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  Subjects -> DISABILITY (Total: 103 journals)
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Sexuality and Disability
Journal Prestige (SJR): 0.477
Citation Impact (citeScore): 1
Number of Followers: 17  
 
  Hybrid Journal Hybrid journal (It can contain Open Access articles)
ISSN (Print) 1573-6717 - ISSN (Online) 0146-1044
Published by Springer-Verlag Homepage  [2467 journals]
  • Marital Satisfaction and Sexual Quality of Life of Patients with
           Amyotrophic Lateral Sclerosis (ALS)

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      Abstract: Abstract Sexuality is among the subjects that individuals diagnosed with ALS do not talk about. Focusing on the physical problems caused by the disease, condemnation, and contempt for the sexuality of the sick individual may prevent the patient from expressing one’s wishes and problems. The fact that the quality of sexual life can affect marital satisfaction is a widely accepted topic. This study was conducted to determine the relationship between sexual quality of life and marital satisfaction in individuals diagnosed with ALS. Fifty-two individuals diagnosed with ALS were included in this descriptive cross-sectional study. The patients’ SQLQ (Sexual Quality of Life Questionnaire) scores were low and Marriage Satisfaction Scores (MSS) were moderate. A statistically significant negative correlation was found between the Sexual Life Quality Questionnaire (SQLQ) and age and marital satisfaction self sub-dimension. Health professionals should consider the sexuality dimension in patient care treatment and include sexual rehabilitation in their treatment plans.
      PubDate: 2022-12-01
       
  • The Role of Healthcare Professionals in Providing Sexuality Education to
           Young People with Disabilities: A Scoping Review on Barriers and
           Challenges

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      Abstract: Abstract While sexuality education is vital in supporting their sexual development, young people with disabilities experience specific barriers to accessing information related to sexuality. There are also indications that young people with disabilities have more unplanned pregnancies and STIs (sexually transmitted infections) and are more often victim of sexual violence. Further, sexuality education is often insufficiently adapted to their disability and/or level of development. In this review, we first investigate whether young people with disabilities are receiving sexuality education from healthcare professionals. Subsequently, we explore the barriers for young people with disabilities to receive sexuality education in healthcare settings and the challenges that healthcare professionals experience in discussing sexuality with young people with disabilities. In order to answer these questions, we conducted a scoping literature review following the PRISMA guidelines. A substantial amount of young people with disabilities never received any form of sexuality education by healthcare professionals, and when they did get information, it often did not meet their expectations. Four main barriers were described for young people with disabilities related to receiving sexuality education from healthcare professionals. From the healthcare professional's perspective, seven challenges were identified. In order to meet those challenges, it is necessary to gain a further picture through a larger sample. More insight in which interventions could support healthcare professionals, can be gained by performing further research within this matter.
      PubDate: 2022-12-01
       
  • The Sexual Health Needs of People with IDD: Considerations for Support
           Professionals and Administrators

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      Abstract: Abstract Disability providers serve an important role in supporting the socio-sexual health and enabling the associated opportunities of individuals with intellectual and developmental disabilities (IDD). This study examined disability providers’ previous training, perceptions of barriers, and training needs to support the sexual well-being of individuals with IDD. In total, 263 disability professionals in Alaska, Kentucky, and Wyoming completed online surveys. Nearly all providers endorsed that people with IDD need training and support for sexual health. However, almost a third had not received training to address people’s sexual health. Further, less than half of professionals had received any training from their agencies. The highest-rated barrier across all providers involved insufficient training. Professionals’ perceptions of barriers differed based on whether they had received training for a given topic, with those who had received training rating the barrier as lower. In considering what topics should be included in trainings for staff, a majority of providers endorsed all topics included by the authors. Some associations were detected between whether providers desired certain training topics and their agreement with specific barriers. Providers’ responses highlight the pressing need for policy and training to support the sexual rights and autonomy of people with IDD. Specific recommendations for training content and format are provided.
      PubDate: 2022-12-01
       
  • Healthcare Professionals' Perspectives on Integrating Reproductive and
           Acute Mental Healthcare

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      Abstract: Abstract Objective: Access to trauma-informed sexual and reproductive health services (SRHS) among persons with mental illness (MI) is inadequate and may contribute to health disparities among this population. This qualitative study investigated health professionals' perspectives of SRHS delivery to patients receiving care at a behavioral health hospital. Methods: Semi-structured interviews were conducted in a convenience sample of 26 mental health professionals recruited from one behavioral health hospital. Interviews assessed participants' perceptions of current SRHS offerings, barriers, and opportunities to implement patient-centered SRHS at the hospital. A constant comparison thematic analysis was employed. Results: Participants noted patients' overlapping sexual and reproductive health (SRH) and mental health needs. Most participants indicated clinical responsibility to address these needs. However, participants stated they infrequently provided SRHS because of structural barriers within the healthcare system. Barriers included a lack of hospital policy and health professional education on SRH. Some participants who navigated around these barriers reported using an existing SRH screening tool. Conclusions: Patients receiving care at this behavioral health hospital have unmet SRHS needs. This lack of care may undermine the health of patients with MI. Addressing system level gaps requires clinical re-prioritization. Promising approaches to address this gap include reverse-integrated care models and improved SRHS training of health professionals.
      PubDate: 2022-12-01
       
  • The Sexual Lives of Women Living with Fibromyalgia: A Qualitative Study

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      Abstract: Abstract This study examined women’s perceptions of the impact of FM on a broad range of aspects of their sexual well-being as well as on their romantic and sexual relationship. Participants were 16 women diagnosed with FM currently in a romantic relationship living in North America who participated in a semi-structured interview. Inductive thematic analysis identified four themes: (1) Do I want to have sex' That’s a complicated question; (2) The impact of FM on women’s sexual well-being is not uniform; (3) It’s about more than sex and more than just me; (4) Elements that ameliorate or exacerbate the effect of FM’s on SWB. Together, these results point to the variability and complexity of the effects of FM on women’s sexual well-being. The results are discussed in terms of the importance of assessing and addressing a wide range of aspects of the SWB of women with FM.
      PubDate: 2022-12-01
       
  • Sexual Quality of life, Depression, and Anxiety Symptoms in Women
           Candidates for Social Egg Freezing

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      Abstract: Abstract Depression and anxiety are two phenomena that affect quality of life as well as sexual function. In this study we aimed to investigate the correlation between quality of sexual life in women candidates for Social egg freezing (SEF) and their depression and anxiety symptoms and to our knowledge, this relation has not yet been fully explored. We surveyed 166 women seeking SEF and asked them to fill out the Sexual quality of life questionnaire Female (SQOL-F), with four subscales: Psychosexual Feelings, Sexual and Relationship Satisfaction, Self-worth-lessness, and Sexual Repression, and the Hospital Anxiety and Depression Scale (HADS). We found that psychosexual feelings and sexual repression were negatively associated with anxiety (r=-0.304 and r= -0.174, respectively) and depression (r=-0.255 and r= -0.237, respectively). There was also statistically negatively significant correlation between HADS-D score and self-worthlessness (r= -0.231, p = 0.002). The SQOL-F total score and HADS-A or HADS-D scores showed low yet negatively significant correlations (r= -0.197 and r=-0.236). Participants who considered virginity to be important in their life, had reportedly lower mean score of the SQOL-F than others (p = 0.020). In contrast, opponents, who did not consider virginity to be of importance in life, declared lower mean scores of anxiety and depression than others. We concluded that women seeking SEF exhibited a satisfactory level of SQOL, and low magnitude of depression and anxiety symptoms. We discovered inverse relationship between two domains “psychosexual feelings” and “sexual repression” with anxiety and depression. Participants who believed that virginity must be preserved until after marriage also claimed that they had suffered mentally more than others from sexual repression. Whereas, the other group of women who did not have this conviction, were faced with less anxiety and depression than proponents i.e. believers in having a chaste life.
      PubDate: 2022-11-02
       
  • From the Editor of Sexuality and Disability: The Journey Continues

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      PubDate: 2022-10-31
       
  • Sex Education Needs of Japanese People with Spina Bifida: Relation to
           Participants’ Demographics

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      Abstract: Abstract The purpose of this study was to determine the sex education needs of people with spina bifida through their responses to a questionnaire. The questionnaire was disseminated to people with spina bifida between the ages of 18 and 40 years. Of the 436 questionnaires distributed, we received 48 valid responses (11.0%). The questionnaire included items related to demographic characteristics and preferences regarding the content of sex education. Twenty-two options were created to ascertain the desired content of sex education. These items were classified into the eight key concepts (KCs) specified by the International Technical Guidelines for Sexuality Education. T-tests were conducted for the eight KCs and gender, age, diagnosis, presence of hydrocephalus, physical function, and dating experience. Overall, most participants wanted to be educated on “KC1 Relationships” and “KC4 Violence and Staying Safe.” Participants under 30 years of age wanted to be educated on “KC6 The Human Body and Development.” Participants diagnosed with spina bifida aperta and those who used diapers/pads preferred to be educated on “KC2 Values, Rights, Culture, and Sexuality” and “KC3 Understanding Gender.” Those who had been in a relationship preferred education in “KC3 Understanding Gender,” “KC5 Skills for Health and Well-being,” and “KC8 Sexual and Reproductive Health.” Considering these results, we should enhance sex education for people with spina bifida.
      PubDate: 2022-10-27
       
  • Professional Educational Opportunities

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      PubDate: 2022-10-26
       
  • Educational needs, motives and experiences of sex care workers for people
           with disabilities in the Netherlands

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      Abstract: Abstract In some countries, personal assistants may facilitate sexual engagement of people with disabilities. A specific form of facilitating sexuality are services that offer paid sex with sex care workers. In the Netherlands, there is no training available for sex care workers. To provide input for such training, this study examined sex care workers’ (perceived importance of) knowledge about sexuality and relevant aspects of sex care, their educational needs, motives for becoming a sex care worker, and experiences. An online survey was completed by 29 sex care workers (response rate 52%). The sex care workers expressed high importance of knowledge and generally reported good, but slightly lower current knowledge levels on these aspects. Educational needs included both general and disability-related sexuality and sexual problems and how to deal with problem behaviors and/or emotional disinhibition. Some participants indicated that learning how to prevent physical strain was important. The importance of setting boundaries was reported. Overall, participants experienced little stigma, although few reported negative experiences. Important motives for sex care work included the lack of attention to sexuality support for clients with disabilities and wanting to contribute to clients’ sexual citizenship. The formulated educational needs may be helpful in the development of such training. In addition to knowledge and practical skills, the training should pay attention to discovering and setting boundaries, providing a safe space for reflection on one’s own body experience and ethics, as well as considering the clients’ perspectives.
      PubDate: 2022-10-26
       
  • Experience of Recently Graduated Occupational Therapists in Addressing
           Sexuality with Their Clients

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      Abstract: Abstract Health care consumers have emphasised the importance of being able to express themselves in a sexual nature, regardless of their health conditions. Unfortunately, literature based on experienced occupational therapists and students, indicates sexuality is poorly addressed, despite being a meaningful occupation. There is limited literature based on Australian experiences or the experiences of recent graduates, therefore this study aimed to explore how comfortable and prepared 11 recent graduates who studied in Australia, were in addressing sexuality, as well as the enablers and challenges experienced. A qualitative research design was utilized, with results demonstrating that undergraduate curricula are not adequately preparing new graduates to feel equipped with the knowledge, skills, comfort and preparedness to address sexuality. Enablers such as education, professional development and supportive workplaces, can aid to facilitate positive change in this area of practice, which may improve client outcomes.
      PubDate: 2022-10-19
       
  • Sexual and Reproductive Health Experiences, Knowledge and Associations: A
           Neglected Issue Among Adults with Spinal Cord Injury in Sri Lanka

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      Abstract: Abstract Sexual and reproductive health (SRH) of persons with spinal cord injury (SCI) is important yet less addressed in South Asia. We assessed their SRH related experiences, SRH knowledge and factors associated with such knowledge in Sri Lanka. A cross-sectional study was conducted among rehabilitated and community integrated SCI persons, identified through data sources maintained in the three main rehabilitation hospitals. A postal questionnaire retrieved information on SRH related experiences, problems faced and knowledge on improving SRH. Mean knowledge scores were compared to assess factors significantly associated with knowledge. Majority of the 159 respondents were males (89.3%) and injury at thoracic level (69.4%). After SCI, divorce/separation had been higher than in the general population; 67.1% felt sexual desire, which was consistent with higher frequency of sexual activity and the degree of sexual pleasure, but not with their confidence in satisfying partner, which was most likely due to urinary leakage and poor erection & ejaculation. Majority were unaware of the ability to reproduce (54.1%); on autonomic dysreflexia (87.4%) and management (96.2%); methods for improving erection (60.6–66.9%) and ejaculation (93.7%) in males; and vaginal lubrication in females (82.4%). Higher education, experiences in SRH and access to information were associated with good knowledge. Experiences as well as overall knowledge on SRH related to SCI were poor in Sri Lanka. Sexual education which appeared to influence their SRH knowledge, should be addressed through rehabilitation process.
      PubDate: 2022-09-06
      DOI: 10.1007/s11195-022-09758-8
       
  • The Effect of BETTER-Based Sex Counseling on Sexual Quality of Life in
           Infertile Women: a Randomized Controlled Clinical Trial

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      Abstract: Abstract The present research was performed to determine the effect of BETTER-based sex counseling on sexual quality of life in women with primary female infertility. This study is a randomized clinical trial performed on 80 infertile women. BETTER-based sex counseling was performed in the experimental group. A demographic questionnaire, female sexual function index, sexual quality of life-female questionnaire, and researcher-made sexual self-efficacy questionnaire were used to collect data. The control and test groups were evaluated for the mentioned variables in three times (baseline, 4 weeks, and 8 weeks after the intervention). The mean scores for sexual function, sexual self-efficacy, and marital-sexual satisfaction were significantly increased in the test groups four and eight weeks after intervention as compared to the baseline (P < .001). In the control group, these changes were significant only in sexual-marital satisfaction (P < .001). A significant difference statistically was observed between the test and control groups concerning outcome variables at four and eight week-time intervals (P < .001). The results indicate that BETTER-based sex counseling was efficient in the improvement of the sexual life of infertile women. Therefore, this study is recommended to be used in improving the sexual quality of life in women with primary female infertility.
      PubDate: 2022-09-01
      DOI: 10.1007/s11195-022-09759-7
       
  • Nurses and Midwives Role in Patient Sexual Health Assessment: A
           Cross-Sectional Study

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      Abstract: Abstract A cross-sectional exploratory study was conducted to assess nurses and midwives’ attitudes and beliefs towards addressing patients' sexual health. A convenient sample of 305 nurses and midwives (professionals and students) were recruited from University Hospitals in Lebanon. The Sexuality Attitude and Belief Survey (SABS) was used and data about barriers to sexual assessment, sexual education and sociodemographic characteristics were collected. The sample included nursing students, 30.1%, staff nurses, 61.2%, and midwives, 8.6%. The mean age was 26.8 years, and 83.7% were females. Only 28.4% of the total sample received sexual health education, and 12.5% reported taking patients' sexual history. The total SABS score was 48.4, which is relatively high. Most nurses and midwives (72.2%) stated that they do not spend time discussing patients' sexual concerns, viewing sexuality as 'too private an issue to discuss' (68.9%). In parallel, a minority had the belief that patients expect nurses to ask about their sexual concerns (32.7%) and felt confident in their abilities to address patients' sexual issues (30.3%). SABS score was significantly associated with the participants' gender, status, care unit, sexual health education and history taking. This study provided a preliminary appraisal of Lebanese nurses' and midwives' approaches towards patients' sexual health assessment and highlighted the obstacles that hinder appropriate sexual health practice. Based on the findings, there is a need for initiatives at the level of education and practice to develop nurses and midwives' competence and improve patient outcomes.
      PubDate: 2022-09-01
      DOI: 10.1007/s11195-022-09739-x
       
  • The Sexual and Emotional Life Experiences Reported by Brazilian Men with
           

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      Abstract: Abstract This study explored the sexual and emotional experiences of male patients with head and neck cancer. This study utilized a clinical-qualitative method. Twelve patients with head and neck cancer were recruited to participate in the research through in-depth semi-directed interviews with open-ended questions recorded. Data was collected at the radiotherapy of a Brazilian hospital. All patients demonstrated negative impacts on the dynamics of affective and sexual relationships caused by a serious disease. Data revealed that impacts mainly affect “The felt/lived body”, and “The affective-sexual body”. Requiring, then, an “Elaboration of the grief of the bodily and sexual changes”. Considering, evaluating and proposing care for a sexual and emotional aspects of patients with head and neck cancer is essential for the creation and implementation of comprehensive health measures, especially in terms of quality of life for patients.
      PubDate: 2022-09-01
      DOI: 10.1007/s11195-022-09732-4
       
  • From the Editor of Sexuality and Disability: Reflection

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      PubDate: 2022-08-09
      DOI: 10.1007/s11195-022-09752-0
       
  • Professional Educational Opportunities

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      PubDate: 2022-08-04
      DOI: 10.1007/s11195-022-09753-z
       
  • Dating in the Digital Age: A Content Analysis of Dating Websites Designed
           for Disabled People

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      Abstract: Abstract In our current collective sexual sphere, a range of digital sexual fields, such as mobile applications and dating websites, provide new opportunities for sexual actors to meet partners, negotiate their self-presentation, and explore niche desires. This exploratory qualitative study examines online dating websites catered to disabled people to understand the language and imagery employed in these niche sexual fields. Drawing on a sexual fields framework (Green, 2014), this article analyzed 26 dating websites through a content analysis. Websites emphasized the narrative of disabled people overcoming isolation and accessibility barriers. Many websites also promoted the idea that their platform eased the uncomfortable task of disclosing one’s impairment and would improve their overall quality of life. Digital sexual fields can be vital for these individuals who often face social isolation and inaccessibility. We provide insights into how disability is constructed through language in disability-focused dating websites. These websites (re)produce particular (and sometimes dominant) conceptualizations of disability. This is important as language and images used in digital sexual fields can impact constructions of disabled sexualities.
      PubDate: 2022-08-03
      DOI: 10.1007/s11195-022-09751-1
       
  • Relationship between the symptoms of COPD and the quality of sexual life

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      Abstract: Objective This study was conducted to assess the relationship between the symptoms experienced by women with COPD and the quality of their sexual life. Method This study was designed as a descriptive cross-sectional study. The study was conducted at a hospital’s chest diseases clinic located in the western of Turkey. The sample comprises 62 female patients hospitalized with diagnosis of COPD. A questionnaire form, the Medical Research Council Scale (MRCS), the COPD Assessment Test (CAT) and the Sexual Quality of Life-Female (SQOL-F) applied to the women with COPD. Frequency, percentage, mean, standard deviation, Kruskal Wallis test, Mann-Whitney U Test, correlation and regression analysis, were used for the data analysis process. Findings The decrease in the education level of the participants who have any accompanying chronic disease, and experience symptoms during sexual intercourse negatively affects their quality of sexual life. The quality of sexual life decreases as age, duration of marriage and duration of illness increase (p < 0.05). The results of the linear regression analysis carried out to predict the quality of sexual life of women with COPD shown that the increase in mMRC and CAT significantly decreased the quality of sexual life. These variables explain 58% of the variance. Conclusions The result of the study shown the sexual quality of life of women with COPD was impaired and COPD symptoms affect them.
      PubDate: 2022-07-04
      DOI: 10.1007/s11195-022-09744-0
       
  • Effectiveness of Sexual Counseling Using BETTER Model to Promote Sexual
           Function and Satisfaction of Married Women with Multiple Sclerosis

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      Abstract: Abstract Sexual dysfunction is a common concern in women with multiple sclerosis (MS). This study aims to assess the effect of counseling based on the BETTER model (Bring up, Explain, Tell resources, Time, Educate, and Record) on sexual function and satisfaction in married women with MS. This randomized clinical trial included 72 married women between the ages of 18–49 years from the MS Society of Iran. The data were collected using a socio-demographic questionnaire, Female Sexual Function Index (FSFI) and the Index of Sexual Satisfaction (ISS) at three points in time. The intervention involved the use of the BETTER model-based counseling approach with married women during four weekly sessions. The control group received routine care. The results of the analysis showed that the mean of FSFI for the women in the intervention group improved at 8 and 12 weeks after the counseling compared to the control group (p < 0.001). However, a significant difference was not observed between the mean score of ISS among the women in the intervention group compared to the control group (p = 0.06). These results suggest that intervention based on the BETTER model counseling can significantly improve the sexual function of married women with MS. However, in order to improve the sexual satisfaction of these women multidisciplinary interventions are also recommended.
      PubDate: 2022-06-10
      DOI: 10.1007/s11195-022-09746-y
       
 
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