open-ended responses produced five themes: barriers to supporting sexuality, health professionals require training, utilizing a team approach, responsibility to initiate conversation, and involving others in support. Barriers to provision included stigma and lack of education. Commonly suggested strategies to improve practice included: increasing sexuality training, utilizing a team approach, initiating the conversation of sexuality early, and consensual inclusion of significant others in sexuality support. The results therefore indicate sexuality support is not routinely provided to people with SCI and findings suggest a need for sexuality training, utilizing a team approach, initiating the conversation, and including significant others.
      PubDate: 2022-08-06
       
  • Professional Educational Opportunities

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      PubDate: 2022-08-04
       
  • Dating in the Digital Age: A Content Analysis of Dating Websites Designed
           for Disabled People

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      Abstract: Abstract In our current collective sexual sphere, a range of digital sexual fields, such as mobile applications and dating websites, provide new opportunities for sexual actors to meet partners, negotiate their self-presentation, and explore niche desires. This exploratory qualitative study examines online dating websites catered to disabled people to understand the language and imagery employed in these niche sexual fields. Drawing on a sexual fields framework (Green, 2014), this article analyzed 26 dating websites through a content analysis. Websites emphasized the narrative of disabled people overcoming isolation and accessibility barriers. Many websites also promoted the idea that their platform eased the uncomfortable task of disclosing one’s impairment and would improve their overall quality of life. Digital sexual fields can be vital for these individuals who often face social isolation and inaccessibility. We provide insights into how disability is constructed through language in disability-focused dating websites. These websites (re)produce particular (and sometimes dominant) conceptualizations of disability. This is important as language and images used in digital sexual fields can impact constructions of disabled sexualities.
      PubDate: 2022-08-03
       
  • A Pictorial Sexual Knowledge Scale for Male High School Students with
           Intellectual Disabilities in Taiwan

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      Abstract: Abstract The aim of this study was to develop a pictorial scale for use in assessing the sexual knowledge of male high school students with intellectual disabilities studying at special education schools in Taiwan. A pictorial scale with 40 multiple-choice items was developed to assess the participants' relevant knowledge. Each item consisted of a written question and corresponding illustrations. A total of 181 male high school students in Taiwan participated in the study. Construct validity using exploratory factor analysis generated 26 items formatted into six subscales: puberty and physiology, body boundaries, proper touching, proper relationships, sexually transmitted diseases, and sex and the law. The variance explained for the six subscales was between 6.93 and 11.34%, and the variance explained for the whole scale was 53.99%. The reliability of Cronbach’s alpha was between .58 and .78, and the whole scale’s alpha value was .87. The participants demonstrated a relatively high level of knowledge on the body boundaries and proper relationships subscales, followed in descending order by proper touching, sex and the law, puberty and physiology, and sexually transmitted diseases.Please check and confirm that the authors and their respective affiliations have been correctly identified and amend if necessary.Yes, I confirm that the author and affiliation have been correctly identified.
      PubDate: 2022-08-01
       
  • The development of a social-sexual education program for adults with
           neurodevelopmental disabilities: starting the discussion

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      Abstract: Abstract People with neurodevelopmental disabilities, including intellectual disabilities and autism, want to have relationships but few are given the tools and opportunity to create those relationships in a safe and meaningful way. This strong desire to have relationships, coupled with reduced access to information, puts people with neurodevelopmental disabilities at high risk for being targets of sexual abuse and exploitation, as well as demonstrating social-sexual behavior that is unexpected or offensive to others. Research has long demonstrated that people with intellectual disabilities are sexually assaulted at much higher rates than the general population. In addition, it is common for people with intellectual disabilities and autism to miss out on employment, housing, and social opportunities due to unexpected social-sexual behaviors. To address this need, the research team developed the social-sexual education (SSE) program to teach people with neurodevelopmental disabilities how to create safe and meaningful relationships while also giving them information about sexual abuse and coercion. We recruited licensed professionals to pilot test the SSE program, and then we evaluated the tool using quantitative and qualitative methods. Our findings provide preliminary support for the SSE program. Implications and future directions are discussed.
      PubDate: 2022-07-06
      DOI: 10.1007/s11195-022-09743-1
       
  • Peer Educators in the Facilitation of Sexuality and Respectful
           Relationship Education for People with an Intellectual Disability: A
           Scoping Review and Narrative Synthesis

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      Abstract: Abstract A scoping review was conducted to identify how peer-education models are being used in sexuality and respectful relationship education for people with a disability. The search was conducted in August 2021 using the Joanna Briggs framework to scope and map the literature and research activity. Using strict criteria, 7 online databases, grey literature and reference lists were searched for resources written or published in the last 15 years (2006–2021). Relevant sources were shortlisted and assessed by the two authors. Six sources met the criteria for inclusion in this review. In total, four educational programs are described and discussed. The results identify four sexuality and respectful relationship programs that met screening criteria: (1) “Telling it like it is!”, (2) “Sexual Lives and Respectful Relationships”, (3) “Talking about sex and relationships: the views of young people with learning disabilities”, and (4) “Health, Safety & Sexuality Training for You & Me”. Peer-educators experienced increased confidence and feelings of empowerment, while people without an intellectual disability reported a greater understanding of the challenges and experiences of people with a disability. The use of peer educators to deliver sexuality and respectful relationship education for people with intellectual disability is a promising education model with multiple potential benefits for participants. However, more research is needed to understand the consequences and limitations of such programs.
      PubDate: 2022-07-05
      DOI: 10.1007/s11195-022-09740-4
       
  • Relationship between the symptoms of COPD and the quality of sexual life

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      Abstract: Objective This study was conducted to assess the relationship between the symptoms experienced by women with COPD and the quality of their sexual life. Method This study was designed as a descriptive cross-sectional study. The study was conducted at a hospital’s chest diseases clinic located in the western of Turkey. The sample comprises 62 female patients hospitalized with diagnosis of COPD. A questionnaire form, the Medical Research Council Scale (MRCS), the COPD Assessment Test (CAT) and the Sexual Quality of Life-Female (SQOL-F) applied to the women with COPD. Frequency, percentage, mean, standard deviation, Kruskal Wallis test, Mann-Whitney U Test, correlation and regression analysis, were used for the data analysis process. Findings The decrease in the education level of the participants who have any accompanying chronic disease, and experience symptoms during sexual intercourse negatively affects their quality of sexual life. The quality of sexual life decreases as age, duration of marriage and duration of illness increase (p < 0.05). The results of the linear regression analysis carried out to predict the quality of sexual life of women with COPD shown that the increase in mMRC and CAT significantly decreased the quality of sexual life. These variables explain 58% of the variance. Conclusions The result of the study shown the sexual quality of life of women with COPD was impaired and COPD symptoms affect them.
      PubDate: 2022-07-04
      DOI: 10.1007/s11195-022-09744-0
       
  • Sexual Experiences of Individuals with Spinal Cord Injury: The
           Somatic-Sexual Transition Framework

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      Abstract: Abstract This qualitative study uses interpretive phenomenology to explain the sexual experiences of individuals with spinal cord injury in Catalonia (Spain). Data was collected using semi-structured interviews and analyzed simultaneously using Colaizzi’s method. Nine adults with spinal cord injury (seven men and two women) were selected through convenience and snowball sampling. Findings show that the sexual experiences of these individuals were understood using a model that emerged from this study -The Somatic-Sexual Transition- a framework comprising five stages: body disengagement, body frustration, body re-engagement, somatic resilience, and sexual autonomy. These identified stages allow healthcare professionals to better understand the sexuality of individuals with spinal cord injury while also highlighting the importance of up-to-date sex education during the rehabilitation process.
      PubDate: 2022-07-04
      DOI: 10.1007/s11195-022-09745-z
       
  • The Effect of Foot Reflexology on the Quality of Sexual Life in
           Hemodialysis Patients: A Randomized Controlled Clinical Trial

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      Abstract: Abstract Sexual problems of hemodialysis patients are one of the most significant factors affecting their quality of life and families. On the other hand, an essential part of the quality of life is the quality of sexual life and sexual dysfunction that will affect people's perception of the quality of sexual life. Reflexology massage is one of the complementary and alternative therapies combined with conventional medical treatments to reduce disease and treat its complications. This study aimed to determine the effect of foot reflexology on hemodialysis patients' quality of sexual life. This was a parallel randomized sham-controlled trial which conducted in hemodialysis center of Imam Reza (AS) Hospital in Sirjan, Iran. Forty-seven patients under hemodialysis were divided into two groups of foot reflexology (n = 24) and sham (n = 23) using block randomization method. The intervention group received foot reflexology treatment during dialysis for 4 weeks, 3 times a week, 30 min each time (15 min per foot). In the sham group, non-specific foot massage was conducted without squeezing the standard points of reflexology with the same conditions and duration as the intervention group. Quality of sexual life was assessed using female sexual quality of life questionnaire (SQOL-F) and male sexual quality of life questionnaire (SQOL-M) before the intervention, immediately, and one month after the intervention. The results showed that the quality of sexual life of participants in the reflexology group immediately after the intervention (69.74) was significantly higher than before (47.73) and one month after the intervention (52.27). There was no significant difference in the average quality of sexual life of participants in the sham group at different times (before intervention 46.67, immediately after intervention 45.66, and 1 month after intervention 48.18). Immediately after the reflexology intervention, the quality of sexual life was significantly higher than in the sham group (p < 0.001). This study highlights the potential benefit from reflexology in improving the quality of sexual life in patients undergoing hemodialysis. Trial registration IRCT20200712048085N1. Registered 15 July 2020, https://en.irct.ir/trial/49604
      PubDate: 2022-06-29
      DOI: 10.1007/s11195-022-09747-x
       
  • Effectiveness of Sexual Counseling Using BETTER Model to Promote Sexual
           Function and Satisfaction of Married Women with Multiple Sclerosis

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      Abstract: Abstract Sexual dysfunction is a common concern in women with multiple sclerosis (MS). This study aims to assess the effect of counseling based on the BETTER model (Bring up, Explain, Tell resources, Time, Educate, and Record) on sexual function and satisfaction in married women with MS. This randomized clinical trial included 72 married women between the ages of 18–49 years from the MS Society of Iran. The data were collected using a socio-demographic questionnaire, Female Sexual Function Index (FSFI) and the Index of Sexual Satisfaction (ISS) at three points in time. The intervention involved the use of the BETTER model-based counseling approach with married women during four weekly sessions. The control group received routine care. The results of the analysis showed that the mean of FSFI for the women in the intervention group improved at 8 and 12 weeks after the counseling compared to the control group (p < 0.001). However, a significant difference was not observed between the mean score of ISS among the women in the intervention group compared to the control group (p = 0.06). These results suggest that intervention based on the BETTER model counseling can significantly improve the sexual function of married women with MS. However, in order to improve the sexual satisfaction of these women multidisciplinary interventions are also recommended.
      PubDate: 2022-06-10
      DOI: 10.1007/s11195-022-09746-y
       
 
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