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Journal Cover Disability Studies Quarterly
  [27 followers]  Follow
    
  This is an Open Access Journal Open Access journal
   ISSN (Print) 1041-5718 - ISSN (Online) 2159-8371
   Published by Ohio State University Homepage  [3 journals]
  • Editorial Introduction for 37:1

    • Authors: Ally Day, Kim E. Nielsen
      Abstract: No abstract available.
      PubDate: 2017-03-07
      Issue No: Vol. 37, No. 1 (2017)
       
  • Disability Scholars as World Disrupters and Worldmakers

    • Authors: David Gerber
      Abstract: This essay is an exhortation for those of us who do disability scholarship, in all of its varieties, to continue to disrupt categories, concepts, and assumptions, and to join larger conversations beyond disability about the shaping of the world.
      PubDate: 2017-03-07
      Issue No: Vol. 37, No. 1 (2017)
       
  • Beyond the Spectrum: Rethinking Autism

    • Authors: Heather Thomas, Tom Boellstorff
      Abstract: The "spectrum" has become the dominant metaphor for conceptualizing autism, with fundamental consequences for notions of disability, diversity, and normality. In this article, we draw on ethnographic research with autistic communities to explore how the notion of the autism spectrum has become a focus of explicit identification, reflection, and contestation. To further this inquiry, we place these debates into conversation with earlier debates regarding another spectrum—the Kinsey Scale, a "spectrum" for conceptualizing sexual orientation that first appeared in 1948 but has been critiqued since the 1970s. How might responses to the Kinsey Scale (like the Klein Grid) contribute to rethinking the autism spectrum? This is a question about the cultural and political implications of metaphors and conceptual models. It is of broad importance because the spectrum metaphor is being extended to a range of conditions beyond autism itself. Our goal is thus to build on insights from sexuality studies as well as the insights of autistic persons, advocates, and researchers who wish to forestall the naturalization of "the spectrum." In doing so, we seek to contribute to a discussion of what alternative frameworks might bring to questions of social justice, ability, and human flourishing.
      PubDate: 2017-03-07
      Issue No: Vol. 37, No. 1 (2017)
       
  • Semiotics of Otherness in Japanese Mythology

    • Authors: Yoshiko Okuyama
      Abstract: This article examines the tropes of "otherness" embedded in Japanese myths and legends in which the protagonist has a physical or intellectual disability to uncover the sociohistorical attitudes toward such people in Japan. Using the theory of semiotics, I will explicate the narrative signifiers of "the Other" represented in Japanese mythology; examine the binary perceptions of disability in ancient myths, medieval literature, and latter-day folklore in Japan; and demonstrate how perceptions have changed historically. I argue that some of these antique perceptions of the Other that have survived in contemporary Japanese consciousness may be hampering our effort to understand human variation.
      PubDate: 2017-03-07
      Issue No: Vol. 37, No. 1 (2017)
       
  • Un/covering: Making Disability Identity Legible

    • Authors: Heather Dawn Evans
      Abstract: This article examines one aspect of disability identity among people with non-apparent or "invisible" disabilities: the decision to emphasize, remind others about, or openly acknowledge impairment in social settings. I call this process "un/covering," and situate this concept in the sociological and Disability Studies literature on disability stigma, passing, and covering. Drawing on interviews with people who have acquired a non-apparent impairment through chronic illness or injury, I argue that decisions to un/cover (after a disability disclosure has already been made) play a pivotal role for this group in developing a strong, positive disability identity and making that identity legible to others. Decisions to pass, cover, or un/cover are ongoing decisions that stitch together the fabric of each person's daily life experiences, thus serving as primary mechanisms for identity negotiation and management.
      PubDate: 2017-03-07
      Issue No: Vol. 37, No. 1 (2017)
       
  • Defining Disability: Understandings of and Attitudes Towards Ableism and
           Disability

    • Authors: Carli Friedman, Aleksa L. Owen
      Abstract: Disabled people, amidst political and social gains, continue to experience discrimination in multiple areas. Understanding how such discrimination, named here as ableism, operates is important and may require studying perspectives of people who do not claim a disability identity.  Ableism may be expressed in a number of ways, and examining how a particular group, in this case siblings of disabled people, understand and value disability may contribute to overall understandings about how ableism works. Thus, the purpose of this study is to explore relationships between siblings of disabled people's broad societal understandings of disability and their attitudes towards it. In order to tease out this relationship further we have also examined factors that impact how people define disability. Using both social psychological and sociological approaches, we have contextualized individual attitudes as providing additional new information about social meanings of disability, and set this study's results against the larger backdrops of debates over meanings of disability within Disability Studies. In our research, participants revealed complex understandings of disability, but most often defined disability as preventing or slowing action, as an atypical function, a lack of independence, and as a socially constructed obstacle. Participants' unconscious (implicit) disability attitudes significantly related to their understandings of disability as lacking independence, impairment, and/or in relation to the norm, and their conscious (explicit) disability attitudes. Moreover, longer employment in a disability-related industry was correlated with defining disability as a general difference, rather than as slowing or limiting of tasks.
      PubDate: 2017-03-07
      Issue No: Vol. 37, No. 1 (2017)
       
  • Testament

    • Authors: Stephanie Heit
      Abstract: As an empowering antidote to the psychiatric system, this piece repossesses and plays with medical establishment language. It indexes the drugs and treatments for bipolar disorder I’ve tried over the course of twenty years and multiple psychiatric hospitalizations. Initially written after a series of inpatient stays in my late 20’s, I recently revised "Testament" after another inpatient intensive period to include new treatment trials and psych unit jargon.  An audio recording of "Testament" is available at http://hdl.handle.net/1811/79959
      PubDate: 2017-03-07
      Issue No: Vol. 37, No. 1 (2017)
       
  • Race, Apology, and Public Memory at Maryland's Hospital for the
           'Negro' Insane

    • Authors: Zosha Stuckey
      Abstract: To respond to a recent demand of the ACLU of Maryland, and to augment theories from Disability Incarcerated (2014) about the convergence of race, disability, and due process (or lack thereof), this essay analyzes the extent to which racism informed the creation of Maryland's Hospital for the 'Negro' Insane (Crownsville Hospital). In order to understand the extent of racism in Crownsville's earlier years, I will take into account 14 categories within conditions of confinement from 1921-1928 and compare them to the nearby, white asylum. Ultimately, the hospital joins the ranks of separate and unequal (Plessy vs. Ferguson) institutions founded alongside a rhetoric of fear that the Baltimore Sun daily paper deemed "a Black invasion" of the city of Baltimore. Even more, I add to public memory of this racialized space invoking the rhetorical frame, as Kendall Phillips advises, of responsibility and apology (versus absolution) within the context of present-day racial justice movements.
      PubDate: 2017-03-07
      Issue No: Vol. 37, No. 1 (2017)
       
  • Future Directions in Supported Decision-Making

    • Authors: Anna Arstein-Kerslake, Joanne Watson, Michelle Browning, Jonathan Martinis, Peter Blanck
      Abstract: Supported decision-making is at the forefront of modern disability research. This is due to Article 12 of the Convention on the Rights of Persons with Disabilities (CRPD), which creates a state obligation to provide support for the exercise of legal capacity. This turned the practice of supported decision-making into a human rights imperative. Government and funding agencies are increasingly focusing their attention on the area. Researchers are similarly increasing their interest in the field. The impending danger is that the rush of interest in the area will overshadow the original intention of supported decision-making: to ensure that people with cognitive disability are provided with the freedom and the tools to participate as equal citizens and for every individual to be free to direct their own life. This article explores the theoretical foundations of supported decision-making and the evolution of supported decision-making research. It explains the research that is emerging in leading jurisdictions, the United States and Australia, and its potential to transform disability services and laws related to decision-making. Finally, it identifies areas of concern in the direction of such research and provides recommendations for ensuring that supported decision-making remains protective of the rights, will and preferences of people with cognitive disability.
      PubDate: 2017-03-07
      Issue No: Vol. 37, No. 1 (2017)
       
  • Thousand Hands Bodhisattva: Aesthetics, Affect, Sensational Disability

    • Authors: Weisong Gao
      Abstract: This project examines the performance Thousand Hands Bodhisattva by hearing impaired dancers and the ways in which the invisible disability might provoke divergent viewing experiences and feelings contingent upon how the performance is contextualized. This performance showcases formal dancing techniques to elicit the sensation of beauty and the valorization of virtuosity, the presumed spectating responses to the aesthetic value of the performance. However, if the external knowledge of the dancers' disability is prefigured to the spectators, the contextualized performance would stir unexpected responses among the viewers, such as a feeling of shame, admiration and so on, because their taken-for-granted assumptions are challenged that beauty is unquestionably associated with completeness, wholeness, and ability, and that disabled individuals are radically less self-sufficient than the able-bodied. Eventually, I attempt to argue that this performance exemplifies a certain type of queer formalism because, by simultaneously sticking with the conventional form of dance while mobilizing the sensation of disability to queer the viewing experience, it disrupts the presupposed, normative and predictable relationship between an artistic form and its reception.
      PubDate: 2017-03-07
      Issue No: Vol. 37, No. 1 (2017)
       
  • Stories of Autism: What the Rise of Books on Autism Tells Us About, Well,
           Autism

    • Authors: Dani Alexis Ryskamp
      Abstract: Publications on autism have exploded in recent years, as "Autism Spectrum Disorder" becomes not only a diagnostic category, but a cultural phenomenon.  In this piece, I review and analyze five major works on autism published between 2014 and 2016: In A Different Key, by John Donvan and Caryn Zucker; Autism and Gender, by Jordynn Jack; War on Autism, by Anne McGuire; Uniquely Human, by Barry Prizant; and The ABCs of Autism Acceptance, by Sparrow Rose Jones.  In reviewing these works, I analyze both the points at which they merge and the points at which they diverge, and I explore the ways in which these points construct, contribute to, and/or complicate our understanding of "what autism is."
      PubDate: 2017-03-07
      Issue No: Vol. 37, No. 1 (2017)
       
  • Review of Disability Politics and Care: The Challenge of Direct Funding

    • Authors: Kelly Fritsch
      Abstract: No abstract available.
      PubDate: 2017-03-07
      Issue No: Vol. 37, No. 1 (2017)
       
  • Review of Byline of Hope: Collected Newspaper and Magazine Writing of
           Helen Keller

    • Authors: Andrew Marcum
      Abstract: No abstract available.© 2017 Marcum. All rights reserved. By author request, this article is excluded from Creative Commons licensing.
      PubDate: 2017-03-07
      Issue No: Vol. 37, No. 1 (2017)
       
  • Review of A Body Undone: Living on After Great Pain

    • Authors: Alyson Patsavas
      Abstract: No abstract available.
      PubDate: 2017-03-07
      Issue No: Vol. 37, No. 1 (2017)
       
  • Review of Semicolon; The Adventures of Ostomy Girl and Margarita with a
           Straw

    • Authors: Julie Passanante Elman
      Abstract: No abstract available.
      PubDate: 2017-03-07
      Issue No: Vol. 37, No. 1 (2017)
       
  • Review of The Secret Life of Stories: From Don Quixote to Harry Potter,
           How Understanding Intellectual Disability Transforms the Way We Read

    • Authors: Michael Gill
      Abstract: No abstract available.
      PubDate: 2017-03-07
      Issue No: Vol. 37, No. 1 (2017)
       
  • Review of Testing Fate: Tay-Sachs Disease and the Right to Be Responsible

    • Authors: Claire McKinney
      Abstract: No abstract available.
      PubDate: 2017-03-07
      Issue No: Vol. 37, No. 1 (2017)
       
 
 
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