Authors:Elysee Nouvet, Simon Grandjean Lapierre, Astrid Knoblauch, Laurence Baril, Andry Andriamiadanarivo, Mihaja Raberahona, Chiarella Mattern, Lorie Donelle, Jean Rubis Andriantsoa Pages: 33 - 44 Abstract: The ethical conduct of research in any setting hinges on the voluntary and informed consent of research participants. Working towards consent that is truly voluntary and informed, however, is far from straightforward, and requires attention to contextual factors that may complicate achievement of this ideal in specific research settings. This paper is based on Madagascar’s first “Consent complexities in health research in Madagascar” workshop, held in Antananarivo, Madagascar, in October 2018. It identifies a number of challenges encountered by individuals responsible for the conduct or oversight of health research in Madagascar related to informed and voluntary consent. Key challenges identified included: adaptation of consent tools into local dialects and for limited literacy populations; perceived acquiescence of potential participants regardless of actual preference based on cultural norms; perceived time pressures within tight project timelines to collect data as quickly as possible, limited time for consent processes; fears and taboos related to specific research procedures or topics; and, uncertainty about how best to approach and verify the validity of individual consent in contexts where traditional leaders’ influence is conventionally sought out and respected. Potential strategies for responding to each of these challenges are proposed, as are key questions meriting further study. PubDate: 2022-03-01 DOI: 10.7202/1087201ar Issue No:Vol. 5, No. 1 (2022)
Authors:Vugar Mammadov, Lala Jafarova Pages: 124 - 127 Abstract: The commentary analyses ethical dilemmas faced by the global community during the coronavirus pandemic. The importance of the intellectual property rights in the context of vaccine distribution is particularly emphasized. The authors highlight bioethical principles – “forgotten” but so significant – in the context of vaccine distribution. PubDate: 2022-03-01 DOI: 10.7202/1087210ar Issue No:Vol. 5, No. 1 (2022)
Authors:Natalie Karine Hardy, Nico Nortje Pages: 143 - 145 Abstract: It is not uncommon for families to wait in hopes of receiving test results that show a treatable mutation, such as in the case of lung cancer. Waiting for such test results can distract families from focusing on a patient’s current pain and suffering, especially when families experience heightened emotions and anticipatory grief. The substituted judgement standard can be helpful in resolving ethical dilemmas by encouraging families to think about what decision a patient would have made if competent, thus preventing unnecessary pain and suffering. This case study sheds light on how the substituted judgement standard was used with a patient’s family and how the family’s hope for a treatable mutation affected their perception of the patient’s clinical condition. PubDate: 2022-03-01 DOI: 10.7202/1087214ar Issue No:Vol. 5, No. 1 (2022)
Authors:Marie-Josée Drolet Pages: 156 - 160 Abstract: This text discusses a new vision of justice, that is, intergenerational occupational justice. In addition to presenting the genesis of an occupational vision of climate justice, the definition and explanation of this value is contrasted with other related concepts in occupational therapy and occupational science. PubDate: 2022-03-01 DOI: 10.7202/1087219ar Issue No:Vol. 5, No. 1 (2022)
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