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J. of Innovation in Health Informatics     Open Access   (Followers: 16, SJR: 0.393, CiteScore: 1)
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Journal of Innovation in Health Informatics
Journal Prestige (SJR): 0.393
Citation Impact (citeScore): 1
Number of Followers: 16  

  This is an Open Access Journal Open Access journal
ISSN (Print) 2058-4555 - ISSN (Online) 2058-4563
Published by BCS Homepage  [1 journal]
  • A mixed method observational study of strategies to promote adoption and
           usage of an application to support asthma self-management

    • Authors: Chi Yan Hui
      Pages: 243 - 253
      Abstract: BACKGROUND: Apps can potentially support asthma self-management, however attracting downloads and encouraging on-going adherence is challenging.OBJECTIVES: We observed the impact of different recruitment strategies and app features on adoption and continued use.METHODS: Practice nurses in five practices in Lothian/Oxford approached adults with active asthma to try out a prototype app. We also advertised the app via social media (Asthma UK; AUK Centre for Applied Research). We observed patients’ download and retention rates and sent pre- and post-trial questionnaires. We sampled 15 patients for interviews before and after using our app for one month to explore motivations, triggers and barriers to adoption and usage. Interviews were transcribed and analysed thematically with reference to the Fogg behaviour model.RESULTS: Social media attracted 87 users, but only 15 (17%) used the app for 30 days.  Practices recruited 24 patients, 13 (54%) continued for 30 days. Successful adoption was dependent on ease of downloading and sufficient motivation. Some patients needed technological assistance with downloading the app and starting to use the features.   Adherence was dependent on motivation derived from a sense that the healthcare professional and/or researcher was interested in the results, and that using an app to support their self-management could improve their asthma control.CONCLUSION: Social media attracted more downloads in a short time. However, most patients stopped using the app within a month.  Practices recruited fewer patients, but patents adhered longer to the app.  Dual promotion strategies (social media with practice support) may be the optimal approach to encourage adoption and adherence to telehealth.
      PubDate: 2019-01-09
      DOI: 10.14236/jhi.v25i4.1056
      Issue No: Vol. 25, No. 4 (2019)
  • Five key strategic priorities of integrating patient generated health data
           into United Kingdom electronic health records

    • Authors: Kathrin Cresswell, Brian McKinstry, Maria Wolters, Anoop Shah, Aziz Sheikh
      Pages: 254 - 259
      Abstract: The integration of patient/person generated health data into clinical applications is a key strategic priority internationally. However, despite agreement on the overall direction of travel, there are still a range of challenges that inhibit progress in this area. These include technology-related factors (such as interoperability), use-related factors (such as data overload) and characteristics of the strategic environment (such as existing standards). Building on important policy deliberations from the United States that aim to navigate these challenges, we here apply emerging policy frameworks to the United Kingdom and outline five key priority areas that are intended to help policy makers make important strategic decisions in attempting to integrate patient/person generated data into electronic health records.
      PubDate: 2019-01-04
      DOI: 10.14236/jhi.v25i4.1068
      Issue No: Vol. 25, No. 4 (2019)
  • In this issue - Assumptions, openness, apps, collaborative working and a
           new editor

    • Authors: Simon de Lusignan
      Abstract:  No abstract - In This Issue for Issue No 4. 
      PubDate: 2018-12-30
      DOI: 10.14236/jhi.v25i4.1167
      Issue No: Vol. 25, No. 4 (2018)
  • Building Strong Health Supply Chain Systems: The Visibility and Analytics
           Network approach to improving the Nigeria Immunization Supply Chain

    • Authors: Chibuzo Ottih, Kevin Cussen, Mahmud Mustafa
      Pages: 199 - 206
      Abstract: BACKGROUND: Health supply chain managers are unable to effectively monitor the performance of the Immunization supply chain in Nigeria. As a result, they are unable to make effective, data-driven decisions. This results in poor vaccine availability at some service delivery points. A lack of reliable data for evidence-based decision making is a significant contributor to this challenge.METHOD:The Visibility and Analytics Network (“VAN”) principles were introduced to enable end-to-end visibility in the immunization supply chain and logistics (ISCL) system and make more accurate data available to health supply chain managers.RESULTS: The application of the VAN principles has led to improved data collection, real-time stock visibility, enhanced data analytics framework. This enhanced visibility has promoted a culture of accountability and data-driven decision-making previously unattainable. Health supply chain managers are now equipped with better skills and tools to promote effective operation of the immunization supply chain.CONCLUSION: The introduction of VAN principles has been an effective approach to improving data visibility and creating incremental improvements in the ISCL in Nigeria.
      PubDate: 2018-12-31
      DOI: 10.14236/jhi.v25i4.944
      Issue No: Vol. 25, No. 4 (2018)
  • An instrument to identify computerised primary care research networks,
           genetic and disease registries prepared to conduct linked research:
           TRANSFoRm International Research Readiness (TIRRE) survey

    • Authors: Harshana Liyanage, Emily Jennings, Simon de Lusignan, Georgios Michalakidis, Paul Krause, Frank Sullivan, Brendan Delaney
      Pages: 207 - 220
      Abstract: PURPOSE: The Translational Research and Patients safety in Europe (TRANSFoRm) project aims to integrate primary care with clinical research whilst improving patient safety. The TRANSFoRm International Research Readiness survey (TIRRE) aims to demonstrate data use through two linked data studies and by identifying clinical data repositories and genetic databases or disease registries prepared to participate in linked research.METHOD: The TIRRE survey collects data at micro-, meso- and macro-levels of granularity; to fulfil data, study specific, business, geographical and readiness requirements of potential data providers for the TRANSFoRm demonstration studies. We used descriptive statistics to differentiate between demonstration-study compliant and non-compliant repositories. We only included surveys with >70% of questions answered in our final analysis, reporting the odds ratio (OR) of positive responses associated with a demonstration-study compliant data provider.RESULTS: We contacted 531 organisations within the Eurpean Union (EU). Two declined to supply information; 56 made a valid response and a further 26 made a partial response. Of the 56 valid responses, 29 were databases of primary care data, 12 were genetic databases and 15 were cancer registries. The demonstration compliant primary care sites made 2098 positive responses compared with 268 in non-use-case compliant data sources [OR: 4.59, 95% confidence interval (CI): 3.93–5.35, p < 0.008]; for genetic databases: 380:44 (OR: 6.13, 95% CI: 4.25–8.85, p < 0.008) and cancer registries: 553:44 (OR: 5.87, 95% CI: 4.13–8.34, p < 0.008).CONCLUSIONS: TIRRE comprehensively assesses the preparedness of data repositories to participate in specific research projects. Multiple contacts about hypothetical participation in research identified few potential sites.
      PubDate: 2018-12-31
      DOI: 10.14236/jhi.v25i4.964
      Issue No: Vol. 25, No. 4 (2018)
  • Newborn screening data management: proposing a framework for Iran

    • Authors: Haleh Ayatollahi, Sara Karimi, Maryam Ahmadi
      Pages: 221 - 229
      Abstract: INTRODUCTION: Different countries use a variety of methods to manage the newborn screening data. In this study, we aimed to compare the experiences of the selected countries to propose a framework for managing the newborn screening data in Iran.METHODS: In this comparative study, data were collected using electronic databases and the official website of the Department of Health in America, England and Australia. Data related to the process of newborn screening in Iran were collected using an open-ended questionnaire and reviewing the published documents.RESULTS: In this study, a framework for newborn screening data management was proposed which consisted of six main areas, namely; objectives, involved organisations, data elements, data collection processes, data classification systems and the methods of controlling data quality.CONCLUSION: The framework suggested in this study can help to re-organise the process of newborn screening with more focus on data management. These data can be used in conducting research and setting strategies for improving the quality of child health in the country.
      PubDate: 2018-12-31
      DOI: 10.14236/jhi.v25i4.985
      Issue No: Vol. 25, No. 4 (2018)
  • The characteristics and capabilities of the available open source health

    • Authors: Ather Akhlaq, Brian McKinstry, Aziz Sheikh
      Pages: 230 - 238
      Abstract: INTRODUCTION: Due to the many advantages of open source software (OSS), including reduced cost of licensing, more flexibility in terms of customisation and redistribution, better quality and no vendor lock-in, OSS in healthcare is increasingly gaining importance. Various open source health information technologies (OS-HITs) are continuously being designed and developed for different areas of healthcare to increase organisational efficiencies and quality of care at minimum costs. The objective of this scoping review is to identify the kinds of existing OS-HITs, their characteristics (e.g. functions) and capabilities (e.g. advantages/disadvantages) for various healthcare stakeholders (physicians and patients) and healthcare sectors (e.g. clinical, administrative).METHODS: We will conduct a scoping review to identify the range of available OS-HITs in international literature from 1980 to September 2018. Searches will be conducted in six major international databases, namely: Cumulative Index to Nursing and Allied Health Literature Plus, Excerpta Medica Database, Global Health, Library Information Science and Technology Abstracts, Medline and Web of Science to identify relevant published research. We will also search the Google search engine and Google Scholar for on-going and unpublished work and the grey literature. Searches will be peer-reviewed by two independent reviewers and will not be limited by methodology or language. Next, selected references will be tabulated for study characteristics by author affiliation, country of origin, the name of OS-HIT, healthcare area/sector, system requirements, stakeholders, complete solution and web link. Furthermore, functions, benefits/advantages, disadvantages and outcomes (e.g. usability) of OS-HITs will be extracted. Narrative and interpretative synthesis of data will be undertaken.RESULTS: We will report our findings in a peer-reviewed journal.
      PubDate: 2018-12-31
      DOI: 10.14236/jhi.v25i4.1022
      Issue No: Vol. 25, No. 4 (2018)
  • Mental health service users' perceptions of data sharing and data
           protection: a qualitative report

    • Authors: Emily Nina Satinsky, Corine Driessens, David Crepaz-Keay, Antonis Kousoulis
      Pages: 239 - 242
      Abstract: BACKGROUND: To improve health services, social, economic and health data should be shared and linked to create a full narrative of lived experience. Mental health data sharing is often considered a particularly sensitive area.OBJECTIVE: To assess mental health service users’ perceptions regarding the current practice of administrative data-driven research.METHOD: We conducted a focus group using case study scenarios. Themes and subthemes were analysed using qualitative methods.RESULTS: Participants were generally happy for data owners to share their health, social and economic data if the purpose was transparent and if the information would inform and improve health policy and practice. Participants were less keen on sharing data through digital applications.CONCLUSION: This case study informs a data linkage study protocol. Research teams and database owners should strive to educate service users on data protection and create dissent opportunities. 
      PubDate: 2018-12-31
      DOI: 10.14236/jhi.v25i4.1033
      Issue No: Vol. 25, No. 4 (2018)
  • Time to mandate collaborative working is part of computerised medical
           record systems, at a time of general practitioner shortage

    • Authors: Simon de Lusignan
      Pages: 260 - 262
      PubDate: 2018-12-31
      DOI: 10.14236/jhi.v25i4.1140
      Issue No: Vol. 25, No. 4 (2018)
School of Mathematical and Computer Sciences
Heriot-Watt University
Edinburgh, EH14 4AS, UK
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