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  Subjects -> DISABILITY (Total: 103 journals)
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Scandinavian Journal of Disability Research
Journal Prestige (SJR): 0.433
Citation Impact (citeScore): 1
Number of Followers: 27  

  This is an Open Access Journal Open Access journal
ISSN (Print) 1501-7419 - ISSN (Online) 1745-3011
Published by Stockholm University Press Homepage  [8 journals]
  • Community Social Support for People with Autonomy Support Needs: The Role
           of Institutional Protection in Spain

    • Abstract: People with disabilities face social barriers on a daily basis that cause high levels of social exclusion and isolation. As a result, this study analyses the support needs of people with disabilities under institutional protection in relation to community social support. To this end, a correlational cross-sectional study with a mixed methodology was used. A total of 125 people participated in the study. The results indicate that community integration and participation are areas in which the protagonists find severe limitations while social support in formal and informal systems seems to be satisfactory. In addition, the type and location of the residential centre are shown as determining variables. Published on 2022-07-25 11:35:07
  • Struggling to Enable Physical Activity for Children with Disabilities: A
           Narrative Model of Parental Roles

    • Abstract: This article presents a narrative model based on in-depth interviews with parents of children 6–12 years old with a variety of disabilities. It is a grounded theory study aiming to explore the parents’ experiences of enabling health-promoting physical activity (PA) for their children. The core of the generated theory struggling between roles to facilitate PA describes how the parents, in different contexts and over time, are forced to take on roles as experts, coaches, minesweepers, and activists to facilitate adapted PA for their children. How tiresome this struggle became depended on contextual factors, the extent of effort put into the separate roles, and the interaction between them. The study revealed a complex picture unique for each family but at the same time suitable despite the character of the child’s disability. This study adds knowledge to better support parents enabling PA on equal terms for all children. Published on 2022-06-24 12:12:07
  • Homelessness as a Product of Social Exclusion: Reinterpreting Autistic
           Adults’ Narratives through the Lens of Critical Disability Studies

    • Abstract: Emerging research in the UK suggests a disproportionate number of autistic adults experience homelessness. This paper reinterprets findings from a narrative study on autism and homelessness through the lens of Critical Disability Studies (CDS). Ten autistic participants who had experienced homelessness took part in narrative interviews focussing on their life history. Throughout their lives, participants experienced repeated social and economic exclusion, which ultimately led to homelessness. This paper uses CDS to examine how normative social expectations may increase risk of homelessness for autistic people. It also considers how some participants renegotiated their autistic identities and became self-advocates. Using dis/human theory, it is argued that the autism label provides a framework from which to challenge social exclusion. To reduce risk of homelessness for autistic adults, structural changes are required that reposition accepted forms of personhood. Published on 2022-06-13 11:04:29
  • Communication, Information, and Support for Swedish Parents with Deaf or
           Hard-of-Hearing Children

    • Abstract: Communication is an important but complicated issue for parents to deaf and hard-of-hearing (DHH) children. Professionals have debated whether a DHH-child should have opportunity to learn spoken language, sign language, or a mixture of both. Two perspectives dominate: the medical (viewing deafness as a disability) vs. the cultural-lingual (viewing DHH-people as a cultural and linguistic minority). Parents have to handle these conflicting perspectives while they would need support and information about parenting a DHH-child. This article investigates preferred communication in the families, whether parents get information about STS, attend STS-courses, if parents get adequate support and information. 118 parents responded on a survey focusing on these issues, and the results show that spoken Swedish was preferred, but that STS or sign-supported Swedish often was used in parallel. Most parents without previous knowledge of DHH-people were satisfied with the information and support received, while parents with previous knowledge had negative experiences. Published on 2022-06-08 12:35:15
  • Multidisciplinary Approaches to Disability in Iceland (Late
           9th–Early 20th Century)

    • Abstract: This article reports on a multidisciplinary project exploring constructions of disability in Iceland before the establishment of disability as a modern legal, bureaucratic, and administrative concept. The project’s vast temporal scope spans the settlement of Iceland in the late 9th century to the early 20th century, and it combines research in the fields of Archaeology, Medieval Literature, Folklore, History, and Museology. The article outlines the project’s rich and diverse source material and its data collection procedures before discussing the various methods employed across the disciplines involved. Focus simultaneously turns to the project’s myriad discipline-specific findings and to the presence of ambiguity and absence, invisibility, or silence as recurring cross-disciplinary themes. Published on 2022-05-16 13:41:16
  • Lived Employment Experiences of Persons with Physical Disabilities in
           Nepal: A Phenomenological Study

    • Abstract: The study collates preliminary evidence of perceived enablers, barriers, and solutions in employment participation in Nepal through the experiences of persons with physical disabilities. A qualitative study was conducted in Kathmandu Valley, Nepal, with 12 face-to-face semi-structured interviews. Interviews were recorded, transcribed, and validated before being analysed thematically. The study followed the COREQ checklist while reporting the results. Thirteen themes were derived and grouped into enablers, barriers, and solutions in employment participation. Results demonstrate that over-protective behaviour from family members, discrimination by employers in recruitment, and continuance in employment were barriers. Childhood education, family support, priority during the recruitment process to encourage employment participation, and disability-friendly policies are the key to enabling employment opportunities for persons with disabilities. Published on 2022-04-29 09:17:15
  • Abnormal-Becoming- Normal: Conceptualizations of Childhood Disability in
           Children’s Rehabilitation Textbooks

    • Abstract: Despite advancements to theory and practice, children’s rehabilitation is dominated by taken-for-granted assumptions about disability and childhood. In order to address a pressing need for scholarship in this area, this paper draws on post-structuralism, critical disability studies, and disabled children’s childhood studies to interrogate the underlying logics and central assumptions of eight North American children’s rehabilitation textbooks. Using discourse analysis, we highlight how the discourse of normal/abnormal is pervasive and underpins the understandings and logics deployed throughout the texts. We argue that the texts construct disabled children as abnormal-becoming-normal, and thus reinforce a moral imperative whereby disabled children are understood as requiring motivation and self-efficacy to lead a ‘good’/normal life. In drawing on these reductive understandings, children’s rehabilitation relies on a disempowering conception of disabled children as lacking, and thus fails to acknowledge and appreciate the many ways in which disabled children can be and become. Published on 2022-04-08 13:39:51
  • Expanding Opportunities for Work and Citizenship: Participation of People
           with Intellectual Disabilities in Voluntary Work

    • Abstract: This article discusses the findings of a study into how voluntary work provides opportunities for work inclusion and citizenship for people with intellectual disabilities. The study is based on qualitative interviews with 12 people with intellectual disabilities engaged in voluntary work in Iceland and Norway. Based on collective qualitative analysis, opportunities for meaningful social relations, competence, contribution and belonging were identified as key aspects of the participants’ experiences of volunteering. The study indicates that voluntary settings offer work that recognises the diversity of preferences, expectations and skills among people with intellectual disabilities. The study’s findings point to the importance of rethinking the meaning and boundaries of work, as participation in voluntary work provides opportunities for both inclusion and citizenship in addition to the participants’ participation in other work settings. Published on 2022-03-29 10:58:08
  • Tradeoffs in Visual Impairment Rehabilitation: Hearing Service User
           Accounts of Rehabilitative Relationships and Organisational Culture in
           South Africa

    • Abstract: In order to access skills for adjusting to visual impairment (VI), individuals are drawn into the fabric of rehabilitation organisations and into relationships with rehabilitation workers. Through prioritising rehabilitation service user perspectives, this paper explores the question of what might be imparted to those undergoing VI rehabilitation about their value, their status and their place in the world. Foucauldian discourse analytic reviews were conducted on semi-structured interviews with 18 rehabilitation service users and 8 service providers at 4 rehabilitation organisations in South Africa. While much of value is gained in rehabilitation, service user accounts shed light on a series of tradeoffs individuals are exposed to, such as relationships, practices and structures within which they may also feel as though they are losing something fundamental related to agency and social status. In rehabilitation, individuals can receive powerful signals about who they are, which they are likely to carry forward into their lives. Published on 2022-03-28 10:39:07
  • Enabling the Authentic Voice: Generating Ethnographies of Women with
           Cerebral Palsy

    • Abstract: Historically, research has been undertaken using methods that have restricted the participation of disabled women with speech impairments. Metaphorically and literally, their voices have not been heard. Facing barriers to speak for themselves makes it difficult for women to challenge disabling narratives, including those of asexuality. The result is increased marginalisation, inequality and simultaneous oppression across different spheres of public and private life. In this paper, we reflect on our experiences of undertaking two qualitative studies that explored experiences of sexual and reproductive healthcare for women with cerebral palsy (CP), using internet-based methods such as Facebook and email. We offer reflective insights regarding the core issues for researchers when conducting research about sensitive topics with women with CP in particular, and disabled women in general. Specifically: 1) An enabling research environment; 2) Interpersonal relationships and identity. Overall, we argue that using digital and flexible research approaches not only enables disabled women to be involved in research about issues that concern them, but also provides an enabling context in which their authentic voices can be heard. Published on 2022-03-11 13:26:02
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