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- A Survey of Latin American Rehabilitation Professionals on Addressing
Sexuality-Related Concerns After Spinal Cord Injury-
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Abstract: Abstract To examine rehabilitation professionals’ training and education, attitudes, beliefs or misconceptions, and assessment of issues related to sexuality in individuals with Spinal Cord Injury (SCI) and their romantic partners. 318 healthcare professionals from Latin America (LA) who worked with individuals with SCI completed an online survey. 99.0% affirmed that sexuality is an issue that should be addressed during the rehabilitation of people with SCI. 86.0% reported being asked questions about sexuality after SCI by their patients and/or their partners, but only 33.2% of the professionals affirmed that it was very likely for them to initiate a conversation about the topic. Only 35.4% reported discussing sexuality issues with patients and their partners as a regular practice; further, 61.5% of the sample reported not being prepared at a scientific, therapeutic, and/or educational level to be able to advise people with SCI in the area of sexuality. 95.9% indicated they would be interested in attending courses, seminars, or conferences tailored to the topic of sexuality after SCI. Participants agreed nearly unanimously (96.8%) that it would be easier to discuss sexuality with people with SCI and their partners if they had more training on this topic, which they believed should have been received during their undergraduate (63.5%) and advanced (34.9%) studies. Findings provide insight into the way sexuality is addressed and attended to in the field of rehabilitation in LA and inform initiatives to improve the provision of care in the realm of sexuality for individuals after SCI.
PubDate: 2022-05-05
- From the Editor of Sexuality and Disability: The New Norm is Still Being
Defined-
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PubDate: 2022-05-04
- The Impact of Mindfulness Therapy on Sexual Satisfaction in Couples Living
with Neurological Disabilities: A Phenomenological Analysis of a Single
Case-
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Abstract: Abstract Research regarding sexuality following neurological disabilities has focused on either men or women separately, without considering couples and how intimate relationships may be influenced. The purpose of this case study was to investigate the effects of a modified 8-week mindfulness intervention on sexual satisfaction in a couple where one partner was living with Multiple Sclerosis (MS). One couple with the female living with relapsing remitting MS and an able-bodied male participated in the study. The mindfulness intervention was administered to the couple via a booklet and the mindfulness exercises were explained verbally after the baseline interview. The booklet contained a total of eight mindfulness-based exercises for each week of the intervention. The mindfulness exercises from week one to week five were to be completed individually while Sensate Focus exercises from week six to eight were completed as a couple. The exercises were carried out by the couple at home. In addition, the intervention included a psycho-education session at week five of the intervention. Data was collected through an in-depth phenomenological interview of the couple, conducted at baseline and following the completion of the 8-week intervention. The couple reported an improvement in communication, understanding, and awareness. Sensate Focus exercises enhanced intimacy between the couple. The findings of this study show promise for mindfulness-based therapies to enhance sexual satisfaction in couples living with neurological disabilities.
PubDate: 2022-05-03
- Nurses and Midwives Role in Patient Sexual Health Assessment: A
Cross-Sectional Study-
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Abstract: Abstract A cross-sectional exploratory study was conducted to assess nurses and midwives’ attitudes and beliefs towards addressing patients' sexual health. A convenient sample of 305 nurses and midwives (professionals and students) were recruited from University Hospitals in Lebanon. The Sexuality Attitude and Belief Survey (SABS) was used and data about barriers to sexual assessment, sexual education and sociodemographic characteristics were collected. The sample included nursing students, 30.1%, staff nurses, 61.2%, and midwives, 8.6%. The mean age was 26.8 years, and 83.7% were females. Only 28.4% of the total sample received sexual health education, and 12.5% reported taking patients' sexual history. The total SABS score was 48.4, which is relatively high. Most nurses and midwives (72.2%) stated that they do not spend time discussing patients' sexual concerns, viewing sexuality as 'too private an issue to discuss' (68.9%). In parallel, a minority had the belief that patients expect nurses to ask about their sexual concerns (32.7%) and felt confident in their abilities to address patients' sexual issues (30.3%). SABS score was significantly associated with the participants' gender, status, care unit, sexual health education and history taking. This study provided a preliminary appraisal of Lebanese nurses' and midwives' approaches towards patients' sexual health assessment and highlighted the obstacles that hinder appropriate sexual health practice. Based on the findings, there is a need for initiatives at the level of education and practice to develop nurses and midwives' competence and improve patient outcomes.
PubDate: 2022-05-02
- Professional Educational Opportunities
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PubDate: 2022-04-29
- Clinician and Patient Communication on Body Image, Sexuality, and Sexual
Function in Gynecologic Cancer: An Integrative Review-
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Abstract: Abstract Body image, sexuality, and sexual function commonly affect women with gynecologic cancer. While these issues are common and cause distress, patients report little communication regarding these topics with clinicians. The purpose of this review was to present the literature surrounding these topics, describe and appraise the quality of the literature, identify significant gaps in the literature, and provide implications for practice and/or future research. A systematic search of the literature was conducted using three databases. Keywords and MESH headings were used to obtain appropriate articles. Data was evaluated using PRISMA guidelines. Nine articles were retrieved. Most (5) focused on patients’ perspectives of communication, while 3 focused on clinician perspectives. Only one included the perspectives of both. Further research is needed to better understand the issues surrounding patient-clinician communication on these topics. Clinicians need to routinely assess patients for issues related to body image and sexual health, feel comfortable discussing these topics, and be prepared to provide information or resources for patients.
PubDate: 2022-04-28
- Attitudes Toward Dating People with Disability Amongst Young People in
Australia and Hong Kong-
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Abstract: Abstract This paper explores attitudes toward dating people with disability amongst young people in Australia and Hong Kong. Data relating to disability were extracted from an e-survey that investigated young people’s (n = 2208) experiences of and attitudes toward dating. Quantitative data were analysed using descriptive statistics while open ended responses were subjected to interpretive content analysis. When asked about preferred characteristics for potential dates, young people identified factors that were unlikely to be negatively influenced by disability, such as loyalty, honesty, dedication, humour, and kindness. Yet when asked whether disability would influence their dating choices, most said that it would and expressed an unwillingness to date people with disability. Young adults in Hong Kong expressed less openness to dating people with disability than those in Australia. Physical disability and mental health issues were seen as less of a barrier to dating than intellectual or developmental disability. Despite recent gains in public attitudes toward people with disability, improvements are needed in terms of young people in the general population viewing people with disability as suitable partners and thus, allowing them to enjoy equal rights to relationships and sexuality. Culture is an important determinant, indicating a potential for change.
PubDate: 2022-04-16
- People with Intellectual Disabilities Struggle to have a Sexual Encounter:
A Chinese Cultural Context Investigation-
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Abstract: Abstract People with intellectual disabilities share the same human need for affectionate and intimate relationships as people without a disability. Limited research has investigated sexual issues and concerns among adults with intellectual disabilities, including dating, intimate relationships, and marriage. This study employed Interpretative Phenomenological Analysis to identify the understanding and needs regarding sexuality of people with intellectual disabilities. Five people with mild grade intellectual disabilities participated in face-to-face interviews in which they discussed their struggle to have romantic relationships and sexual encounters. Their “understanding” and “doing” on sex issues were identified. The lack of adequate sex education and Chinese culture potentially impact people with intellectual disabilities’ beliefs and behaviors on sexuality. Various types of intervention were discussed. Further research is necessary to understand the cultural context of the challenges and experiences regarding sexuality faced by people with intellectual disabilities and their families.
PubDate: 2022-04-05
- The Sexual and Emotional Life Experiences Reported by Brazilian Men with
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Abstract: Abstract This study explored the sexual and emotional experiences of male patients with head and neck cancer. This study utilized a clinical-qualitative method. Twelve patients with head and neck cancer were recruited to participate in the research through in-depth semi-directed interviews with open-ended questions recorded. Data was collected at the radiotherapy of a Brazilian hospital. All patients demonstrated negative impacts on the dynamics of affective and sexual relationships caused by a serious disease. Data revealed that impacts mainly affect “The felt/lived body”, and “The affective-sexual body”. Requiring, then, an “Elaboration of the grief of the bodily and sexual changes”. Considering, evaluating and proposing care for a sexual and emotional aspects of patients with head and neck cancer is essential for the creation and implementation of comprehensive health measures, especially in terms of quality of life for patients.
PubDate: 2022-03-31
- Online Dating Experiences of LGBTQ+ Emerging Adults With Disabilities
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Abstract: Abstract In 2014 approximately 14.4% of Americans ages 18 to 24 had some type of disability. Compared to their peers without disabilities, disabled emerging adults typically have more difficulty dating and finding romantic and sexual partners. One way that they may escape disability stigma and smaller dating pools is through online dating. However, little is known about their experiences seeking romantic and sexual relationships online, and even less is known about the experiences of emerging adults with disabilities who identify with sexual orientations and have gender identities that are not heterosexual or cisgender. In the present study 27 LGBTQ+ emerging adults with various disabilities, genders, and sexual orientations completed 47 item online surveys before COVID in which they described their experiences with online dating and starting and sustaining romantic relationships. Results from qualitative data analyses suggest that rather than being neutral spaces that exist separately from stigma and social prejudice, dating apps and web sites typically perpetuate normative ideas of ableism, sexuality, and gender and stimulate questions of timing of disability disclosure. Despite challenges, however, online dating also offers opportunities to interact with multiple interested daters and appears to offer LGBTQ+ emerging adults with disabilities an often beneficial though sometimes vexing venue for relationship development.
PubDate: 2022-03-28
- Sexual Dysfunction in Women with Neuromyelitis Optica Spectrum Disorders
and Multiple Sclerosis-
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Abstract: Abstract Sexual dysfunction (SD) is a common and significant complication in neuromyelitis optica spectrum disorders (NMOSD) and multiple sclerosis (MS), though it is often neglected and undertreated. We aimed to compare female sexual dysfunction in patients with NMOSD and MS, and investigate the association between clinical characteristics and SD. In this cross-sectional study, 36 patients with NMOSD and 312 MS patients who visited the MS clinic of Kashani Hospital were recruited. Sexual dysfunction was evaluated using the Iranian version of the Female Sexual Function Index (FSFI) questionnaire. Fatigue, depression, and anxiety were also assessed by fatigue severity score (FSS), Beck depression inventory-II (BDI-II), and Hamilton anxiety rating scale (HAM-A), respectively. Sexual dysfunction was presented in 75% of NMOSD and 63.5% of MS patients (P = 0.127). The most frequent SD problem in both NMOSD and MS was dysfunctional arousal (50% vs. 48.1%, P = 0.855). The frequency and mean score of sexual pain dysfunction in NMOSD patients was higher than MS, but it did not remain significant in the adjusted model. No statistically significant differences in the frequency and mean scores of other SD subdomains were detected. In the univariate model, only fatigue was associated with the presence of SD in NMOSD. In MS patients, depression was an independent risk factor of SD in the multivariate model. Our results confirm that SD is a common problem in female NMOSD and MS patients. Further longitudinal studies are needed to evaluate sexual dysfunction and its risk factors in NMOSD. In addition, attention to the management of depression and fatigue could be positively effective on sexual dysfunction in patients with NMOSD and MS.
PubDate: 2022-03-24
- Sexuality After Spinal Cord Injury. Which Factors Influence Sexual
Activity and Satisfaction'-
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Abstract: Abstract The impact of sexual impairment in spinal cord injured patients is complex and multifactorial. Despite its importance, the factors that determine their sexual activity and satisfaction are mostly unknown. The objectives of this study were to identify and characterize sexual activity among these patients, assess their sexual satisfaction and elucidate the factors that influence it. We designed a cross-sectional study, consisting in a telephone questionnaire, addressing some topics about sexuality and sexual satisfaction, applied to spinal cord injured individuals previously admitted to a Rehabilitation Hospital. A total of 112 individuals accepted to answer the survey. Sexual activity was reported by 49 (43.8%) and was associated with younger age, higher functional status, male gender and active employment status. Higher sexual satisfaction was significantly associated with younger age, younger age at the time of injury, active employment status and sexual counselling after lesion. No correlation was found between sexual activity or sexual satisfaction and neurologic level, AIS classification or the etiology of the lesion. We concluded that sexual performance after SCI is not exclusively determined by genital function and the degree of physical impairment. Personal and contextual factors (in particular, those which promote social participation) seems to be stronger determinants of sexual activity and sexual satisfaction than the neurologic characteristics of the lesion. This study reinforces the importance of a comprehensive rehabilitation program, including sexual counselling to SCI individuals and their partners.
PubDate: 2022-03-08
DOI: 10.1007/s11195-022-09730-6
- An Analysis of the Attitudes of the General Public Towards the Sexuality
of Individuals with Disabilities Through a Systematic Literature Review-
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Abstract: Abstract Individuals with disabilities face many misconceptions regarding their sexuality, the most common of which are that they are either asexual or unable to control themselves sexually. These misconceptions are present in members of the general public, parents of individuals with disabilities, and professionals who work with individuals with disabilities. This systematic literature review explores the extant literature on attitudes of the general public towards the sexuality of individuals with disabilities. Thirty-four articles were included in this systematic review, representing attitudes towards individuals with physical disabilities, intellectual disabilities, and psychiatric disabilities. Results were coded into three main themes: People with Disabilities as Sexual Beings, Factors Influencing Societal Attitudes, and Factors Related to the Sexuality of People with Disabilities. Topics such as sexual rights, sexual behavior, relationships, partner factors, sexual orientation, sexual and reproductive health, parenting, and stigma are addressed. Also addressed are the nine measures of attitudes towards sexuality and disability utilized studies included in the systematic review.
PubDate: 2022-03-01
- Dating with a Diagnosis: The Lived Experience of People with Multiple
Sclerosis-
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Abstract: Abstract Multiple Sclerosis (MS) is a neurological condition which usually manifests between the ages of 20–40 years. This is a critical period for developing relationships, particularly romantic relationships. People with MS can experience sexual dysfunction, limb weakness, fatigue, pain, reduced mood and bladder/bowel dysfunction; potentially affecting their ability to participate in many meaningful activities, including those associated with romantic relationships, dating or engaging in sexual intercourse. Dating or starting romantic relationships can be difficult for people with physical disabilities as they can experience stigma, negative societal attitudes and the fear of requiring care from potential partners. Dating experiences of people with progressive conditions like MS have not been explored in detail. The aim of this study was to develop a rich understanding of how living with MS interacts with/influences dating and developing romantic relationships. The study used a descriptive phenomenological design and a purposive sampling strategy. Colaizzi’s descriptive phenomenological method was used to analyze the data (Colaizzi, 1978). Five females and two males, aged 23–51, participated in two online focus groups. Dating with a diagnosis of MS is a highly personal phenomenon, characterized by individual differences in values and experiences. Core to the phenomenon was personal decision-making about disclosure of the diagnosis and ongoing adaptation to the fluctuating nature of the condition with partners in new/developing relationships. The findings will help health professionals working with adults with MS understand this important aspect of their lives.
PubDate: 2022-03-01
- Evaluation of sexual reproductive health needs of women with spinal cord
injury in Tehran, Iran-
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Abstract: Abstract Physical disability is one of the factors influencing the sexual and reproductive health (SRH) of people. Women with a severe disability receive fewer Pap smear tests, regular mammography examinations, and sex education. This study was carried out to identify the SRH needs of women with spinal cord injuries (SCI) in Tehran (Iran) in 2019. This descriptive cross-sectional study was conducted using the SRHNA-SCI validation tool. The study included married Iranian women between the ages of 18 and 55 years, who had SCI. and were registered with the Welfare Organization of Tehran. A total of 78 questionnaires were collected for statistical analysis. The mean age of the participants was 41.73 ± 8.42 years and they were mainly high school graduates with diplomas (35.9%), housewives (85.9%), and patients with thoracic injuries (61.5%). The SRH needs of women with SCI were the need for improving the quality of services (98.87 ± 2.34%), social needs (98.66 ± 3.03%), the need for services of the Welfare Organization (98.04 ± 6.28%), personal needs (98.03 ± 4.59%), sexual needs (96.58 ± 7.66%), and educational needs (96.83 ± 5.32%), respectively. The provision of low-quality SRH services is seemingly the most important preventive factor, while the absence of family and community support is the factor influencing the promotion of the SRH of women with SCI. Therefore, the attainment of this goal is contingent on the cooperation and interaction of different organizations such as the Ministry of Health, the municipality, the insurance organization, the Welfare Organization, and non-governmental organizations.
PubDate: 2022-03-01
- Marital Quality, Self-compassion and Psychological Distress in Women with
Primary Infertility-
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Abstract: Abstract The current study investigates the relationships among marital quality, self-compassion with psychological distress in women with primary infertility. It was hypothesized that marital quality and self-compassion are likely to predict psychological distress in women with primary infertility. It was further hypothesized that self-compassion is likely to mediate the relationship between marital quality and psychological distress in women with primary infertility. The sample was comprised of 115 women with primary infertility with an age range of 20–35 years (M = 29.08, SD = 3.908). The Relationship Assessment Scale (Hendrick in J Marriage Fam, 1988. https://doi.org/10.2307/352430), Self-compassion Scale (Neff in Self Identity 2(3):223–250, 2003. https://doi.org/10.1080/15298860309027), and Depression, Anxiety, Stress Scale (Lovibond and Lovibond in Manual for the depression anxiety stress scales, 2nd edn. Psychology Foundation, 1995) were used to measure the study variables. SPSS was used to analyze the data. Pearson Product Moment Correlation showed that marital quality was positively related to self-compassion and negatively associated with psychological distress (depression, anxiety, and stress). Furthermore, self-compassion was negatively associated with psychological distress (depression, anxiety, and stress). Mediation analysis with the help of Process Macro revealed that marital quality was significantly predicting depression and stress but not anxiety among women with primary infertility, whereas self-compassion was significantly predicting depression, anxiety, and stress among women with primary infertility. Self-compassion was significantly mediating the relationship between marital quality and psychological distress (depression and stress) in women with primary infertility. The study showed that self-compassion could be an important variable for the management of infertility-related issues.
PubDate: 2022-03-01
- Sexual Function, Anxiety, Depression and Coping After Myocardial
Infarction: An Exploratory Study-
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Abstract: Background Myocardial infarction (MI) may decrease sexual function and satisfaction in men and can be influenced by anxiety, depression, and sexual fear. However, few studies have examined short-term changes in sexual function over time in a post-MI population. This study aimed to longitudinally describe changes in sexual function and satisfaction in a sample of men post-MI. Methods Eighteen patients were recruited from a Midwestern United States hospital. Surveys were mailed two weeks and three months post discharge. Sexual function was measured with the Male Sexual Function Index. Other variables collected included sexual fear (Multidimensional Sexuality Questionnaire), anxiety and depressive symptoms (Patient-Reported Outcomes Measurement Information System Anxiety and Depression 4a), and use of coping strategies (Coping Strategy Indicator). Results Sexual function scores increased in the entire sample from 8.9 (SD 7.3) at two weeks to 14.6 (SD 8.9) at three months (18.8 % improvement, p = 0.04). Men who were sexually active improved their scores by 27.3 % (p = 0.01), while those who were not sexually active decreased their scores by 2.3 % (p = 0.5). Depressive symptoms and anxiety scores were low and largely stable across timepoints, though there were some improvements among men who were sexually active compared to those who were not. Decreased utilization of avoidance coping strategies was reported in sexually active versus inactive men. Conclusions While sexual function improved within a short-time period post discharge among sexually active men post-MI, further research is needed with a larger sample to understand these changes across a longer period. Additional research is also warranted to examine any potential influence of psychosocial predictors.
PubDate: 2022-03-01
- Professional Educational Opportunities
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PubDate: 2022-01-31
DOI: 10.1007/s11195-022-09728-0
- The Effect of Dyspnea and Fatigue on Sexual Life and Marital Satisfaction
in Individuals With Chronic Obstructive Pulmonary Disease-
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Abstract: Abstract The present study determines the effects of dyspnea and fatigue on the sex life and marital adjustment of patients with COPD. The study sample of this descriptive research included individuals hospitalized in the Pulmonary Diseases Clinic of a university hospital in Turkey who voluntarily accepted to participate in the study. The data for the research were collected using a question form, the Modified British Medical Research Council Dyspnea Scale (mMRC), the Arizona Sexual Experience Scale-Female Form, the Arizona Sexual Experience Scale-Male Form, the Marriage Adjustment Test, the COPD and Asthma Fatigue Scale, and the COPD Assessment Test (CAT). The data, in the form of numbers, percentages means and standard deviations, were assessed with Mann–Whitney U-tests, Kruskal–Wallis tests, One Way Analyses of Variance and t tests. Of the participants with COPD, 83.3% reported that the disease affected their sex life; 83.6% reported that they had not consulted a physician about sexual problems due to believed the disease ends sexual desire, as one of the obstacles preventing help being sought in this matter; 95.8% reported using no methods other than medical ones to resolve their sexual problems; 90.3% reported encountering problems during sexual intercourse; and 58.3% stated that the symptom with the greatest effect on their sex life was dyspnea. COPD was reported to affect marital adjustment in 54.2, and 55.8% reported that the disease had led to the development of good relations between the partners, and thus better adjustment. It was found in the present study that dyspnea had a negative effect on the patients’ sex life, but no effect on the marital adjustment of individuals with Chronic Obstructive Pulmonary Disease; while fatigue negatively affected the patients’ sex life, but positively affected marital adjustment.
PubDate: 2022-01-29
DOI: 10.1007/s11195-022-09725-3
- From the Editor of Sexuality and Disability: The Year 2022…We Start
Again to Look for Answers to Build a Better Future-
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PubDate: 2022-01-27
DOI: 10.1007/s11195-022-09727-1
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