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  Subjects -> HEALTH AND SAFETY (Total: 1290 journals)
    - CIVIL DEFENSE (18 journals)
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    - HEALTH AND SAFETY (520 journals)
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    - WOMEN'S HEALTH (81 journals)

HEALTH AND SAFETY (520 journals)                  1 2 3 | Last

Showing 1 - 200 of 203 Journals sorted alphabetically
16 de Abril     Open Access  
A Life in the Day     Hybrid Journal   (Followers: 9)
Acta Informatica Medica     Open Access   (Followers: 1)
Acta Scientiarum. Health Sciences     Open Access  
Adultspan Journal     Hybrid Journal  
Advances in Child Development and Behavior     Full-text available via subscription   (Followers: 10)
Advances in Public Health     Open Access   (Followers: 20)
African Health Sciences     Open Access   (Followers: 2)
African Journal for Physical, Health Education, Recreation and Dance     Full-text available via subscription   (Followers: 6)
African Journal of Health Professions Education     Open Access   (Followers: 4)
Afrimedic Journal     Open Access   (Followers: 2)
Air Quality, Atmosphere & Health     Hybrid Journal   (Followers: 3)
AJOB Primary Research     Partially Free   (Followers: 3)
American Journal of Family Therapy     Hybrid Journal   (Followers: 10)
American Journal of Health Economics     Full-text available via subscription   (Followers: 12)
American Journal of Health Education     Hybrid Journal   (Followers: 26)
American Journal of Health Promotion     Hybrid Journal   (Followers: 22)
American Journal of Health Studies     Full-text available via subscription   (Followers: 9)
American Journal of Preventive Medicine     Hybrid Journal   (Followers: 21)
American Journal of Public Health     Full-text available via subscription   (Followers: 181)
American Journal of Public Health Research     Open Access   (Followers: 25)
American Medical Writers Association Journal     Full-text available via subscription   (Followers: 2)
Analytic Methods in Accident Research     Hybrid Journal   (Followers: 2)
Annali dell'Istituto Superiore di Sanità     Open Access  
Annals of Global Health     Open Access   (Followers: 9)
Annals of Health Law     Open Access   (Followers: 3)
Annals of Tropical Medicine and Public Health     Open Access   (Followers: 15)
Applied Biosafety     Hybrid Journal  
Applied Research In Health And Social Sciences : Interface And Interaction     Open Access   (Followers: 1)
Archives of Medicine and Health Sciences     Open Access   (Followers: 3)
Asia Pacific Journal of Counselling and Psychotherapy     Hybrid Journal   (Followers: 8)
Asia Pacific Journal of Health Management     Full-text available via subscription   (Followers: 2)
Asia-Pacific Journal of Public Health     Hybrid Journal   (Followers: 8)
Asian Journal of Gambling Issues and Public Health     Open Access   (Followers: 3)
Association of Schools of Allied Health Professions     Full-text available via subscription   (Followers: 6)
Atención Primaria     Open Access   (Followers: 1)
Australasian Journal of Paramedicine     Open Access   (Followers: 2)
Australian Advanced Aesthetics     Full-text available via subscription   (Followers: 4)
Australian Family Physician     Full-text available via subscription   (Followers: 3)
Australian Indigenous HealthBulletin     Free   (Followers: 6)
Autism & Developmental Language Impairments     Open Access   (Followers: 1)
Behavioral Healthcare     Full-text available via subscription   (Followers: 5)
Best Practices in Mental Health     Full-text available via subscription   (Followers: 7)
Bijzijn     Hybrid Journal   (Followers: 2)
Bijzijn XL     Hybrid Journal   (Followers: 1)
Biomedical Safety & Standards     Full-text available via subscription   (Followers: 8)
BLDE University Journal of Health Sciences     Open Access  
BMC Oral Health     Open Access   (Followers: 5)
BMC Pregnancy and Childbirth     Open Access   (Followers: 18)
BMJ Simulation & Technology Enhanced Learning     Full-text available via subscription   (Followers: 7)
Brazilian Journal of Medicine and Human Health     Open Access  
Buletin Penelitian Kesehatan     Open Access   (Followers: 2)
Buletin Penelitian Sistem Kesehatan     Open Access  
Bulletin of the World Health Organization     Open Access   (Followers: 15)
Cadernos de Educação, Saúde e Fisioterapia     Open Access   (Followers: 1)
Cadernos Saúde Coletiva     Open Access   (Followers: 1)
Canadian Family Physician     Partially Free   (Followers: 11)
Canadian Journal of Community Mental Health     Full-text available via subscription   (Followers: 10)
Canadian Journal of Human Sexuality     Hybrid Journal   (Followers: 1)
Canadian Journal of Public Health     Full-text available via subscription   (Followers: 18)
Case Reports in Women's Health     Open Access   (Followers: 2)
Case Studies in Fire Safety     Open Access   (Followers: 11)
Central Asian Journal of Global Health     Open Access   (Followers: 2)
Central European Journal of Public Health     Full-text available via subscription   (Followers: 4)
CES Medicina     Open Access  
Child Abuse Research in South Africa     Full-text available via subscription   (Followers: 1)
Child's Nervous System     Hybrid Journal  
Childhood Obesity and Nutrition     Open Access   (Followers: 11)
Children     Open Access   (Followers: 2)
CHRISMED Journal of Health and Research     Open Access  
Christian Journal for Global Health     Open Access  
Ciência & Saúde Coletiva     Open Access   (Followers: 2)
Ciencia y Cuidado     Open Access  
Ciencia, Tecnología y Salud     Open Access  
ClinicoEconomics and Outcomes Research     Open Access   (Followers: 1)
CME     Hybrid Journal   (Followers: 1)
CoDAS     Open Access  
Community Health     Open Access   (Followers: 1)
Conflict and Health     Open Access   (Followers: 8)
Curare     Open Access  
Current Opinion in Behavioral Sciences     Hybrid Journal   (Followers: 1)
Day Surgery Australia     Full-text available via subscription   (Followers: 2)
Digital Health     Open Access  
Dramatherapy     Hybrid Journal   (Followers: 2)
Drogues, santé et société     Full-text available via subscription  
Duazary     Open Access   (Followers: 1)
Early Childhood Research Quarterly     Hybrid Journal   (Followers: 13)
East African Journal of Public Health     Full-text available via subscription   (Followers: 3)
Eating and Weight Disorders - Studies on Anorexia, Bulimia and Obesity     Hybrid Journal   (Followers: 16)
EcoHealth     Hybrid Journal   (Followers: 3)
Education for Health     Open Access   (Followers: 4)
electronic Journal of Health Informatics     Open Access   (Followers: 4)
ElectronicHealthcare     Full-text available via subscription   (Followers: 3)
Elsevier Ergonomics Book Series     Full-text available via subscription   (Followers: 5)
Emergency Services SA     Full-text available via subscription   (Followers: 2)
Ensaios e Ciência: Ciências Biológicas, Agrárias e da Saúde     Open Access  
Environmental Disease     Open Access  
Environmental Sciences Europe     Open Access   (Followers: 1)
Epidemics     Open Access   (Followers: 3)
Epidemiologic Perspectives & Innovations     Open Access   (Followers: 3)
Epidemiology, Biostatistics and Public Health     Open Access   (Followers: 18)
Ethics, Medicine and Public Health     Full-text available via subscription  
Ethiopian Journal of Health Development     Open Access   (Followers: 8)
Ethiopian Journal of Health Sciences     Open Access   (Followers: 7)
Ethnicity & Health     Hybrid Journal   (Followers: 13)
European Journal of Investigation in Health, Psychology and Education     Open Access   (Followers: 2)
European Medical, Health and Pharmaceutical Journal     Open Access  
Evaluation & the Health Professions     Hybrid Journal   (Followers: 9)
Evidence-based Medicine & Public Health     Open Access   (Followers: 4)
Evidência - Ciência e Biotecnologia - Interdisciplinar     Open Access  
Expressa Extensão     Open Access  
Face à face     Open Access   (Followers: 1)
Families, Systems, & Health     Full-text available via subscription   (Followers: 8)
Family & Community Health     Partially Free   (Followers: 12)
Family Medicine and Community Health     Open Access   (Followers: 3)
Family Relations     Partially Free   (Followers: 11)
Fatigue : Biomedicine, Health & Behavior     Hybrid Journal   (Followers: 1)
Food and Public Health     Open Access   (Followers: 10)
Frontiers in Public Health     Open Access   (Followers: 7)
Gaceta Sanitaria     Open Access   (Followers: 3)
Galen Medical Journal     Open Access  
Geospatial Health     Open Access  
Gesundheitsökonomie & Qualitätsmanagement     Hybrid Journal   (Followers: 11)
Giornale Italiano di Health Technology Assessment     Full-text available via subscription  
Global Health : Science and Practice     Open Access   (Followers: 5)
Global Health Promotion     Hybrid Journal   (Followers: 15)
Global Journal of Health Science     Open Access   (Followers: 7)
Global Journal of Public Health     Open Access   (Followers: 10)
Global Medical & Health Communication     Open Access  
Globalization and Health     Open Access   (Followers: 5)
Hacia la Promoción de la Salud     Open Access  
Hastings Center Report     Hybrid Journal   (Followers: 3)
HEADline     Hybrid Journal  
Health & Place     Hybrid Journal   (Followers: 15)
Health & Justice     Open Access   (Followers: 5)
Health : An Interdisciplinary Journal for the Social Study of Health, Illness and Medicine     Hybrid Journal   (Followers: 7)
Health and Human Rights     Free   (Followers: 8)
Health and Social Care Chaplaincy     Hybrid Journal   (Followers: 7)
Health and Social Work     Hybrid Journal   (Followers: 47)
Health Behavior and Policy Review     Full-text available via subscription   (Followers: 1)
Health Care Analysis     Hybrid Journal   (Followers: 12)
Health Inform     Full-text available via subscription  
Health Information Management Journal     Hybrid Journal   (Followers: 11)
Health Issues     Full-text available via subscription   (Followers: 1)
Health Policy     Hybrid Journal   (Followers: 33)
Health Policy and Technology     Hybrid Journal   (Followers: 1)
Health Professional Student Journal     Open Access   (Followers: 1)
Health Promotion International     Hybrid Journal   (Followers: 21)
Health Promotion Journal of Australia : Official Journal of Australian Association of Health Promotion Professionals     Full-text available via subscription   (Followers: 10)
Health Promotion Practice     Hybrid Journal   (Followers: 15)
Health Prospect     Open Access   (Followers: 1)
Health Psychology     Full-text available via subscription   (Followers: 46)
Health Psychology Research     Open Access   (Followers: 18)
Health Psychology Review     Hybrid Journal   (Followers: 39)
Health Renaissance     Open Access  
Health Research Policy and Systems     Open Access   (Followers: 9)
Health SA Gesondheid     Open Access   (Followers: 2)
Health Science Reports     Open Access  
Health Sciences and Disease     Open Access   (Followers: 2)
Health Services Insights     Open Access   (Followers: 2)
Health Systems     Hybrid Journal   (Followers: 2)
Health Voices     Full-text available via subscription  
Health, Culture and Society     Open Access   (Followers: 11)
Health, Risk & Society     Hybrid Journal   (Followers: 11)
Healthcare     Open Access   (Followers: 1)
Healthcare in Low-resource Settings     Open Access   (Followers: 1)
Healthcare Quarterly     Full-text available via subscription   (Followers: 8)
HERD : Health Environments Research & Design Journal     Full-text available via subscription  
Highland Medical Research Journal     Full-text available via subscription  
Hispanic Health Care International     Full-text available via subscription  
HIV & AIDS Review     Full-text available via subscription   (Followers: 10)
Home Health Care Services Quarterly     Hybrid Journal   (Followers: 5)
Hong Kong Journal of Social Work, The     Hybrid Journal   (Followers: 2)
Hospitals & Health Networks     Free   (Followers: 3)
IEEE Journal of Translational Engineering in Health and Medicine     Open Access   (Followers: 3)
IMTU Medical Journal     Full-text available via subscription  
Indian Journal of Health Sciences     Open Access   (Followers: 2)
Indonesian Journal for Health Sciences     Open Access   (Followers: 1)
Inmanencia. Revista del Hospital Interzonal General de Agudos (HIGA) Eva Perón     Open Access  
Innovative Journal of Medical and Health Sciences     Open Access  
Institute for Security Studies Papers     Full-text available via subscription   (Followers: 6)
interactive Journal of Medical Research     Open Access  
International Health     Hybrid Journal   (Followers: 5)
International Journal for Equity in Health     Open Access   (Followers: 7)
International Journal for Quality in Health Care     Hybrid Journal   (Followers: 32)
International Journal of Applied Behavioral Sciences     Open Access   (Followers: 2)
International Journal of Behavioural and Healthcare Research     Hybrid Journal   (Followers: 7)
International Journal of Circumpolar Health     Open Access   (Followers: 1)
International Journal of Community Medicine and Public Health     Open Access   (Followers: 5)
International Journal of E-Health and Medical Communications     Full-text available via subscription   (Followers: 2)
International Journal of Environmental Research and Public Health     Open Access   (Followers: 19)
International Journal of Evidence-Based Healthcare     Hybrid Journal   (Followers: 8)
International Journal of Food Safety, Nutrition and Public Health     Hybrid Journal   (Followers: 14)
International Journal of Health & Allied Sciences     Open Access   (Followers: 2)
International Journal of Health Care Quality Assurance     Hybrid Journal   (Followers: 7)
International Journal of Health Geographics     Open Access   (Followers: 6)
International Journal of Health Policy and Management     Open Access   (Followers: 2)
International Journal of Health Professions     Open Access   (Followers: 2)
International Journal of Health Promotion and Education     Hybrid Journal   (Followers: 12)
International Journal of Health Research     Open Access   (Followers: 4)

        1 2 3 | Last

Journal Cover Ethics, Medicine and Public Health
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   Full-text available via subscription Subscription journal
   ISSN (Print) 2352-5525
   Published by Elsevier Homepage  [3042 journals]
  • Fardeau des maladies chroniques en Afrique subsaharienne : plaidoyer pour
           une mise en place des soins palliatifs et d’accompagnement en fin de vie
           en République démocratique du Congo
    • Authors: J.M. Lofandjola; E. Kiswaya Sumaili; J. Petermans
      Abstract: Publication date: Available online 18 July 2017
      Source:Ethics, Medicine and Public Health
      Author(s): J.M. Lofandjola, E. Kiswaya Sumaili, J. Petermans
      Le fardeau de maladies chroniques (surtout non transmissibles) est le défi majeur mondial de santé publique. La combinaison d’un développement économique erratique, des systèmes de santé inadaptés, manquant de capacités de diagnostic et thérapeutique, provoque dans beaucoup de pays à ressources limitées dont la République démocratique du Congo (RDC) une impossibilité à gérer l’ampleur actuelle de ces maladies. À cela s’ajoute la pauvreté répandue et les défis environnementaux. Dans ce contexte, le besoin des services de soins palliatifs (SP) pour des patients en fin de vie est énorme et indéniable. La formation et l’information des décideurs politiques, des soignants et familles sont nécessaires dans cette transition sanitaire. Les SP pourraient être la solution d’un accompagnement avec dignité, améliorant la qualité de vie des malades chroniques. Cet article présente et analyse l’ampleur de ces maladies chroniques et cherche à faire un plaidoyer pour implémenter ces soins dans les pratiques médicales à Kinshasa. Trois raisons principales (transition épidémiologique, manque de formation de soignants des approches palliatives et de priorité par les décideurs politiques de ces maladies chroniques) devraient motiver tous les acteurs (partenaires, politiques, soignants et familles) à implémenter ces soins dans les pratiques médicales et de faire que ces maladies ne soient pas négligées en Afrique subsaharienne. The burden of chronic diseases (especially non-communicable) is the world's major public health challenge. The combination of erratic economic development, inadequate health systems, lacking diagnostic and therapeutic capabilities, is provoking in many resource-limited countries including the Democratic Republic of Congo (DRC) an inability to manage the current extent of these diseases. Added to this is the widespread poverty and environmental challenges. In this context, the need for palliative care services for terminally ill patients is enormous and undeniable. Training and information for policy makers, caregivers and families are needed in the health transition. The palliative care could be the solution to a support with dignity, improving chronic patients’ quality of life. This article presents and analyzes the extent of these chronic diseases and seeks to make a place to implement this care in medical practice in Kinshasa. Three main reasons (epidemiological transition, lack of training of caregivers of palliative approaches and priority by policy makers of these chronic diseases) should motivate all stakeholders (partners, political, caregivers and families) to implement these treatments in medical practices and to these diseases are not neglected in Sub-saharan Africa.

      PubDate: 2017-07-24T18:02:02Z
      DOI: 10.1016/j.jemep.2017.06.003
       
  • Le dictionnaire médico-psycho-légal. Note de lecture
    • Authors: C. Ballouard
      Abstract: Publication date: Available online 17 July 2017
      Source:Ethics, Medicine and Public Health
      Author(s): C. Ballouard


      PubDate: 2017-07-24T18:02:02Z
      DOI: 10.1016/j.jemep.2017.06.004
       
  • La vulnérabilité en question '
    • Authors: Ennuyer
      Abstract: Publication date: Available online 10 July 2017
      Source:Ethics, Medicine and Public Health
      Author(s): B. Ennuyer
      Être vulnérable, c’est pouvoir être blessé : blessé physiquement, blessé moralement et psychiquement ou blessé socialement quand on est mis au ban de la société. La vulnérabilité dans nos sociétés présente de nombreux visages : chacun d’eux constitue une expérience singulière de la fragilité ou de la dépendance, de la domination presque toujours, dans une société individualiste qui tend à rendre chacun responsable de sa vie et de son destin. En l’espace d’une décennie, la vulnérabilité est devenue une notion centrale dans la réflexion sociale et politique. Suivant les contextes et les auteurs, « vulnérabilité » renvoie à fragilité, dépendance, perte d’autonomie, exclusion, invisibilité sociale, précarité, désaffiliation, etc., et ce souvent dans la plus grande confusion. De plus, ces différents termes sont très souvent utilisés pour décrire et enfermer dans ces catégorisations, des groupes de personnes plus ou moins mises en marge de la société : les personnes âgées, les personnes déficientes ou en situation de handicap, les chômeurs, les pauvres, les immigrés, les mal-logés, etc. Enfin, ces termes s’inscrivent la plupart du temps dans une vision négative et déficitaire des populations qu’ils contribuent ainsi à stigmatiser. L’impossibilité pour certains d’entre nous de se faire entendre et de se faire comprendre par autrui est devenue une source majeure des nombreuses situations de vulnérabilité auxquelles chacun d’entre nous peut se trouver confronté. Cette vulnérabilité « linguistique ou langagière » (Paul Ricœur) est sans aucun doute, aujourd’hui, une des formes majeures des situations de vulnérabilité, tant le langage oral ou écrit est un des véhicules privilégiés de la communication entre les êtres humains. Dans la littérature courante, la vulnérabilité est considérée comme un état de la personne et le plus souvent associée, voire confondue, avec la fragilité. Logiquement, les populations les plus fragiles sont alors étiquetées systématiquement comme les plus vulnérables, telles les populations pauvres, les personnes handicapées et les personnes âgées. Il paraît donc urgent de sortir de cette confusion sémantique. Si la fragilité ou la déficience peut être vue comme une dimension intrinsèque et un état de l’individu à un moment donné de sa vie, la vulnérabilité est bien d’abord et avant tout une dynamique et une interaction entre la personne et son environnement au sens large. La vulnérabilité des individus porte avant tout la marque du rapport à l’autre, elle réside essentiellement dans l’exposition à l’autre. D’ailleurs plutôt que d’une vulnérabilité attribut d’un sujet, il est donc préférable de parler d’une situation de vulnérabilité dans laquelle se trouve engagé ce même sujet. La fragilité due à une déficience ou un déficit de l’individu peut donc ne pas conduire à une situation de vulnérabilité grâce à un environnement adéquat (au sens très large) susceptible de permettre à l’individu de choisir son mode de vie et de mettre en actes ses désirs et ses valeurs, même s’il ne peut y arriver tout seul. Cela nous permet d’aborder quelques pistes d’un fonctionnement social propre à réduire les situations de vulnérabilité grâce aux notions d’autonomie relationnelle, de capabilités et de société inclusive. Qu’on parle de société inclusive, de société accessible, de société de capabilités, l’idée commune sous-jacente à tous ces termes est celle d’une société d’individus où chaque personne soit le moins possible confrontée à des situations qui la rendraient plus vulnérable que la moyenne des individus qui composent cette société. En effet, vulnérables, nous le sommes tous, parce que chacun se constitue dans le rapport à autrui. Par ailleurs, contrairement à une idée communément reçue, la vulnérabilité et l’autonomie ne s’opposent pas, elles sont la condition l’une de l’autre et ce de façon réciproque. La vulnérabilité est notre fonds commun d’humanité et c’est seulement à partir de cette reconnaissance de notre vulnérabilité commune que nous pouvons contribuer à l’autonomie de ceux qui apparaissent plus vulnérables que nous. Being vulnerable means being hurt: physically injured, morally wounded and psychologically or socially injured when banned from society. Vulnerability in our societies presents many faces:...
      PubDate: 2017-07-13T19:30:24Z
       
  • Que pense le public de la prévention dans le contexte de la médecine
           prédictive ' Réflexions issues d’une série de quatre
           délibérations prospectives
    • Authors: P. Lehoux; I. Cheriet; D. Grimard
      Abstract: Publication date: Available online 21 June 2017
      Source:Ethics, Medicine and Public Health
      Author(s): P. Lehoux, I. Cheriet, D. Grimard
      La médecine prédictive, qui s’appuie sur les avancées en génomique, a le potentiel de contribuer au développement de nouvelles interventions préventives en santé publique. Cette approche soulève toutefois plusieurs enjeux éthiques et sociaux et la participation du public est essentielle. Cette étude s’appuie sur la théorie de la structuration afin d’explorer comment des membres du public anticipent le potentiel et les limites de cette forme de prévention et de clarifier les processus de raisonnement sous-jacents. Quatre groupes de délibération, réunissant un total de 38 participants, ont été organisés à Montréal (Québec, Canada) pour débattre d’une technologie fictive de prévention basée sur le risque génétique. Les résultats indiquent que la nature préventive de ce « rectificateur » cardiaque n’est pas interprétée de manière univoque par les membres du public puisqu’il pourrait soutenir à la fois de la « bonne » et de la « mauvaise » prévention. Pour les participants, la légitimité de son utilisation varie selon les groupes qui seraient ciblés par la technologie et son potentiel et ses limites sont indissociables des dynamiques de marché et du rôle des instances publiques. Cette étude contribue aux connaissances actuelles en dégageant des pistes de réflexion quant à la place de la médecine prédictive en santé publique. Predictive medicine, which relies on progress in genomics, has the potential to contribute to the development of new public health preventive interventions. Yet, this approach raises several ethical and social issues and public participation is thus essential. This study draws on the theory of structuration to explore how members of the public anticipate the potential and limits of this form of prevention and clarify their underlying reasoning processes. Four deliberative workshops, with a total of 38 participants, were held in Montreal, Quebec, Canada to discuss a fictive prevention technology based on genetic risk. The results indicate that the preventive nature of this cardiac “rectifier” is not interpreted unequivocally by members of the public since it could support both “good” and “bad” prevention. For the participants, its legitimacy varies according to the groups that would be targeted and its potential and limits are contingent upon market dynamics and the role of public authorities. This study contributes to current knowledge by identifying avenues of reflection on the emergence of predictive medicine in public health.

      PubDate: 2017-06-23T20:00:01Z
      DOI: 10.1016/j.jemep.2017.05.006
       
  • Plaidoyer pour une esthétique sociale. L’esthétique à
           vocation humanitaire
    • Authors: Valentin
      Abstract: Publication date: Available online 19 June 2017
      Source:Ethics, Medicine and Public Health
      Author(s): C. Valentin
      C’est sous la plume d’un poète, un artiste – Alphonse de Lamartine – et non d’un médecin acteur d’une ONG, qu’est né le mot « humanitaire ». En écho à Hippocrate et à Aristote qui considéraient le médecin comme l’homme de l’art, l’artiste – mi-prophète, mi-voyant – avec ses extravagances, ses fulgurances, ses utopies invite à repenser le concept de santé au sens large du terme et corrélativement à s’interroger sur la place du chercheur, de l’artiste et du soignant comme acteurs d’un vivre-ensemble au niveau de l’humanité. The word “humanitarian” was born under the pen of a poet, an artist – Alphonse de Lamartine – and not of a doctor, an actor of an NGO. Echoing Hippocrates and Aristotle, who thought the physician invites us, as the man of art, the artist – half prophet, half visionary – with his extravagances, his lightness, his utopias to rethink the health in the broad sense of the term and correspondingly to question the place of the researcher, the artist and the caregiver as actors of living together on the level of humanity.

      PubDate: 2017-06-23T20:00:01Z
       
  • A pragmatic approach to multicultural/international bioethics
    • Authors: D.R. Cooley
      Abstract: Publication date: Available online 16 June 2017
      Source:Ethics, Medicine and Public Health
      Author(s): D.R. Cooley
      In Swift's Gulliver's Travels, each nation thinks that it is It. “It” being defined here as a sociocentric position in which one's social group, in this case, a country, is believed to be superior to every other group in regards to the former's values and principles. Of course, if the society has the best values and principles possible – or possible within the given context – then its members have a moral obligation to not only uphold their code but to try to convince other societies to adopt it as well. Sociocentrism becomes problematic when citizens cannot change their minds even in the face of overwhelming empirical evidence that their cultural beliefs are false. In the case of Lilliput and Gulliver, for example, the approximately six-inch tall Lilliputians continued to believe that they comprised the most powerful nation on Earth in the face of evidence that the “Man-Mountain” could easily destroy their entire civilization merely by eating them out of existence, and that his sheer power could not be controlled by the Lilliputian army and navy combined. Yet, the Lilliputian emperor still referred to himself in power terms that France's Louis XIV would have found excessively aggrandizing. The same affliction is experienced by many in the developed world when it comes to thinking about morality. Non-First World countries are often perceived as being backward or underdeveloped not only in their industry and markets, but in their social conventions and morality. At times, this claim is accurate. The treatment of women as chattel, slavery as a practice, abuse of those with unpopular sexual orientations, or other morally irrelevant characteristics is to be condemned as wicked. They show a defect in the person's moral values or principles that requires rectification, and possibly, amends being made. On the other hand, there are many social norms that offend developed world citizens but may only be the result of squeamishness with the socially different, e.g, polyamory and arranged marriages, and health care practices. Each of these could and are morally wrong in certain circumstances, but we can imagine situations in which they are morally permissible. Much, but not all, of what ISIL does is morally reprehensible, but why its leaders act in a certain way is understandable. ISIL society shares a very similar belief with ancient China's Mandate of Heaven: anyone with the mandate could do anything he wanted because what he was doing had to be favored by Tiān. The fact the person was in power was sufficient evidence that the mandate was upon him, and when he began to lose power, that meant that the mandate had been removed. Given some Sunni belief systems, possessing Western freedoms with social disruption is eschewed. For many, it is better to have 100 years of security without freedom than 1 day of freedom without security. Therefore, authoritarian rule that does not go to excess too many times is to be preferred, which explains why an ISIL force of a mere 10,000–30,000 was able to take and control Mosul, a city of 1.5 million inhabitants. In what follows I will argue for why a pragmatic approach needs to be taken toward bioethics, especially when it comes to interactions between cultures and nations. Along the way, an explanation for why this approach is the most reasonable will be sketched out using the foundation of evolutionary adaptation and advantage, neurophysiology, and how morality actually works. The result will be a moral theory that rejects the notion that there is one right solution or position on a matter, and replaces it with the more nuanced positon that there can be many right actions and good values that depend, in part, on the situation's context. What I am proposing is not cultural relativism in which each society is its own measure of morality, but rather a pragmatic position that evaluates based on whether something works sufficiently well in the situation to reasonably have the potential to achieve flourishing.

      PubDate: 2017-06-18T18:51:14Z
      DOI: 10.1016/j.jemep.2017.04.016
       
  • Seizième Journée de la SFFEM – Synthèse des
           interventions
    • Authors: Bommier
      Abstract: Publication date: Available online 16 June 2017
      Source:Ethics, Medicine and Public Health
      Author(s): C. Bommier


      PubDate: 2017-06-18T18:51:14Z
       
  • L’alphabétisation en France : au croisement de la santé et d’une
           esthétique sociale. Contribution à partir de deux études de cas
           réalisées dans le Val d’Oise
    • Authors: Gouez
      Abstract: Publication date: Available online 13 June 2017
      Source:Ethics, Medicine and Public Health
      Author(s): G. Gouez
      L’actualité met en avant l’arrivée de réfugiés politiques en grand nombre. Beaucoup cherchent à trouver asile dans les pays européens. Cette question de l’accueil des sujets hôtes met au jour les problématiques de conflits des civilisations, des difficultés d’insertion sociale, de chômage, de l’exclusion, de l’échec scolaire, mais aussi celui de l’inégalité en termes de santé… La question du vivre-ensemble se pose de façon cruciale et sous des formes les plus diverses mais toutes impliquent une recherche sur l’alphabétisation tant cette dernière peut être considérée comme le premier facteur d’intégration sociale et culturelle. Current events today put forward the arrival of political refugees in large numbers. Many are trying to find asylum in European countries. Which welcome should Europeans give, enlightens the problems of conflict of civilizations, difficulties of social integration, unemployment, exclusion, academic failure but also that of the disparity regarding health issues… The question of living together arises in a crucial way and under the most diverse forms; and all those forms imply a search on eliminating illiteracy, the main factor of social and cultural integration.

      PubDate: 2017-06-14T07:30:44Z
       
  • The epistemic responsibilities in medicine of beneficence and respect for
           patient autonomy
    • Authors: A.P. Schwab
      Abstract: Publication date: Available online 13 June 2017
      Source:Ethics, Medicine and Public Health
      Author(s): A.P. Schwab
      Medical practitioners have foundational responsibilities to be beneficent toward patients and to respect patient autonomy. In this article, I analyze these responsibilities considering the uneven support medical science provides for practitioner judgment and the cognitive biases of judgment demonstrated by psychological science. Specifically, medical science provides the foundation for practitioner judgment about beneficent medical practice. This foundation, however, provides a limited scope of support. In some cases, medical science provides clear and unambiguous directives. But in others, it provides limited directives or only background information. In these latter cases, where practitioner recommendations are based on intuitive innovations, their judgment goes beyond the scope of medical science's conclusions, opening up these judgments to cognitive bias. As psychological science has robustly demonstrated, decision-makers, lay and expert, are subject to unconscious bias in their judgment. Accordingly, the intuitive innovations of medical practitioners will be biased in predictable ways, which threatens to undermine their efforts to make beneficent judgments on behalf of patients. These same conclusions of psychological science indicate that patient judgment will likely be biased as well. Even when practitioners offer unbiased recommendations, patient attempts to make judgments about medical care that matches their interests and values may fail because of unconscious bias. Considering these characteristics of patient and practitioner judgment, this article identifies several features of practitioner responsibilities to be beneficent and respect patient autonomy. Specifically, practitioners are obligated to be cognizant of the uneven reliability of their recommendations and the likely biases that can affect these recommendations. Further, practitioners should favor recommendations based on more reliable processes and should “nudge” patient decisions under certain circumstances. Finally, questions about the extent of practitioners’ responsibility to respect patient autonomy are raised.

      PubDate: 2017-06-14T07:30:44Z
      DOI: 10.1016/j.jemep.2017.04.015
       
  • Personalised medicine. Bringing narrative tools to Carpem
    • Authors: M. de Jesus Cabral; C. Hervé; M.-F. Mamzer; P. Leroy; F. Scotté
      Abstract: Publication date: Available online 13 June 2017
      Source:Ethics, Medicine and Public Health
      Author(s): M. de Jesus Cabral, C. Hervé, M.-F. Mamzer, P. Leroy, F. Scotté
      How can a cutting-edge research programme with its concomitant experimental and therapeutical applications such as CAncer Research and PErsonalised Medicine (Carpem), with a strong rationalistic component and deeply focused on the disease, correspond to the ethical dimension of medicine process involving the patient as a collaborative member? The first part of this article describes the challenges and the present state of the Carpem programme, its multi-system model and the differential value of the interpersonal, relational and communicative abilities involved, emphasizing the need for the human and social sciences. In line with the multidisciplinary cross-work developed between the authors, the second part interrogates the concept of “personalised medicine” in the light of the “Narrative turn” of narrative-based medicine (NBM) and proposes a framework derived from literary studies resorting to concepts and tools such as dialogism, (close) listening, and body/language reciprocity to promote interaction, interpretation and care, towards a Patient-centred precision medicine.

      PubDate: 2017-06-14T07:30:44Z
      DOI: 10.1016/j.jemep.2017.05.003
       
  • Santé imaginale
    • Authors: R.M.
      Abstract: Publication date: Available online 12 June 2017
      Source:Ethics, Medicine and Public Health
      Author(s): R.M. Falcón
      Cet article traite des apports des expériences artistiques dans les processus thérapeutiques et de santé. Ces croisements entre arts, santé et sociologie établissent un défi métadisciplinaire d’où émerge une connaissance situationnelle et sensible. Ils réinventent la formation et la recherche par l’expérience sensible qui nous invite à vivre une identification corporelle active, mentale et psychologique, révélant l’existence d’une anatomie affective du social. Ces expériences rendent visible un langage de communication affectif et stimulent la santé imaginale des personnes et leurs savoirs déontologiques. This article deals with the contributions of artistic experiences in therapeutic and health processes. These crosses between arts, health and sociology establish a metadisciplinary challenge from which emerges a situational and sensitive knowledge. They reinvent the formation and the research through the sensory experience that invites us to live an active, mental and psychological body identification, revealing the existence of an affective anatomy of the social. These experiences make a language of effective communication visible and stimulate the imaginably health of people and their deontological knowledge.

      PubDate: 2017-06-14T07:30:44Z
       
  • Are we persons or animals? Exposing an anthropocentric bias and
           suggesting a hybrid view
    • Authors: Furberg
      Abstract: Publication date: Available online 12 June 2017
      Source:Ethics, Medicine and Public Health
      Author(s): E. Furberg
      One of the many philosophical fields of relevance to frequently discussed themes in bioethics is that of personal identity. The main question of the personal identity debate concerns our persistence conditions and asks: what are the necessary and sufficient conditions for you and me to persist through time? What kinds of changes and events can beings such as us survive? The answer to these questions has bearing on several themes in bioethics, such as the moral status of a human foetus and the moral legitimacy of advance directives and living wills. In the philosophical debate, there are two main alternative answers to these questions. According to the Psychological View, we – human beings – are essentially persons and as such, we persist by our psychology. The opposing view – Animalism – rejects both claims of the Psychological View and asserts instead that we are essentially animals and that our persistence conditions are biological rather than psychological. 1 1 For an interesting account of personal identity that seem to fall somewhere between the two, see McMahan (2002) The Ethics of Killing. Problems in the Margins of Life. Oxford: Oxford University Press. In this paper, I expose what I believe to be an anthropocentric bias in the arguments of the two main proponents of each view – Lynn Rudder Baker and Eric Olson. Lynn Rudder Baker, I argue, vastly underestimates the mental capacities of non-human animals and attaches too much importance to the supposedly unique ability of humans to have a first-person perspective. Eric Olson, on the other hand, avoids this kind of outright anthropocentrism, but still exhibits some anthropocentric bias by neglecting the possibility that “animal” fails as a suitable substance concept and natural kind. Having exposed this anthropocentric bias in their respective arguments, I propose a hybrid view of personal identity. This is a view that accepts the claim that we are animals, as well as the claim that we persist by our psychology. Even if we accept Lynn Rudder Baker's constitution view, I suggest that we reject her assumption that only humans have the necessary mental capabilities needed to persist by their psychology. According to the suggested hybrid view, we are animals in the sense that we are constituted by one and although this claim falls just short of the claim that we are identical to an animal (which is the main claim of the Animalist), this worry is mitigated because there is no reason to believe that this relationship (between person and animal) and the fact that we persist by our psychology is something that separates us from other animals. According to the hybrid view I propose, we are animals in the very same sense of the term that (some, but not all) other species are.

      PubDate: 2017-06-14T07:30:44Z
       
  • Éthique du soin en art-thérapie à médiations
           plastiques
    • Authors: Sens
      Abstract: Publication date: Available online 11 June 2017
      Source:Ethics, Medicine and Public Health
      Author(s): D. Sens
      L’art-thérapie est une discipline récente mais les pratiques artistiques à visée de soin ont existé de tout temps et dans toutes les cultures. L’enjeu éthique en art-thérapie, concerne le « care » (le prendre soin) comme complément au « cure » (soigner) et la prise en considération de la qualité de vie de la personne. Différents aspects relevant de l’éthique en art-thérapie sont discutés dans cet article. Comme pour toute relation thérapeutique ou d’aide, les notions de respect, de dignité, de liberté et d’autonomie de la personne soignée ou aidée, sont transversales aux différentes arts thérapies. En conclusion, les questionnements éthiques sont toujours liés à la manière dont les techniques artistiques vont prendre significations pour la personne prise en charge dans le cadre d’une relation thérapeutique. Art-therapy is a recent subject but healing artistic practices over time and cultures had always existed. The ethical issue in art-therapy is concerned with “care” in addition to “cure” and with the patient's quality of life to be taken into close consideration. Several aspects dealing with ethics in art-therapy are discussed in this paper. As for any counselling or therapeutic relationship owed to the patient, the notions of respect, dignity, freedom and independence are cross-disciplinary to all art therapies. In conclusion, the questioning about ethics is always linked with the way artistic techniques will become meaningful for the patient in the context of a therapeutic relationship.

      PubDate: 2017-06-14T07:30:44Z
       
  • Just caring: Do we need philosophical foundations?
    • Authors: L.M. Fleck
      Abstract: Publication date: Available online 9 June 2017
      Source:Ethics, Medicine and Public Health
      Author(s): L.M. Fleck
      The “Just Caring” problem asks: What does it mean to be a “just” and “caring” society when we have only limited resources (money) to meet virtually unlimited health care needs (linked to novel emerging medical technologies)? The practical implication of the “Just Caring” problem is that the need for health care rationing is inescapable. That means that some health care needs will not be met, even though those needs have moral weight, because meeting such needs is presumptively a matter of justice. How then can such rationing decisions be made justly or fairly? And who should have responsibility for making such decisions? Should such decision-making be the responsibility of legislative bodies, or administrators of health care institutions, or associations of physicians, or private insurers (in the United States), or employers (in the United States)? What should be the role of philosophers in addressing the problem of just health care rationing? After all, philosophers are supposed to be the experts when it comes to theories of justice. And, if philosophers are supposed to have such a role, are their judgments of health care justice going to be justified by appeal to ethical foundations of some sort? In this essay, I start by conceding that philosophers have had much to say about how we ought to conceptualize our understanding of the notion of justice. But the world has become enormously more complicated since Plato and Aristotle offered their reflections on justice. The same is true for Hume and Kant. Those perspectives seem remote and unhelpful about the problem of just health care rationing. The same would seem to be true about Rawls (1971) and Nozick (1974). Their theories of justice are simply too broad and too abstract to address the complex, heterogeneous problems of just health care rationing in the real world of health care we have today (though, as I show later, Rawls does have much to offer regarding the notion of public reason). 1 1 Nozick is a libertarian. For him individuals have a just claim only to that which they have justly acquired, mostly by paying for it. But even in the United States few would argue that a hospital would have acted justly if it dumped a patient in the hospital parking lot to die because they could not pay for the medical care that would have saved their life. Rawls is at the opposite end of the justice spectrum from Nozick. Rawls is especially concerned to protect the just interests of those who are least well off, in this case the medically least well off. Again, however, few would argue that a just society was ethically obligated to spend a million dollars to sustain someone terminally ill for two extra weeks of life. In both cases, more ethically nuanced judgments are required. In the first part of this essay I sketch out several concrete problems of health care rationing having to do with the allocation of targeted cancer therapies, drugs used to treat patients at risk for heart disease, drugs used to treat HIV+ patients, and drugs used to treat very rare diseases. This provides helpful context for the remainder of the essay. In the second part of this essay I argue that traditional theories of justice have only a limited role to play in addressing these problems of health care rationing. This is because no perfectly just answer can be given for the vast majority of real world problems of health care justice. Instead, what we need to settle for are non-ideal resolutions of these problems. Ultimately, I would defend a pluralistic conception of health care justice, which is another reason why we need to settle for non-ideal resolutions. Those non-ideal resolutions will have to emerge from broad, inclusive, fair processes of rational democratic deliberation. Those deliberations will be aimed at achieving a reflective balance of competing considerations of health care justice with respect to a very specific problem of health care rationing. In the third part of this essay, I argue that the role of philosophers is to protect the integrity of this public deliberative process, as opposed to seeking ethical foundations for their judgments of health care justice. This, I argue, entails three responsibilities for philosophers. First, these public deliberations need what we might call “just boundaries”. Those boundaries are defined by what I refer to as “constitutional principles of health care justice”. The role of philosophers is to articulate those constitutional principles and what counts as a reasonable balance among those principles as they are applied to specific problems of just health care rationing. Second, the role of philosophers is to articulate a specific understanding of “public reason”, which would govern those democratic deliberations. Here I have in mind the work of Rawls and his notions of “the rational” and “the reasonable” (Rawls, 1993). Third, philosophers have their traditional Socratic role of being thoughtful critics of the outcomes of these public deliberations, mindful of the fact that most outcomes will be non-ideally just. That is, philosophers must distinguish outcomes that are non-ideally “just enough” from those that are not “just enough”. Ultimately, the role of philosophers is not to construct or discover just foundations for these d...
      PubDate: 2017-06-14T07:30:44Z
      DOI: 10.1016/j.jemep.2017.04.014
       
  • Appliquées à la transfusion, quelles sont les bases philosophiques de la
           bioéthique ?
    • Authors: O. Garraud; J.-D. Tissot
      Abstract: Publication date: Available online 9 June 2017
      Source:Ethics, Medicine and Public Health
      Author(s): O. Garraud, J.-D. Tissot
      Cet essai explore l’espace et le temps du suffixe bio- accolé aux sciences de la vie et de la médicine, de l’économie et du pouvoir, et tente de dégager les influences intellectuelles qui ont vu ces concepts émerger. Ils revisitent particulièrement les nouveaux marchés de la bioéconomie et du vivant, proposant le concept de bioprostitution des personnes vulnérables et de bioproxénétisme des détenteurs de pouvoir. Ils s’interrogent enfin sur le bien-fondé de la séparation de la bioéthique de l’éthique. This short essay explores the temporality and spatiality of the suffix “bio-” relative to life and medical sciences, economy and power. It makes an attempt to envision intellectual influences that precluded these concepts, and particularly those relative to the new markets such as (human) body parts. They come to propose the concept of bioprostitution of the vulnerable, and bioproxenetism of the powerful. They last question the rationale for having split bioethics from ethics as a whole.

      PubDate: 2017-06-14T07:30:44Z
      DOI: 10.1016/j.jemep.2017.04.006
       
  • Revue de la littérature
    • Abstract: Publication date: Available online 7 June 2017
      Source:Ethics, Medicine and Public Health


      PubDate: 2017-06-09T07:05:32Z
       
  • La clinique base de l’éthique dans la pratique médicale
    • Authors: C. Hamonet; C. Baeza-Velasco; C. Hervé
      Abstract: Publication date: Available online 5 June 2017
      Source:Ethics, Medicine and Public Health
      Author(s): C. Hamonet, C. Baeza-Velasco, C. Hervé
      Le malade, la médecine, le handicap et la mort forment un ensemble homogène dont les interactions subissent constamment de profonds remaniements. Ils sont très influencés par le développement des moyens techniques utilisés pour le diagnostic et les traitements. Une des conséquences négatives est la dévalorisation de la clinique, c’est-à-dire du rôle d’une relation rapprochée avec le patient, activement impliqué dans le processus du diagnostic et les décisions thérapeutiques. C’est le moment, face à cette situation, de scruter avec un regard nouveau, l’historique de l’invention de la médecine clinique d’Hippocrate à Osler, en s’arrêtant sur Maïmonide, Sydenham et Boissier de Sauvages. Cette rétrospective permet d’organiser la poursuite de cette démarche en l’enrichissant d’une vision plus globale, plus sociale, de l’Homme en souffrance. Nous proposons une évolution de la vision de la santé mettant en valeur la personne humaine en articulant harmonieusement et positivement lésions corporelles, maladie, conséquences fonctionnelles et situations de handicap. Elle provoque une nécessaire évolution de la sémiotique médicale qui est regardée comme incompréhensible par des sémioticiens comme Barthes. Cette approche anthropologique en quatre dimensions apporte une cohérence dans la clinique et ne peut que renforcer le dialogue du patient avec son médecin. Une maladie héréditaire, fréquente (incidence 2 %), responsable d’une atteinte diffuse du tissu conjonctif, le syndrome d’Ehlers-Danlos, représente aujourd’hui un véritable défi difficile à relever dans le contexte des pratiques médicales actuelles : le diagnostic repose sur la seule clinique en l’absence de marqueur biologique. Une étude récente a pourtant permis de mettre en avant la supériorité de la clinique par la réalisation d’un modèle mathématique à partir des données cliniques collectées auprès de 626 patients. Ces considérations permettent une évolution de la notion de santé, illustrant la définition de 1947 de l’Organisation mondiale de la santé en proposant la notion d’un état relatif d’équilibre entre les capacités d’une personne et les contraintes du milieu où elle vit (René Dubos). Patient, disease, medicine and disability form a homogeneous container which interactions receive constantly important updates. They are influenced by the development of new technical aides used for diagnoses and treatments. One of the negative results of this process is the downgrading of clinic and of the role played by a close relationship with the patient, himself deeply involved in the diagnose process and the therapeutic decisions. As we are facing this situation, it is time to push for a fresh insight into the history of the invention of clinic medicine from Hippocrates to Osler, stopping by with Maïmonide, Sydenham and Boissier de Sauvages. This look back allows us to organise the future of clinic by enriching it with an understanding of the suffering of humankind both more global and more social. We propose an evolution of the future of Health based on the human personality, linking between them harmoniously and positively body injuries, diseases, functional and situational consequences of disabilities. This will trigger a necessary evolution of medial semiotic, which is considered as impossible to understand by some semioticians such as Barthes. This anthropological approach in four dimensions brings a coherence in clinic and will only improve the communication between a patient and his physician. The Ehlers-Danlos syndrome, a hereditary disease frequent (2 % incidence) causing a widespread affection of the connective tissue, represents today a real challenge, difficult to address in the current environment of medical practice. The diagnoses are entirely based on clinic as no biological tracer exists. A recent study has however evidenced the superiority of clinic through a mathematical model gathering the data collected from 626 patients. These considerations allow for an evolution of the concept of health, as defined in 1947 by the WHO proposing the concept of a state of balance between the capacity of an individual and the obligations coming from his environment (René Dubos).

      PubDate: 2017-06-09T07:05:32Z
      DOI: 10.1016/j.jemep.2017.05.001
       
  • Savoir dire adieu. Savoir accueillir. Éthique et théorie des
           jeux
    • Authors: J.-P.
      Abstract: Publication date: Available online 3 June 2017
      Source:Ethics, Medicine and Public Health
      Author(s): J.-P. Cléro
      Les éthiciens français ont une fâcheuse tendance à se référer à des notions et à des catégories kantiennes en éthique des soins (la personne, la personnalité, l’autonomie, la dignité, la responsabilité), tandis qu’ils négligent la valeur éthique de la théorie des jeux et celle de l’utilitarisme, confondu avec la promotion des valeurs du marché. Le propos de ce texte est de prendre le contre-pied de ce préjugé que l’on trouve jusque dans les avis du CCNE et de soutenir l’idée encore paradoxale que les valeurs d’intimité, par exemple, sont mieux préservées par l’utilitarisme d’Harsanyi que par le personnalisme d’inspiration kantienne, qui est moins une éthique qu’une morale. French philosophers of ethics have a regrettable tendency to refer to Kantian notions and categories in medical ethics (the person, personality, autonomy, dignity, responsibility), whereas they neglect the ethical value of the Game Theory and of Utilitarianism, which they mistake for bargaining on the market. Here, I would like to take the opposite view of this bias, which may be found even in the official decisions of the French Comité consultatif national d’éthique and to uphold the as yet paradoxical thesis that intimacy values are better defended by Harsanyi's Utilitarianism, for instance, than by a Kant-inspired personalism, that is less ethics than morals.

      PubDate: 2017-06-04T06:40:15Z
       
  • À propos des arts thérapies
    • Authors: Lecourt
      Abstract: Publication date: Available online 30 May 2017
      Source:Ethics, Medicine and Public Health
      Author(s): E. Lecourt
      Cet article présente, rapidement, l’histoire des arts thérapies à l’université en France, sans manquer d’évoquer les problèmes éthiques rencontrés. Il développe ensuite la recherche actuelle sur l’émotion esthétique dans la relation art thérapeute-patient et l’illustre par une situation de musicothérapie (par la méthode de « communication sonore »). Cette dernière montre le travail condensé, psychique/musical d’un groupe, pour venir à bout d’une problématique de l’étranger, qui pourrait être rapprochée de la notion d’un « esthétique social » proposée par le Dr Claude Valentin. Enfin, l’article se termine sur une réflexion sur l’utilité de l’art, en conférant à ce dernier un caractère non seulement « thérapeutique », mais encore plus, « vital ». This is a short presentation of the history of the arts therapies at the university in France, with a place for the ethical difficulties encountered. Then, the article develops the present research on the aesthetic emotion in the art therapist-patient relationship, with an example in music therapy (with the method of “sonorous communication”). The situation presented shows the condensation of the psychic-musical work done by a group to find a solution for a problematic about the stranger, which can be compared to the Dr Claude Valentin's proposition of a “social aesthetics”. The article closes with a reflection on the usefulness of the art, giving it not only a “therapeutic” character but, even, a “vital” one.

      PubDate: 2017-06-04T06:40:15Z
       
  • Tensions éthiques actuelles autour de la médecine pénitentiaire : mise
           au point pratique et bibliographique
    • Authors: Charlier
      Abstract: Publication date: Available online 27 May 2017
      Source:Ethics, Medicine and Public Health
      Author(s): P. Charlier


      PubDate: 2017-05-30T05:26:29Z
       
  • Les pièges des mots rendent-ils impossible une vision globale de la
           bioéthique ?
    • Authors: M. Stanton-Jean
      Abstract: Publication date: Available online 23 May 2017
      Source:Ethics, Medicine and Public Health
      Author(s): M. Stanton-Jean
      En octobre 2005, l’assemblée générale de l’Unesco adoptait la Déclaration universelle sur la bioéthique et les droits de l’homme (UDBHR). Le projet de cette déclaration fut élaboré par le Comité international de bioéthique (CIB) en consultation avec les États membres, les comités interagences des Nations unies, des organisations gouvernementales et non gouvernementales, des comités nationaux d’éthique et de multiples acteurs impliqués en bioéthique. Cette déclaration qui vise le bien commun repose sur un socle de principes dont l’extension et la compréhension ont fait et font l’objet de constantes remises en question. Cet article explique comment ces principes ont pu faire l’objet d’un consensus grâce aux consultations, discussions et délibérations qui ont mené à l’adoption de la déclaration. Après avoir expliqué brièvement l’historique de l’éthique à l’Unesco et la genèse de la déclaration, l’article présente un groupe de concepts qui fondent la déclaration et les discussions dont ils ont fait l’objet durant son élaboration. Il conclut en défendant l’idée qu’au-delà des différences culturelles des régions du globe, il est possible d’avoir une vision globale de la bioéthique qui puisse prendre en compte le contexte de chaque pays. In October 2005, the UNESCO General Conference adopted the Universal Declaration on Bioethics and Human Rights (UDBHR). The draft declaration was produced by the International Bioethics Committee (IBC), in consultation with member states, United-Nations Interagency Committee, Governmental and Non-Governmental Organisations, National Bioethics Committee and other actors involved in Bioethics. This Declaration rests on a set of principles which definitions have been frequently disputed. This paper explains how these principles have reached a consensus because of the consultations, discussions and deliberations that lead to the adoption of the Declaration. After having briefly described the history of ethics at UNESCO and the genesis of the declaration, the paper describes some concepts that form the foundation of the declaration and the discussions that happened about them during the making of the declaration. The paper concludes that it is possible to have a global vision of bioethics that can consider different countries context even though regions are culturally diverse.

      PubDate: 2017-05-25T04:57:33Z
      DOI: 10.1016/j.jemep.2017.04.001
       
  • De l’evidence-based medicine à l’evidence-based surgery :
           extrapolons-nous ?
    • Authors: Zarzavadjian Bian; Jiao Costi Bruderer Habib
      Abstract: Publication date: Available online 23 May 2017
      Source:Ethics, Medicine and Public Health
      Author(s): A. Zarzavadjian le Bian, L. Jiao, R. Costi, A. Bruderer, N. Habib
      Objectifs L’extension de l’evidence-based medicine à la chirurgie est confrontée à divers obstacles. Nous tentons de les identifier afin d’évaluer la légitimité de l’evidence-based surgery (EBS). Patients et méthode Étude qualitative menée sur une période d’un mois dans un centre académique de chirurgie hépatobiliaire à l’aide de questionnaires remis aux patients, aux chirurgiens et des informations médicales nécessaires. Résultats Treize patients acceptèrent de participer. Cent pour cent des patients ont bénéficié d’un traitement répondant à la définition de l’EBS, dont 38,5 % justifiés par un essai contrôlé randomisé (ECR), et 76,9 % justifiés par une étude rétrospective ou plus. De plus, 23,1 % de divergence ont été observées entre le sentiment d’avoir transmis l’information scientifique par le chirurgien et celui de l’avoir reçue par le patient. Conclusion L’EBS est un progrès nécessaire dont l’application est limitée par les outils d’évaluation inadaptés à la chirurgie. L’aspect situationnel semble dénaturé. Il convient donc de ne pas accorder une valeur supérieure à celle d’une analyse rétrospective à l’EBS. Objectives The application of Evidence-Based principles to surgery is hindered by various obstacles. We tried to identify them in order to assess the legitimacy of Evidence-Based Surgery (EBS). Patients and method A qualitative study conducted over a period of one month in an academic centre of hepatobiliary surgery using questionnaires for patients, surgeons and the patients’ medical notes. Results Thirteen patients agreed to participate and were included. One hundred percent of patients received treatment fulfilling the definition of EBS, of which 38.5% are supported by a randomized controlled trial and 76.9% are supported by at least a retrospective study. In addition, discrepancy between transmitted scientific information by the surgeon and received scientific information by the patient was observed in 23.1%. Conclusion EBS should be seen as an improvement but it is still limited by inadequate assessment tools for surgery. The situational aspect seems omitted. EBS should therefore not be granted with an evidence greater than retrospective study.

      PubDate: 2017-05-25T04:57:33Z
       
  • La bioéthique comme sens des pratiques
    • Abstract: Publication date: Available online 23 May 2017
      Source:Ethics, Medicine and Public Health
      Author(s): C. Hervé


      PubDate: 2017-05-25T04:57:33Z
       
  • Beyond patents: Scientific knowledge, and access to vaccine
    • Authors: M. Eccleston-Turner
      Abstract: Publication date: Available online 18 March 2017
      Source:Ethics, Medicine and Public Health
      Author(s): M. Eccleston-Turner
      Knowledge is a public good. Patents provide property rights in knowledge, which gives the patentee the right to exclude others from utilising the knowledge for the life of the patent. Patents in the field of pharmaceuticals are controversial because of the importance of the knowledge which they exclude others from using. Patents have come under significant criticism for this very reason – with some going as far as to claim that patent protection on pharmaceutical products as the cause of developing states having poor or limited access to life-saving pharmaceutical products. Most of the academic literature regarding access to medicines goes this same way. This paper challenges this viewpoint, and considers the barriers to generic access to medicines beyond patents. This paper looks beyond intellectual property rights to determine what other mechanisms exist that allow innovative vaccine manufacturers to control access to knowledge regarding their products which can act as a barrier to the utilisation of knowledge in the pharmaceutical industry, in a similar manner to intellectual property rights. This paper takes a case study approach considering non-patent-related barriers to access to medicines, focusing on pandemic influenza vaccines and the role of proprietary, non-patented knowledge. This paper concludes that manufacturers have an exclusive monopoly, not because of their intellectual property rights, but because the knowledge required to make the drug is not accessible to generic manufacturers, and highlights why this is the case. This paper argues that it is not the patent protection which is the barrier to introducing generic pandemic influenza vaccines, but rather it is the inaccessibility of knowledge which is not in the public domain, or the inability of manufacturers in developing states to utilise this knowledge, which is the true barrier in this field.

      PubDate: 2017-03-23T20:38:08Z
      DOI: 10.1016/j.jemep.2017.02.011
       
  • Can research ethics committees enable clinical trial data sharing'
    • Authors: A. Thorogood; B.M. Knoppers
      Abstract: Publication date: Available online 18 March 2017
      Source:Ethics, Medicine and Public Health
      Author(s): A. Thorogood, B.M. Knoppers
      Mandatory sharing of individual-level data from clinical trials with the research community promises to accelerate medical research and improve public health. Clinical trial data sharing is fast becoming a gold standard for open science, and myriad research policies from funders, journals, and regulators now encourage or mandate sharing. Little attention, however, has been paid to the inherent trade-offs data sharing presents between openness and privacy. Even where an acceptable balance is struck, responsible data sharing will depend on explicit cooperation and trust across many stakeholders. Research Ethics Committees (RECs) play an important role in creating an environment that fosters such trust and cooperation. However, their role is circumscribed by the regulatory frameworks in which they operate and there are important differences between North America and Europe. International and national norms address data sharing to varying extents. Some enable data sharing by providing guidance on broad consent and appropriate privacy and security safeguards. There is less guidance on if and how RECs should review the effectiveness of access processes, or ensure researchers share data. Building on existing guidance, we explore how RECs could enable data sharing that benefits public health, while ensuring participant privacy and autonomous decision-making is protected. First, RECs could assess data sharing plans to ensure they adequately address privacy protection, provision of timely access, and oversight of research uses. Second, RECs could ensure consent forms provide for sufficiently broad access and reuse of data. As consent design drastically affects downstream conditions of data access and use, consent forms should adopt non-restrictive, standardized, and clear language. Consent processes should also inform participants of intended uses; safeguards; and limits to anonymity, confidentiality and withdrawal. RECs will have to consider in the context of a given trial whether data sharing should be mandatory to uphold scientific transparency, or whether participants could be able to opt-out or withdraw. Third, RECs will need to coordinate with access committees and other RECs to avoid gaps or duplication in data sharing oversight. Fourth, where participants have consented to data sharing, RECs could adopt a role – along with institutions, journals, and regulators – to hold researchers accountable for not sharing data. International efforts are currently underway to harmonize consent language, privacy protections, access processes, and research oversight across institutions and countries, in turn providing RECs more certainty, and fostering trust and cooperation across the data-sharing ecosystem.

      PubDate: 2017-03-23T20:38:08Z
      DOI: 10.1016/j.jemep.2017.02.010
       
  • Balancing privacy as a human value
    • Authors: D.N. Weisstub
      Abstract: Publication date: Available online 18 March 2017
      Source:Ethics, Medicine and Public Health
      Author(s): D.N. Weisstub


      PubDate: 2017-03-23T20:38:08Z
      DOI: 10.1016/j.jemep.2017.02.024
       
  • Le partage des données personnelles de santé dans les usages du
           numérique en santé à l’épreuve du consentement exprès de la
           personne
    • Authors: Lucas
      Abstract: Publication date: Available online 18 March 2017
      Source:Ethics, Medicine and Public Health
      Author(s): J. Lucas
      Les données personnelles de santé ne peuvent pas être traitées dans les espaces numériques sans l’accord de la personne concernée. Cet accord peut prendre deux formes juridiques : non-opposition ou consentement explicite. Dans tous les cas, le patient doit être informé afin qu’il puisse exercer son droit d’opposition ou donner son consentement. Nous avons passé en revue les situations dans lesquelles ces droits s’exercent : équipe de soins définie par la loi, dossiers médicaux informatisés et dossier médical partagé (DMP), télémédecine, situation de la personne dépendante, avant de faire une incursion sur les données circulant via les réseaux sociaux. Petit à petit se dégagent des axes éthiques, déontologiques et juridiques appliqués à la société numérique que le droit positif doit venir consolider. Personal health data cannot be processed in digital spaces without the consent of the person. The consent may have two legal forms: non-opposition or explicit consent. In all cases, the patient must be informed so that he can exercise his right to oppose or give his consent. We have reviewed the situations in which these rights are exercised: a healthcare team defined by the law, electronic medical records and shared medical records (DMP), telemedicine, the situation of a dependent person, before making an incursion into social networks data. Progressively, ethical, deontological and legal axes applied to digital society are emerging, which must be incorporated by positive law.

      PubDate: 2017-03-23T20:38:08Z
       
  • La mort en médecine générale, la somme de toutes les peurs.
           Témoignage
    • Authors: B.V. Tudrej
      Abstract: Publication date: Available online 18 March 2017
      Source:Ethics, Medicine and Public Health
      Author(s): B.V. Tudrej


      PubDate: 2017-03-23T20:38:08Z
      DOI: 10.1016/j.jemep.2017.02.015
       
  • Rethinking super-confidentiality in the age of disclosure: The ethical and
           social implications of privacy protections in mental health data
    • Authors: Gelpi
      Abstract: Publication date: Available online 18 March 2017
      Source:Ethics, Medicine and Public Health
      Author(s): A. Gelpi
      Two opposing impulses have marked efforts in medicine and global health to combat stigma and discrimination. Traditionally, threat of stigma leads to efforts to protect patients by enforcing privacy and confidentiality, while more recently, anti-stigma efforts have been dominated by arguments that the best way to fight stigma is through greater disclosure of the facts of illness. By this line of argument, the act of sharing patient experiences with stigmatized conditions will help dismantle stigma. The question of whether and/or when the threat of stigma warrants more privacy or more disclosure in medicine and public health is the topic of this paper. Tracing two historical cases – HIV and mental health – illustrates the shifting pendulum between privacy and disclosure as opposing, yet both well-intentioned responses to the fact of stigma in both medicine and public health. Public health responses to both HIV and mental health can be divided into periods marked by exceptionalism that eventually yielded to calls for greater integration. That the opposite policies of both eras were each justified the same argument that combat stigma makes these historical cases ethically important. Tracing the rise and fall of exceptionalism in these two cases – HIV and mental health – raises both empirical and normative questions about the impulse toward greater privacy as a strategy for stigma protection. These questions include: When is greater privacy an appropriate or effective response to combat stigmatized conditions' Might greater privacy sometimes actually lead to perverse consequences such as exacerbating or perpetuating, rather than mitigating stigma' And if that is indeed a risk, how should public health officials determine in what circumstances disclosure or privacy offers a better strategy toward stigma reduction' This paper concludes by considering the normative aspects of the policy implications raised by such cases of privacy and anti-stigma efforts. These two cases enumerate the social and medical costs of privacy and stigma so that better policy prescriptions can be developed to advance fairness and justice. They should serve to remind or teach us that there may be social and ethical costs associated with the cure (the privacy) as well as the illness (the stigma). Policy responses must evolve with changing social circumstances. The original impulse towards extreme privacy, confidentiality or exceptionalism, noble though it was, and even appropriate for that time, does not today result in its intended goal: reduction of stigma by demonstrating through practice and policy the moral equivalence of different medical conditions. Another lesson from these cases is that in many cases extreme privacy and vertical programs may even detract from that goal of stigma reduction by signaling that the stigmatized condition is so “other” its sufferers require special treatment or to be kept apart (in the isolated clinics of HIV/AIDS for example). More protection will not always be benign, even if well intentioned. The ironic lesson for global health is that privacy practices run the risk of perpetuating the very stigma they were designed to combat.

      PubDate: 2017-03-23T20:38:08Z
       
  • L’intimité en santé : définition, protection et
           projection
    • Abstract: Publication date: Available online 18 March 2017
      Source:Ethics, Medicine and Public Health
      Author(s): B. Bévière-Boyer
      L’intimité définie comme le « fond caché de l’intérieur de l’homme » fait l’objet de peu de dispositions législatives s’y référant expressément. Pourtant, nombre de règles sous-jacentes, permettent d’enrichir la protection des patients dans ce domaine que ce soit à l’égard des personnes malades directement ou lors de l’exercice professionnel. Intimacy defined as “the bottom hidden within man” has few legal dispositions referring directly to it. However, several implicit rules increase patient's protection in this respect, either directly towards patients or within professional duties.

      PubDate: 2017-03-23T20:38:08Z
       
  • L’intimité est-elle une valeur éthique ?
    • Authors: J.-P.
      Abstract: Publication date: Available online 17 March 2017
      Source:Ethics, Medicine and Public Health
      Author(s): J.-P. Cléro
      L’intimité paraît ne pouvoir se définir que par des négations (elle n’est pas le sujet, elle n’est pas le moi profond, elle n’est pas l’intérieur par opposition à l’extérieur, elle n’est pas le privé par opposition au public, elle n’est pas le secret et l’interdit par rapport à ce qui est manifeste et permis). Quand on essaie de dire positivement ce qu’elle est, on se heurte à une antinomie majeure : est-elle quelque chose qui existe en soi et qui pourrait qualifier des êtres plus ou moins intimes, des sentiments dont certains seraient intimes (tandis que d’autres ne le seraient pas) et dont on pourrait esquisser la liste (Thèse) ? Ou bien est-elle ce qui est conféré par des actes spécifiques, un principe de qualification d’êtres plutôt qu’une de leurs caractéristiques — auquel cas elle n’aurait pas besoin d’exister en soi — (Antithèse) ? Cette thèse et cette antithèse paraissent enclencher deux philosophies fort différentes de l’intimité. On retrouve la même division dans les deux autres principes de l’éthique, le principe de sympathie et le principe de dignité, si l’on admet que l’éthique, envisagée comme plus existentielle qu’essentielle se répartit entre trois principes sous-tendus par la sympathie, la dignité et l’intimité. Dans les trois cas, les antithèses (celle qui confère la possibilité de se mettre à la place de l’autre avec ses valeurs, celles qui attribuent l’intimité ou la dignité) prennent l’avantage sur les thèses (la position d’un prétendu « en soi » de l’autre à l’unisson duquel on serait ; celle d’êtres ou de comportements dignes ; celle, enfin, d’êtres, de sujets ou d’objets intimes). Se trouve esquissée ici la circularité entre ces trois principes, qui se supposent les uns les autres, se donnent un sens les uns aux autres, se corrigent les uns par les autres, s’équilibrent les uns par les autres, et surtout se donnent un sens éthique qu’ils ne sauraient avoir isolément. It seems impossible to define intimacy otherwise than negatively: it is neither the subject nor the “profound self”; it is neither the inside nor the outside; it is not private as opposed to public; it is not the secretive and the forbidden in contradistinction to the evident and licit. When trying to speak positively of it, one stumbles over a strong antinomy: does intimacy refer to something that exists per se and would it be possible for it to qualify certain beings, certain feelings, more or less intimate, sometimes not at all, of which a list may be drawn up (thesis)? Or is it what may be conferred by specific acts depending on a principle of qualification of beings rather than on identifiable characteristics of those beings? In the latter case, there would be no more need for intimacy to exist per se. The thesis and the antithesis seem to give rise to two markedly philosophies of intimacy. The same division is to be found in the other two principles of ethics: the principle of sympathy and the principle of dignity, if one concedes that ethics, considered more existential than essential, are regulated by three principles (sympathy, dignity and intimacy). In those three cases, the theses (the notion of a supposed per se of the other, with which it would be possible to be at one; the notion of a dignified being or behaviour; the notion of intimate beings, subjects or objects) are overridden by the antitheses (making it possible to take the place of another with his own values, or conferring intimacy or dignity). We present here a draft or a sketch of the circularity between three principles which suppose the existence of one another, give sense to each other, are shaped by each other, and above all introduce for each an ethical sense which it could not have in isolation.

      PubDate: 2017-03-17T20:10:53Z
       
  • Emprises des êtres, meurtrissures des âmes : de l’identification à
           l’appropriation. Analyse médico-psychocriminologique de violences
           contemporaines
    • Authors: I. Hanafy; B. Marc
      Abstract: Publication date: Available online 17 March 2017
      Source:Ethics, Medicine and Public Health
      Author(s): I. Hanafy, B. Marc
      L’emprise psychologique a été définie comme une pulsion de destruction, donnant lieu à une agressivité active, offensive, alimentée par l’énergie sexuelle mais aussi comme une violence fondamentale. Elle a été analysée d’un point de vue psychosocial comme sous l’angle d’une dualité intimiste, qu’elle soit régie par les affects (cf. sentiments amoureux) ou les émotions (cf. effet Pygmalion). Ce mode de relation se déploie à travers la manipulation, la perversion qui ont pour but d’assurer l’ascendance, la souffrance sur l’autre, à travers son appropriation, au moyen de violences tous azimuts qui l’assailliront, allant de la soumission à la dépersonnalisation, grâce au contrôle et à la négation de cet autre, et plus généralement, le conditionnement. Cet article reprend les définitions de l’emprise, de l’identité et de l’identification, pour une meilleure compréhension du profil de l’empriseur(e), souvent nommé(e) pervers(e) narcissique et celui de l’emprisé(e) ainsi que la relation qui les unit. Il retrace des éléments psychologiques, neurobiologiques, utiles à la prise en soins des victimes. La violence psychologique à l’origine de troubles psychotraumatiques primaires et secondaires est aussi envisagée à l’aune de son importance grandissante parmi les formes de violences observées dans les unités médicojudiciaires comme dans la société. Les mécanismes de l’emprise décrits sont aujourd’hui des clés de compréhension de la violence intime mais aussi sociétale. Grip has been defined as a destructive impulse, implementing an active, offensive aggressiveness, fuelled by sexual energy, and also as a fundamental violence. It has been analysed from a psychosocial point of view as much as from the angle of intimate duality, be it ruled by affects (cf. romantic feelings) or emotions (cf. Pygmalion effect). This type of relationship unfolds through manipulation and perversion which aim to ensure ascendance and suffering upon the other, by means of appropriation proceeding from any kind of violence that will assail the target, from submission to depersonalisation, thanks to control and negation of the other individual, and more generally, the conditioning. This article returns to the definition of grip, identity and identification for an enhanced comprehension of the gripper's profile, commonly named narcissistic pervert, the profile of the gripped, and the relationship between them. It retraces psychological and neurobiological elements, substantially useful in therapeutic care of victims. Psychological violence, at the root of primary and secondary psychotraumatic disorders, is also considered, given its expanding importance among the forms of violence observed in medical judicial units as in society. The very mechanisms of grip which are described constitute as many keys of understanding intimate and societal violence nowadays.

      PubDate: 2017-03-17T20:10:53Z
      DOI: 10.1016/j.jemep.2017.02.019
       
  • Témoignage sur le vécu de la mort à l’hôpital
           pour les professionnels
    • Authors: Torres
      Abstract: Publication date: Available online 17 March 2017
      Source:Ethics, Medicine and Public Health
      Author(s): P. Torres


      PubDate: 2017-03-17T20:10:53Z
       
  • En ce qui concerne les données informatisées de santé
    • Authors: M.-F. Mamzer; C. Hervé
      Abstract: Publication date: Available online 17 March 2017
      Source:Ethics, Medicine and Public Health
      Author(s): M.-F. Mamzer, C. Hervé


      PubDate: 2017-03-17T20:10:53Z
      DOI: 10.1016/j.jemep.2017.02.002
       
  • Résonances artistiques pour la santé
    • Authors: A. Torregrosa
      Abstract: Publication date: Available online 17 March 2017
      Source:Ethics, Medicine and Public Health
      Author(s): A. Torregrosa
      Penser la relation arts, sociologie, santé et éthique nous invite à ouvrir les portes des disciplines afin de trouver les liens communs et les croisements vers une pensée interdisciplinaire. Cependant, nous pourrions avant tout nous demander comment se sont perdues les correspondances évidentes entre la connaissance comme réalité complexe et diverse pour se diriger vers des savoirs toujours plus spécialisés. Aujourd’hui, ces questions d’éthique, d’art et de dimension sociale dans la santé nous invitent à nous rassembler. Rassemblement autour de différentes notions qui nous relient — accompagnement, santé, altérité, vulnérabilité — et qui démontrent la complexité et la richesse du vivre ensemble. Cette réflexion s’élabore dans le cadre du groupe de recherche sur arts, santé et éthique (GRASE, laboratoire d’éthique et droit médical, Paris Descartes V), chercheurs qui se sont réuni spontanément autour de ces thématiques afin de retrouver ces liens et initier un trajet de recherche interdisciplinaire. On s’intéressa ainsi à la dimension éthique et esthétique dans une perspective sociologique qui soulève des questionnements dans ces actions d’accompagnement et de rencontre de l’altérité et vers une santé collective. Certainement le vivre ensemble situé au cœur de nos pensées, d’autant plus actuellement, met en exergue une santé sociale fragile ; en soulignant de fait qu’elle n’est pas seulement singulière mais surtout collective. Nous pourrons nous questionner sur la place prise par ces questionnements au sein des formations pour la santé ; par exemple, la médecine qui met en évidence la nécessité de repenser la manière dont nous établissons notre rapport aux autres. Altérité qui n’est pas seulement l’autre mais aussi la nature, le mystère, l’environnement, tout ce qui nous entoure et avec qui nous déployons notre vie quotidienne. Ainsi, cette relation entre esthétique et social ouvre le dialogue entre divers domaines qui nous initie dans un cheminement commun. Thinking about the relationship between arts, sociology, health and ethics invites us to open the doors of the subjects to find out where they connect and the common links between them towards an interdisciplinary thought. Above all, however, we may ask ourselves how the obvious correspondences between knowledge as a complex and diverse reality have been lost to an even more specialized knowledge. Today, these questions of ethics, art and social dimension in health invite us to come together. Gathering around different notions which connect us — accompaniment, health, otherness, vulnerability — and which demonstrate the complexity and the wealth of living together. This reflection is carried out within the framework of the Research Group on Arts, Health and Ethics (GRASE, Laboratory of Ethics and Medical Law, Paris Descartes V), researchers who met spontaneously around these themes to rediscover these links and initiate an interdisciplinary research path. We will thus be interested in the ethical and aesthetic dimension, from a sociological perspective, which raises questions in these actions of accompanying and meeting otherness and towards a collective health. Certainly, living together which is at the heart of our thoughts, all the more so now, highlights a fragile social health; stressing in fact that it is not only singular but especially collective. We will be able to question the place taken by these questions in health training; such as the medicine, which will show that we need to rethink how we relate to others. Alterity that is not only the other but also nature, mystery, the environment, all that surrounds us and with which we deploy our daily life. Thus, this relationship between aesthetic and social opens the dialogue between various fields that leads us in a common journey.

      PubDate: 2017-03-17T20:10:53Z
      DOI: 10.1016/j.jemep.2017.02.012
       
  • La requalification des données de soins en données de recherche :
           enjeux éthiques et blocages normatifs
    • Authors: M.-F. Mamzer Bruneel; C. Hervé
      Abstract: Publication date: Available online 15 March 2017
      Source:Ethics, Medicine and Public Health
      Author(s): M.-F. Mamzer Bruneel, C. Hervé
      L’irruption dans les pratiques médicales des technologies du Big Data décuple les possibilités de recherche dans le domaine de la santé, au prix d’une requalification systématique des données de soins en données de recherche. L’intérêt de ces pratiques pour la progression des connaissances médicales et scientifiques est devenu incontestable. Le prix à payer est l’installation d’une porosité entre le soin et la recherche qui, dans une vision de progrès, justifie la nécessité d’ajuster les lois et règlements existant. L’émergence dans ce contexte d’une nouvelle catégorie de recherches qualifiées de « recherches n’impliquant pas la personne humaine », alors qu’elles portent sur des données de santé et des échantillons biologiques d’origine humaine, incite à réfléchir sur les contours de la personne humaine et sur la place de la réflexion éthique dans la construction des nouvelles normes de l’éthique de la recherche. Big data technologies increase the opportunities of health research, at the expense of a systematic requalification of the healthcare data in research data. There is no doubt about the interest of such practices in a vision of progress. Nevertheless, they make the frontline between care and research porous, and imply the necessity to adapt legal and regulatory frameworks. In this context, the emergence of the concept of research that does not involve human subjects is questionable when it designates research practices involving human data and biological samples. It questions both the scope of the human person and the way ethics of research is thought.

      PubDate: 2017-03-17T20:10:53Z
      DOI: 10.1016/j.jemep.2017.02.026
       
  • Autour de la mort : perspectives anthropologiques
    • Authors: Pottier
      Abstract: Publication date: Available online 15 March 2017
      Source:Ethics, Medicine and Public Health
      Author(s): R. Pottier
      Le rapport à la mort s’est profondément transformé dans les sociétés occidentales contemporaines. Autrefois, on mourait presque toujours chez soi, et toutes les étapes du processus qui aboutissait à faire d’un membre vivant du groupe un défunt, depuis l’agonie jusqu’à la levée du deuil, avaient une signification sociale et rituelle. Aujourd’hui, on meurt la plupart du temps à l’hôpital et la mort se trouvant largement désocialisée et déritualisée, c’est à l’individu seul qu’il revient de l’affronter. Face à ce problème, le personnel soignant se trouve en première ligne, mais il n’a sûrement pas vocation à le prendre en charge, car le véritable enjeu serait plutôt de resocialiser la mort, et d’éviter sa complète médicalisation. The way of meeting death has deeply changed in contemporary western societies. In the past, people were almost always dying at home, and all steps of the process which converted the living member of a group into a defunct, from death agony to end of mourning, were social and ritual events. Nowadays, most of the time, people are dying in a hospital, and since social and ritual significance of death is vanishing, the individual has to meet it alone. Medical personnel is the first and foremost to deal with that problem, but is not in a position for taking charge of it. The real challenge is to give to death a new social meaning instead of letting it be transformed into a pure medical issue.

      PubDate: 2017-03-17T20:10:53Z
       
  • Vécu de la mort à l’hôpital : témoignage d’un interne en
           hématologie
    • Authors: Bommier
      Abstract: Publication date: Available online 15 March 2017
      Source:Ethics, Medicine and Public Health
      Author(s): C. Bommier


      PubDate: 2017-03-17T20:10:53Z
       
  • Quelques notions fondamentales sur les notions de vie et de mort et leurs
           réalités quotidiennes
    • Authors: Gorgiard
      Abstract: Publication date: Available online 15 March 2017
      Source:Ethics, Medicine and Public Health
      Author(s): C. Gorgiard


      PubDate: 2017-03-17T20:10:53Z
       
  • La confidentialité comme problématique éthique
    • Abstract: Publication date: Available online 6 February 2017
      Source:Ethics, Medicine and Public Health
      Author(s): C. Hervé


      PubDate: 2017-02-07T06:05:25Z
       
 
 
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