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Haemophilia
Journal Prestige (SJR): 1.277 ![]() Citation Impact (citeScore): 2 Number of Followers: 66 ![]() ISSN (Print) 1351-8216 - ISSN (Online) 1365-2516 Published by John Wiley and Sons ![]() |
- Sixth Åland Island Conference on von Willebrand disease
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Authors: Erik Berntorp; Sonata S. Trakymienė, Augusto B. Federici, Katharina Holstein, Fernando F. Corrales‐Medina, Glenn F. Pierce, Alok Srivastava, Mario von Depka Prondzinski, Jill M. Johnsen, Irena P. Zupan, Susan Halimeh, Vuokko Nummi, Jonathan C. Roberts
Abstract: Haemophilia, Volume 28, Issue S5, Page 3-15, July 2022.
PubDate: 2022-07-21T08:05:20-07:00
DOI: 10.1111/hae.14495
Issue No: Vol. 28, No. S5 (2022)
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- Issue Information
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Abstract: Haemophilia, Volume 28, Issue S5, Page 1-2, July 2022.
PubDate: 2022-07-21T08:05:20-07:00
DOI: 10.1111/hae.14634
Issue No: Vol. 28, No. S5 (2022)
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- Supporting patients with haemophilia in a world of crises: New role for
the WFH and its partners-
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Authors: Glenn F. Pierce; Assad Haffar, Alain Baumann, Cedric Hermans
Abstract: Haemophilia, Volume 28, Issue 4, Page 521-522, July 2022.
PubDate: 2022-07-12T09:51:35-07:00
DOI: 10.1111/hae.14610
Issue No: Vol. 28, No. 4 (2022)
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- Issue Information
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Abstract: Haemophilia, Volume 28, Issue 4, Page i-iv, July 2022.
PubDate: 2022-07-12T09:51:35-07:00
DOI: 10.1111/hae.14340
Issue No: Vol. 28, No. 4 (2022)
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- In vitro evaluation of global coagulation potentials in the co‐presence
of plasma‐derived factors Viia/X products (Byclot®) and emicizumab in
patients with haemophilia A and inhibitors and acquired haemophilia A: A
pilot study-
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Authors: Yuto Nakajima; Eisuke Takami, Hirotoshi Nakano, Keiji Nogami
Abstract: Haemophilia, EarlyView.
PubDate: 2022-08-10T10:29:30-07:00
DOI: 10.1111/hae.14650
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- Switching from standard to extended half‐life FVIII prophylaxis in
haemophilia A: Comparison of factor product use, bleed rates and
pharmacokinetics-
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Authors: Vuokko Nummi; Anna‐Elina Lehtinen, Alfonso Iorio, Timea Szanto, Riitta Lassila
Abstract: Haemophilia, EarlyView.
PubDate: 2022-08-08T11:33:46-07:00
DOI: 10.1111/hae.14649
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- Long‐term joint outcomes in adolescents with moderate or severe
haemophilia A-
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Authors: David E. Schmidt; Aikaterini Michalopoulou, Kathelijn Fischer, Jayashree Motwani, Nadine G. Andersson, Helen Pergantou, Susanna Ranta, the PedNet Study Group
Abstract: Haemophilia, EarlyView.
PubDate: 2022-08-04T08:18:33-07:00
DOI: 10.1111/hae.14636
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- Analysis of fibrinogen concentrate pharmacokinetics and dosing for bleeds
and surgery in adults, adolescents, and children with congenital
afibrinogenaemia and hypofibrinogenaemia-
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Authors: Claudia Djambas Khayat; Sunil D. Lohade, Omid R. Zekavat, Irina Kruzhkova, Cristina Solomon, Sigurd Knaub, Flora Peyvandi
Abstract: Haemophilia, EarlyView.
PubDate: 2022-08-04T08:08:39-07:00
DOI: 10.1111/hae.14619
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- Prevalence of comorbid conditions among older males with haemophilia
receiving care in haemophilia treatment centers in the United States-
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Authors: J. Michael Soucie; Binh Le, Brandi Dupervil, Jacqueline N. Poston
Abstract: Haemophilia, EarlyView.
PubDate: 2022-08-04T04:33:34-07:00
DOI: 10.1111/hae.14647
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- Ankle joint distraction is a promising alternative treatment for patients
with severe haemophilic ankle arthropathy-
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Authors: Eline D. P. Bergen; Simon C. Mastbergen, H. Charles Vogely, Tanya N. Balani, Piet Kleijn, Wouter Foppen, Peter M. Roermund, Floris P. J. G. Lafeber, Roger E. G. Schutgens, Lize F. D. Vulpen
Abstract: Haemophilia, EarlyView.
PubDate: 2022-08-03T10:46:58-07:00
DOI: 10.1111/hae.14633
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- The effects of close kinetic chain exercises on proprioception and
physical activity level in pediatric patients with hemophilia-
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Authors: Tuğba Gönen; Yavuz Yakut, Sinan Akbayram
Abstract: Haemophilia, EarlyView.
PubDate: 2022-08-03T09:53:11-07:00
DOI: 10.1111/hae.14645
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- Validation of the patients‐specific functional scale in patients
with haemophilia-
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Authors: Ana Chimeno‐Hernández; Pilar Alberola‐Zorrilla, Daniel Sánchez‐Zuriaga
Abstract: Haemophilia, EarlyView.
PubDate: 2022-08-03T09:53:07-07:00
DOI: 10.1111/hae.14640
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- Validation of the pedHALshort and HALshort in Dutch children and adults
with haemophilia-
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Authors: Isolde A. R. Kuijlaars; Janjaap Net, Lize F. D. Vulpen, Mariette H. E. Driessens, Saskia E. M. Schols, Melanie Tan, Samantha C. Gouw, Kathelijn Fischer
Abstract: Haemophilia, EarlyView.
PubDate: 2022-07-29T11:14:16-07:00
DOI: 10.1111/hae.14628
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- A single centre, open label, pilot study evaluating the effect of
intra‐articular hyaluronic acid injection on pain and functionality when
injected into the ankle (tibio‐talar and sub‐talar) joint in patients
with haemophilic arthropathy-
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Authors: Stephanie Taylor; Joel David, Karen Partington, Sam Pemberton, Sarah Mangles, Anna Wells, Nicola Curry
Abstract: Haemophilia, EarlyView.
PubDate: 2022-07-29T11:08:45-07:00
DOI: 10.1111/hae.14639
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- Effect of emicizumab prophylaxis on bone and joint health markers in
people with haemophilia A without factor VIII inhibitors in the HAVEN 3
study-
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Authors: Anna Kiialainen; Markus Niggli, Christine L. Kempton, Giancarlo Castaman, Tiffany Chang, Ido Paz‐Priel, Joanne I. Adamkewicz, Gallia G. Levy
Abstract: Haemophilia, EarlyView.
PubDate: 2022-07-29T11:08:19-07:00
DOI: 10.1111/hae.14642
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- Promoting physical activity for people with haemophilia in the age of new
treatments-
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Authors: Ruth Elise D. Matlary; Nathalie Grinda, Fionnuala Sayers, Olav Versloot, Paul McLaughlin, EAHAD Physiotherapists Committee
Abstract: Haemophilia, EarlyView.
PubDate: 2022-07-27T01:13:55-07:00
DOI: 10.1111/hae.14641
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- Exercise capacity in people with haemophilia: A systematic review
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Authors: Carlos Cruz‐Montecinos; Rodrigo Núñez‐Cortés, Luis Vasconcello‐Castillo, Lilian Solís‐Navarro, Bernardita Carrasco‐Alonso, Joaquín Calatayud, Sofía Pérez‐Alenda, Rodrigo Torres‐Castro
Abstract: Haemophilia, EarlyView.
PubDate: 2022-07-27T01:13:47-07:00
DOI: 10.1111/hae.14646
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- Immune checkpoint inhibitor‐induced acquired haemophilia: A
pharmacovigilance analysis of the FDA adverse event reporting system-
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Authors: Donald C. Moore; Joseph B. Elmes, Justin R. Arnall, Scott A. Strassels, Jai N. Patel
Abstract: Haemophilia, EarlyView.
PubDate: 2022-07-27T01:07:37-07:00
DOI: 10.1111/hae.14632
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- Diabetes, hepatitis C and human immunodeficiency virus influence
hypertension risk differently in cohorts of haemophilia patients, veterans
and the general population-
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Authors: Richard F.W. Barnes; Braj Pandey, Haowei (Linda) Sun, Shannon Jackson, Rebecca Kruse‐Jarres, Doris V. Quon, Annette Drygalski
Abstract: Haemophilia, EarlyView.
PubDate: 2022-07-25T11:53:55-07:00
DOI: 10.1111/hae.14637
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- The important impact of dental care on haemostatic treatment burden in
patients with mild haemophilia-
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Authors: Simona Raso; Mariasanta Napolitano, Davide Sirocchi, Sergio Siragusa, Cedric Hermans
Abstract: Haemophilia, EarlyView.
PubDate: 2022-07-25T08:59:09-07:00
DOI: 10.1111/hae.14626
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- Management of haemophilia A with inhibitors: A regional cross‐talk
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Authors: Flora Peyvandi; Kaan Kavakli, Amal El‐Beshlawy, Savita Rangarajan
Abstract: Haemophilia, EarlyView.
PubDate: 2022-07-22T01:53:40-07:00
DOI: 10.1111/hae.14638
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- Occupational integration of adults with severe haemophilia (INTHEMO): A
study based on the FranceCoag registry-
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Authors: Ngoc Anh Thu Nguyen; Pascal Auquier, Any Beltran Anzola, Roseline d'Oiron, Christine Biron‐Andréani, Anne Lienhart, Antoine Rauch, Karine Baumstarck, Mohamed Boucekine, Vanessa Milien, Natacha Rosso‐Delsemme, Clemence Tabele, Nicolas Giraud, Thomas Sannié, Hervé Chambost, Noémie Resseguier, the INTHEMO Study Group, Thierry Lambert, Céline Falaise, Jean‐François Schved, Claude Negrier, Jenny Goudemand, Sophie Susen, Bénédicte Wibaut, Marie Castet Sabine, Dominique Desprez, Annie Harroche, Natalie Stieltjes, Annie Borel‐Derlon, Marc Trossaërt, Amandine Celli, Benoît Guillet, Sophie Bayart, Marie‐Anne Bertrand, Alexandra Fournel, Guillaume Mourey, Valérie Gay, Pierre Chamouni, Emmanuelle de Raucourt, Birgit Frotscher, Michèle Martin, Mathieu Puyade, Brigitte Tardy, Stéphane Vanderbecken, Fabienne Genre‐Volot, Philippe Nguyen, Benoît Polack, Raphaël Marlu, Caroline Oudot‐Challard, Stéphane Girault, Annelise Voyer, Aurélien Lebreton, Abel Hassoun, Philippe Moreau, Pierre‐Simon Rohrlich
Abstract: Haemophilia, EarlyView.
PubDate: 2022-07-20T04:39:35-07:00
DOI: 10.1111/hae.14620
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- Real‐world data on emicizumab prophylaxis in the Milan cohort
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Authors: Sara Arcudi; Roberta Gualtierotti, Sonia Marino, Gabriella Nicolò, Eugenia Biguzzi, Alessandro Ciavarella, Marco Boscarino, Simona Maria Siboni, Lucia Schiavone, Cristina Novembrino, Carla Valsecchi, Flora Peyvandi
Abstract: Haemophilia, EarlyView.
PubDate: 2022-07-19T01:29:47-07:00
DOI: 10.1111/hae.14630
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- Health‐related quality of life and associated factors: Results from the
haemophilia QOL questionnaire for adults (Haem‐A‐QOL) in a
low‐income country with public policies to improve haemophilia care-
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Authors: Beatriz Mac Dowell Soares; Aline Mizusaki Imoto, Luiz Alberto Simeoni, Karlo Jozefo Quadros Almeida, Melina Swain Braverman, Lucas Barbosa Bezerra, Jaqueline Lima Souza, Alexandre Jorge Teixeira Ribeiro, Ana Maria Costa, Fábio Ferreira Amorim
Abstract: Haemophilia, EarlyView.
PubDate: 2022-07-19T01:27:55-07:00
DOI: 10.1111/hae.14618
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- Individualised prophylaxis based on personalised target trough FVIII level
optimised clinical outcomes in paediatric patients with severe haemophilia
A-
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Authors: Kun Huang; Di Ai, Gang Li, Yingzi Zhen, Yan Wang, Ningning Zhang, Aihua Huo, Guoqing Liu, Zhenping Chen, Runhui Wu
Abstract: Haemophilia, EarlyView.
PubDate: 2022-07-18T04:19:37-07:00
DOI: 10.1111/hae.14635
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- Pain coping behaviour strategies in people with haemophilia: A systematic
literature review-
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Authors: Anthe Foubert; Nathalie Roussel, Valérie‐Anne Chantrain, Cédric Hermans, Catherine Lambert, Sébastien Lobet, Mira Meeus
Abstract: Haemophilia, EarlyView.
PubDate: 2022-07-18T04:19:26-07:00
DOI: 10.1111/hae.14627
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- Nurse‐led education of people with bleeding disorders and their
caregivers: A scoping review-
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Authors: Julia Ballmann; Michael Ewers
Abstract: Haemophilia, EarlyView.
PubDate: 2022-07-18T04:15:26-07:00
DOI: 10.1111/hae.14629
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- Comparison of free‐living physical activity measurements between
ActiGraph GT3X‐BT and Fitbit Charge 3 in young people with haemophilia-
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Authors: Ruth Elise D. Matlary; Pål André Holme, Heidi Glosli, Corina Silvia Rueegg, May Grydeland
Abstract: Haemophilia, EarlyView.
PubDate: 2022-07-13T12:49:31-07:00
DOI: 10.1111/hae.14624
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- UK haemophilia consultant access to foot and ankle services and concurrent
patient impact questionnaire responses to foot and ankle interventions-
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Authors: Richard A. Wilkins; Heidi J. Siddle, Graham J. Chapman, Elizabeth Horn, Rebecca Walwyn, Anthony C. Redmond
Abstract: Haemophilia, EarlyView.
PubDate: 2022-07-13T01:03:33-07:00
DOI: 10.1111/hae.14625
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- World federation of hemophilia international hemophilia training
fellowship program: 50 years of enhancing global care-
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Authors: Miguel A. Escobar; Marlène Beijlevelt, Aleah Loney, Johnny Mahlangu, Lochana Nanayakkara, Daniela Neme, Gianluigi Pasta, Pierre Toulon, Huyen Tran
Abstract: Haemophilia, EarlyView.
PubDate: 2022-07-10T06:31:07-07:00
DOI: 10.1111/hae.14617
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- Hemizygous FGG p.Ala108Gly in a hypofibrinogenemic patient with a
heterozygous 14.8 Mb deletion encompassing the entire fibrinogen gene
cluster-
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Authors: Alexander Couzens; Aurélien Lebreton, Frédéric Masclaux, Michel Guipponi, Céline Pebrel‐Richard, Fanny Laffargue, Piotr Gembara, Alessandro Casini, Marguerite Neerman‐Arbez
Abstract: Haemophilia, EarlyView.
PubDate: 2022-07-09T06:33:21-07:00
DOI: 10.1111/hae.14621
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- Efficacy, safety and pharmacokinetics of recombinant human coagulation
factor VIII (omfiloctocog alfa) in previously treated Chinese children
with severe hemophilia A-
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Authors: Runhui Wu; Xiaoling Wang, Xielan Zhao, Yanli Cheng, Zeping Zhou, Jing Sun, Ming Xu, Wenqian Li, Jianwen Xiao, Fenge Yang, Yun Chen, Weiqun Xu, Jing Huang, Chuanrong Ma, Wenlin Gai, Liangzhi Xie, Renchi Yang
Abstract: Haemophilia, EarlyView.
PubDate: 2022-07-08T07:23:15-07:00
DOI: 10.1111/hae.14622
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- FGF23 and SOX9 expression in hemophilic cartilage: In vitro studies of the
effects of iron-
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Authors: Liujie Zheng; Zhiwei Han, Dasheng Luo, Jiale Li, Houlong Ye, Ru Feng, Qigang Zhong, Juehua Jing, Yunfeng Yao
Abstract: Haemophilia, EarlyView.
PubDate: 2022-07-08T07:13:53-07:00
DOI: 10.1111/hae.14623
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- Defining the micro and macro roles of a hemophilia treatment center social
worker in the United States from an interdisciplinary team perspective-
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Authors: Diane L. Bartlett; Kathaleen M. Schnur, Amy K. Wilson, Spencer S. Moorman
Abstract: Haemophilia, EarlyView.
PubDate: 2022-07-07T08:13:54-07:00
DOI: 10.1111/hae.14612
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- Relationship between bleeding episodes, health‐related quality of life
and direct costs in adults with severe haemophilia A: Secondary analyses
from the CHESS study-
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Authors: Jamie O'Hara; Declan Noone, Maureen Watt
Abstract: Haemophilia, EarlyView.
PubDate: 2022-06-30T08:38:48-07:00
DOI: 10.1111/hae.14616
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- Socio‐emotional repercussions of severe haemophilia A in the daily
lives of children-
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Authors: Iara Alves Feitoza de Andrade; Lucila Castanheira Nascimento, Weslla Karla Albuquerque de Paula, Tania Maria Rocha Guimarães, Estella Maria Leite Meirelles Monteiro, Francisca Marcia Pereira Linhares, Marinus De Moraes Lima, Maria Wanderleya de Lavor Coriolano Marinus
Abstract: Haemophilia, EarlyView.
PubDate: 2022-06-29T09:29:16-07:00
DOI: 10.1111/hae.14611
-
- Autoimmune acquired factor XIII deficiency in Japan 2021 update: Focused
on annual incidence and clinical features-
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Authors: Akitada Ichinose; Tsukasa Osaki, Masayoshi Souri
Abstract: Haemophilia, EarlyView.
PubDate: 2022-06-29T09:23:34-07:00
DOI: 10.1111/hae.14613
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- Blood pressure in persons with haemophilia with a focus on
haemophilia‐specific risk factors-
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Authors: Anna Ter‐Zakarian; Richard F. W. Barnes, Rebecca Kruse‐Jarres, Doris V. Quon, Shannon Jackson, Haowei (Linda) Sun, Annette von Drygalski
Abstract: Haemophilia, EarlyView.
PubDate: 2022-06-29T09:13:27-07:00
DOI: 10.1111/hae.14614
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- Post‐procedural bleeding rate and haemostatic treatment use for dental
procedures before and after the implementation of a standardized protocol
for people with inherited bleeding disorders-
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Authors: Pier‐Ann Champagne; Michelle Bourassa, Marie‐Pier Desjardins, Stéphanie Cloutier, Christine Demers, Narcisse Ulrich Singbo, Hélène Néron, Marie‐Claude Pelland‐Marcotte
Abstract: Haemophilia, EarlyView.
PubDate: 2022-06-25T11:39:28-07:00
DOI: 10.1111/hae.14609
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- Health‐related quality of life among adults with haemophilia in China: A
comparison with age‐matched general population-
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Authors: Wenhui Zhang; Shitong Xie, Feng Xue, Wei Liu, Lingling Chen, Lei Zhang, Jing Wu, Renchi Yang
Abstract: Haemophilia, EarlyView.
PubDate: 2022-06-25T11:23:22-07:00
DOI: 10.1111/hae.14615
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- Which part of the blood in the knee joint is responsible for its
detrimental effects' (An experimental study on the knee joint in
rabbits)-
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Authors: Tahsin Sami Colak; Elcil Kaya Bicer, Levent Kücük, Basak Doganavsargil, Murat Sezak, Semih Aydogdu
Abstract: Haemophilia, EarlyView.
PubDate: 2022-06-22T02:28:12-07:00
DOI: 10.1111/hae.14605
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- Prevalence and risk factors for hepatocellular carcinoma in individuals
with haemophilia in the era of direct‐acting antiviral agents: A
national inpatient sample study-
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Authors: Xi Yang; Kwonho Jeong, Jonathan G. Yabes, Margaret V. Ragni
Abstract: Haemophilia, EarlyView.
PubDate: 2022-06-21T12:24:22-07:00
DOI: 10.1111/hae.14607
-
- The GOAL‐Hēm journey: Shared decision making and
patient‐centred outcomes-
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Authors: Jonathan C. Roberts; Sharon Richardson, Moses E. Miles, Justin Stanley, Chere A. T. Chapman, Michael Denne, Jorge Caicedo, Kenneth Rockwood, Michael Recht
Abstract: Haemophilia, EarlyView.
PubDate: 2022-06-21T01:54:40-07:00
DOI: 10.1111/hae.14608
-
- First case report on persistent patellar dislocation in haemophilia A
patient with a factor VIII inhibitor-
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Authors: Ilja Chandoga; Angelika Bátorová, Denisa Jankovičová, Tatiana Prigancová, Anna Kyselová, Boris Šteňo
Abstract: Haemophilia, EarlyView.
PubDate: 2022-06-17T03:59:38-07:00
DOI: 10.1111/hae.14606
-
- The long‐term clinical benefits and economic costs associated with
increased use of prophylaxis among patients with haemophilia A in China:
Population‐based predictions from 2018 to 2033-
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Authors: Xiaoning He; Xu Wang, Chaohui Dong, Mingyue Zhao, Jing Wu
Abstract: Haemophilia, EarlyView.
PubDate: 2022-06-17T03:53:24-07:00
DOI: 10.1111/hae.14603
-
- Building the blueprint: Formulating a community‐generated national plan
for future research in inherited bleeding disorders-
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Authors: Leonard A. Valentino; Michelle L. Witkop, Maria E. Santaella, Donna DiMichele, Michael Recht
Abstract: Haemophilia, EarlyView.
PubDate: 2022-06-14T01:03:01-07:00
DOI: 10.1111/hae.14588
-
- Clinical conditions and risk factors for inhibitor‐development in
patients with haemophilia: A decade‐long prospective cohort study in
Japan, J‐HIS2 (Japan Hemophilia Inhibitor Study 2)-
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Authors: Keiji Nogami; Masashi Taki, Tadashi Matsushita, Tetsuhito Kojima, Toshiaki Oka, Shouichi Ohga, Kiyoshi Kawakami, Michio Sakai, Takashi Suzuki, Satoshi Higasa, Yasuo Horikoshi, Keiko Shinozawa, Shogo Tamura, Koji Yada, Masue Imaizumi, Yoshitoshi Ohtsuka, Fuminori Iwasaki, Masao Kobayashi, Junki Takamatsu, Hideyuki Takedani, Hisaya Nakadate, Yoko Matsuo, Takeshi Matsumoto, Teruhisa Fujii, Katsuyuki Fukutake, Akira Shirahata, Akira Yoshioka, Midori Shima, the J‐HIS2 study group
Abstract: Haemophilia, EarlyView.
PubDate: 2022-06-11T01:44:34-07:00
DOI: 10.1111/hae.14602
-
- Befovacimab, an anti‐tissue factor pathway inhibitor antibody: Early
termination of the multiple‐dose, dose‐escalating Phase 2 study due to
thrombosis-
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Authors: Maria Elisa Mancuso; Sheila J. M. Ingham, Marc Kunze
Abstract: Haemophilia, EarlyView.
PubDate: 2022-06-06T01:37:53-07:00
DOI: 10.1111/hae.14595
-
- Determining the incidence of postpartum haemorrhage among Ontario women
with and without inherited bleeding disorders: A population‐based cohort
study-
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Authors: Julia C. Hews‐Girard; Jacqueline Galica, Catherine Goldie, Paula James, Joan Tranmer
Abstract: Haemophilia, EarlyView.
PubDate: 2022-06-03T12:04:01-07:00
DOI: 10.1111/hae.14594
-
- Plasma‐derived FVIII/VWF complex shows higher protection against
inhibitors than isolated FVIII after infusion in haemophilic patients: A
translational study-
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Authors: Maria Isabel Bravo; Alba Pérez, Aida Raventós, Salvador Grancha, Juan Ignacio Jorquera, Nora Viviana Butta, Maria Teresa Álvarez‐Román, Montserrat Costa, Todd Willis, Victor Jiménez‐Yuste
Abstract: Haemophilia, EarlyView.
PubDate: 2022-06-02T04:03:12-07:00
DOI: 10.1111/hae.14589
-
- Patient‐derived assessment tool using musculoskeletal ultrasound for
validation of haemarthrosis-
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Authors: Srila Gopal; Richard F. W. Barnes, Lena M. Volland, David Page, Annette von Drygalski
Abstract: Haemophilia, EarlyView.
PubDate: 2022-06-02T03:59:11-07:00
DOI: 10.1111/hae.14591
-
- Endothelial specific isoform of type XVIII collagen (COL‐18N): A marker
of vascular integrity in haemophilic arthropathy-
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Authors: Azza Abdel Gawad Tantawy; Nayera H. K. Elsherif, Salwa Mostafa, Nesma Ahmad Safwat, Khaled Anwar El Sayed El Seteha
Abstract: Haemophilia, EarlyView.
PubDate: 2022-05-30T03:33:41-07:00
DOI: 10.1111/hae.14593
-
- Diagnostic evaluation of the first macroscopic haematuria episode in adult
haemophilia patients-
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Authors: Lorenzo G.R. Romano; Greta Mulders, Sara C.M. Stoof, Iris van Moort, Martijn B. Busstra, Frank W.G. Leebeek, Marieke J.H.A. Kruip
Abstract: Haemophilia, EarlyView.
PubDate: 2022-05-20T12:39:52-07:00
DOI: 10.1111/hae.14590
-
- The legacy of haemophilia: Memories and reflections from three survivors
-
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Authors: Albert Farrugia; Cees Smit, Andrea Buzzi
Abstract: Haemophilia, EarlyView.
PubDate: 2022-05-19T02:24:43-07:00
DOI: 10.1111/hae.14587
-
- Surgical outcomes in patients with haemophilia A or B receiving extended
half‐life recombinant factor VIII and IX Fc fusion proteins:
Real‐world experience in the Nordic countries-
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Authors: Anna‐Elina Lehtinen; Fariba Baghaei, Jan Astermark, Pål André Holme
Abstract: Haemophilia, EarlyView.
PubDate: 2022-05-16T05:35:59-07:00
DOI: 10.1111/hae.14585
-
- LongHest project: A prospective, observational study of extended
half‐life treatment in the musculoskeletal health of patients with
severe haemophilia A-
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Authors: Rubén Cuesta‐Barriuso; Raúl Pérez‐Llanes, Elena Donoso‐Úbeda, Roberto Ucero‐Lozano
Abstract: Haemophilia, EarlyView.
PubDate: 2022-05-13T12:56:51-07:00
DOI: 10.1111/hae.14592
-
- Safety of intramuscular COVID‐19 vaccination in patients with
haemophilia-
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Authors: Andreas Tiede; Hendrik Leise, Silvia Horneff, Johannes Oldenburg, Susan Halimeh, Christine Heller, Christoph Königs, Katharina Holstein, Christian Pfrepper
Abstract: Haemophilia, EarlyView.
PubDate: 2022-05-13T12:00:00-07:00
DOI: 10.1111/hae.14586
-
- Examining the impact of haemophilia treatment on health‐related
quality of life-
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Authors: Anum Shaikh; Gabriel Pedra, Matthew Cawson, Catherine Wiseman
Abstract: Haemophilia, EarlyView.
PubDate: 2022-05-10T12:53:19-07:00
DOI: 10.1111/hae.14583
-
- Pharmacokinetic profile of children with haemophilia A receiving
low‐dose FVIII prophylaxis in Indonesia: A single centre experience-
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Authors: Fitri Primacakti; Teny T. Sari, Djajadiman Gatot, Hikari A. Sjakti, Novie A. Chozie
Abstract: Haemophilia, EarlyView.
PubDate: 2022-05-10T12:53:17-07:00
DOI: 10.1111/hae.14584
-
- ADAMTS‐4 as a possible distinguishing indicator between osteoarthritis
and haemophilic arthropathy-
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Authors: Natasa Kalebota; Grgur Salai, Porin Peric, Stela Hrkac, Rudjer Novak, Kristina Kovac Durmis, Lovorka Grgurevic
Abstract: Haemophilia, EarlyView.
PubDate: 2022-05-10T08:20:26-07:00
DOI: 10.1111/hae.14569
-
- Does difference between label and actual potency of factor VIII
concentrate affect pharmacokinetic‐guided dosing of replacement therapy
in haemophilia A'-
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Authors: Tine M.H.J. Goedhart; Laura H. Bukkems, Iris Moort, Colin C. Spence, Michel C. Zwaan, Moniek P.M. Maat, Ron A.A. Mathôt, Marjon H. Cnossen, for the OPTI‐CLOT study group SYMPHONY consortium
Abstract: Haemophilia, EarlyView.
PubDate: 2022-05-08T07:43:23-07:00
DOI: 10.1111/hae.14575
-
- Quantification of the relationship between desmopressin concentration and
Von Willebrand factor in Von Willebrand disease type 1: A pharmacodynamic
study-
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Authors: Jessica M. Heijdra; Michael E. Cloesmeijer, Nico C.B. Jager, Frank W.G. Leebeek, Marieke H.J.A. Kruip, Marjon H. Cnossen, Ron A.A. Mathôt, for the OPTI‐CLOT/ To WiN study group SYMPHONY consortium
Abstract: Haemophilia, EarlyView.
PubDate: 2022-05-08T07:43:07-07:00
DOI: 10.1111/hae.14582
-
- A phase IV, multicentre, open‐label study of emicizumab prophylaxis in
people with haemophilia A with or without FVIII inhibitors undergoing
minor surgical procedures-
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Authors: Miguel Escobar; Amy Dunn, Doris Quon, Ben Trzaskoma, Lucy Lee, Richard H. Ko, Shannon L. Carpenter
Abstract: Haemophilia, EarlyView.
PubDate: 2022-05-05T12:00:00-07:00
DOI: 10.1111/hae.14574
-
- Platelet function testing: Current practice among clinical centres in
Northern Europe-
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Authors: Timea Szanto; Eva Zetterberg, Sofia Ramström, Eva B. Leinøe, Pål A. Holme, Jovan P. Antovic, Margareta Holmström, Pall T. Onundarson, Marika Pikta, Ines Vaide, Anna Olsson, Maria Magnusson, Satu Kärkkäinen, Manar Bitar, Lone Hvitfeldt Poulsen, Riitta Lassila, the Nordic Haemophilia Council
Abstract: Haemophilia, EarlyView.
PubDate: 2022-05-05T07:33:42-07:00
DOI: 10.1111/hae.14578
-
- European principles of care for physiotherapy provision for persons with
inherited bleeding disorders: Perspectives of physiotherapists and
patients-
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Authors: Piet Kleijn; G. Duport, K. Jansone, M. Marinić, P. McLaughlin, D. Noone, L. Ramishvili, A. Tollwé, D. Stephensen, the European Haemophilia Consortium EAHAD Physiotherapy Committee
Abstract: Haemophilia, EarlyView.
PubDate: 2022-05-04T03:02:59-07:00
DOI: 10.1111/hae.14566
-
- Altered brain activity and functional networks in school‐age boys with
severe haemophilia A: A resting‐state functional magnetic resonance
imaging study-
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Authors: Di Hu; Jingran Liu, Guoqing Liu, Shasha Hu, Zekun Li, Yunyun Wei, Ningning Zhang, Runhui Wu, Yun Peng
Abstract: Haemophilia, EarlyView.
PubDate: 2022-05-03T10:14:42-07:00
DOI: 10.1111/hae.14567
-
- Clinical application of extended half‐life factor VIII in children
with severe haemophilia A-
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Authors: Athina Dettoraki; Aikaterini Michalopoulou, Michalis Mazarakis, Stefanos Saslis, Ioanna Stamati, Zoey Kapsimali, Helen Pergantou
Abstract: Haemophilia, EarlyView.
PubDate: 2022-05-03T07:36:53-07:00
DOI: 10.1111/hae.14576
-
- Eradication of FIX inhibitor in haemophilia B children using low‐dose
immune tolerance induction with rituximab‐based immunosuppressive
agent(s) in China-
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Authors: Zekun Li; Guoqing Liu, Wanru Yao, Zhenping Chen, Gang Li, Xiaoling Cheng, Yingzi Zhen, Di Ai, Kun Huang, Jie Sun, Man‐Chiu Poon, Runhui Wu
Abstract: Haemophilia, EarlyView.
PubDate: 2022-05-03T07:36:49-07:00
DOI: 10.1111/hae.14577
-
- A review of the pharmacokinetics, efficacy and safety of high‐purity
-
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Authors: Jeanette Payne; Glaivy Batsuli, Andrew D. Leavitt, Mary Mathias, Catherine E. McGuinn
Abstract: Haemophilia, EarlyView.
PubDate: 2022-05-02T12:00:00-07:00
DOI: 10.1111/hae.14570
-
- Clinical, biological, and genetic features in an afibrinogenemia patient
series in Algeria-
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Authors: Soraya Hadjali‐Saichi; Philippe Mazancourt, Jacqueline Tapon‐Bretaudière, Tristan Mirault, Kahina Guenounou, Issam Frigaa, Anne‐Marie Fischer, Ouerdia Chafa, Dominique Helley
Abstract: Haemophilia, EarlyView.
PubDate: 2022-04-30T04:29:16-07:00
DOI: 10.1111/hae.14579
-
- Eptacog beta efficacy and safety in the treatment and control of bleeding
in paediatric subjects (-
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Authors: Steven W. Pipe; Cédric Hermans, Meera Chitlur, Manuel Carcao, Giancarlo Castaman, Joanna A. Davis, Jonathan Ducore, Amy L. Dunn, Miguel Escobar, Janna Journeycake, Osman Khan, Johnny Mahlangu, Shannon L. Meeks, Ismail Haroon Mitha, Claude Négrier, Ulrike Nowak‐Göttl, Michael Recht, Tammuella Chrisentery‐Singleton, Oleksandra Stasyshyn, Kateryna V. Vilchevska, Laura Villarreal Martinez, Michael Wang, Jerzy Windyga, Guy Young, W. Allan Alexander, Daniel Bonzo, Christopher Macie, Ian S. Mitchell, Evelyne Sauty, Thomas A. Wilkinson, Amy D. Shapiro
Abstract: Haemophilia, EarlyView.
PubDate: 2022-04-27T12:51:48-07:00
DOI: 10.1111/hae.14563
-
- Emicizumab enhances thrombus formation in vitro under high shear flow
conditions in whole blood from patients with type 1 and type 3 von
Willebrand disease-
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Authors: Hiroaki Yaoi; Yasuaki Shida, Kenichi Ogiwara, Takehisa Kitazawa, Midori Shima, Keiji Nogami
Abstract: Haemophilia, EarlyView.
PubDate: 2022-04-27T11:23:58-07:00
DOI: 10.1111/hae.14581
-
- CTLA4‐Ig prevents development of neutralizing antibody formation after
continuous treatment with human FVIII in HA rats-
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Authors: Gabi Overgaard Øvlisen; Peter Thygesen, Karin Nana Weldingh, Esther Bloem, Søren Skov, Kasper Almholt, Karin Maria Lövgren, Carsten Dan Ley, Thomas Lindebo Holm
Abstract: Haemophilia, EarlyView.
PubDate: 2022-04-25T02:43:19-07:00
DOI: 10.1111/hae.14573
-
- Pain, depression and anxiety in people with haemophilia from three Nordic
countries: Cross‐sectional survey data from the MIND study-
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Authors: Katarina Steen Carlsson; Bent Winding, Jan Astermark, Fariba Baghaei, Elisabeth Brodin, Eva Funding, Margareta Holmström, Klaus Österholm, Sofia Bergenstråle, Emelie Andersson, Stefan Lethagen
Abstract: Haemophilia, EarlyView.
PubDate: 2022-04-23T02:54:51-07:00
DOI: 10.1111/hae.14571
-
- Examining patient and professional perspectives in the UK for gene therapy
in haemophilia-
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Authors: Ione Woollacott; George Morgan, Pratima Chowdary, Jamie O'Hara, Bethany Franks, Eline Overbeeke, Nicola Dunn, Sissel Michelsen, Isabelle Huys, Antony Martin, Matthew Cawson, Jack Brownrigg, Ian Winburn, Jim Thomson
Abstract: Haemophilia, EarlyView.
PubDate: 2022-04-19T05:54:53-07:00
DOI: 10.1111/hae.14572
-
- Revised terminal half‐life of nonacog alfa as derived from extended
sampling data: A real‐world study involving 64 haemophilia B patients on
nonacog alfa regular prophylaxis-
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Authors: Brigitte Tardy; Thierry Lambert, Pierre Chamouni, Aurélie Montmartin, Marc Trossaert, Ségolène Claeyssens, Claire Berger, Laurent Ardillon, Valérie Gay, Xavier Delavenne, Annie Harroche, Pierre Chelle
Abstract: Haemophilia, EarlyView.
PubDate: 2022-04-14T03:04:14-07:00
DOI: 10.1111/hae.14560
-
- Most subjectively affected joints in patients with haemophilia – what
has changed after 20 years in Germany'-
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Authors: Jamil Hmida; Thomas Hilberg, Pia Ransmann, Fabian Tomschi, Claudia Klein, Sebastian Koob, Alexander Franz, Heinrich Richter, Johannes Oldenburg, Andreas C. Strauss
Abstract: Haemophilia, EarlyView.
PubDate: 2022-04-14T02:37:31-07:00
DOI: 10.1111/hae.14564
-
- Bone health in haemophilia carriers and persons with von Willebrand
disease: A large database analysis-
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Authors: Divyaswathi Citla‐Sridhar; Robert F. Sidonio, Sanjay P. Ahuja
Abstract: Haemophilia, EarlyView.
PubDate: 2022-04-13T12:19:22-07:00
DOI: 10.1111/hae.14565
-
- Advantages of external quality assessment‐EQA programs
-
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Authors: Silmara Aparecida de Lima Montalvão; Anna Lowe, Steve Kitchen
Abstract: Haemophilia, EarlyView.
PubDate: 2022-04-12T11:58:46-07:00
DOI: 10.1111/hae.14562
-
- Iron deficiency anemia and bleeding management in pediatric patients with
Bernard‐Soulier syndrome and Glanzmann Thrombasthenia: A
single‐institution analysis-
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Authors: Annika Lee; Cheryl L. Maier, Glaivy Batsuli
Abstract: Haemophilia, EarlyView.
PubDate: 2022-04-12T08:10:13-07:00
DOI: 10.1111/hae.14559
-
- Associated comorbidities, healthcare utilization & mortality in
hospitalized patients with haemophilia in the United States: Contemporary
nationally representative estimates-
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Authors: Jonathan R. Day; Clifford Takemoto, Anjali Sharathkumar, Sarah Makhani, Ashwin Gupta, Stephanie Bitner, Cassandra D. Josephson, Evan M. Bloch, Aaron A. R. Tobian, Lakshmanan Krishnamurti, Ruchika Goel
Abstract: Haemophilia, EarlyView.
PubDate: 2022-04-12T06:29:12-07:00
DOI: 10.1111/hae.14557
-
- Association between weight status and joint function in adult and
pediatric patients with hemophilia-
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Authors: Batool El‐Atoum; Gretchen Prather, Donna Arden, Stephanie Thompson, Steven Jubelirer, Mohamad Badawi, Ashley Meyer
Abstract: Haemophilia, EarlyView.
PubDate: 2022-03-13T01:40:23-08:00
DOI: 10.1111/hae.14541
-
- Anti‐platelet treatment challenges in Glanzmann
thrombasthenia‐clinical practice when data lacks-
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Authors: Alexandru Scafa‐Udriște; Nicoleta‐Monica Popa‐Fotea, Lucian Calmac, Sebastian Onciul, Vlad Bataila, Cosmin Mihai, Vlad Ploscaru, Valentina Uscatescu, Georgiana Gherghe, Iulia Grigore, Maria Dorobanțu, Miruna Mihaela Micheu
Abstract: Haemophilia, EarlyView.
PubDate: 2022-02-26T12:59:30-08:00
DOI: 10.1111/hae.14527
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- Total joint arthroplasty in the patients with haemophilia: General or
neuraxial anaesthesia'-
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Authors: Alireza Moharrami; Amir Hosein Mafi, Ehsan Fallah, Milad Salehi, Seyed Mohammad Javad Mortazavi
Abstract: Haemophilia, EarlyView.
PubDate: 2022-02-13T04:33:53-08:00
DOI: 10.1111/hae.14509
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