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  Subjects -> PHILOSOPHY (Total: 762 journals)
Showing 1 - 135 of 135 Journals sorted by number of followers
Philosophical Review     Full-text available via subscription   (Followers: 70)
Ethics     Full-text available via subscription   (Followers: 69)
European Journal of Philosophy     Hybrid Journal   (Followers: 66)
Journal of Political Philosophy     Hybrid Journal   (Followers: 65)
Mind     Hybrid Journal   (Followers: 62)
Australasian Journal of Philosophy     Hybrid Journal   (Followers: 57)
Philosophy & Public Affairs     Hybrid Journal   (Followers: 57)
Contemporary Political Theory     Hybrid Journal   (Followers: 52)
Nous     Hybrid Journal   (Followers: 51)
International Journal for Philosophy of Religion     Hybrid Journal   (Followers: 51)
Philosophical Quarterly     Hybrid Journal   (Followers: 46)
Journal of the History of Philosophy     Full-text available via subscription   (Followers: 46)
Journal of Applied Philosophy     Hybrid Journal   (Followers: 43)
American Journal of Theology & Philosophy     Full-text available via subscription   (Followers: 41)
British Journal for the History of Philosophy     Hybrid Journal   (Followers: 41)
British Journal for the Philosophy of Science     Hybrid Journal   (Followers: 40)
Analysis     Hybrid Journal   (Followers: 36)
Journal of Moral Philosophy     Hybrid Journal   (Followers: 36)
Philosophy and Phenomenological Research     Hybrid Journal   (Followers: 35)
Philosophy of Science     Full-text available via subscription   (Followers: 33)
Journal of Medical Ethics     Partially Free   (Followers: 32)
Erkenntnis     Hybrid Journal   (Followers: 30)
Philosophy and Literature     Full-text available via subscription   (Followers: 30)
Journal of Social Philosophy     Hybrid Journal   (Followers: 27)
Inquiry : An Interdisciplinary Journal of Philosophy     Hybrid Journal   (Followers: 27)
Journal of Ethics & Social Philosophy     Open Access   (Followers: 27)
Constellations     Hybrid Journal   (Followers: 26)
Canadian Journal of Philosophy     Full-text available via subscription   (Followers: 25)
Continental Philosophy Review     Partially Free   (Followers: 25)
Social Philosophy and Policy     Full-text available via subscription   (Followers: 25)
Ethical Theory and Moral Practice     Hybrid Journal   (Followers: 24)
Journal of Law, Medicine & Ethics     Hybrid Journal   (Followers: 23)
Philosophy & Social Criticism     Hybrid Journal   (Followers: 22)
Philosophical Studies     Hybrid Journal   (Followers: 22)
Linguistics and Philosophy     Hybrid Journal   (Followers: 22)
British Journal of Aesthetics     Hybrid Journal   (Followers: 22)
The Heythrop Journal     Hybrid Journal   (Followers: 21)
Philosophy and Rhetoric     Full-text available via subscription   (Followers: 20)
Philosophy Compass     Hybrid Journal   (Followers: 19)
BMC Medical Ethics     Open Access   (Followers: 19)
Biology and Philosophy     Hybrid Journal   (Followers: 18)
Journal of Medical Ethics and History of Medicine     Open Access   (Followers: 18)
Philosophers' Imprint     Open Access   (Followers: 17)
Philosophy     Full-text available via subscription   (Followers: 17)
Jurisprudence     Hybrid Journal   (Followers: 17)
Assuming Gender     Open Access   (Followers: 16)
Mouseion: Journal of the Classical Association of Canada     Full-text available via subscription   (Followers: 16)
Pragmatics & Cognition     Hybrid Journal   (Followers: 16)
International Studies in the Philosophy of Science     Hybrid Journal   (Followers: 15)
Journal of the Philosophy of History     Hybrid Journal   (Followers: 15)
Bioethics Research Notes     Full-text available via subscription   (Followers: 15)
Philosophy East and West     Full-text available via subscription   (Followers: 15)
Journal of Media Ethics : Exploring Questions of Media Morality     Hybrid Journal   (Followers: 14)
Episteme     Hybrid Journal   (Followers: 14)
Midwest Studies In Philosophy     Hybrid Journal   (Followers: 14)
Review of Philosophy and Psychology     Hybrid Journal   (Followers: 13)
Social Epistemology: A Journal of Knowledge, Culture and Policy     Hybrid Journal   (Followers: 13)
Phronesis : A journal for Ancient Philosophy     Hybrid Journal   (Followers: 13)
Philosophy & Technology     Hybrid Journal   (Followers: 13)
Ethical Perspectives     Full-text available via subscription   (Followers: 12)
Pragmatics and Society     Hybrid Journal   (Followers: 12)
Reformed Theological Review, The     Full-text available via subscription   (Followers: 12)
Journal of Global Ethics     Hybrid Journal   (Followers: 12)
Utilitas     Hybrid Journal   (Followers: 11)
Philosophy of Photography     Hybrid Journal   (Followers: 11)
Open Journal of Philosophy     Open Access   (Followers: 11)
Philosophy, Psychiatry, & Psychology     Full-text available via subscription   (Followers: 11)
Estudos Bíblicos     Open Access   (Followers: 11)
Journal of Chinese Philosophy     Hybrid Journal   (Followers: 11)
Journal of Indian Philosophy     Hybrid Journal   (Followers: 11)
Kennedy Institute of Ethics Journal     Full-text available via subscription   (Followers: 10)
Metaphor and Symbol     Hybrid Journal   (Followers: 10)
Pacific Philosophical Quarterly     Hybrid Journal   (Followers: 10)
Polis : The Journal of the Society for Greek Political Thought     Hybrid Journal   (Followers: 10)
Dao : A Journal of Comparative Philosophy     Hybrid Journal   (Followers: 10)
Myth & Symbol     Hybrid Journal   (Followers: 9)
Philosophical Transactions of the Royal Society A: Mathematical, Physical and Engineering Sciences     Full-text available via subscription   (Followers: 9)
Journal of Philosophical Logic     Hybrid Journal   (Followers: 9)
Film-Philosophy Journal     Open Access   (Followers: 9)
Journal of the Gilded Age and Progressive Era     Full-text available via subscription   (Followers: 9)
HTS Theological Studies     Open Access   (Followers: 9)
Philosophical Perspectives     Hybrid Journal   (Followers: 8)
Philosophia     Hybrid Journal   (Followers: 8)
Research in Phenomenology     Hybrid Journal   (Followers: 8)
Philosophical Books     Hybrid Journal   (Followers: 8)
Diogenes     Hybrid Journal   (Followers: 8)
Philosophical Issues     Hybrid Journal   (Followers: 7)
African Journal of Business Ethics     Open Access   (Followers: 7)
SubStance     Full-text available via subscription   (Followers: 7)
Metaphilosophy     Hybrid Journal   (Followers: 7)
Medicine, Health Care and Philosophy     Hybrid Journal   (Followers: 7)
Nordic Journal of Aesthetics     Open Access   (Followers: 7)
Contributions to the History of Concepts     Full-text available via subscription   (Followers: 7)
International Journal of Philosophical Studies     Hybrid Journal   (Followers: 7)
Axiomathes     Hybrid Journal   (Followers: 6)
The Southern Journal of Philosophy     Hybrid Journal   (Followers: 6)
Journal of Speculative Philosophy     Full-text available via subscription   (Followers: 6)
Think     Full-text available via subscription   (Followers: 6)
Zeitschrift für philosophische Forschung     Full-text available via subscription   (Followers: 6)
History and Philosophy of Logic     Hybrid Journal   (Followers: 6)
Philosophical Investigations     Hybrid Journal   (Followers: 6)
Contemporary Chinese Thought     Full-text available via subscription   (Followers: 6)
Contagion : Journal of Violence, Mimesis, and Culture     Full-text available via subscription   (Followers: 6)
Philosophical Magazine Letters     Hybrid Journal   (Followers: 6)
Philosophical Explorations: An International Journal for the Philosophy of Mind and Action     Hybrid Journal   (Followers: 6)
Dialogue Canadian Philosophical Review/Revue canadienne de philosophie     Full-text available via subscription   (Followers: 6)
International Journal of the Platonic Tradition     Open Access   (Followers: 5)
Journal of Empirical Research on Human Research Ethics     Full-text available via subscription   (Followers: 5)
Journal of Critical Realism     Hybrid Journal   (Followers: 5)
Australasian Catholic Record, The     Full-text available via subscription   (Followers: 5)
Critical Horizons     Hybrid Journal   (Followers: 5)
Journal of Nietzsche Studies     Full-text available via subscription   (Followers: 5)
Aisthesis     Open Access   (Followers: 5)
Endeavour     Hybrid Journal   (Followers: 5)
Philosophical Papers     Hybrid Journal   (Followers: 5)
Review of Contemporary Philosophy     Full-text available via subscription   (Followers: 5)
Zeitschrift für Religions- und Geistesgeschichte     Hybrid Journal   (Followers: 5)
Church Heritage     Full-text available via subscription   (Followers: 4)
South African Journal of Philosophy = Suid-Afrikaanse Tydskrif vir Wysbegeerte     Hybrid Journal   (Followers: 4)
Bochumer Philosophisches Jahrbuch für Antike und Mittelalter     Hybrid Journal   (Followers: 4)
Franciscan Studies     Full-text available via subscription   (Followers: 4)
Transactions of the Charles S. Peirce Society     Full-text available via subscription   (Followers: 4)
Hume Studies     Full-text available via subscription   (Followers: 4)
Journal of Theoretical & Philosophical Psychology     Full-text available via subscription   (Followers: 4)
The Philosophical Forum     Hybrid Journal   (Followers: 4)
National Catholic Bioethics Quarterly     Hybrid Journal   (Followers: 4)
Royal Institute of Philosophy Supplements     Full-text available via subscription   (Followers: 4)
Philosophy in Review     Open Access   (Followers: 4)
Recherches de Théologie et Philosophie Médiévales     Full-text available via subscription   (Followers: 3)
Topoi     Hybrid Journal   (Followers: 3)
Australian Humanist, The     Full-text available via subscription   (Followers: 3)
Studia Logica     Hybrid Journal   (Followers: 3)
Utopian Studies     Full-text available via subscription   (Followers: 3)
Russell : the Journal of Bertrand Russell Studies     Full-text available via subscription   (Followers: 3)
Journal of Religion and Business Ethics     Open Access   (Followers: 3)
The Pluralist     Full-text available via subscription   (Followers: 3)
Bijdragen     Full-text available via subscription   (Followers: 3)
Studies in Philology     Full-text available via subscription   (Followers: 3)
Bulletin de Philosophie Medievale     Full-text available via subscription   (Followers: 3)
Kantian Review     Full-text available via subscription   (Followers: 3)
CR : The New Centennial Review     Full-text available via subscription   (Followers: 3)
Between the Species     Open Access   (Followers: 2)
International Journal of Žižek Studies     Open Access   (Followers: 2)
Socioaffective Neuroscience and Psychology     Open Access   (Followers: 2)
Horizonte : Revista de Estudos de Teologia e Ciências da Religião     Open Access   (Followers: 2)
International Journal for the Study of Skepticism     Hybrid Journal   (Followers: 2)
Cultura : International Journal of Philosophy of Culture and Axiology     Open Access   (Followers: 2)
Erasmus Studies     Hybrid Journal   (Followers: 2)
Empedocles : European Journal for the Philosophy of Communication     Hybrid Journal   (Followers: 2)
Sartre Studies International     Full-text available via subscription   (Followers: 2)
Journal of Scottish Philosophy     Hybrid Journal   (Followers: 2)
Journal of Friends of Lutheran Archives     Full-text available via subscription   (Followers: 2)
Philosophy & Theory in Biology     Open Access   (Followers: 2)
Kriterion: Revista de Filosofia     Open Access   (Followers: 2)
Poiesis & Praxis : International Journal of Technology Assessment and Ethics of Science     Open Access   (Followers: 2)
Quaestio     Full-text available via subscription   (Followers: 2)
Grazer Philosophische Studien     Full-text available via subscription   (Followers: 2)
Journal of Aesthetic Education     Full-text available via subscription   (Followers: 2)
Australian Journal of Parapsychology     Full-text available via subscription   (Followers: 2)
Noesis     Open Access   (Followers: 1)
Journal of Humanistic Mathematics     Open Access   (Followers: 1)
Éthique publique     Open Access   (Followers: 1)
Philosophia Scientiæ     Open Access   (Followers: 1)
Nóema     Open Access   (Followers: 1)
International Journal of Social Quality     Full-text available via subscription   (Followers: 1)
Revista Latinoamericana de Filosofía     Open Access   (Followers: 1)
PAN: Philosophy Activism Nature     Full-text available via subscription   (Followers: 1)
Revue Philosophique de Louvain     Full-text available via subscription   (Followers: 1)
Le Portique     Open Access   (Followers: 1)
Temporalités     Open Access   (Followers: 1)
Husserl Studies     Hybrid Journal   (Followers: 1)
Revue d’études benthamiennes     Open Access   (Followers: 1)
Ethische Perspectieven     Full-text available via subscription   (Followers: 1)
Laval théologique et philosophique     Full-text available via subscription   (Followers: 1)
Eleutheria     Open Access   (Followers: 1)
Veritas : Revista de Filosofí­a y Teología     Open Access   (Followers: 1)
Hobbes Studies     Hybrid Journal   (Followers: 1)
Collingwood and British Idealism Studies     Full-text available via subscription  
Grotiana     Hybrid Journal  
Signos Filosóficos     Open Access  
Eidos     Open Access  
Cinta de Moebio     Open Access  
Cuyo Anuario de Filosofía Argentina y Americana     Open Access  
Tópicos. Revista de Filosofía de Santa Fe     Open Access  
Rhuthmos     Open Access  
Philosophiques     Open Access  
Ramon Llull Journal of Applied Ethics     Open Access  
Studia Philosophica Estonica     Open Access  
Synthesis (La Plata)     Open Access  
Revista de Filosofia     Open Access  
Alpha (Osorno)     Open Access  
Circe de clásicos y modernos     Open Access  
Estudios de Filosofía Práctica e Historia de las Ideas     Open Access  
Doctor virtualis     Open Access  
Humanidades Médicas     Open Access  
Methodos     Open Access  
Labyrinthe     Open Access  
Astérion     Open Access  
Trans/Form/Ação - Revista de Filosofia     Open Access  
Russian Studies in Philosophy     Full-text available via subscription  

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Similar Journals
Journal Cover
Journal of Empirical Research on Human Research Ethics
Journal Prestige (SJR): 0.535
Citation Impact (citeScore): 1
Number of Followers: 5  
 
  Full-text available via subscription Subscription journal
ISSN (Print) 1556-2646 - ISSN (Online) 1556-2654
Published by Sage Publications Homepage  [1174 journals]
  • Contract Cheating and Ghostwriting among University Students in Health
           Specialties

    • Free pre-print version: Loading...

      Authors: Muaawia A. Hamza, Faisal R. Al Assadi, Abdulaziz A. Khojah, Renad M. AlHanaki, Nour T. Alotaibi, Rawan M. Kheimi, Abdullah H. Salem, Sumayyia D. Marar
      Abstract: Journal of Empirical Research on Human Research Ethics, Ahead of Print.
      Contract cheating and ghostwriting are forms of misconduct that are unethical and a serious academic issue, especially among healthcare professionals, as they directly impact patient health. To date, research on this area in the Middle East has been limited. Therefore, we used a validated self-administered questionnaire to investigate the awareness, perceptions, and reasons for these behaviors among 682 students in health specialties at five universities in Riyadh, Saudi Arabia. The majority of the students (60.1%) were unaware of the terms “contract cheating” and “ghostwriting,” and 69.5% had not received any prior training on integrity. However, having prior training had a positive effect on awareness levels, and respondents attending private universities were significantly more aware than those attending public universities. The factors that contributed to contract cheating behavior included poor time management, English language difficulties, and a lack of writing skills. These findings emphasize the need for integrity training at the national level to raise awareness.
      Citation: Journal of Empirical Research on Human Research Ethics
      PubDate: 2022-09-26T05:40:51Z
      DOI: 10.1177/15562646221128418
       
  • Providing Public Engagement Training to Build Connections Between the
           Community and Research Ethics Professionals: A Pilot Project

    • Free pre-print version: Loading...

      Authors: Ann R. Johnson, Nalini M. Nadkarni, Caitlin Q. Weber
      Abstract: Journal of Empirical Research on Human Research Ethics, Ahead of Print.
      There is growing interest for research ethics professionals to engage with members of the public, yet they often lack the training needed to engage effectively. The STEM Ambassador Program provides a promising framework for training research ethics professionals to form authentic community connections and carry out effective engagement activities based on shared interests and values. The experiences of ten research administrators who participated in a pilot of the STEM Ambassador training for research ethics professionals are presented. Post-training surveys of the research administrators indicate that they valued the training and the skills obtained, and intend to continue with public engagement activities with support of their leadership.
      Citation: Journal of Empirical Research on Human Research Ethics
      PubDate: 2022-09-14T08:04:46Z
      DOI: 10.1177/15562646221126282
       
  • Equitable Design and Use of Digital Surveillance Technologies During
           COVID-19: Norms and Concerns

    • Free pre-print version: Loading...

      Authors: Bridget Pratt, Michael Parker, Susan Bull
      Abstract: Journal of Empirical Research on Human Research Ethics, Ahead of Print.
      Given the unprecedented scale of digital surveillance in the COVID-19 pandemic, designing and implementing digital technologies in ways that are equitable is critical now and in future epidemics and pandemics. Yet to date there has been very limited consideration about what is necessary to promote their equitable design and implementation. In this study, literature relating to the use of digital surveillance technologies during epidemics and pandemics was collected and thematically analyzed for ethical norms and concerns related to equity and social justice. Eleven norms are reported, including procedural fairness and inclusive approaches to design and implementation, designing to rectify or avoid exacerbating inequities, and fair access. Identified concerns relate to digital divides, stigma and discrimination, disparate risk of harm, and unfair design processes. We conclude by considering what dimensions of social justice the norms promote and whether identified concerns can be addressed by building the identified norms into technology design and implementation practice.
      Citation: Journal of Empirical Research on Human Research Ethics
      PubDate: 2022-09-07T08:03:27Z
      DOI: 10.1177/15562646221118127
       
  • Research Site Anonymity in Context

    • Free pre-print version: Loading...

      Authors: Mzikazi Nduna, Simangele Mayisela, Sadna Balton, Pumla Gobodo-Madikizela, Jabulani G. Kheswa, Itumeleng P Khumalo, Tawanda Makhusha, Maheshvari Naidu, Yandisa Sikweyiya, Sello L. Sithole, Cily Tabane
      Abstract: Journal of Empirical Research on Human Research Ethics, Ahead of Print.
      This paper utilizes critical theory to interrogate and problematize the practice of anonymising research sites as an ethical imperative. The contributing authors conduct research in and with various communities in southern Africa, position themselves and work from and within diverse areas and specialities of the social sciences. This article is developed from their rich and wide spectrum of field experience with a great diversity of communities, but mainly the poorer, under-resourced, socially and economically marginalized. The authors strongly identify with these communities whose anonymity in published research is seen as marginalizing. Such research sites are places and communities where these researchers grew up and live in, and thus not just as peripheral or ‘out there’ entities. Therefore, the naming of research sites in this context is deemed as being ethical, out of respect for participants, for a contextually embedded understanding, and for well-targeted interventions and policy influence.
      Citation: Journal of Empirical Research on Human Research Ethics
      PubDate: 2022-03-08T11:15:04Z
      DOI: 10.1177/15562646221084838
       
  • The Profile of Articles on AXIN2 Mutations, Oligodontia, and Ethical
           Statements in Dental Research

    • Free pre-print version: Loading...

      Authors: R. Constance Wiener
      First page: 412
      Abstract: Journal of Empirical Research on Human Research Ethics, Ahead of Print.
      PurposeEditors often require ethical statements in research publications. This is particularly important with genetic data where discrimination may occur upon data disclosures. The purpose of this research is to determine if there was a positive trend of publishing ethical statements in dental genetic research. The study is limited to AXIN2 mutations which may be associated with oligodontia and cancer.MethodsA MEDLINE search of 2011–2021 articles concerning AXIN2, oligodontia, and ethical statements was conducted. Reviews, nonhuman subject research, abstracts, and articles not written nor translated into English were excluded.ResultsForty-four studies were found; 10 excluded. There were 25 (75.8%) with ethical statements, and 25 (75.8%) with participant consent statements. There was no significant difference by year in ethical statements over the ten years (p = 0.094).ConclusionThere is a need to encourage more ethical statements in publications especially for genetically sensitive topics to reassure readers of ethical practices.
      Citation: Journal of Empirical Research on Human Research Ethics
      PubDate: 2022-07-25T11:48:19Z
      DOI: 10.1177/15562646221116801
       
  • Ethical Considerations for Discrete Choice Experiments with Caregivers

    • Free pre-print version: Loading...

      Authors: Judy Illes, Ashley Lawson, Patrick J. McDonald
      First page: 426
      Abstract: Journal of Empirical Research on Human Research Ethics, Ahead of Print.
      We discuss research ethics challenges experienced while running a discrete choice experiment administered to caregivers of children with treatment resistant pediatric epilepsy. We highlight ethical considerations around the study design of the discrete choice experimental paradigm that pertain to vulnerability of and caregiving burden on the population, imbalance of benefit-to-load of participation, and limitations of cultural meaningfulness and generalizability.
      Citation: Journal of Empirical Research on Human Research Ethics
      PubDate: 2022-07-18T02:49:26Z
      DOI: 10.1177/15562646221112339
       
  • Invited Commentary on “Combatting neo-Colonialism in Health Research:
           What can Aboriginal Health Research Ethics and Global Health Research
           Ethics Teach Each Other'” (JERHRE-20-0064.R4)

    • Free pre-print version: Loading...

      Authors: Michelle R. Brear
      First page: 455
      Abstract: Journal of Empirical Research on Human Research Ethics, Ahead of Print.
      Bridget Pratt and Adrian Harper ( ) conducted a comparison of articles identified through six electronic literature searches. Their aim was to “identify ethics literature… that discussed combatting neo-colonial models of research”. They used manifest content analysis to compare the conceptual content of articles from the fields of global health (GH) and Australian Aboriginal health (AH). This innovative application of a literature review approach from literary and media studies, to health sciences in which literature reviews have traditionally focused on synthesizing evidence about intervention effectiveness, should be commended. It has potential to advance theoretical understandings of ethics in health research. However, I argue here that Pratt and Harper’s (2021) search strategy has several weaknesses, which suggests that their results must be interpreted with caution.
      Citation: Journal of Empirical Research on Human Research Ethics
      PubDate: 2022-04-29T05:12:38Z
      DOI: 10.1177/15562646221097226
       
  • Authors’ Response to “Invited Commentary on ‘Combatting
           Neo-colonialism in Health Research: What Can Aboriginal Health Research
           Ethics and Global Health Research Ethics Teach Each Other'’”

    • Free pre-print version: Loading...

      Authors: Bridget Pratt, Adrian Harper
      First page: 459
      Abstract: Journal of Empirical Research on Human Research Ethics, Ahead of Print.

      Citation: Journal of Empirical Research on Human Research Ethics
      PubDate: 2022-05-03T11:43:41Z
      DOI: 10.1177/15562646221097225
       
  • A Study of a Culturally and Contextually Situated Multimedia Approach to
           Recruit a Hard-to-Reach Spanish-Speaking Population for a Randomized
           Control Trial (RCT)

    • Free pre-print version: Loading...

      Authors: Larimar Rodriguez, Cristina Murray-Krezan, Lidia Regino, Maria Tellez, Camille Vasquez, Virginia Sandoval, Daniel Perez Rodriguez, Blanca Pedigo, Janet Page-Reeves
      First page: 461
      Abstract: Journal of Empirical Research on Human Research Ethics, Ahead of Print.
      Study designs involving randomization can be difficult to communicate to participants, especially those with low literacy. The literature on strategies to explain research concepts is limited, especially for non-English speakers. We measured the effectiveness of a culturally and contextually situated multimedia approach to recruit a cohort of 60 female Mexican immigrants (FMI) to a randomized control trial (RCT) to reduce social isolation and depression. This strategy was designed to explain the concept of randomization, explain what participating in the research study entailed, and ensure informed consent. Potential participants viewed a presentation explaining the study and a video including animation with voice-over explaining the concept of randomization. We administered a pre/post survey. Respondents (N = 59) reported an increase in their understanding of randomization, intention to enroll, and attitude towards participating in research. We conclude that a culturally and contextually situated multimedia approach is an effective model when recruiting underrepresented populations with low literacy for RCTs.
      Citation: Journal of Empirical Research on Human Research Ethics
      PubDate: 2022-05-19T04:33:14Z
      DOI: 10.1177/15562646221102682
       
  • ‘As Long as It's Used for Beneficial Things’: An Investigation of
           non-Māori, Māori and Young People's Perceptions Regarding the Research
           use of the Aotearoa New Zealand Integrated Data Infrastructure (IDI)

    • Free pre-print version: Loading...

      Authors: Hiran Thabrew, Noor Aljawahiri, Harshali Kumar, Nicholas Bowden, Barry Milne, Megan Prictor, Vanessa Jordan, Josefein Breedvelt, Toni Shepherd, Sarah Hetrick
      First page: 471
      Abstract: Journal of Empirical Research on Human Research Ethics, Ahead of Print.
      The Aotearoa New Zealand Integrated Data Infrastructure (IDI) is a national database containing a wide range of data about people and households. There is limited information about public views regarding its use for research.A qualitative study was undertaken to examine the views of forty individuals attending a large hospital in Auckland, including those of Māori ethnicity and young people. Semi-structured interview data were analysed using Braun and Clarke's method of thematic analysis.Seven key themes emerged: 1) Limited knowledge about medical data held in national databases; 2) Conditional support for the use of the IDI, including for research; 3) Concerns regarding the misuse of IDI data; 4) The importance of privacy; 5) Different views regarding consent for use of data for research; 6) Desire for access to personal data and the results of research; and 7) Concerns regarding third party and commercial use. Young people and those of Māori ethnicity were more wary of data misuse than others.Although there is reasonable support for the secondary use of public administrative data in the IDI for research, there is more work to be done to ensure ethical and culturally appropriate use of this data via improved consent privacy management processes and researcher training.
      Citation: Journal of Empirical Research on Human Research Ethics
      PubDate: 2022-07-18T03:26:44Z
      DOI: 10.1177/15562646221111294
       
  • Understanding of Critical Elements of Informed Consent in Genomic
           Research: A Case of a Paediatric HIV-TB Research Project in Uganda

    • Free pre-print version: Loading...

      Authors: Francis Anyaka Amayoa, Frederick Nelson Nakwagala, John Barugahare, Ian Guyton Munabi, Erisa Sabakaki Mwaka
      First page: 483
      Abstract: Journal of Empirical Research on Human Research Ethics, Ahead of Print.
      Several studies have reported inadequate comprehension of informed consent for genomic research. This study aimed to assess research participants’ understanding of critical elements of informed consent for genomic research. A cross-sectional survey involving 123 parents/caregivers of children participating in a paediatric genomic TB/HIV study was conducted. Only 47.2% of the participants had adequate understanding of consent information. The mean objective (actual) and subjective (perceived) understanding scores were 78.7% and 91.7% respectively. Participants adequately understood most elements of consent however, some elements were poorly understood including foreseeable risks, protection of confidentiality and compensation for research related injury. Overall there was inadequate comprehension of critical elements of informed consent and there was dissonance between actual and perceived comprehension of informed consent.
      Citation: Journal of Empirical Research on Human Research Ethics
      PubDate: 2022-05-12T12:55:08Z
      DOI: 10.1177/15562646221100430
       
  • Ethical Analysis of Egypt's Law Regulating Clinical Research

    • Free pre-print version: Loading...

      Authors: Amal Matar, Henry J. Silverman
      First page: 494
      Abstract: Journal of Empirical Research on Human Research Ethics, Ahead of Print.
      Lately, there has been increased research performed in Egypt. In response, the Egyptian Parliament published its first clinical research law in December 2020. The official version of the law was translated to English from Arabic and back by an accredited translation service. We performed an ethical analysis of the law based on the seven ethical requirements for clinical research proposed by Emanuel et al. and compared it with other regulations in the Arab region. The law contains provisions that fulfill all requirements for ethical research to varying degree. Provisions necessitating the sharing of participants’ data and biospecimens by the Central Intelligence Agency requires further specifications to ensure privacy protection. Also, the law poses problematic liabilities that could hamper medical research. Egypt's law compares favorably with other laws in the region. Potential items that require further specification can be addressed in the executive regulations currently being drafted for the law.
      Citation: Journal of Empirical Research on Human Research Ethics
      PubDate: 2022-05-17T05:10:04Z
      DOI: 10.1177/15562646221096188
       
  • A Critical Assessment of the Quality of Reporting of Ethical Protections
           in Medical Papers Published in Turkey

    • Free pre-print version: Loading...

      Authors: M. Kemal Temel
      First page: 504
      Abstract: Journal of Empirical Research on Human Research Ethics, Ahead of Print.
      The Declaration of Helsinki (DoH), the International Committee of Medical Journal Editors (ICMJE) recommendations, and the Committee on Publication Ethics (COPE) guidelines outline the basic principles for ethical conduct and publication of human-subject research, most notably informed consent (IC) and research ethics committee (REC) approval. This retrospective observational study was a first study to investigate the quality of reporting of these protections in a selected sample of medical papers published in Turkey. A total of 573 research articles published in the official journals of six leading Turkish medical schools between January 2018 and December 2020 were searched for information on obtaining (i) REC approval, (ii) written IC from research subjects or their legal guardians/representatives, and (iii) an REC-granted IC waiver when it was found, as stated in the DoH, “impossible or impracticable to obtain consent” from research subjects. Similarly, a total of 166 case reports were searched for a statement about publication-specific IC, as was recommended by COPE. Despite a statistically significant improvement over the years, the overall rates were found to be unsatisfactory. The protections were particularly misused or underused in retrospective research, where the rates of reporting written IC (15.41% vs. 48.61%) and REC approval with date and reference number information (45.38% vs. 61.11%) were significantly lower than in prospective research (p 
      Citation: Journal of Empirical Research on Human Research Ethics
      PubDate: 2022-06-22T04:40:55Z
      DOI: 10.1177/15562646221108600
       
  • Capacity Development of Research Ethics Administrators: Scoping Review

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      Authors: Mutshidzi A Mulondo, Joyce M Tsoka-Gwegweni, Puleng LenkaBula, Perpetual Chikobvu
      First page: 515
      Abstract: Journal of Empirical Research on Human Research Ethics, Ahead of Print.
      Capacity development of research ethics committees is generally limited to members, and seldom includes administrators. This study sought to map the capacity development efforts of research ethics administrators. A scoping review was conducted. The literature search yielded 92 potentially relevant records, and further screening yielded 22 studies. The 22 studies were extracted and synthesized; two studies spoke directly on administrators’ capacity development, while the remaining 20 focused on the capacity development of committees or of committee members. The two studies which spoke directly on administrators reported about two capacity development efforts targeting administrators in Africa, namely the African Conference for Administrators of Research Ethics Committees, and the West African Bioethics Training Program.
      Citation: Journal of Empirical Research on Human Research Ethics
      PubDate: 2022-04-27T07:57:58Z
      DOI: 10.1177/15562646221097044
       
  • Assessing the Quality and Performance of Institutional Review Boards:
           Impact of the Revised Common Rule

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      Authors: Min-Fu Tsan, Hannah Van Hook
      First page: 525
      Abstract: Journal of Empirical Research on Human Research Ethics, Ahead of Print.
      The Common Rule, revised extensively to enhance human subjects protections and to reduce burdens to investigators and institutional review boards (IRBs), was implemented on January 19, 2019. We analyzed IRB performance metric data from 2016 through 2021 to evaluate the potential impact of the revised Common Rule on the quality and performance of IRBs. From 2016 to 2021, exempt protocols increased by 159% and protocols requiring IRB continuing reviews decreased by 28%. As only 48% of all protocols in 2021 were subjected to the revised Common Rule requirements, numbers of exempt protocols and protocols requiring IRB continuing reviews will continue to increase and decrease, respectively, in the next few years. Among a total of 16 IRB performance metrics studied, 4 improved, 4 deteriorated, and 8 remained unchanged from 2016 through 2021. This study represents the first effort to evaluate the impact of revised Common rule on IRB quality and performance.
      Citation: Journal of Empirical Research on Human Research Ethics
      PubDate: 2022-04-26T11:27:24Z
      DOI: 10.1177/15562646221094407
       
  • Combatting neo-Colonialism in Health Research: What can Aboriginal Health
           Research Ethics and Global Health Research Ethics Teach Each Other'

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      Authors: Adrian Harper, Bridget Pratt
      Pages: 431 - 454
      Abstract: Journal of Empirical Research on Human Research Ethics, Volume 17, Issue 4, Page 431-454, October 2022.
      The ethics of research involving Aboriginal populations and low and middle-income country populations each developed out of a long history of exploitative research projects and partnerships. Commonalities and differences between the two fields have not yet been examined. This study undertook two independent literature searches for Aboriginal health research ethics and global health research ethics. Content analysis identified shared and differently emphasised ethical principles and concepts between the two fields. Shared ethical concepts like “benefit” and “capacity development” have been developed to guide collaborations in both Aboriginal health research and global health research. However, Aboriginal health research ethics gives much greater prominence to ethical principles that assist in decolonising research practice such as “self-determination”, “community-control”, and “community ownership”. The paper argues that global health research ethics would benefit from giving greater emphasis to these principles to guide research practice, while justice as approached in global health research ethics may inform Aboriginal health research practice. With increasing attention being drawn to the need to decolonise global health research, the lessons Aboriginal health research ethics can offer may be especially timely.
      Citation: Journal of Empirical Research on Human Research Ethics
      PubDate: 2021-12-21T04:17:26Z
      DOI: 10.1177/15562646211058253
      Issue No: Vol. 17, No. 4 (2021)
       
 
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