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  Subjects -> HUMANITIES (Total: 889 journals)
    - ASIAN STUDIES (159 journals)
    - CLASSICAL STUDIES (114 journals)
    - DEMOGRAPHY AND POPULATION STUDIES (145 journals)
    - ETHNIC INTERESTS (155 journals)
    - GENEALOGY AND HERALDRY (7 journals)
    - HUMANITIES (281 journals)
    - NATIVE AMERICAN STUDIES (28 journals)

HUMANITIES (281 journals)                  1 2     

Showing 1 - 71 of 71 Journals sorted alphabetically
Aboriginal and Islander Health Worker Journal     Full-text available via subscription   (Followers: 14)
Aboriginal Child at School     Full-text available via subscription   (Followers: 5)
About Performance     Full-text available via subscription   (Followers: 12)
Access     Full-text available via subscription   (Followers: 26)
ACCESS: Critical Perspectives on Communication, Cultural & Policy Studies     Full-text available via subscription   (Followers: 10)
Acta Academica     Full-text available via subscription   (Followers: 6)
Acta Universitaria     Open Access   (Followers: 4)
Adeptus     Open Access   (Followers: 1)
Advocate: Newsletter of the National Tertiary Education Union     Full-text available via subscription   (Followers: 1)
African and Black Diaspora: An International Journal     Hybrid Journal   (Followers: 11)
African Historical Review     Hybrid Journal   (Followers: 17)
AFRREV IJAH : An International Journal of Arts and Humanities     Open Access   (Followers: 3)
Agriculture and Human Values     Hybrid Journal   (Followers: 13)
Akademika : Journal of Southeast Asia Social Sciences and Humanities     Open Access   (Followers: 6)
Aldébaran     Open Access   (Followers: 3)
Alterstice : Revue internationale de la recherche interculturelle     Open Access  
Altre Modernità     Open Access   (Followers: 4)
Amaltea. Revista de mitocrítica     Open Access   (Followers: 1)
American Imago     Full-text available via subscription   (Followers: 3)
American Journal of Humanities and Social Sciences     Open Access   (Followers: 10)
American Review of Canadian Studies     Hybrid Journal   (Followers: 7)
Anabases     Open Access  
Analyse & Kritik. Zeitschrift f     Full-text available via subscription   (Followers: 1)
Angelaki: Journal of Theoretical Humanities     Hybrid Journal   (Followers: 17)
Anglo-Saxon England     Hybrid Journal   (Followers: 34)
Antik Tanulmányok     Full-text available via subscription  
Antipode     Hybrid Journal   (Followers: 52)
Anuario Americanista Europeo     Open Access  
Arbutus Review     Open Access   (Followers: 1)
Argumentation et analyse du discours     Open Access   (Followers: 6)
Ars & Humanitas     Open Access   (Followers: 9)
Arts and Humanities in Higher Education     Hybrid Journal   (Followers: 34)
Asia Europe Journal     Hybrid Journal   (Followers: 5)
Australasian Journal of Popular Culture, The     Hybrid Journal   (Followers: 2)
Behaviour & Information Technology     Hybrid Journal   (Followers: 52)
Behemoth     Open Access   (Followers: 3)
Bereavement Care     Hybrid Journal   (Followers: 11)
Cahiers de praxématique     Open Access   (Followers: 1)
Carl Beck Papers in Russian and East European Studies     Full-text available via subscription   (Followers: 5)
Child Care     Full-text available via subscription   (Followers: 7)
Choreographic Practices     Hybrid Journal   (Followers: 1)
Chronicle of Philanthropy     Full-text available via subscription   (Followers: 2)
Ciencias Sociales y Humanidades     Open Access   (Followers: 1)
Claroscuro     Open Access   (Followers: 1)
Co-herencia     Open Access  
Coaching: An International Journal of Theory, Research and Practice     Hybrid Journal   (Followers: 10)
Cogent Arts & Humanities     Open Access   (Followers: 3)
Colloquia Humanistica     Open Access  
Communication and Critical/Cultural Studies     Hybrid Journal   (Followers: 26)
Comprehensive Therapy     Hybrid Journal   (Followers: 3)
Congenital Anomalies     Hybrid Journal   (Followers: 1)
Conjunctions. Transdisciplinary Journal of Cultural Participation     Open Access   (Followers: 3)
Conservation Science in Cultural Heritage     Open Access   (Followers: 10)
Cornish Studies     Hybrid Journal   (Followers: 2)
Creative Industries Journal     Hybrid Journal   (Followers: 9)
Critical Arts : South-North Cultural and Media Studies     Hybrid Journal   (Followers: 12)
Crossing the Border : International Journal of Interdisciplinary Studies     Open Access   (Followers: 4)
Cuadernos de historia de España     Open Access   (Followers: 4)
Cultural History     Hybrid Journal   (Followers: 25)
Cultural Studies     Hybrid Journal   (Followers: 51)
Culturas     Open Access   (Followers: 1)
Culture, Theory and Critique     Hybrid Journal   (Followers: 27)
Daedalus     Hybrid Journal   (Followers: 21)
Dandelion : Postgraduate Arts Journal & Research Network     Open Access   (Followers: 3)
Death Studies     Hybrid Journal   (Followers: 18)
Debatte: Journal of Contemporary Central and Eastern Europe     Hybrid Journal   (Followers: 5)
Digital Humanities Quarterly     Open Access   (Followers: 58)
Diogenes     Hybrid Journal   (Followers: 8)
Doct-Us Journal     Open Access  
Dorsal Revista de Estudios Foucaultianos     Open Access  
e-Hum : Revista das Áreas de Humanidade do Centro Universitário de Belo Horizonte     Open Access   (Followers: 1)
Early Modern Culture Online     Open Access   (Followers: 40)
Égypte - Monde arabe     Open Access   (Followers: 4)
Eighteenth-Century Fiction     Full-text available via subscription   (Followers: 20)
Éire-Ireland     Full-text available via subscription   (Followers: 9)
En-Claves del pensamiento     Open Access   (Followers: 1)
Ethiopian Journal of the Social Sciences and Humanities     Full-text available via subscription   (Followers: 8)
Études arméniennes contemporaines     Open Access   (Followers: 1)
Études canadiennes / Canadian Studies     Open Access   (Followers: 1)
Études de lettres     Open Access   (Followers: 3)
European Journal of Cultural Studies     Hybrid Journal   (Followers: 27)
European Journal of Social Theory     Hybrid Journal   (Followers: 17)
Expositions     Full-text available via subscription  
Fronteras : Revista de Ciencias Sociales y Humanidades     Open Access   (Followers: 2)
Frontiers in Digital Humanities     Open Access   (Followers: 1)
Fudan Journal of the Humanities and Social Sciences     Hybrid Journal  
GAIA - Ecological Perspectives for Science and Society     Full-text available via subscription   (Followers: 4)
German Research     Hybrid Journal   (Followers: 1)
German Studies Review     Full-text available via subscription   (Followers: 27)
Germanic Review, The     Hybrid Journal   (Followers: 5)
Globalizations     Hybrid Journal   (Followers: 8)
Gothic Studies     Full-text available via subscription   (Followers: 16)
Gruppendynamik und Organisationsberatung     Hybrid Journal   (Followers: 1)
Habitat International     Hybrid Journal   (Followers: 5)
Hacettepe Üniversitesi Edebiyat Fakültesi Dergisi     Open Access   (Followers: 1)
Harvard Journal of Asiatic Studies     Full-text available via subscription   (Followers: 15)
Heritage & Society     Hybrid Journal   (Followers: 18)
History of Humanities     Full-text available via subscription   (Followers: 5)
Hopscotch: A Cultural Review     Full-text available via subscription  
Human Affairs     Open Access   (Followers: 1)
Human and Ecological Risk Assessment: An International Journal     Hybrid Journal   (Followers: 4)
Human Nature     Hybrid Journal   (Followers: 19)
Human Performance     Hybrid Journal   (Followers: 5)
Human Remains and Violence : An Interdisciplinary Journal     Full-text available via subscription  
Human Studies     Hybrid Journal   (Followers: 11)
humanidades     Open Access  
Humanitaire     Open Access   (Followers: 2)
Humanities     Open Access   (Followers: 11)
Hungarian Cultural Studies     Open Access  
Hungarian Studies     Full-text available via subscription  
Ibadan Journal of Humanistic Studies     Full-text available via subscription  
Inkanyiso : Journal of Humanities and Social Sciences     Open Access   (Followers: 1)
Inter Faculty     Open Access  
Interim : Interdisciplinary Journal     Open Access   (Followers: 3)
International Journal for History, Culture and Modernity     Open Access   (Followers: 7)
International Journal of Arab Culture, Management and Sustainable Development     Hybrid Journal   (Followers: 8)
International Journal of Cultural Studies     Hybrid Journal   (Followers: 26)
International Journal of Heritage Studies     Hybrid Journal   (Followers: 18)
International Journal of Humanities and Arts Computing     Hybrid Journal   (Followers: 13)
International Journal of Humanities and Cultural Studies     Open Access   (Followers: 6)
International Journal of Humanities of the Islamic Republic of Iran     Open Access   (Followers: 11)
International Journal of Listening     Hybrid Journal   (Followers: 4)
International Journal of the Classical Tradition     Hybrid Journal   (Followers: 12)
Interventions : International Journal of Postcolonial Studies     Hybrid Journal   (Followers: 16)
ÍSTMICA. Revista de la Facultad de Filosofía y Letras     Open Access   (Followers: 1)
Jangwa Pana     Open Access  
Jewish Culture and History     Hybrid Journal   (Followers: 19)
Journal de la Société des Américanistes     Open Access  
Journal des africanistes     Open Access   (Followers: 1)
Journal for Cultural Research     Hybrid Journal   (Followers: 12)
Journal for General Philosophy of Science     Hybrid Journal   (Followers: 7)
Journal for Learning Through the Arts     Open Access   (Followers: 7)
Journal for New Generation Sciences     Open Access   (Followers: 2)
Journal for Research into Freemasonry and Fraternalism     Hybrid Journal  
Journal for Semitics     Full-text available via subscription   (Followers: 5)
Journal Of Advances In Humanities     Open Access   (Followers: 3)
Journal of Aesthetics & Culture     Open Access   (Followers: 22)
Journal of African American Studies     Hybrid Journal   (Followers: 8)
Journal of African Cultural Studies     Hybrid Journal   (Followers: 5)
Journal of African Elections     Full-text available via subscription  
Journal of Arts & Communities     Hybrid Journal   (Followers: 5)
Journal of Arts and Humanities     Open Access   (Followers: 20)
Journal of Bioethical Inquiry     Hybrid Journal   (Followers: 3)
Journal of Cultural Economy     Hybrid Journal   (Followers: 9)
Journal of Cultural Geography     Hybrid Journal   (Followers: 22)
Journal of Data Mining and Digital Humanities     Open Access   (Followers: 30)
Journal of Developing Societies     Hybrid Journal   (Followers: 2)
Journal of Family Theory & Review     Hybrid Journal   (Followers: 3)
Journal of Franco-Irish Studies     Open Access   (Followers: 1)
Journal of Happiness Studies     Hybrid Journal   (Followers: 28)
Journal of Interactive Humanities     Open Access   (Followers: 3)
Journal of Intercultural Communication Research     Hybrid Journal   (Followers: 16)
Journal of Intercultural Studies     Hybrid Journal   (Followers: 12)
Journal of Interdisciplinary History     Hybrid Journal   (Followers: 25)
Journal of Labor Research     Hybrid Journal   (Followers: 20)
Journal of Medical Humanities     Hybrid Journal   (Followers: 22)
Journal of Medieval and Early Modern Studies     Full-text available via subscription   (Followers: 34)
Journal of Modern Greek Studies     Full-text available via subscription   (Followers: 4)
Journal of Modern Jewish Studies     Hybrid Journal   (Followers: 13)
Journal of Open Humanities Data     Open Access   (Followers: 1)
Journal of Semantics     Hybrid Journal   (Followers: 11)
Journal of the Musical Arts in Africa     Hybrid Journal   (Followers: 1)
Journal of Visual Culture     Hybrid Journal   (Followers: 33)
Journal Sampurasun : Interdisciplinary Studies for Cultural Heritage     Open Access  
Jurisprudence     Hybrid Journal   (Followers: 20)
Jurnal Sosial Humaniora     Open Access   (Followers: 2)
L'Orientation scolaire et professionnelle     Open Access   (Followers: 1)
La lettre du Collège de France     Open Access   (Followers: 1)
La Revue pour l’histoire du CNRS     Open Access   (Followers: 2)
Lagos Notes and Records     Full-text available via subscription  
Language and Intercultural Communication     Hybrid Journal   (Followers: 21)
Language Resources and Evaluation     Hybrid Journal   (Followers: 7)
Law and Humanities     Hybrid Journal   (Followers: 8)
Law, Culture and the Humanities     Hybrid Journal   (Followers: 12)
Le Portique     Open Access   (Followers: 1)
Leadership     Hybrid Journal   (Followers: 34)
Legal Ethics     Hybrid Journal   (Followers: 13)
Legon Journal of the Humanities     Full-text available via subscription  
Letras : Órgano de la Facultad de Letras y Ciencias Huamans     Open Access  
Literary and Linguistic Computing     Hybrid Journal   (Followers: 5)
Litnet Akademies : 'n Joernaal vir die Geesteswetenskappe, Natuurwetenskappe, Regte en Godsdienswetenskappe     Open Access  
Lwati : A Journal of Contemporary Research     Full-text available via subscription  
Measurement     Hybrid Journal   (Followers: 2)
Medical Humanities     Full-text available via subscription   (Followers: 22)
Medieval Encounters     Hybrid Journal   (Followers: 9)
Médiévales     Open Access   (Followers: 5)
Mélanges de la Casa de Velázquez     Partially Free   (Followers: 1)
Memory Studies     Hybrid Journal   (Followers: 35)
Mens : revue d'histoire intellectuelle et culturelle     Full-text available via subscription  
Messages, Sages and Ages     Open Access  
Mind and Matter     Full-text available via subscription   (Followers: 3)
Mneme - Revista de Humanidades     Open Access  
Modern Italy     Hybrid Journal   (Followers: 8)
Motivation Science     Full-text available via subscription   (Followers: 2)
Mouseion     Open Access   (Followers: 1)
Mouseion: Journal of the Classical Association of Canada     Full-text available via subscription   (Followers: 14)
Museum International Edition Francaise     Hybrid Journal   (Followers: 4)
National Academy Science Letters     Hybrid Journal   (Followers: 5)
Nationalities Papers     Hybrid Journal   (Followers: 7)
Natures Sciences Sociétés     Full-text available via subscription  

        1 2     

Journal Cover Journal of Bioethical Inquiry
  [SJR: 0.396]   [H-I: 13]   [3 followers]  Follow
    
   Hybrid Journal Hybrid journal (It can contain Open Access articles)
   ISSN (Print) 1872-4353 - ISSN (Online) 1176-7529
   Published by Springer-Verlag Homepage  [2355 journals]
  • Comparing Non-Medical Sex Selection and Saviour Sibling Selection in the
           Case of JS and LS v Patient Review Panel: Beyond the Welfare of the
           Child'
    • Authors: Malcolm K. Smith; Michelle Taylor-Sands
      Abstract: The national ethical guidelines relevant to assisted reproductive technology (ART) have recently been reviewed by the National Health and Medical Research Council (NHMRC). The review process paid particular attention to the issue of non-medical sex selection, although ultimately, the updated ethical guidelines maintain the pre-consultation position of a prohibition on non-medical sex selection. Whilst this recent review process provided a public forum for debate and discussion of this ethically contentious issue, the Victorian case of JS and LS v Patient Review Panel (Health and Privacy) [2011] VCAT 856 provides a rare instance where the prohibition on non-medical sex selection has been explored by a court or tribunal in Australia. This paper analyses the reasoning in that decision, focusing specifically on how the Victorian Civil and Administrative Tribunal applied the statutory framework relevant to ART and its comparison to other uses of embryo selection technologies. The Tribunal relied heavily upon the welfare-of-the-child principle under the Assisted Reproductive Treatment Act 2008 (Vic). The Tribunal also compared non-medical sex selection with saviour sibling selection (that is, where a child is purposely conceived as a matched tissue donor for an existing child of the family). Our analysis leads us to conclude that the Tribunal’s reasoning fails to adequately justify the denial of the applicants’ request to utilize ART services to select the sex of their prospective child.
      PubDate: 2018-02-02
      DOI: 10.1007/s11673-018-9838-9
       
  • Assisted Dying in Australia and Limiting Court Involvement in Withdrawal
           of Nutrition and Hydration
    • Authors: Bernadette Richards; John Coggon
      PubDate: 2018-01-29
      DOI: 10.1007/s11673-018-9839-8
       
  • Rearranging Deck Chairs on a Sinking Ship'
    • Authors: Silvia Camporesi
      PubDate: 2018-01-26
      DOI: 10.1007/s11673-018-9840-2
       
  • Truth Disclosure Practices of Physicians in Jordan
    • Authors: Saif M. Borgan; Justin Z. Amarin; Areej K. Othman; Haya H. Suradi; Yasmeen Z. Qwaider
      Abstract: Disclosure of health information is a sensitive matter, particularly in the context of serious illness. In conservative societies—those which predominate in the developing world—direct truth disclosure undoubtedly presents an ethical conundrum to the modern physician. The aim of this study is to explore the truth disclosure practices of physicians in Jordan, a developing country. In this descriptive, cross-sectional study, 240 physicians were initially selected by stratified random sampling. The sample was drawn from four major hospitals in Amman, Jordan. A closed-ended questionnaire was distributed and completed by self-report. A total of 164 physicians completed the questionnaire. Thirty-seven physicians (23 per cent) usually withheld the diagnosis of “serious illness” from patients, while 127 physicians (77 per cent) usually divulged the information directly. Among the latter, 108 physicians (86 per cent) made exceptions to their disclosure policy. Specialists were more likely to withhold health information (p = 0.04998). Non-disclosure was primarily motivated by request from the patient’s family (seventy-one participants, 54 per cent). In twenty cases (15 per cent), non-disclosure was undertaken independently. In conclusion, most respondents opt to disclose the truth; however, the vast majority of these respondents make exceptions. Instances of non-disclosure are primarily motivated by sociocultural constructs.
      PubDate: 2018-01-24
      DOI: 10.1007/s11673-018-9837-x
       
  • Disciplining Bioethics: The Debate Over Human Embryo Research
    • Authors: Giulia Cavaliere
      Abstract: J. Benjamin Hurlbut’s book Experiments in Democracy: Human Embryo Research and the Politics of Bioethics is an historiographical analysis of the American debate over embryo research. It covers more than four decades of this debate and uses key actors, bodies, and events as empirical evidence for its analysis. At a first glance, it might seem like a book that tells a story, but Experiments in Democracy is much more than that. Hurlbut uses the chapters of this narrative as case studies through which to examine practices of deliberative democracy and the role played by scientists and ethicists in the deliberative processes concerning embryo research and the governance thereof.
      PubDate: 2018-01-24
      DOI: 10.1007/s11673-017-9830-9
       
  • The Ethics of Discharging Asylum Seekers to Harm: A Case From Australia
    • Authors: Ryan Essex; David Isaacs
      Abstract: In February 2016 a twelve-month-old asylum seeker, who came to be know as Baby Asha, was transferred from Nauru and hospitalized in Brisbane. This case came to public attention after Doctors refused to discharge Asha as she would have been returned to detention on Nauru. What in other circumstances would have been considered routine clinical care, quickly turned into an act of civil disobedience. This paper will discuss the ethical aspects of this case, along with its implications for clinicians and the broader healthcare community.
      PubDate: 2018-01-24
      DOI: 10.1007/s11673-017-9833-6
       
  • Engendering Harm: A Critique of Sex Selection For “Family
           Balancing”
    • Authors: Arianne Shahvisi
      Abstract: The most benign rationale for sex selection is deemed to be “family balancing.” On this view, provided the sex distribution of an existing offspring group is “unbalanced,” one may legitimately use reproductive technologies to select the sex of the next child. I present four novel concerns with granting “family balancing” as a justification for sex selection: (a) families or family subsets should not be subject to medicalization; (b) sex selection for “family balancing” entrenches heteronormativity, inflicting harm in at least three specific ways; (c) the logic of affirmative action is appropriated; (d) the moral mandate of reproductive autonomy is misused. I conclude that the harms caused by family balancing are sufficiently substantive to override any claim arising from a supposed right to sex selection as an instantiation of procreative autonomy.
      PubDate: 2018-01-24
      DOI: 10.1007/s11673-017-9835-4
       
  • Ethical Implications in Vaccine Pharmacotherapy for Treatment and
           Prevention of Drug of Abuse Dependence
    • Authors: Anna Carfora; Paola Cassandro; Alessandro Feola; Francesco La Sala; Raffaella Petrella; Renata Borriello
      Abstract: Different immunotherapeutic approaches are in the pipeline for the treatment of drug dependence. “Drug vaccines” aim to induce the immune system to produce antibodies that bind to drugs and prevent them from inducing rewarding effects in the brain. Drugs of abuse currently being tested using these new approaches are opioids, nicotine, cocaine, and methamphetamine. In human clinical trials, “cocaine and nicotine vaccines” have been shown to induce sufficient antibody levels while producing few side effects. Studies in humans, determining how these vaccines interact in combination with their target drug, are underway. However, although vaccines can become a reasonable treatment option for drugs of abuse, there are several disadvantages that must be considered. These include i) great individual variability in the formation of antibodies, ii) the lack of protection against a structurally dissimilar drug that produces the same effects as the drug of choice, and iii) the lack of an effect on the drug desire that may predispose an addict to relapse. In addition, a comprehensive overview of several crucial ethical issues has not yet been widely discussed in order to have not only a biological approach to immunotherapy of addiction. Overall, immunotherapy offers a range of possible treatment options: the pharmacological treatment of addiction, the treatment of overdoses, the prevention of toxicity to the brain or the heart, and the protection of the fetus during pregnancy. So far, the results obtained from a small-scale experiment using vaccines against cocaine and nicotine suggest that a number of important technical challenges still need to be overcome before such vaccines can be approved for clinical use.
      PubDate: 2018-01-19
      DOI: 10.1007/s11673-017-9834-5
       
  • Law as Clinical Evidence: A New ConstitutiveModel of Medical Education and
           Decision-Making
    • Authors: Malcolm Parker; Lindy Willmott; Ben White; Gail Williams; Colleen Cartwright
      Abstract: Over several decades, ethics and law have been applied to medical education and practice in a way that reflects the continuation during the twentieth century of the strong distinction between facts and values. We explain the development of applied ethics and applied medical law and report selected results that reflect this applied model from an empirical project examining doctors’ decisions on withdrawing/withholding treatment from patients who lack decision-making capacity. The model is critiqued, and an alternative “constitutive” model is supported on the basis that medicine, medical law, and medical ethics exemplify the inevitable entanglement of facts and values. The model requires that ethics and law be taught across the medical education curriculum and integrated with the basic and clinical sciences and that they be perceived as an integral component of medical evidence and practice. Law, in particular, would rank as equal in normative authority to the relevant clinical scientific “facts” of the case, with graduating doctors having as strong a basic command of each category as the other. The normalization of legal knowledge as part of the clinician’s evidence base to be utilized in practice may provide adequate consolation for clinicians who may initially resent further perceived incursions on their traditional independence and discretion.
      PubDate: 2018-01-18
      DOI: 10.1007/s11673-017-9836-3
       
  • Minority Veterans Are More Willing to Participate in Complex Studies
           Compared to Non-minorities
    • Authors: Leonardo Tamariz; Irene Kirolos; Fiorella Pendola; Erin N. Marcus; Olveen Carrasquillo; Jimmy Rivadeneira; Ana Palacio
      Abstract: Background Minorities are an underrepresented population in clinical trials. A potential explanation for this underrepresentation could be lack of willingness to participate. The aim of our study was to evaluate willingness to participate in different hypothetical clinical research scenarios and to evaluate the role that predictors (e.g. health literacy) could have on the willingness of minorities to participate in clinical research studies. Methods We conducted a mixed-methods study at the Miami VA Healthcare system and included primary care patients with hypertension. We measured willingness to participate as a survey of four clinical research scenarios that evaluated common study designs encountered in clinical research and that differed in degree of complexity. Our qualitative portion included comments about the scenarios. Results We included 123 patients with hypertension in our study. Of the entire sample, ninety-three patients were minorities. Seventy per cent of the minorities were willing to participate, compared to 60 per cent of the non-minorities. The odds ratio (OR) of willingness to participate in simple studies was 0.58; 95 per cent CI 0.18–1.88 p=0.37 and the OR of willingness to participate in complex studies was 5.8; 95 per cent CI 1.10–1.31 p=0.03. In complex studies, minorities with low health literacy cited obtaining benefits (47 per cent) as the most common reason to be willing to participate. Minorities who were not willing to participate, cited fear of unintended outcomes as the main reason. Conclusions Minorities were more likely to be willing to participate in complex studies compared to non-minorities. Low health literacy and therapeutic misconception are important mediators when considering willingness to participate in clinical research.
      PubDate: 2017-12-19
      DOI: 10.1007/s11673-017-9829-2
       
  • A Critical View of “On TB Vaccines, Patients’ Demands, and Modern
           Printed Media in Times of Biomedical Uncertainties: Buenos Aires,
           1920–1950”
    • Authors: Estela B. Quiñones; Lucas Goldin; Inés M. I. Bignone; Roberto A. Diez
      Abstract: The putative Pueyo’s vaccine was a commercial venture that obtained marketing authorization in 1946, a turbulent period of Argentine history. After a few months, health authorities withdrew financial support from the state to buy the vaccine and required patients to sign a written consent to receive that product. An independent investigation did not find any evidence of benefit in non-clinical and clinical evaluation of the putative vaccine.
      PubDate: 2017-12-18
      DOI: 10.1007/s11673-017-9832-7
       
  • Beyond Trust: Plagiarism and Truth
    • Authors: Bart Penders
      Abstract: Academic misconduct distorts the relationship between scientific practice and the knowledge it produces. The relationship between science and the knowledge it produces is, however, not something universally agreed upon. In this paper I will critically discuss the moral status of an act of research misconduct, namely plagiarism, in the context of different epistemological positions. While from a positivist view of science, plagiarism only influences trust in science but not the content of the scientific corpus, from a constructivist point of view both are at stake. Consequently, I argue that discussions of research misconduct and responsible research ought to be explicitly informed by the authors’ views on the relationship between science and the knowledge it produces.
      PubDate: 2017-12-12
      DOI: 10.1007/s11673-017-9825-6
       
  • Narrative Identity in Third Party Reproduction: Normative Aspects and
           Ethical Challenges
    • Authors: Natacha Salomé Lima
      Abstract: In the last few decades, assisted reproduction has introduced new challenges to the way people conceive and build their families. While the numbers of donor-conceived (DC) individuals have increased worldwide, there are still many controversies concerning access to donor information. Is there a fundamental moral right to know one’s genetic background' What does identity in DC families mean' Is there any relationship between identity formation and disclosure of genetic origins' These questions are addressed by analysing core regulatory discourse (ethical recommendations and codes of practice). This analysis shows that the notion of narrative identity is suitable for defining and answering these questions. This review analyses the meaning of resemblance in DC families and the way donors are selected following affinity-ties and discusses disclosure strategies and agreements. As a preliminary conclusion, it could be said that, in the field of third-party reproduction, knowing about the donor conception significantly contributes towards the development of a narrative identity and also serves as a moral basis for the child’s right to know.
      PubDate: 2017-12-12
      DOI: 10.1007/s11673-017-9823-8
       
  • Knowing, Anticipating, Even Facilitating but Still not Intending: Another
           Challenge to Double Effect Reasoning
    • Authors: S. Duckett
      Abstract: A recent administrative law decision in Victoria, Australia, applied double effect reasoning in a novel way. Double effect reasoning has hitherto been used to legitimate treatments which may shorten life but where the intent of treatment is pain relief. The situation reviewed by the Victorian tribunal went further, supporting actions where a doctor agrees to provide pentobarbitone (Nembutal) to a patient at some time in the future if the patient feels at that time that his pain is unbearable and he wants to end his life. The offer to provide the drug was described as a palliative treatment in that it gave reassurance and comfort to the patient. Double effect reasoning was extended in this instance to encompass potentially facilitating a patient’s death. This extension further muddies the murky double effect reasoning waters and creates another challenge to this concept.
      PubDate: 2017-12-11
      DOI: 10.1007/s11673-017-9827-4
       
  • Mode 2 Knowledge Production in the Context of Medical Research: A Call for
           Further Clarifications
    • Authors: Hojjat Soofi
      Abstract: The traditional researcher-driven environment of medical knowledge production is losing its dominance with the expansion of, for instance, community-based participatory or participant-led medical research. Over the past few decades, sociologists of science have debated a shift in the production of knowledge from traditional discipline-based (Mode 1) to more socially embedded and transdisciplinary frameworks (Mode 2). Recently, scholars have tried to show the relevance of Mode 2 knowledge production to medical research. However, the existing literature lacks detailed clarifications on how a model of Mode 2 knowledge production can be constructed in the context of medical research. This paper calls for such further clarifications. As a heuristic means, the advocacy for a controversial experimental stem cell therapy (Stamina) is examined. It is discussed that the example cannot be considered a step towards Mode 2 medical knowledge production. Nonetheless, the example brings to the fore some complexities of medical knowledge production that need to be further examined including: (1) the shifting landscape of defining and addressing vulnerability of research participants, (2) the emerging overlap between research and practice, and (3) public health implications of revising the standard notions of quality control and accountability.
      PubDate: 2017-12-11
      DOI: 10.1007/s11673-017-9822-9
       
  • Disclosure is Inadequate as a Solution to Managing Conflicts of Interest
           in Human Research
    • Authors: Helene Jacmon
      Abstract: Disclosure is a common response to conflicts of interest; it is intended to expose the conflict to scrutiny and enable it to be appropriately managed. For disclosure to be effective the receiver of the disclosure needs to be able to use the information to assess how the conflict may impact on their interests and then implement a suitable response. The act of disclosure also creates an expectation of self-regulation, as the person with the conflicting interests will be mindful of their own potential biases and aware that their decisions may be monitored. This article discusses some of the problems of relying on disclosure as a solution to address conflicts of interest in research, including the added complexities around institutional conflicts of interest. The case of Dan Markingson illustrates these issues and highlights the vulnerable position relying on disclosure as a solution leaves research participants in.
      PubDate: 2017-12-11
      DOI: 10.1007/s11673-017-9824-7
       
  • Predictive Psychiatric Genetic Testing in Minors: An Exploration of the
           Non-Medical Benefits
    • Authors: Arianna Manzini; Danya F. Vears
      Abstract: Predictive genetic testing for susceptibility to psychiatric conditions is likely to become part of standard practice. Because the onset of most psychiatric diseases is in late adolescence or early adulthood, testing minors could lead to early identification that may prevent or delay the development of these disorders. However, due to their complex aetiology, psychiatric genetic testing does not provide the immediate medical benefits that current guidelines require for testing minors. While several authors have argued non-medical benefits may play a crucial role in favour of predictive testing for other conditions, little research has explored such a role in psychiatric disorders. This paper outlines the potential non-medical benefits and harms of psychiatric genetic testing in minors in order to consider whether the non-medical benefits could ever make such testing appropriate. Five non-medical themes arise in the literature: psychological impacts, autonomy/self-determination, implications of the biomedical approach, use of financial and intellectual resources, and discrimination. Non-medical benefits were prominent in all of them, suggesting that psychiatric genetic testing in minors may be appropriate in some circumstances. Further research needs to empirically assess these potential non-medical benefits, incorporate minors in the debate, and include normative reflection to evaluate the very purposes and motivations of psychiatric genetic testing in minors.
      PubDate: 2017-12-11
      DOI: 10.1007/s11673-017-9828-3
       
  • An Exploration of the Protective Effects of Investigators’ Ethical
           Awareness upon Subjects of Drug Clinical Trials in China
    • Authors: L. Zhang; X. X. Huang; H. F. Chen
      Abstract: Up till now, China has not enacted any legal mechanisms governing certification or supervision for ethics committees. This article analyses deficiencies in the protection of subjects in clinical drug trials under China’s current laws and regulations; it emphasizes that investigators, as practitioners who have direct contact with subjects, play significant roles in protecting and safeguarding subjects’ rights and interests. The paper compares the status quo in China in this area to that of other countries and discusses ways China might enhance the protection of rights and interests of trial subjects, such as enhancing the ethical awareness of investigators through training, improving laws and regulations, and strengthening the communication between investigators and ethics committees.
      PubDate: 2017-12-11
      DOI: 10.1007/s11673-017-9826-5
       
  • Protecting Participants in Thought Experiments: The Role of the Research
           Ethics Committee
    • Authors: David Shaw
      PubDate: 2017-12-08
      DOI: 10.1007/s11673-017-9831-8
       
  • The Dangers of Direct-to-Consumer Genetic Testing for
           Alzheimer’s Disease
    • Authors: Paul Lacaze; Jane Tiller; Joanne Ryan
      Abstract: The overarching issue with this case study is poor regulation and quality control over direct-to-consumer genetic testing, delivered in the absence of any medical oversight.
      PubDate: 2017-11-13
      DOI: 10.1007/s11673-017-9817-6
       
 
 
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