Journal Cover Disability Studies Quarterly
  Number of Followers: 33  
    
  This is an Open Access Journal Open Access journal
   ISSN (Print) 1041-5718 - ISSN (Online) 2159-8371
   Published by Ohio State University Homepage  [3 journals]
  • Editorial Introduction for 38:2

    • Authors: Ally Day, Kim E. Nielsen
      Abstract: No abstract available.
      PubDate: 2018-05-31
      DOI: 10.18061/dsq.v38i2.6392
      Issue No: Vol. 38, No. 2 (2018)
       
  • Barriers to Cross-state Movement for Disabled People and Their Families: A
           Social Problem

    • Authors: Brian R. Grossman
      Abstract: Research on geographic mobility in the US has neglected disabled people, missing their experiences of abridged citizenship as their desires to move across states are frustrated by social policy barriers. To illustrate how meso- and macro-level factors impact individual lives, I review three publicly-reported stories of Medicaid home and community-based services (HCBS) users. To advance research in this area, I analyzed these three stories and developed an original conceptual model, Moves in Context. The model attends to the individual cross-state move trajectories of disabled people, and HCBS users, in particular. Moves in Context focuses on the individual journey (i.e., impetus, ability, and success of move; and the influence of the move story) in relation to both social position/personal resources and social structure/ideology. Through the model, I introduce and explain intrastate confinement, a term to describe the geographic immobility resulting from policy variations across states. I conclude with a discussion of the broader implications of both the Moves in Context model and intrastate confinement for further research on disabled people and interrogating other social problems.
      PubDate: 2018-05-31
      DOI: 10.18061/dsq.v38i2.6097
      Issue No: Vol. 38, No. 2 (2018)
       
  • "Coming out" rhetoric in disability studies: Exploring the limits of
           analogy by looking at its fit with the Deaf experience

    • Authors: Laura Mauldin
      Abstract: This article takes as its entry point the borrowing of coming out discourse in Disability Studies. It first discusses the limits of using such analogies and then investigates its fit when considering the specificity of the Deaf experience. The research is based on five personal histories garnered through in-depth interviews with individuals primarily discussing their processes of coming to identify as Deaf, but also some discussion of coming to identify as gay/lesbian. Their stories indicate that unlike its deployment in broader disability studies, the discourse of coming out in relation to adopting a Deaf cultural identity does not resonate. Instead, the narratives show that while these Deaf individuals did use a sign for "coming out" to describe their process of identifying as gay/lesbian, they did not use it to describe their Deaf identity development. Their narratives of coming to identify as culturally Deaf instead predominantly use a phrase that can interpreted from sign language as "becoming Deaf," although some of the same processes and features of identity development are present. It concludes with a discussion of the tensions between Deaf and disability studies, the limits of analogizing disability with other categories and particularly the limits of coming out discourse regarding the Deaf experience, as well as a discussion of the universalizing view of disability studies.
      PubDate: 2018-05-31
      DOI: 10.18061/dsq.v38i2.5863
      Issue No: Vol. 38, No. 2 (2018)
       
  • Reframing less conventional speech to disrupt conventions of "compulsory
           fluency": A conversation analysis approach

    • Authors: Camille Duque, Bonnie Lashewicz
      Abstract: Our purpose is to illuminate compliances with, and resistances to, what we are calling "compulsory fluency" which we define as conventions for what constitutes competent speech. We achieve our purpose through a study of day-to-day communication between a woman with less conventional speech and her support providing family members and friends. Drawing from McRuer's (2006) compulsory ablebodiedness and Kafer's (2013) compulsory able-mindedness, we use "compulsory fluency" to refer to a form of articulation that is standardized and idealized and imposed on all speakers including those whose speech is less conventional. We see compulsory fluency as central to North American conceptions of personhood which are tied to individual ability to speak for one's self (Brueggemann, 2005). In this paper, we trace some North American principles for linguistic competence to outline widely held ideals of receptive and expressive language use, namely, conventions for how language should be understood and expressed. Using Critical Disability Studies (Goodley, 2013; McRuer, 2006) together with a feminist framework of relational autonomy (Nedelsky, 1989), our goal is to focus on experiences of people with less conventional speech and draw attention to power in communication as it flows in idiosyncratic and intersubjective fashion (Mackenzie & Stoljar, 2000; Westlund, 2009). In other words, we use a critical disability and feminist framing to call attention to less conventional forms of communication competence and, in this process, we challenge assumptions about what constitutes competent speech. As part of a larger qualitative study, we conduct a conversation analysis informed by Rapley and Antaki (1996) to examine day-to-day verbal, vocal and non-verbal communications of a young woman who self identifies as "having autism" - pseudonym Addison - in interaction with her support-providing family members and friends. We illustrate a multitude of Addison's compliances with, and resistances to, compulsory fluency to bring awareness to competence inherent in less conventional speech and we argue this illumination as a call for listening with greater care and more open expectations in efforts to understand, and participate in the expression of, meanings embedded in less conventional speech.
      PubDate: 2018-05-31
      DOI: 10.18061/dsq.v38i2.5821
      Issue No: Vol. 38, No. 2 (2018)
       
  • "Today I Had an Eye Appointment, and I'm Still Blind": Crip Humor,
           Storytelling, and Narrative Positioning of the Disabled Self

    • Authors: Teresa Milbrodt
      Abstract: While able-bodied people may perceive the lives of disabled individuals as "tragic," disabled people often do not believe that to be the case. This paper argues that one way this incongruity might be mediated is through the use of humor and storytelling to create a space of understanding and portray disabled people as having independence and agency. The paper analyzes humorous stories told by disabled individuals in a variety of social situations, interacting both with able-bodied and disabled communities. While disabled people are often positioned by society as helpless, spiteful, and/or lacking agency and control, by telling comic stories, individuals can position themselves on their own terms, and subvert dominant ideologies.
      PubDate: 2018-05-31
      DOI: 10.18061/dsq.v38i2.6163
      Issue No: Vol. 38, No. 2 (2018)
       
  • "Oh, Why Can't You Remain Like This Forever!": Children's
           Literature, Growth, and Disability

    • Authors: Teresa Michals, Claire McTiernan
      Abstract: One of the foundational gestures of the disability rights movement was the rejection of the common description of people who live with physical or mental impairments as "eternal children." This paper argues that the contradictions inherent in applying this trope to adults amplify the contradictions inherent in applying it to children themselves. From its heyday in in the 19th-century "Golden Age" of children's literature to its afterlife in 20th-century disabling rhetoric, the fantasy of childhood as stasis requires denying the fact of growth.
      PubDate: 2018-05-31
      DOI: 10.18061/dsq.v38i2.6107
      Issue No: Vol. 38, No. 2 (2018)
       
  • "I Know You Think I'm Crazy": Post-Horrorcore Rap Approaches to
           Disability, Violence, and Psychotherapy

    • Authors: Mikko O. Koivisto
      Abstract: Cultural representations of Black people as well as people with mental disabilities have historically been derogatory and dehumanizing. Even though the erroneousness and injuriousness of this representational vilification has been increasingly addressed and acknowledged, the power the imagery possesses seems almost indestructible: the stereotypes and myths about blackness and madness live on persistently in our everyday language, in entertainment, media, and other cultural texts. In the face of its seeming indestructibility, alternative ways can be established for encountering the imagery in ways that employ the inertia of its power. This paper explores first-person representations of mental disability as potential egresses from hegemonic representations of psychiatric disability. Recently some disability studies scholars have explored the relationship between disability and rap music and my work contributes to the discussion by examining the work by the rapper Tyler, the Creator. His first three albums are framed as meetings between the artist and his fictional therapist, who is portrayed by the artist himself. This dialogue/monologue brings forth multiple subject positions that frequently overlap and even collide. Operating on the threshold between performance and representation, and between the autobiographical and the fictional, Tyler, the Creator's œuvre challenges stereotypical representations of both Black men and people with psychiatric disabilities.
      PubDate: 2018-05-31
      DOI: 10.18061/dsq.v38i2.6231
      Issue No: Vol. 38, No. 2 (2018)
       
  • Doing Participatory Research with Disabled People in Kuwait

    • Authors: Hussain Mohammed Alenaizi
      Abstract: This paper explores the experiences of participatory PhD research with six disabled people in Kuwait. The contributors participated in my PhD project (which was conducted with the University of Manchester) as co-researchers. The paper attempts to answer the following questions: What are the co-researchers' motivations behind participating in this research' Do the co-researchers believe that they will benefit from this process and if so, how' What are our (i.e. the researcher and the co-researchers) experiences of the process of participatory research' The findings highlight the process of participatory research with the co-researchers and highlight the issues of power relations, skills development and reciprocity, decision-making processes and sharing experiences, and the possibility of this research opening the door for further research and attitudinal change.
      PubDate: 2018-05-31
      DOI: 10.18061/dsq.v38i2.5903
      Issue No: Vol. 38, No. 2 (2018)
       
  • Legal Ableism, Interrupted: Developing Tort Law & Policy Alternatives to
           Wrongful Birth & Wrongful Life Claims

    • Authors: Lydia X. Z. Brown
      Abstract: Early in 2016, the widely acclaimed film Me Before You premiered nationally to a spate of disabled-led protests against the ableism in the film's core story – that of a wealthy, physically disabled young man whose romantic and sexual relationship with a young woman hired as his caregiver (and quasi-maternal or mentoring figure) leads to his choice to kill himself to avoid living further while disabled, and to bequeath his assets to her. Protested as a "disability snuff film" by leading groups like Not Dead Yet, disabled activists lambasted the film for its glorification of assisted suicide as a brave and heroic choice because of the protagonist's disability – criticizing the writers for sending a very strong message that it is better to be dead than to live as disabled, however that might be defined or understood. U.S. law has often embodied that very same message despite the existence of civil rights protections for people with disabilities, and most particularly and glaringly in its adoption of wrongful birth and wrongful life claims as cognizable in tort. In this paper, I aim to provide brief context on the nature and history of wrongful birth and wrongful life claims, examine the myriad social harms toward disabled people that stem from their assertion, explore non-ableist purposes for which these claims might be brought, and propose potential legal and policy mechanisms as alternative means for achieving their possible legitimate purposes without reliance on them.
      PubDate: 2018-05-31
      DOI: 10.18061/dsq.v38i2.6207
      Issue No: Vol. 38, No. 2 (2018)
       
  • R-E-S-P-E-C-T: The Relationship Between Being Respected and Quality of
           Life of Disabled People

    • Authors: Carli Friedman
      Abstract: The United Nations exclaims "all human beings have the right to be treated with dignity and respect" (Annan, 2005, p. 34). Yet, disabled people have long been denied respect in the United States and have been subjected to disability oppression and ableism. For these reasons, the aim of this study was to explore the relationship between respect and disability, particularly respect's impact on the quality of life of disabled people. We had two research questions: (1.) what factors predict disabled people being respected' and, (2.) how does being respected impact the quality of life of disabled people' To explore these questions, we used secondary Personal Outcome Measures® data from approximately 1,500 disabled people; we analyzed this data to examine relationships between disabled people's interpretations of feeling and being respected, and their quality of life. Our findings revealed being respected had a significant impact on every area of ones' quality of life. Problematically, this also included areas which should be considered non-negotiable fundamental human and civil rights, that should not depend on if, and how, people respect disabled people. While the attitudes underlying the disrespect of disabled people are harmful and problematic, human and civil rights should be inalienable – ones' access to exercise their rights, to safety, to health, and to many other domains should not depend on others' attitudes about, and treatment toward, you.
      PubDate: 2018-05-31
      DOI: 10.18061/dsq.v38i2.6168
      Issue No: Vol. 38, No. 2 (2018)
       
  • Gender, Sexuality, & (Dis)Ability: Queer Perspectives on the Experiences
           of Students with Disabilities

    • Authors: Ezekiel Kimball, Annemarie Vaccaro, Nina Tissi-Gassoway, S. Denny Bobot, Barbara M. Newman, Adam Moore, Peter F. Troiano
      Abstract: No abstract available.
      PubDate: 2018-05-31
      DOI: 10.18061/dsq.v38i2.5937
      Issue No: Vol. 38, No. 2 (2018)
       
  • Review of Phallacies: Historical Intersections of Disability and
           Masculinity

    • Authors: Sarah Handley-Cousins
      Abstract: No abstract available.
      PubDate: 2018-05-31
      DOI: 10.18061/dsq.v38i2.6351
      Issue No: Vol. 38, No. 2 (2018)
       
  • Review of Beasts of Burden: Animal and Disability Liberation

    • Authors: Anson Koch-Rein
      Abstract: No abstract available.
      PubDate: 2018-05-31
      DOI: 10.18061/dsq.v38i2.6361
      Issue No: Vol. 38, No. 2 (2018)
       
 
 
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