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Autism
Journal Prestige (SJR): 1.739 ![]() Citation Impact (citeScore): 4 Number of Followers: 279 ![]() ISSN (Print) 1362-3613 - ISSN (Online) 1461-7005 Published by Sage Publications ![]() |
- Virtual group–based mindfulness for autistic adults: A randomized
controlled trial-
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Authors: Yona Lunsky; Madelaine Carter, Sue Hutton, Jan Wozniak, Sheng Chen, Jonathan Weiss
Abstract: Autism, Ahead of Print.
There is evidence for mindfulness as a mental health intervention for autistic adults, but most of the research has focused on in-person interventions. This randomized controlled trial evaluated the impact of a 6-week manualized autistic-informed group-...
Citation: Autism
PubDate: 2025-07-02T05:22:14Z
DOI: 10.1177/13623613251340101
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- Outcomes of the World Health Organization’s Caregiver Skills Training
Program for Eritrean and Ethiopian parents of autistic children in the
United States-
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Authors: Sarah Dababnah; Waganesh A. Zeleke, Yoonzie Chung, Rachel Antwi Adjei, Pamela Dixon, Erica Salomone,
Abstract: Autism, Ahead of Print.
Autism intervention research has not adequately addressed the needs of Black autistic children and their families, particularly those who are also immigrants to the United States. The World Health Organization designed Caregiver Skills Training (CST), a ...
Citation: Autism
PubDate: 2025-06-30T05:50:17Z
DOI: 10.1177/13623613251351345
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- Camouflaging in autism: A cause or a consequence of mental health
difficulties'-
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Authors: Wikke J van der Putten; Audrey JJ Mol, Tulsi A Radhoe, Carolien Torenvliet, Joost A Agelink van Rentergem, Annabeth P Groenman, Hilde M Geurts
Abstract: Autism, Ahead of Print.
Camouflaging ([un]consciously hiding one’s autism traits) is hypothesized to be an underlying mechanism explaining elevated levels of mental health difficulties in autistic adults. As previous studies investigating this relationship were all cross-...
Citation: Autism
PubDate: 2025-06-28T08:30:20Z
DOI: 10.1177/13623613251347104
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- Examining the use of implementation science in autism intervention
research: A scoping review-
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Authors: James D. Lee; Adriana Kaori Terol, Jessica E. Tschida, Anamiguel Pomales-Ramos, Scott McEathron, Anna Wallisch, Brian A Boyd
Abstract: Autism, Ahead of Print.
Although the field of autism intervention has strived to identify evidence-based practices, translating these interventions into real-world settings remains a significant challenge. This gap particularly impacts marginalized communities, where access to ...
Citation: Autism
PubDate: 2025-06-28T08:28:16Z
DOI: 10.1177/13623613251351344
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- A randomized controlled trial into the effectiveness of a mobile health
application (SAM) to reduce stress and improve well-being in autistic
adults-
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Authors: Kirsten L Spaargaren; Yvette Roke, Sander M Begeer, Annemieke van Straten, Heleen Riper, Kirstin Greaves-Lord, Anke M Scheeren
Abstract: Autism, Ahead of Print.
Autistic adults experience more daily stress compared to non-autistic adults. However, stress recognition is often delayed, potentially leading to chronic stress and significant (mental) health risks. We evaluated the effectiveness of Stress Autism Mate (...
Citation: Autism
PubDate: 2025-06-26T08:19:57Z
DOI: 10.1177/13623613251346885
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- ‘We think differently, we learn differently, but at the end of the day
we’re not that different’: Strengths-based approaches in high school
from the perspectives of autistic adolescents-
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Authors: Jia White; Sarah McGarry, P John Williams, Melissa H. Black
Abstract: Autism, Ahead of Print.
Emerging evidence supports the use of strengths-based approaches for autistic students, yet limited research has explored these approaches from the perspectives of autistic adolescents in mainstream high schools. This study used a descriptive ...
Citation: Autism
PubDate: 2025-06-26T08:18:22Z
DOI: 10.1177/13623613251348557
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- Development of a Goal Attainment Scale (GAS) outcome measure for clinical
interventional studies in paediatric autism-
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Authors: Hannah Staunton; Tammy McIver, Julian Tillmann, Susanne Clinch, Vivienne Hanrahan, Bethany Ewens, Caroline Averius, Alexandra I Barsdorf, Aurelie Baranger, Elizabeth Berry Kravis, Tony Charman, Haraldt Neerland, Alison T Singer, Pamela Ventola, Zackary JK Williams, Louise Barrett
Abstract: Autism, Ahead of Print.
Existing clinical outcome assessments (COAs) have limitations in capturing treatment effects in autism for those who chose to enrol in clinical research. Some COAs include items that are not relevant or equally important to all autistic people; others are ...
Citation: Autism
PubDate: 2025-06-25T01:34:06Z
DOI: 10.1177/13623613251349904
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- A scoping review of current approaches to strengths-based transition
practices for autistic adolescents-
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Authors: Sophie Rumsa; Bahareh Afsharnejad, Elinda Ai Lim Lee, Sven Bölte, Tele Tan, Sonya Girdler
Abstract: Autism, Ahead of Print.
This review aimed to map the literature surrounding strengths-based approaches in studies with autistic adolescents focusing on adult transition outcomes, by describing the active ingredients of interventions and the properties of assessment tools. ...
Citation: Autism
PubDate: 2025-06-25T01:31:37Z
DOI: 10.1177/13623613251346336
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- Population-level gender-based analysis of the educational journeys of
students with autism spectrum disorder in British Columbia, Canada-
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Authors: Jennifer Baumbusch; Jennifer EV Lloyd, Vanessa C FongThe University of British Columbia, Canada
Abstract: Autism, Ahead of Print.
Research examining the impact of gender on educational outcomes in autistic students has been sparse. To address this gap, this study investigated the educational journeys of students with autism spectrum disorder in British Columbia, Canada. We examined (...
Citation: Autism
PubDate: 2025-06-21T12:33:36Z
DOI: 10.1177/13623613251345532
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- ‘Picking the best of a bad bunch’: Exploring stakeholder perspectives
of self-harm assessment tools for autistic adults-
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Authors: Victoria Newell; Caroline Richards, Sarah Cassidy
Abstract: Autism, Ahead of Print.
Autistic people are at greater risk of self-harm than non-autistic people, yet no tools exist specifically for assessing self-harm in this population. We therefore conducted two focus groups with autistic adults (n = 5) and professionals (n = 4) to ...
Citation: Autism
PubDate: 2025-06-19T07:18:37Z
DOI: 10.1177/13623613251348555
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- A mixed-methods study of autistic and non-autistic community member
participation in autism research-
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Authors: Sarah L Curtiss; Sarah Tillman, Majd Subih, Kaitlyn Myers
Abstract: Autism, Ahead of Print.
Participatory research is one pathway for advancing the agenda of autistic advocates; however, little is known about the attitudes and values of autism researchers toward participatory research. This is a participatory research mixed-methods study of 215 ...
Citation: Autism
PubDate: 2025-06-19T07:14:25Z
DOI: 10.1177/13623613251348543
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- ‘You feel part of something bigger’: Stakeholders’ experiences of a
long-term community–academic participatory research partnership-
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Authors: Elizabeth Pellicano; Catherine A Bent, Teresa Iacono, Kristy Capes, Shannon Upson, Kristelle Hudry
Abstract: Autism, Ahead of Print.
Many community–academic partnerships are established to conduct meaningful research and practice. Yet, little is written about their sustainability and what does exist suggests that effective partnerships are hard to sustain. In this study, we sought ...
Citation: Autism
PubDate: 2025-06-19T07:12:01Z
DOI: 10.1177/13623613251348485
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- ‘I live with my emotions much better now’: A qualitative study of
-
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Authors: Luisa Weiner; Doha Bemmouna
Abstract: Autism, Ahead of Print.
Many Autistic adults without intellectual disability experience emotion dysregulation, which is associated with non-suicidal self-injury and suicidal behaviour. Dialectical behaviour therapy has been shown to be feasible, acceptable and potentially ...
Citation: Autism
PubDate: 2025-06-19T06:46:53Z
DOI: 10.1177/13623613251348271
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- Camouflaging and identity development among autistic female and
gender-diverse youth: A qualitative exploration-
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Authors: Krista N Drapalik; Daniel J Magin, Melissa L Rinaldi, Kristin V ChristoduluUniversity at Albany–State University of New York, USA
Abstract: Autism, Ahead of Print.
Adolescence is a vulnerable developmental period for autistic youth. Autistic adolescents often use camouflaging to combat social challenges, perceived differences, and stigmatization. Although adolescence is an integral period for identity development, ...
Citation: Autism
PubDate: 2025-06-19T06:44:57Z
DOI: 10.1177/13623613251345855
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- “There is nothing”—Exploring diagnostic and service access for
autistic individuals in Uruguay: A qualitative study-
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Authors: Maria Cecilia Montenegro; Gabriela Garrido, Leyla Feize, Liza Talavera-Garza, Bianca T Villalobos, Cecilia Montiel-Nava
Abstract: Autism, Ahead of Print.
Due to the higher autism research presence of higher-income countries, the known social and cultural experiences of families raising a child with autism are centered on their realities. This narrative overlooks the experiences of many families who do not ...
Citation: Autism
PubDate: 2025-06-18T03:47:59Z
DOI: 10.1177/13623613251345334
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- Comparing trajectories of sport participation for autistic- and
non-autistic-youth: A group-based multi-trajectory modelling approach-
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Authors: Martin O’Flaherty; Jessica Hill, Matthew Bourke, Sjaan Gomersall, Sean Tweedy, John CairneyThe University of Queensland, Australia
Abstract: Autism, Ahead of Print.
Autistic children are less likely to participate in sport than non-autistic children, but we know little about how patterns of participation in team and individual sport change across childhood. Drawing on a nationally representative cohort of Australian ...
Citation: Autism
PubDate: 2025-06-12T05:58:08Z
DOI: 10.1177/13623613251345345
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- Understanding Repetitive Behaviours: A clinical and cost-effectiveness,
multi-site randomised controlled trial of a group for parents and carers
of young autistic children-
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Authors: Victoria Grahame; Ashleigh Kernohan, Ehsan Kharati, Ayesha Mathias, Chrissie Butcher, Linda Dixon, Sue Fletcher-Watson, Deborah Garland, Magdalena Glod, Jane Goodwin, Saoirse Heron, Emma Honey, Ann Le Couteur, Leila Mackie, Jessica Maxwell, Lewis Montgomery, Emmanuel Ogundimu, Helen Probert, Deborah Riby, Priyanka Rob, Leanne Rogan, Laura Tavernor, Luke Vale, Elspeth Imogen Webb, Christopher Weetman, Jacqui Rodgers
Abstract: Autism, Ahead of Print.
Restricted and repetitive behaviours vary greatly between autistic people. Some are a source of pleasure or create opportunities for learning; others may be detrimental in day-to-day life or cause harm. We have developed, in close collaboration with ...
Citation: Autism
PubDate: 2025-06-09T09:11:13Z
DOI: 10.1177/13623613251333175
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- Consensus on high-priority outcomes to be used in the evaluation of
services for autistic adults: Results from a “CBPR-Nested Delphi
Process”-
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Authors: Christina Nicolaidis; Mirah Scharer, Dora M Raymaker, Joseph Vera, Todd Edwards, Ian Moura, Mary Baker-Ericzén, Joelle Maslak, Liu-Qin Yang, Rachel Kripke-Ludwig, Steven K Kapp, Andrea Joyce, Anna Wallington,
Abstract: Autism, Ahead of Print.
People are increasingly recognizing the need for service interventions to improve the lives of autistic adults. However, less is known about how to best evaluate such services. We aimed to identify (1) which self-reported outcomes are most important to ...
Citation: Autism
PubDate: 2025-06-05T07:28:03Z
DOI: 10.1177/13623613251322082
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- Alexithymic and autistic traits differentially predict personality
disorder dimensions-
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Authors: Laura Albantakis; Leonie Weindel, Marie-Luise Brandi, Imme C. Zillekens, Lara Henco, Hanna Thaler, Lena Schliephake, Leonhard Schilbach
Abstract: Autism, Ahead of Print.
Alexithymia and autism are variably characterized by social cognitive and perceptual deficits, which can lead to profound social interaction difficulties. Such difficulties are also the hallmark of personality disorders (PDs), but the potential link ...
Citation: Autism
PubDate: 2025-06-02T06:08:42Z
DOI: 10.1177/13623613251338650
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- ‘I shouldn’t have to educate their school about what autism is’:
Community attitudes and parent reports of autistic primary and secondary
school experiences in Australia-
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Authors: Sandra Thom-Jones; Chloe S Gordon, Simone Mizzi
Abstract: Autism, Ahead of Print.
This study aims to understand experiences of inclusion for autistic school students. The study reports on findings from three surveys, one conducted in 2021 with the general population (N = 1983) and two conducted with parents/carers of autistic school ...
Citation: Autism
PubDate: 2025-05-31T12:16:45Z
DOI: 10.1177/13623613251338908
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- The vaccine–autism connection: No link, still debate, and we are
failing to learn the lessons-
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Authors: Sheffali Gulati; Indar Kumar Sharawat, Prateek Kumar Panda, Sanjeev V Kothare
Abstract: Autism, Ahead of Print.
Citation: Autism
PubDate: 2025-05-31T05:49:08Z
DOI: 10.1177/13623613251345281
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- Consolidating a framework of autistic camouflaging strategies: An
integrative systematic review-
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Authors: Jacques Nel; Maxine Spedding, Susan Malcolm-SmithUniversity of Cape Town, South Africa
Abstract: Autism, Ahead of Print.
Autistic ‘social camouflaging’ research is proliferating. However, the term is multi-definitional. Our integrative systematic review (CRD42022324957) pursued a single-framework, qualitative meta-synthesis of camouflaging in autistic adults. We report ...
Citation: Autism
PubDate: 2025-05-31T05:13:15Z
DOI: 10.1177/13623613251335472
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- From awareness to action: Facilitators and advocacy in healthcare by
autistic adults-
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Authors: Megan Best; RaeAnne Lindsay, Sarah Demissie, Isabelle Burakov, Saury Ramos-Torres, Meghan Burke
Abstract: Autism, Ahead of Print.
Autistic adults face various psychological and physical health conditions which often require ongoing medical attention. Despite a greater likelihood of health conditions, autistic adults face many systemic barriers in accessing healthcare services. It is ...
Citation: Autism
PubDate: 2025-05-27T09:28:57Z
DOI: 10.1177/13623613251343350
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- Autistic young adults’ experiences in physical activity: A
phenomenological study-
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Authors: Ashlyn Barry; Justin A Haegele, Kristen A Pickett, Daniel Schaefer, Luis Columna
Abstract: Autism, Ahead of Print.
Young adulthood is a key period for establishing lifelong physical activity (PA) habits, yet little is known about how autistic young adults experience PA. The purpose of this study was to explore how autistic young adults make sense of their PA ...
Citation: Autism
PubDate: 2025-05-27T09:27:19Z
DOI: 10.1177/13623613251338377
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- ‘. . . there’s so much within the work that we do where all we kind of
need is the space and the safety’: The experiences of Australian
practitioners who support autistic survivors of sexual and domestic
violence-
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Authors: Jessica Fox; Julie-Anne Carroll, Jodi DeathQueensland University of Technology, Australia
Abstract: Autism, Ahead of Print.
Research has found that autistic women experience elevated rates of sexual and domestic violence and may benefit from accessing support to recover. This study aimed to explore the experiences of Australian practitioners and the approaches they use to ...
Citation: Autism
PubDate: 2025-05-25T05:07:01Z
DOI: 10.1177/13623613251344425
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- ‘Sometimes I’m feeling baffled and they’re probably feeling
baffled’: On the experiences of psychological therapists working with
autistic people in a structured primary care service for anxiety disorders
and depression-
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Authors: Paul K Miller; Samantha LJ Bowden, Natalie Dewison, Barry Ingham, Richard Thwaites, Dave Dagnan
Abstract: Autism, Ahead of Print.
Autistic people are more likely to experience mental health problems such as anxiety disorder and depression than are the general population. This study reports a qualitative analysis of interview data provided by 12 psychological therapists regarding ...
Citation: Autism
PubDate: 2025-05-22T10:01:07Z
DOI: 10.1177/13623613251341610
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- Methodological challenges and opportunities when studying the course of
autism-
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Authors: Vanessa Hus Bal; Peter Szatmari, Stelios Georgiades, Stephen J Gentles, Jessica Girault, Patricia Howlin, Meng-Chuan Lai, Virginia Carter Leno, Catherine Lord, Katie Madgett, Stephen J Sheinkopf, Emily Simonoff, Zachary J Williams, Lonnie Zwaigenbaum, Alycia Halladay
Abstract: Autism, Ahead of Print.
Longitudinal research in autism has contributed a wealth of knowledge about etiological factors, development from childhood through adulthood, life course changes and needs, as well as longer-term adult outcomes for individuals on the spectrum and their ...
Citation: Autism
PubDate: 2025-05-22T08:35:19Z
DOI: 10.1177/13623613251341012
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- The impact of state policy on early autism diagnosis: A qualitative
investigation-
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Authors: Olivia J Lindly; Danielle Abate, Plyce L Fuchu, Jocelyn L Kuhn, Purnima S Mudnal Bharath, Sarah M Asantewaa, Emily Feinberg, Sarabeth Broder-Fingert
Abstract: Autism, Ahead of Print.
Autism diagnosis before age three to expedite access to critical services is a public health priority in the United States. Still, the average age of autism diagnosis is 49 months with substantial variability across states. By examining policy—defined as ...
Citation: Autism
PubDate: 2025-05-22T08:32:46Z
DOI: 10.1177/13623613251336813
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- Caregiver concerns for autistic children differ between publicly funded
educational and mental health settings: Findings from a community
implementation-effectiveness trial-
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Authors: Laurel R. Benjamin; Aubyn C. Stahmer, Anna Lau, Lauren Brookman-Frazee
Abstract: Autism, Ahead of Print.
This study sought to characterize caregiver concerns for autistic children receiving care in two public service systems—schools and mental health programs—and to identify child and family characteristics associated with these concerns. Caregivers of 353 ...
Citation: Autism
PubDate: 2025-05-16T07:26:09Z
DOI: 10.1177/13623613251337536
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- ‘Am I gonna regret this'’: The experiences of diagnostic disclosure in
autistic adults-
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Authors: Sheena K Au-Yeung; Megan Freeth, Andrew R Thompson
Abstract: Autism, Ahead of Print.
An increasing number of people receive autism diagnoses in adulthood, and there are few studies investigating autistic adults’ experiences of disclosing their diagnosis. This study sought to understand autistic adults’ experiences of diagnostic disclosure ...
Citation: Autism
PubDate: 2025-05-13T10:52:09Z
DOI: 10.1177/13623613251337504
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- Endogenous and exogenous oxytocin modulate interpersonal motor resonance
in autism: A context-dependent and person-specific approach-
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Authors: Jellina Prinsen; Kaat AlaertsNeurorehabilitation Research Group, Department of Rehabilitation Sciences, KU Leuven, Belgium
Abstract: Autism, Ahead of Print.
Understanding and interpreting non-verbal actions are critical components of social cognition, which are often challenging for autistic individuals. Oxytocin, a neuropeptide known to modulate social behavior and enhance the salience of social stimuli, is ...
Citation: Autism
PubDate: 2025-05-12T05:11:42Z
DOI: 10.1177/13623613251335730
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- Pilot rural–urban comparison of health care experiences among autistic
adolescents and young adults-
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Authors: E Zhang; Wafaa Alduraidi, Makenna Snyder, Ezra Kaiser, Spencer Hunley, Ann Davis, Eve-Lynn Nelson, Nancy Cheak-Zamora
Abstract: Autism, Ahead of Print.
Autistic adolescents and young adults face barriers to accessing health care, particularly during the pediatric-to-adult care transition. This study compared health care access, utilization, and provider interactions between rural and urban autistic ...
Citation: Autism
PubDate: 2025-05-10T06:06:45Z
DOI: 10.1177/13623613251337506
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- Co-designing a novel service delivery pathway to increase access to autism
identification and care within a non-profit community organization serving
culturally and linguistically diverse families-
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Authors: Shana M Attar; Hannah Benavidez, Carol Gicheru, Colleen Alabi, Risho Sapano, Wendy L Stone
Abstract: Autism, Ahead of Print.
Culturally and linguistically diverse families experience greater challenges accessing timely, autism-specialized care relative to non-culturally and linguistically diverse families, and ultimately experience less optimal health outcomes. Alternative ...
Citation: Autism
PubDate: 2025-05-10T05:30:21Z
DOI: 10.1177/13623613251335702
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- Demographic, ecological and social predictors of quality of life among
parents of autistic children: A multi-centre cross-sectional study-
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Authors: Raghad AbdulKareen Abdoun Al-Janabi; Zainab Ali Saleem, Faris Lami, Osamah Abbas Jaber, Shatha Mohammed Jasim, Nahid Dehghan Nayeri, Mahdi Shafiee Sabet, Ghaith Al-Gburi
Abstract: Autism, Ahead of Print.
Parents experience lower quality of life due to the psychological, financial and social challenges of caring for an autistic child. This study aims to identify the independent demographic and social predictors of parents’ quality of life, to allocate ...
Citation: Autism
PubDate: 2025-05-10T05:24:40Z
DOI: 10.1177/13623613251334166
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- Autistic-led insights on airport accessibility: A retrospective analysis
of environmental assessments-
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Authors: Chris Edwards; Abigail MA Love, Ru Ying Cai, Tom Tutton, Emma Beardsley, Vicki Gibbs
Abstract: Autism, Ahead of Print.
Autistic people often encounter significant barriers when navigating airports, largely due to overwhelming sensory environments, stringent security procedures, and crowded spaces. This study aimed to enhance understanding of airport accessibility by ...
Citation: Autism
PubDate: 2025-05-09T08:44:57Z
DOI: 10.1177/13623613251337200
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- Risky business: How assumptions about evidence can exclude autistic voices
-
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Authors: Schea Fissel BrannickMidwestern University; USA
Abstract: Autism, Ahead of Print.
Gestalt Language Development has been proposed as a theoretical foundation for neurodiversity-affirming intervention, yet its adoption remains controversial. Critics cite limited high-quality research as justification for rejecting its use, raising valid ...
Citation: Autism
PubDate: 2025-04-30T09:35:47Z
DOI: 10.1177/13623613251339006
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- Self-reported masking in sexual minority and heterosexual autistic adults
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Authors: Goldie A McQuaid; Nancy Raitano Lee, Gregory L Wallace
Abstract: Autism, Ahead of Print.
Masking can include suppressing or concealing certain behaviors to appear “non-autistic” and is one response to the excess social stressors of being a neurominority in a neurotypical-majority society. It is important to understand how persons who are ...
Citation: Autism
PubDate: 2025-04-30T09:34:00Z
DOI: 10.1177/13623613251335738
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- ‘Accumulating harm and waiting for crisis’: Parents’ perspectives of
accessing Child and Adolescent Mental Health Services for their autistic
child experiencing mental health difficulties-
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Authors: Emma Ashworth; Lucy Bray, Claire Hanlon, Harvey Stanway, Georgia Pavlopoulou, David Moore, Bethany Donaghy, Elizabeth Coen, Ellen Firth
Abstract: Autism, Ahead of Print.
Autistic children and young people are at increased risk of mental health difficulties, but often face barriers when seeking help from Child and Adolescent Mental Health Services. This study aimed to (1) explore the experiences of parents/carers seeking ...
Citation: Autism
PubDate: 2025-04-30T09:30:32Z
DOI: 10.1177/13623613251335715
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- ‘We’re quite good at thinking outside the box: Early autistic sensory
experiences expressed by autistic adults and caregivers of autistic
children-
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Authors: Katy L Unwin; Kelsey Philpott-Robinson, Josephine Barbaro, Patrick Dwyer, Nancy Sadka, Perrin Date, Alison E Lane
Abstract: Autism, Ahead of Print.
Sensory differences are well documented in autistic individuals. However, early sensory experiences have not been fully explored, particularly from the perspective of autistic people. We sought to understand early sensory experiences in autism from the ...
Citation: Autism
PubDate: 2025-04-25T11:49:03Z
DOI: 10.1177/13623613251335069
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- “I’m not feeling alone in my experiences”: How newly diagnosed
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Authors: Chris Edwards; Abigail MA Love, Ru Ying Cai, Melanie Heyworth, Alexandra Johnston, Fiona Aldridge, Vicki Gibbs
Abstract: Autism, Ahead of Print.
Receiving an autism diagnosis in adulthood can be profoundly transformative, yet many newly diagnosed autistic adults experience a lack of accessible, affirming post-diagnostic support. This study explores how a self-guided, neurodiversity-affirming ...
Citation: Autism
PubDate: 2025-04-25T11:38:20Z
DOI: 10.1177/13623613251335070
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- The moderating role of co-occurring attention-deficit hyperactivity
disorder in social skills group training for autistic children and
adolescents-
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Authors: Anna Fridell; Nora Choque Olsson, Christina Coco, Sven Bölte, Ulf Jonsson
Abstract: Autism, Ahead of Print.
Social skills group training is frequently used to support autistic children and adolescents in coping with everyday social demands and expectations. Meta-analytic studies suggest small to medium effect sizes. Effect moderators must be better understood ...
Citation: Autism
PubDate: 2025-04-23T10:08:23Z
DOI: 10.1177/13623613251331993
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- Healthcare providers’ practices in identifying and managing constipation
in autistic adults: A qualitative study of facilities across France-
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Authors: Wynn Smith; Charlotte Desprez
Abstract: Autism, Ahead of Print.
Constipation is a common comorbidity among autistic adults, yet diagnosing and managing it poses unique challenges, notably due to communication barriers and a lack of specific guidelines. The study explores the professional practices of healthcare ...
Citation: Autism
PubDate: 2025-04-23T05:33:03Z
DOI: 10.1177/13623613251333829
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- ‘It just feels unnatural being here’: Autistic secondary school
students’ experiences of sensory sensitivities in the school environment
-
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Authors: Jennifer Price; Anna Mel RomualdezUniversity College London, UK
Abstract: Autism, Ahead of Print.
Autistic young people often struggle to cope with the daily demands of school and are likelier to experience poorer wellbeing and educational outcomes than their non-autistic peers. Among other factors, this may be because mainstream settings are ...
Citation: Autism
PubDate: 2025-04-21T11:36:53Z
DOI: 10.1177/13623613251333860
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- Curricular integration of augmentative and alternative communication for
students on the autism spectrum in inclusive-oriented schools: A scoping
review-
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Authors: Jorge Eduardo Alfaro-Urrutia; Pamela Pérez-Godoy
Abstract: Autism, Ahead of Print.
Many students with autism spectrum condition who require augmentative and alternative communication systems attend inclusive-oriented schools, where it is expected that curricula support their preferred communication methods. While augmentative and ...
Citation: Autism
PubDate: 2025-04-21T11:26:19Z
DOI: 10.1177/13623613251333834
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- The development and utilization of a diversity advisory board in an
intervention to support social skill development for autistic
transition-aged youth-
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Authors: Ed-Dee G Williams; Matthew J Smith, Jamie Mitchell, Ty B Tucker, Connie Sung, Kari Sherwood, Sarah Dababnah, Sandy Magaña, Temple Lovelace, Shanna K Kattari, Dale Olsen, Jeff Elkins, Laura Humm, Chris Steacy, Edwina Riddle, Caleb Liggett
Abstract: Autism, Ahead of Print.
Recent discourse has identified significant issues surrounding the lack of diversity in autism-related research. However, recent efforts have called for the regular use of diversity advisory boards (DAB) in autism-related research to improve the ...
Citation: Autism
PubDate: 2025-04-15T11:47:59Z
DOI: 10.1177/13623613251330847
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- Beyond individual support: Employment experiences of autistic Korean
designers receiving strength-based organizational support-
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Authors: SoHyun Lee; So Yoon Kim, Kwinam Lee, Sehwa Sim, Hyesung Park
Abstract: Autism, Ahead of Print.
This study qualitatively examined the employment experiences of autistic designers in a South Korean company providing strength-based support at the organizational level. The experiences of 12 autistic employees (mean age = 27 years old, 83.3% male), 12 ...
Citation: Autism
PubDate: 2025-04-11T06:00:48Z
DOI: 10.1177/13623613251329605
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- Caregiver behavioral changes mediate the effects of naturalistic
developmental behavioral interventions: Combining evidence from three
randomized controlled trials-
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Authors: Deanna Swain; Ji Eun Han, Hallie Brown, Catherine Lord, Sally Rogers, Annette Estes, Connie Kasari, Andrew Pickles, So Hyun Kim
Abstract: Autism, Ahead of Print.
Naturalistic developmental behavioral interventions target developmentally appropriate skills in young children with autism spectrum disorders using behavioral techniques in naturalistic interactions. Naturalistic developmental behavioral interventions ...
Citation: Autism
PubDate: 2025-04-11T06:00:22Z
DOI: 10.1177/13623613251328463
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- A Randomized Trial of Caregiver-Mediated Function-Based Elopement
Treatment for Autistic Children-
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Authors: Mindy Scheithauer; Joanna Lomas Mevers, Lawrence Scahill, Sarah Slocum Freeman, Colin Muething, Chelsea Rock, Scott Gillespie, Laura Johnson, Nathan Call
Abstract: Autism, Ahead of Print.
Elopement is a common and dangerous behavior among autistic children. Behavioral treatments can reduce elopement, but most evidence comes from small-N evaluations in specialized settings with strategies varying across studies. The current study compared ...
Citation: Autism
PubDate: 2025-04-04T12:49:14Z
DOI: 10.1177/13623613251330388
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- Play interactions of autistic preschoolers with their mothers and fathers
without toys yield more positive interactions than play with toys-
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Authors: David Oppenheim; Michal Mottes-Peleg, Smadar Dolev, Nurit Yirmiya
Abstract: Autism, Ahead of Print.
Observations of parent–child play with toys are often used to assess interactions between parents and non-autistic as well as autistic children, but some research indicates that play without toys may elicit more positive interactions than play with toys. ...
Citation: Autism
PubDate: 2025-04-03T11:48:52Z
DOI: 10.1177/13623613251329975
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- Sacrifice, uncertainty, and resilience: Qualitative study of U.S./Mexico
border mothers of autistic children-
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Authors: Fernanda A Castellón; Ana Dueñas, Paul Luelmo
Abstract: Autism, Ahead of Print.
The purpose of this study was to explore and document the migratory motivations and reasonings of Mexican mothers of autistic children pursuing autism services in the United States. The study was guided by the overarching research question, “What are the ...
Citation: Autism
PubDate: 2025-04-03T11:26:33Z
DOI: 10.1177/13623613251322059
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- Trajectories of autism symptom severity for boys and girls across
childhood-
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Authors: Einat Waizbard; Emilio Ferrer, Meghan Miller, Brianna Heath, Derek S Andrews, Sally J Rogers, Christine Wu Nordahl, Marjorie Solomon, David G Amaral
Abstract: Autism, Ahead of Print.
Girls, more than boys, experience a decrease in the severity of autism symptoms during childhood. It is unclear, however, which specific autistic behaviors change more for girls than for boys. Trajectories of autism symptoms were evaluated using the ...
Citation: Autism
PubDate: 2025-04-01T08:07:13Z
DOI: 10.1177/13623613251325317
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- Pilot randomized controlled trial of MINDful TIME, a novel telehealth
mindfulness-based intervention for autistic adolescents and their
caregivers-
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Authors: Nicole L Matthews; Melissa M Mitchell, Hannah Honda, Amanda Malligo, Summer Boyd, Broc A Pagni, B Blair Braden
Abstract: Autism, Ahead of Print.
A growing body of research suggests that mindfulness-based interventions may be a valuable method for reducing internalizing symptoms in autistic individuals. The current study extends this work using an effectiveness-implementation hybrid type 1 study. ...
Citation: Autism
PubDate: 2025-03-31T09:44:28Z
DOI: 10.1177/13623613251328484
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- The design of the “autistics in (educational) space: building our own
futures” doctoral project-
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Authors: Ryan B CollisYork University; Canada
Abstract: Autism, Ahead of Print.
As an autistic researcher and doctoral candidate, I have designed my dissertation research in a way that values the lived experience of my four autistic participants. Using their responses to a series of material objects and a science fiction novel by, ...
Citation: Autism
PubDate: 2025-03-29T12:55:18Z
DOI: 10.1177/13623613251328495
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- Comparing the prevalence of substance use disorders between persons with
and without autism spectrum disorders-
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Authors: Victor Lushin; Steven Marcus, Sha Tao, Malitta Engstrom, Anne Roux, Lindsay Shea
Abstract: Autism, Ahead of Print.
Recent research has suggested that people with autism spectrum disorder may be disproportionately at risk of substance use disorders. This study analyzed national-level Medicaid Claims data to compare substance use disorder prevalence among Medicaid ...
Citation: Autism
PubDate: 2025-03-29T12:40:49Z
DOI: 10.1177/13623613251325282
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- Autism in the context of joint hypermobility, hypermobility spectrum
disorders, and Ehlers–Danlos syndromes: A systematic review and
prevalence meta-analyses-
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Authors: Carolina Baeza-Velasco; Judith Vergne, Marianna Poli, Larissa Kalisch, Raffaella Calati
Abstract: Autism, Ahead of Print.
Increasing research suggests a link between autism spectrum disorders and joint hypermobility, hypermobility spectrum disorders, and Ehlers–Danlos syndromes. However, no study systematically examined the available literature about the relationship between ...
Citation: Autism
PubDate: 2025-03-27T12:21:05Z
DOI: 10.1177/13623613251328059
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- Effects of micronutrients on neurodevelopmental disorders through the
mediation of brain structure and function: A two-step Mendelian
randomization analysis-
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Authors: Chanhua Li; Jiatong Deng, Weiyan Huang, Wanling Chen, Lijuan Wei, Guanghui Ran, Lili Liu, Zhongyi Li, Meiliang Liu, Dongping Huang, Shun Liu, Xiaoyun Zeng, Lijun WangGuangxi Medical University, China
Abstract: Autism, Ahead of Print.
The physiological functions of micronutrients in neurodevelopment are well documented, but their protective effects on neurodevelopmental disorders remain controversial. We assessed the associations between micronutrients and three main neurodevelopmental ...
Citation: Autism
PubDate: 2025-03-27T12:15:44Z
DOI: 10.1177/13623613251326702
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- Caregiver-identified strengths in children attending their first
neurodevelopmental assessment: Findings from the Sydney child development
research registry and development of a child strengths checklist-
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Authors: Kelsie A Boulton; Lorna Hankin, Marie-Antoinette Hodge, Natalie Ong, Natalie Silove, Adam J Guastella
Abstract: Autism, Ahead of Print.
There has been a growing focus on the importance of understanding strengths in children with neurodevelopmental conditions and how such knowledge can support clinical practices. However, limited research has explored systematic reports of strengths from ...
Citation: Autism
PubDate: 2025-03-27T12:10:50Z
DOI: 10.1177/13623613251325287
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- Motor and socio-cognitive mechanisms explaining peers’ synchronization
of joint action across development in autistic and non-autistic children-
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Authors: Roni Poyas Naharan; Yael Estrugo, Shahar Bar Yehuda, Nirit Bauminger-Zviely
Abstract: Autism, Ahead of Print.
When partners coordinate their movement in time and space to reach a goal, they perform joint action, an important part of every interaction. Joint action involves motor abilities and socio-cognitive skills like theory of mind. Autistic children’s lower ...
Citation: Autism
PubDate: 2025-03-26T06:01:11Z
DOI: 10.1177/13623613251328437
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- Mindfulness and parenting stress among parents of autistic children: The
mediation of resilience and psychological flexibility-
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Authors: Yongshen Feng; Dali Lu, Tsz Ying Christine Ng, Pui Hing Chau, Lily Man Lee Chan, Jojo Yan Yan Kwok
Abstract: Autism, Ahead of Print.
High parenting stress is associated with diminished quality of life in parents and more problem behaviors in autistic children. Mindfulness-based interventions have demonstrated efficacy in mitigating parenting stress. Psychological flexibility and ...
Citation: Autism
PubDate: 2025-03-25T12:25:50Z
DOI: 10.1177/13623613251328465
-
- Who Tweets for the autistic community' A natural language
processing–driven investigation-
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Authors: Canfer Akbulut; Geoffrey Bird
Abstract: Autism, Ahead of Print.
The formation of autism advocacy organisations led by family members of autistic individuals led to intense criticism from some parts of the autistic community. In response to what was perceived as a misrepresentation of their interests, autistic ...
Citation: Autism
PubDate: 2025-03-25T12:19:43Z
DOI: 10.1177/13623613251325934
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- Correlates of self-reported life satisfaction among autistic youth with
and without intellectual disability-
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Authors: Carly Moser; Leann Smith DaWalt, Meghan M Burke, Julie Lounds Taylor
Abstract: Autism, Ahead of Print.
Compared to their nonautistic peers, lower levels of life satisfaction have been reported by autistic individuals. It is unclear, however, whether autistic individuals with intellectual disability report similar levels of life satisfaction as autistic ...
Citation: Autism
PubDate: 2025-03-25T11:23:25Z
DOI: 10.1177/13623613251327347
-
- Gaming in the intervention and support process: A realist evaluation of a
gaming-based programme-
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Authors: Melissa H Black; Abi Lilford, Vy Nguyen, Erin Walker, Haw Huei Wee, Olov Falkmer, Sarah McGarry
Abstract: Autism, Ahead of Print.
Using games as part of the intervention and support process (sometimes referred to as ‘gaming therapy’) is an increasingly popular method of supporting autistic youth to develop social competencies and other skills because they are believed to be ...
Citation: Autism
PubDate: 2025-03-15T11:13:49Z
DOI: 10.1177/13623613251320542
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- The use of multisensory environments in children and adults with autism
spectrum disorder: A systematic reviewz-
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Authors: Simona Leonardi; Marcella Di Cara, Silvia Giliberto, Adriana Piccolo, Carmela De Domenico, Giulia Leonardi, Angelo Alito, Rosamaria Siracusano, Rocco Salvatore Calabrò, Angelo Quartarone, Francesca Cucinotta
Abstract: Autism, Ahead of Print.
Multisensory environment is a setting designed with activities and tools that offered sensory stimulation. Despite their widespread use, no evidence-based guidelines are currently available. The aim of this systematic review was to assess the impact of ...
Citation: Autism
PubDate: 2025-03-15T06:21:43Z
DOI: 10.1177/13623613251320424
-
- Sex-typical toy, activity, and playmate preferences in autistic and
non-autistic children-
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Authors: Jacqueline C S To; Karson T F KungThe University of Hong Kong, China
Abstract: Autism, Ahead of Print.
Play, in particular sex-typical play, is important for affective, cognitive, and social development. There is limited research on sex-typical play in autistic children. The few prior studies on this topic relied heavily on reports or involvement of ...
Citation: Autism
PubDate: 2025-03-12T12:13:25Z
DOI: 10.1177/13623613251321207
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- Satisfaction with friendship support protects autistic youth from the
negative effects of peer victimization-
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Authors: Natalie Libster, Ryan Adams, Somer Bishop, Shuting Zheng, Julie Lounds Taylor; Ryan Adams, Somer Bishop, Shuting Zheng, Julie Lounds Taylor
Abstract: Autism, Ahead of Print.
Autistic youth experience higher rates of peer victimization than their non-autistic peers. While there is some evidence that friendships may protect against the negative mental health effects of peer victimization in the general population, these protective effects have not been examined in autistic youth. The current study explored whether satisfaction with friendship support is associated with depressive symptoms among autistic youth, and whether satisfaction with friendship support buffers against the negative effects of peer victimization on mental health. Autistic youth (N = 224) between the ages of 15 and 25 years (M = 18.68 years) completed questionnaires measuring frequency of peer victimization, satisfaction with friendship support, and depressive symptoms. Satisfaction with friendship support was not associated with depressive symptoms; however, the effect of peer victimization on depressive symptoms was attenuated for youth who were more satisfied with their friendship support compared to youth who were less satisfied with their friendship support. The results of the current study therefore highlight the potential for promoting mental health of autistic youth through reducing peer victimization and increasing satisfaction with peer relationships.Lay AbstractAutistic youth are more likely to be bullied than youth who are not on the autism spectrum. Youth in the general population who are bullied experience poor mental health, but those who are satisfied with their friendships may be protected from these negative outcomes. No studies have looked at how friendships affect the mental health of autistic youth who are bullied by their peers. Autistic youth completed questionnaires that asked them to report how frequently they were bullied, whether they were satisfied with the support they received from friends, and depressive symptoms they experienced. Depressive symptoms did not differ between youth who were more satisfied and youth who were less satisfied with their friendship support. However, among youth who were frequently bullied, depressive symptoms were lower for those who were more satisfied with their friendship support compared to those who were less satisfied with their friendship support. This study shows that interventions are needed to support the mental health of autistic youth by decreasing bullying by peers and increasing positive peer relationships.
Citation: Autism
PubDate: 2025-02-25T12:04:39Z
DOI: 10.1177/13623613251322923
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- Social motor synchrony and interactive rapport in autistic, non-autistic,
and mixed-neurotype dyads-
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Authors: Themis N Efthimiou, Charlotte EH Wilks, Sarah Foster, Michelle Dodd, Noah J Sasson, Danielle Ropar, Martin Lages, Sue Fletcher-Watson, Catherine J Crompton; Charlotte EH Wilks, Sarah Foster, Michelle Dodd, Noah J Sasson, Danielle Ropar, Martin Lages, Sue Fletcher-Watson, Catherine J Crompton
Abstract: Autism, Ahead of Print.
In non-autistic populations, social motor synchrony during interactions is linked to increased interpersonal rapport – a friendly connection marked by mutual understanding and ease of communication. Previous research indicates autistic individuals show lower social motor synchrony in interactions with both autistic and non-autistic partners. However, it is unclear if this affects rapport, as synchrony’s role in social communication may differ for autistic individuals. The study had three aims: to replicate and extend previous findings of reduced social motor synchrony in dyads with at least one autistic person; second, to examine the relationship between synchrony and rapport in autistic (n = 12), non-autistic (n = 17), and mixed dyads (n = 14); and third, to investigate reliance on motor synchrony for achieving rapport among autistic and non-autistic participants. We found no evidence that dyads with at least one autistic person have less social motor synchrony than dyads without an autistic person. However, we found that social motor synchrony positively affects rapport more in non-autistic dyads than in autistic dyads. Participant-level analysis indicated that non-autistic individuals require higher social motor synchrony levels to achieve high rapport levels than autistic individuals. These results suggest that non-autistic individuals may emphasise movement synchrony as a key component of successful social interaction.Lay abstractDuring social interactions, people often mirror each other’s movements and gestures, a process called synchrony. This synchrony helps foster a sense of connection, understanding, and ease in communication. While research suggests that autistic people may show less synchrony in their movements compared to non-autistic people, the implications of this difference for building rapport remain unclear. Specifically, it is unknown whether synchrony plays a similar role in rapport-building for autistic individuals as it does for non-autistic individuals, particularly in interactions with autistic versus non-autistic partners. This study had three goals to investigate whether synchrony is lower in conversations involving at least one autistic person; to explore the relationship between synchrony and rapport; and to compare how much autistic and non-autistic people rely on synchrony to feel connected. The findings suggest that while synchrony positively influences rapport more strongly in non-autistic interactions, autistic individuals may rely less on synchrony for rapport. These results highlight differences in how social connection is built, offering deeper insight into social interactions for autistic and non-autistic people.
Citation: Autism
PubDate: 2025-02-25T04:20:34Z
DOI: 10.1177/13623613251319585
-
- Synapse: A co-designed neurodivergent peer support programme for higher
education settings-
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Authors: Aisling Coyle, Liam O’Hare, Devon Ramey; Liam O’Hare, Devon RameyQueen’s University Belfast, Belfast, UK
Abstract: Autism, Ahead of Print.
Transitioning to higher education can be challenging for neurodivergent students and they can be particularly vulnerable to experiencing stress in this new environment, resulting in higher levels of non-completion. To address this issue, this study details the co-design of a support programme for neurodivergent students in higher education. It used logic modelling workshop methodology to identify the short-term and long-term outcomes, activities and resources required for implementation. The logic model was produced during a workshop that involved a range of stakeholders, including researchers, neurodivergent and neurotypical students and disability service staff at an Irish university. The qualitative data were analysed through thematic analysis and three key outcomes were generated from the logic modelling process: ‘connectedness’, ‘knowledge and awareness of neurodiversity’ and ‘empowerment’. The main activities desired by stakeholders included one-to-one mentoring and group-based mentoring, which would allow neurodivergent students to establish new friendships and develop a sense of belonging within the university. The implementation factors identified were providing a dedicated space and mentor pairing. A key finding was that stakeholders did not favour traditional peer mentoring labels of ‘mentor’ and ‘mentee’. Instead, students preferred the development of a symbiotic co-mentoring relationship between peers, with both participants being referred to as ‘mentors’.Lay abstractNeurodivergent students may require support with the social aspects of university life. Peer mentoring describes a relationship where a more experienced student helps a less experienced student by providing advice, support and knowledge. It is an effective way to support students’ transition to higher education. This study involved a wide range of stakeholders including neurodivergent students, neurotypical students, disability service staff and researchers in the design of a peer mentoring programme called Synapse. A visual representation of the proposed programme (i.e. logic model) was produced during a workshop with the stakeholders. This visual showed the key outcomes or aims of the programme that was agreed upon by the stakeholders. The workshop was audio recorded and the transcripts were analysed to highlight the main conversation themes. Stakeholders stated that neurodivergent students wanted to feel more connected to others at the university to develop a sense of belonging, they also wanted people to learn more about neurodiversity to reduce stigma and finally, they wanted to feel empowered to take control of their lives and have a voice in decision-making. The two preferred activities of the programme were one-to-one and group mentoring. Uniquely, the participants were concerned with traditional terminology around peer mentoring, in particular the terms mentor and mentee, as it inferred an unequal power dynamic in a relationship. The stakeholders believed that students in the Synapse programme should be valued and treated equally, regardless of diagnosis or experience. Therefore, all members of the Synapse programme were paired within a co-mentoring relationship.
Citation: Autism
PubDate: 2025-02-24T09:20:26Z
DOI: 10.1177/13623613251320448
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- Rapport in same and mixed neurotype groups of autistic and non-autistic
adults-
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Authors: Sarah J Foster, Robert A Ackerman, Charlotte EH Wilks, Michelle Dodd, Rachel Calderon, Danielle Ropar, Sue Fletcher-Watson, Catherine J Crompton, Noah J Sasson; Robert A Ackerman, Charlotte EH Wilks, Michelle Dodd, Rachel Calderon, Danielle Ropar, Sue Fletcher-Watson, Catherine J Crompton, Noah J Sasson
Abstract: Autism, Ahead of Print.
Although autistic adults may establish better dyadic rapport with autistic relative to non-autistic partners, it is unclear whether this extends to group settings. The current study examined whether rapport differs between autistic groups, non-autistic groups, and mixed groups of autistic and non-autistic adults, and whether differing diagnostically from the rest of the group results in lower rapport. One hundred and forty-three adults were assigned to one of four group types of four participants each: all-autistic, all-non-autistic, non-autistic majority (three non-autistic, one autistic), and autistic majority (three autistic, one non-autistic). Groups participated in a 5-minute building activity and afterwards completed a 5-item rapport measure assessing their experience. The all-autistic groups did not differ on overall rapport from the all-non-autistic groups and had significantly higher rapport on two items (enjoying the interaction and friendliness of the group) than both types of mixed groups. At the individual level, autistic participants expressed more ease and enjoyment when interacting with other autistic adults relative to non-autistic adults, and their rapport declined as more non-autistic participants were included in the group. In contrast, rapport for non-autistic participants remained relatively consistent regardless of group composition. We discuss potential reasons why autistic participants were more affected by group composition than non-autistic participants.Lay abstractAutistic adults sometimes get along better with other autistic people compared to non-autistic people, but so far this has only been studied in two-person interactions. This study examined how well autistic and non-autistic people develop rapport in a group setting and whether rapport differs when group members share or do not share a diagnosis. We assigned 143 adults to 36 groups of four adults each. Some groups only had autistic members, some only had non-autistic members, and some were “mixed” groups of autistic and non-autistic members. Groups participated in a tower-building task for 5 minutes and afterwards completed a survey about rapport with the group. The groups of all-autistic participants expressed that their interactions were more enjoyable and friendly than the mixed groups. Autistic participants reported lower rapport when interacting with non-autistic adults, while non-autistic participants reported similar rapport whether interacting with autistic or non-autistic group members. Overall, findings are not consistent with a social deficit model of autism, as autistic adults often established rapport with partners in a group setting. Their level of rapport, however, depended strongly on the social context, particularly whether other autistic people were also in the group.
Citation: Autism
PubDate: 2025-02-24T09:16:06Z
DOI: 10.1177/13623613251320444
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- Sleep disturbances in autistic children and adolescents: A systematic
review and meta-analysis of randomized controlled trials-
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Authors: Cristina Vargas, Daniela Paoletti, Simona De Stasio, Carmen Berenguer; Daniela Paoletti, Simona De Stasio, Carmen Berenguer
Abstract: Autism, Ahead of Print.
Sleep disturbances are one of the most common comorbidities in autistic children and adolescence. Considering the impact of sleep disorders on development and daily functioning, it is important to know which treatments are considered effective in literature. This systematic review and meta-analysis study specifically aimed to investigate the effectiveness of non-pharmacological interventions for the treatment of sleep disorders in autistic children and adolescents without intellectual disability. Search across PubMed, PsycINFO, Scopus, and Web of Science were identified 11 randomized controlled trial studies published between 2012 and 2024 that met the inclusion criteria. The results indicate that the interventions considered (Behavioral/psychological, Physical activity, and Somatosensory sleep interventions) significantly improve sleep parameters in this population (p
Citation: Autism
PubDate: 2025-02-19T09:37:03Z
DOI: 10.1177/13623613251319391
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- Short report: Associations of family characteristics and clinicians’ use
of caregiver coaching in early intervention-
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Authors: Alyssa M Hernandez, Diondra Straiton, David S Mandell, Brooke Ingersoll, Samantha Crabbe, Sarah Rieth, Melanie Pellecchia; Diondra Straiton, David S Mandell, Brooke Ingersoll, Samantha Crabbe, Sarah Rieth, Melanie Pellecchia
Abstract: Autism, Ahead of Print.
There is a great demand for quality early intervention services for autistic children and their families. Caregiver-mediated interventions are critical components of evidence-based early intervention. However, their implementation in publicly funded systems is often done with poor fidelity. Qualitative evidence suggests that family characteristics impact clinicians’ use of caregiver-mediated intervention coaching strategies. We estimated associations between family characteristics and clinicians’ use of a caregiver-mediated intervention in a publicly funded early intervention system, leveraging data from a pilot randomized trial. Data were collected from 12 clinicians and 34 families. We used multiple linear regression models to estimate associations. The association between household income and clinicians’ overall coaching fidelity demonstrated a quadratic trend (b = −10.4, standard error = 4.1, p
Citation: Autism
PubDate: 2025-02-11T10:27:52Z
DOI: 10.1177/13623613251317780
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- Prevalence of discrimination experienced by autistic youth as compared to
neurotypical youth and youth with other neurodevelopmental diagnoses-
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Authors: Michelle Menezes, Jessica Pappagianopoulos, Jessica V Smith, Mya Howard, Sophie Brunt, Lauren Witte, Sydney Anderson, Brian A Boyd, Micah O Mazurek; Jessica Pappagianopoulos, Jessica V Smith, Mya Howard, Sophie Brunt, Lauren Witte, Sydney Anderson, Brian A Boyd, Micah O Mazurek
Abstract: Autism, Ahead of Print.
Autistic adults have reported experiencing discrimination across settings. Nonetheless, population-based research examining the prevalence of discrimination against autistic individuals has been more limited. Therefore, this study aimed to examine the prevalence of types of discrimination (i.e., due to race or ethnicity, due to sexual orientation or gender identity, and due to health condition or disability) experienced by autistic youth (n = 2339) compared to youth with other neurodevelopmental diagnoses (i.e. attention-deficit/hyperactivity disorder, learning disability, and speech or other language disorder; n = 10,325) and neurotypical youth (n = 44,781) 6–17 years of age utilizing a large, population-based sample. Data for this study were acquired from the 2021–2022 National Survey of Children’s Health, a nationally distributed caregiver-report questionnaire. Results found that the prevalence of discrimination due to race or ethnicity and sexual orientation or gender identity was higher among autistic youth than neurotypical youth. Notably, results also found that discrimination due to health condition or disability was far more prevalent among autistic youth than neurotypical youth and youth with other neurodevelopmental diagnoses. Findings highlight the increased prevalence of discrimination experienced by autistic youth and should prompt researchers, policymakers, and vested community members to action to address this problem.Lay abstractAutistic individuals have described facing unfair or discriminatory treatment across settings, such as in school and at work. However, there have been few studies examining how widespread or prevalent discrimination is against autistic individuals. We aimed to fill that gap by examining how prevalent or common it is for autistic youth to experience discrimination based on race or ethnicity, sexual orientation or gender identity, and health condition or disability. We compared rates of discrimination against autistic youth to youth without developmental differences/diagnoses and youth with other developmental differences (i.e. youth diagnosed with attention-deficit/hyperactivity disorder [ADHD], learning disability, and speech/language disorders). We analyzed data from the 2021–2022 National Survey of Children’s Health, which is a nationwide survey on which parents report about aspects of their children’s lives. We found that autistic youth experience higher rates of discrimination based on race or ethnicity and sexual orientation or gender identity compared to youth who are typically developing and do not have a diagnosis (such as a speech or language disorder). Importantly, they also face significantly more discrimination due to their disability than youth with other diagnoses, such as ADHD, and youth without a developmental diagnosis. These results show that autistic youth are at risk for experiencing discriminatory treatment. Our study should motivate researchers, policymakers, and community members to address this critical issue.
Citation: Autism
PubDate: 2025-01-10T01:00:47Z
DOI: 10.1177/13623613241312445
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- Supporting access to comprehensive services: A scoping review of national
policies related to autism in mainland China-
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Authors: Mingyang Zou, Yujiao Han, Meiyu Jin, Wei Xie, Chuang Shang, Tiantian Li, Liwen Feng, Caihong Sun, Saisai Zhang, Lijie Wu; Yujiao Han, Meiyu Jin, Wei Xie, Chuang Shang, Tiantian Li, Liwen Feng, Caihong Sun, Saisai Zhang, Lijie Wu
Abstract: Autism, Ahead of Print.
The study was designed to review autism-associated policies, describe policy characteristics, and determine potential policy gaps compared with the recommendations set by the World Health Organization. Autism-associated policies in 15 government agencies and public institutions were thoroughly searched on ministry websites up to December 2022, where 81 of 2504 were retained. And 42 of the 81 policies were issued in 2021 and 2022. Twelve of the 15 included ministries were involved in policymaking, yet fewer than one third of the policy documents were jointly issued by multiple ministries, which are crucial for the effective implementation of autism-associated policies. Compared with the World Health Organization recommendations (the Comprehensive Mental Health Action Plan 2013–2030 and the Six Building Blocks of Health System), several areas showed a strong policy commitment, including leadership and governance, service delivery, and access to medicines and facility. Several potential gaps remained, including a relative lack of emphasis on health information and the health workforce, and insufficient attention to the community. Despite these potential gaps, encouragingly, the nation has increasingly focused on autism groups. This study can provide a basis for future policymaking to provide more comprehensive and better services for individuals with autism.Lay abstractPolicies have been found to play a crucial role in supporting the health and well-being of individuals with autism. Yet, relatively few policy reviews are related to autism, and the current level of autism-associated policies and potential gaps in comparison with the World Health Organization recommendations remain unclear. Our study reviewed autism-associated policies, described policy characteristics, and determined potential policy gaps in mainland China. We conducted a comprehensive search of autism-associated policies from 15 websites of government agencies and public institutions up to December 2022, where 81 of 2504 were retained. We found that 42 of the 81 policies were issued in 2021 and 2022. Twelve of the 15 included ministries were involved in policymaking and fewer than one third of the policy documents were issued by two or more ministries. With respect to recommendations proposed by the World Health Organization (the Comprehensive Mental Health Action Plan 2013–2030 and the Six Building Blocks of Health System), several areas received extensive national attention, including leadership and governance, service delivery, and access to medicines and facility, while there was limited policy attention on the other components. Despite these potential gaps, encouragingly, the nation has increasingly focused on autism groups. This study can provide a basis for future policymaking to provide more comprehensive and better services for individuals with autism.
Citation: Autism
PubDate: 2025-01-07T05:46:48Z
DOI: 10.1177/13623613241311736
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