Journal Cover Canadian Journal of Disability Studies
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  This is an Open Access Journal Open Access journal
   ISSN (Print) 1929-9192
   Published by U of Waterloo Homepage  [1 journal]
  • Institutional Survivorship Editorial Introduction

    • Authors: Jen Rinaldi, Kate Rossiter, Liza Kim Jackson
      Pages: 1 - 12
      PubDate: 2017-08-21
      DOI: 10.15353/cjds.v6i3.361
      Issue No: Vol. 6, No. 3 (2017)
       
  • Trauma From the Past

    • Authors: Carrie Ford, Kate Rossiter
      Pages: 13 - 19
      Abstract: Carrie Anne Ford lived most of her childhood in the Huronia Regional Centre. Even though she grew up in a place that was very unkind, she is an expert in caring for animals and children. She is also great singer who won a trophy. Carrie Anne can see and name the truth in hard cases, and speaks frankly about weakness and pain at Huronia. Now that her partner has died, Carrie Anne is still proud of her 26-year marriage. For the past four years, Carrie Anne has been a co- researcher working with Recounting Huronia: a collective of researchers, artists, and survivors using arts-based and storytelling methods to return to and preserve lived memories of the HRC. The research team often operated in pairs, in monthly workshops that used scrapbooking, poetry, cabaret performance, and other arts-based methods to articulate traumatic memories. Carrie Anne worked closely with Kate Rossiter during this time, and began to articulate her experience of living at Huronia through writing and art. Carrie Anne wrote this history on her own, then worked with Kate Rossiter who compiled and transcribed this work. 
      PubDate: 2017-08-21
      DOI: 10.15353/cjds.v6i3.363
      Issue No: Vol. 6, No. 3 (2017)
       
  • That's My Story and I'm Sticking To It

    • Authors: Cindy Scott, Jen Rinaldi
      Pages: 20 - 29
      Abstract: Cindy Scott is a proud lesbian woman and a survivor of the Huronia Regional Centre (HRC), an institution that housed persons diagnosed with intellectual disabilities 1876-2009. She is known for her work in Orillia, Ontario speaking about institutionalization and on behalf of residents who died and were buried in the cemetery on HRC grounds. For the past four years, Cindy has been a co-researcher working with Recounting Huronia: a collective of researchers, artists, and survivors using arts-based and storytelling methods to return to and preserve lived memories of the HRC. The research team often operated in pairs, in monthly workshops that used scrapbooking, poetry, cabaret performance, and other arts-based methods to articulate traumatic memories. The stories told here came from workshop exchanges between Cindy and fellow Recounting Huronia member Jen Rinaldi, and are anchored in scrapbook entries they developed together in Recounting Huronia workshops. Cindy retold these stories for Jen to transcribe, and Jen has provided some context via footnotes. 
      PubDate: 2017-08-21
      DOI: 10.15353/cjds.v6i3.364
      Issue No: Vol. 6, No. 3 (2017)
       
  • Self-Advocacy from the Ashes of the Institution

    • Authors: Sue Hutton, Peter Park, Martin Levine, Shay Johnson, Kosha Bramesfeld
      Pages: 30 - 59
      Abstract: This paper explores the oral histories of two survivors of Canada’s institutions for persons labelled with intellectual disability. Both of these men survived the abuses of the institutions and went on to become committed to rights advocacy for others labelled with an intellectual disability. They were determined to tell their stories and act as change agents so that no one else experiences the abuse they did. In this paper, Peter and Martin tell parts of their stories, including their journey toward self-advocacy. This paper provides a space for these truths to be revealed in the time of class action law suits that are underway for these survivors. No opportunity was provided for the class action members to tell their stories in court, so this paper contains pieces of the narrative that survivors want people to know. Their stories are told in both narrative and art form. These artifacts highlight common themes of institutional abuse and isolation, but also of remarkable resiliency and strength. Their stories serve as an important record of the history of institutionalization in Canada and help to shape a better understanding of the roots of self- advocacy, including the importance of “nothing about us without us” (Charlton, 1998). 
      PubDate: 2017-08-21
      DOI: 10.15353/cjds.v6i3.365
      Issue No: Vol. 6, No. 3 (2017)
       
  • Failure to Comply: Madness and/as Testimony

    • Authors: Clementine Morrigan
      Pages: 60 - 91
      Abstract: Self-harm, suicide attempts, disordered eating, addiction, and other forms of “acting out” are associated with the trauma of surviving violence. While these behaviours are pathologized as symptoms of mental illness, they can be understood, instead, as strategies of resistance against violence. When violence is ignored or normalized, the “acting out” associated with trauma can be a means of sounding an alarm that something is very wrong. This “acting out” can be understood as an embodied form of testimony. When direct resistance to violence, such as fighting back or escaping, is thwarted or impossible, traumatic “acting out” can be a way to draw attention to and resist violence. Psychiatry, instead of answering the call of trauma by addressing the underlying violence, works to silence that call. Through incarceration, sexual violence, enforced isolation, restricted motion, threats, coercive drugging, gaslighting, and other abusive tactics, psychiatry works to undermine the embodied testimony of trauma by producing compliance. The source of the problem is shifted from the original violence and located instead in the body of the traumatized person. Successful treatment is understood as the reduction or elimination of the very “symptoms” which are in reality acts of resistance to violence. Therefore, successful treatment essentially means submission. The carceral space of psychiatry continues the work of producing compliance even after the patient has left its enclosures, extending the space of the psych ward into the everyday lives of psychiatric survivors. 
      PubDate: 2017-08-21
      DOI: 10.15353/cjds.v6i3.366
      Issue No: Vol. 6, No. 3 (2017)
       
  • Unheard Voices: Sisters Share about Institutionalization

    • Authors: Madeline Burghardt, Victoria Freeman, Marilyn Dolmage, Colleen Orick
      Pages: 92 - 117
      Abstract: The recent emergence of institutional survivors’ accounts of mistreatment and abuse in Ontario’s institutions for the “feebleminded” offers a window into Canada’s long history of segregation, mistreatment, and neglect of people labelled intellectually disabled. The breaking of this silence has also allowed the stories of others who were deeply affected by institutionalization to come forward. Narratives from siblings of institutionalized individuals, although not first-hand accounts of the life inside institutional walls, offer much needed perspective on the extensive and ongoing effect of institutionalization in the lives of thousands of families, and offer additional insight from another marginalized group that until now has not held a place in Canada’s visible and spoken history. This paper is a weaving together of three sibling narratives that were part of a panel at the Canadian Disability Studies Association (CDSA) conference in Ottawa, Ontario in June 2015. All sisters of institutionalized persons, the three contributors remark in particular on their profound experiences of loss after their brother or sister was sent away from the family home. The contributors believe that it is through the sharing of such experiences that society can better come to understand the devastation wreaked upon both individuals and families through misinformed and prejudicial policies over a period of more than 150 years. 
      PubDate: 2017-08-21
      DOI: 10.15353/cjds.v6i3.367
      Issue No: Vol. 6, No. 3 (2017)
       
  • Institutional Survivorship: Abandonment and the “Machinery of the
           Establishment”

    • Authors: Madeline Burghardt
      Pages: 118 - 148
      Abstract: Institutions are a central and painful feature in the historical record of the treatment of people with intellectual disabilities in Canada. To date, scholarly work has provided a robust understanding of the multiple intersecting factors and “political rationalities” (Chapman, 2014) that have contributed to institutions’ development, including their relationship with capitalism’s “exploitative social relations of production and consumption” (Erevelles, 2014, para. 6). Accounts from institutional survivors that describe the direct and lived experience of institutionalization have begun to emerge in Canadian disability studies and historical canons. Based on research that examined the impact of institutionalization on families, this paper draws from survivor narratives to explore the alienation and abandonment that survivors experienced as a result of having been institutionalized. It interrogates the connection between survivors’ experiences and the function of their alienation in the workings of a capitalist system. Additionally, this paper addresses some of the historical, social and political conditions of the time and place of concern (post World War II Ontario), and discusses how those conditions created a discourse of persuasion in the institutionalization of children with intellectual disabilities. 
      PubDate: 2017-08-21
      DOI: 10.15353/cjds.v6i3.368
      Issue No: Vol. 6, No. 3 (2017)
       
  • Writing Institutionalization and Disability in the Canadian Culture
           Industry: (Re)producing (Absent) Story

    • Authors: Chelsea Temple Jones
      Pages: 149 - 182
      Abstract: From the lens of a non-survivor ally who is also a journalist, activist, sister, and educator, I offer a reflexive account of reconciling with failed media activism. By applying Horkheimer and Adorno’s (1972) concept of the culture industry to my own experience of pitching a story about the impending closure of Saskatchewan’s Valley View Centre to a Canadian publication, this article investigates the theoretical underpinnings of a Canadian culture industry confronted with the politics of institutionalization, survivorship, and intellectual disability. The culture industry operates on the inclusionist premise that the public needs to understand cultural locations of disability that bestow an artificial sense of bodily agency on the spectator, thus placing media producers in “expert” roles by culture industry standards. This article combines memory and critical theory in a writing-story that addresses the unresolvable task of un/covering disability’s presence and absence in a journalistic practice that cannot penetrate the walls of an institution. 
      PubDate: 2017-08-21
      DOI: 10.15353/cjds.v6i3.369
      Issue No: Vol. 6, No. 3 (2017)
       
  • Escaping “The Organism, Signifiance, and Subjectification” in the
           Recounting Huronia Project

    • Authors: David Fancy
      Pages: 183 - 210
      Abstract: Describing creative activity undertaken by researchers and co-researcher survivors in the context of the Recounting Huronia project, this paper extends existing literature on Deleuze & Guattari and disability arts by exploring how artistic activity provides opportunities for escape from the constraints of what Deleuze and Guattari (1987) describe as the three central strategies by which restrictive systems capture bodies, namely the stratifications of “the organism, signifiance, and subjectification.” Examined in this paper are the specific ways in which one survivor’s involvement in storybook making, poetry, and performance lead to the bundle “percepts” and “affects” in such a way as to generate what Deleuze and Guattari (1994) describe as artistic “monuments.” Far from being constituted by fixities, such monuments provide key pathways for potentially liberatory disarticulations of the restrictive organism, for experimentation in the face of limiting signifiance, and new individuations beyond institutionally coded subjectifications. 
      PubDate: 2017-08-21
      DOI: 10.15353/cjds.v6i3.370
      Issue No: Vol. 6, No. 3 (2017)
       
  • apology, under erasure

    • Authors: nancy viva davis halifax
      Pages: 211 - 214
      Abstract: On 9 December, 2013 Premier Kathleen Wynne of Ontario delivered Ontario’s Apology to Former Residents of Regional Centres For People with Developmental Disabilities at the provincial legislature. The apology was delivered a week after the Huronia Class Action Lawsuit was settled for $35 million. The poem uses the form of erasure as a response to the inadequacies of both the apology and the settlement. 
      PubDate: 2017-08-21
      DOI: 10.15353/cjds.v6i3.371
      Issue No: Vol. 6, No. 3 (2017)
       
  • Soundfull: A Wall Speaks, A Door Shakes, A Floor Trembles

    • Authors: Marla Hlady, Christof Migone
      Pages: 215 - 228
      Abstract: What if you could use your voice to move the room you are standing in' What if your voice could crumble down walls' When the researchers of Recounting Huronia invited us to conceive of a participatory, sited sound work in the Huronia Regional Centre for the last three days of public tours October 16-18, 2014, we devised a purpose-built mobile sound-amplifying cart. It functioned as the nerve center for a solitary stereo microphone feeding an array of speakers spread over five rooms that formally constituted the first-aid nursing station of the Centre’s B- Wing. With this instrument we were able to amplify the resonances, physical and beyond, of the institution. In other words, by deploying this instrument we intended to both convey its architecture and conjure its past. 
      PubDate: 2017-08-21
      DOI: 10.15353/cjds.v6i3.372
      Issue No: Vol. 6, No. 3 (2017)
       
 
 
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