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  Subjects -> HUMANITIES (Total: 938 journals)
    - ASIAN STUDIES (166 journals)
    - CLASSICAL STUDIES (133 journals)
    - DEMOGRAPHY AND POPULATION STUDIES (151 journals)
    - ETHNIC INTERESTS (162 journals)
    - GENEALOGY AND HERALDRY (8 journals)
    - HUMANITIES (290 journals)
    - NATIVE AMERICAN STUDIES (28 journals)

HUMANITIES (290 journals)                  1 2     

Showing 1 - 71 of 71 Journals sorted alphabetically
Aboriginal and Islander Health Worker Journal     Full-text available via subscription   (Followers: 14)
Aboriginal Child at School     Full-text available via subscription   (Followers: 5)
About Performance     Full-text available via subscription   (Followers: 11)
Access     Full-text available via subscription   (Followers: 25)
ACCESS: Critical Perspectives on Communication, Cultural & Policy Studies     Full-text available via subscription   (Followers: 9)
Acta Academica     Full-text available via subscription   (Followers: 6)
Acta Universitaria     Open Access   (Followers: 5)
Adeptus     Open Access   (Followers: 1)
Advocate: Newsletter of the National Tertiary Education Union     Full-text available via subscription   (Followers: 1)
African and Black Diaspora: An International Journal     Hybrid Journal   (Followers: 11)
African Historical Review     Hybrid Journal   (Followers: 16)
AFRREV IJAH : An International Journal of Arts and Humanities     Open Access   (Followers: 4)
Agriculture and Human Values     Hybrid Journal   (Followers: 14)
Akademika : Journal of Southeast Asia Social Sciences and Humanities     Open Access   (Followers: 7)
Aldébaran     Open Access   (Followers: 3)
Alterstice : Revue internationale de la recherche interculturelle     Open Access  
Altre Modernità     Open Access   (Followers: 3)
Amaltea. Revista de mitocrítica     Open Access   (Followers: 1)
American Imago     Full-text available via subscription   (Followers: 3)
American Journal of Humanities and Social Sciences     Open Access   (Followers: 10)
American Review of Canadian Studies     Hybrid Journal   (Followers: 7)
Anabases     Open Access  
Analyse & Kritik. Zeitschrift f     Full-text available via subscription   (Followers: 1)
Angelaki: Journal of Theoretical Humanities     Hybrid Journal   (Followers: 15)
Anglo-Saxon England     Hybrid Journal   (Followers: 33)
Antik Tanulmányok     Full-text available via subscription  
Antipode     Hybrid Journal   (Followers: 56)
Anuario Americanista Europeo     Open Access  
Arbutus Review     Open Access   (Followers: 1)
Argumentation et analyse du discours     Open Access   (Followers: 5)
Ars & Humanitas     Open Access   (Followers: 12)
Artes Humanae     Open Access  
Arts and Humanities in Higher Education     Hybrid Journal   (Followers: 35)
Asia Europe Journal     Hybrid Journal   (Followers: 5)
Australasian Journal of Popular Culture, The     Hybrid Journal   (Followers: 2)
Behaviour & Information Technology     Hybrid Journal   (Followers: 52)
Behemoth     Open Access   (Followers: 3)
Belin Lecture Series     Open Access  
Bereavement Care     Hybrid Journal   (Followers: 12)
Bulletin of the School of Oriental and African Studies     Hybrid Journal   (Followers: 18)
Cahiers de praxématique     Open Access   (Followers: 1)
Carl Beck Papers in Russian and East European Studies     Full-text available via subscription   (Followers: 5)
Child Care     Full-text available via subscription   (Followers: 7)
Choreographic Practices     Hybrid Journal   (Followers: 1)
Chronicle of Philanthropy     Full-text available via subscription   (Followers: 2)
Ciencias Sociales y Humanidades     Open Access   (Followers: 3)
Claroscuro     Open Access   (Followers: 1)
Co-herencia     Open Access  
Coaching: An International Journal of Theory, Research and Practice     Hybrid Journal   (Followers: 8)
Cogent Arts & Humanities     Open Access   (Followers: 3)
Colloquia Humanistica     Open Access  
Communication and Critical/Cultural Studies     Hybrid Journal   (Followers: 27)
Comprehensive Therapy     Hybrid Journal   (Followers: 3)
Congenital Anomalies     Hybrid Journal   (Followers: 1)
Conjunctions. Transdisciplinary Journal of Cultural Participation     Open Access   (Followers: 4)
Conservation Science in Cultural Heritage     Open Access   (Followers: 10)
Cornish Studies     Hybrid Journal   (Followers: 2)
Creative Industries Journal     Hybrid Journal   (Followers: 8)
Critical Arts : South-North Cultural and Media Studies     Hybrid Journal   (Followers: 11)
Crossing the Border : International Journal of Interdisciplinary Studies     Open Access   (Followers: 5)
Cuadernos de historia de España     Open Access   (Followers: 3)
Cultural History     Hybrid Journal   (Followers: 25)
Cultural Studies     Hybrid Journal   (Followers: 52)
Culturas     Open Access   (Followers: 1)
Culture, Theory and Critique     Hybrid Journal   (Followers: 27)
Daedalus     Hybrid Journal   (Followers: 21)
Dandelion : Postgraduate Arts Journal & Research Network     Open Access   (Followers: 4)
Death Studies     Hybrid Journal   (Followers: 19)
Debatte: Journal of Contemporary Central and Eastern Europe     Hybrid Journal   (Followers: 4)
Digital Humanities Quarterly     Open Access   (Followers: 54)
Diogenes     Hybrid Journal   (Followers: 8)
Doct-Us Journal     Open Access  
Dorsal Revista de Estudios Foucaultianos     Open Access  
e-Hum : Revista das Áreas de Humanidade do Centro Universitário de Belo Horizonte     Open Access   (Followers: 2)
Early Modern Culture Online     Open Access   (Followers: 35)
Égypte - Monde arabe     Open Access   (Followers: 6)
Eighteenth-Century Fiction     Full-text available via subscription   (Followers: 17)
Éire-Ireland     Full-text available via subscription   (Followers: 7)
En-Claves del pensamiento     Open Access   (Followers: 1)
Enfoques     Open Access  
Ethiopian Journal of the Social Sciences and Humanities     Full-text available via subscription   (Followers: 8)
Études arméniennes contemporaines     Open Access   (Followers: 1)
Études canadiennes / Canadian Studies     Open Access   (Followers: 1)
Études de lettres     Open Access   (Followers: 3)
European Journal of Cultural Studies     Hybrid Journal   (Followers: 27)
European Journal of Social Theory     Hybrid Journal   (Followers: 18)
Expositions     Full-text available via subscription  
Fronteras : Revista de Ciencias Sociales y Humanidades     Open Access   (Followers: 2)
Frontiers in Digital Humanities     Open Access   (Followers: 1)
Fudan Journal of the Humanities and Social Sciences     Hybrid Journal  
GAIA - Ecological Perspectives for Science and Society     Full-text available via subscription   (Followers: 2)
German Research     Hybrid Journal   (Followers: 1)
German Studies Review     Full-text available via subscription   (Followers: 27)
Germanic Review, The     Hybrid Journal   (Followers: 5)
Globalizations     Hybrid Journal   (Followers: 9)
Gothic Studies     Full-text available via subscription   (Followers: 15)
Gruppendynamik und Organisationsberatung     Hybrid Journal   (Followers: 2)
Habitat International     Hybrid Journal   (Followers: 5)
Hacettepe Üniversitesi Edebiyat Fakültesi Dergisi     Open Access   (Followers: 2)
Harvard Journal of Asiatic Studies     Full-text available via subscription   (Followers: 14)
Heritage & Society     Hybrid Journal   (Followers: 16)
History of Humanities     Full-text available via subscription   (Followers: 5)
Hopscotch: A Cultural Review     Full-text available via subscription   (Followers: 1)
Human Affairs     Open Access   (Followers: 1)
Human and Ecological Risk Assessment: An International Journal     Hybrid Journal   (Followers: 4)
Human Nature     Hybrid Journal   (Followers: 20)
Human Performance     Hybrid Journal   (Followers: 5)
Human Remains and Violence : An Interdisciplinary Journal     Full-text available via subscription  
Human Studies     Hybrid Journal   (Followers: 9)
humanidades     Open Access  
Humanitaire     Open Access   (Followers: 2)
Humanities     Open Access   (Followers: 12)
Humanities Diliman : A Philippine Journal of Humanities     Open Access  
Hungarian Cultural Studies     Open Access  
Hungarian Studies     Full-text available via subscription  
Ibadan Journal of Humanistic Studies     Full-text available via subscription  
Inkanyiso : Journal of Humanities and Social Sciences     Open Access   (Followers: 1)
Insaniyat : Journal of Islam and Humanities     Open Access  
Inter Faculty     Open Access  
Interim : Interdisciplinary Journal     Open Access   (Followers: 4)
International Journal for History, Culture and Modernity     Open Access   (Followers: 7)
International Journal of Arab Culture, Management and Sustainable Development     Hybrid Journal   (Followers: 7)
International Journal of Cultural Studies     Hybrid Journal   (Followers: 26)
International Journal of Heritage Studies     Hybrid Journal   (Followers: 18)
International Journal of Humanities and Arts Computing     Hybrid Journal   (Followers: 13)
International Journal of Humanities and Cultural Studies     Open Access   (Followers: 7)
International Journal of Humanities of the Islamic Republic of Iran     Open Access   (Followers: 10)
International Journal of Listening     Hybrid Journal   (Followers: 4)
International Journal of the Classical Tradition     Hybrid Journal   (Followers: 12)
Interventions : International Journal of Postcolonial Studies     Hybrid Journal   (Followers: 16)
ÍSTMICA. Revista de la Facultad de Filosofía y Letras     Open Access   (Followers: 1)
Jangwa Pana     Open Access  
Jewish Culture and History     Hybrid Journal   (Followers: 19)
Journal de la Société des Américanistes     Open Access  
Journal des africanistes     Open Access   (Followers: 1)
Journal for Cultural Research     Hybrid Journal   (Followers: 11)
Journal for General Philosophy of Science     Hybrid Journal   (Followers: 7)
Journal for Learning Through the Arts     Open Access   (Followers: 7)
Journal for New Generation Sciences     Open Access   (Followers: 4)
Journal for Research into Freemasonry and Fraternalism     Hybrid Journal  
Journal for Semitics     Full-text available via subscription   (Followers: 7)
Journal Of Advances In Humanities     Open Access   (Followers: 3)
Journal of Aesthetics & Culture     Open Access   (Followers: 22)
Journal of African American Studies     Hybrid Journal   (Followers: 9)
Journal of African Cultural Studies     Hybrid Journal   (Followers: 5)
Journal of African Elections     Full-text available via subscription  
Journal of Arts & Communities     Hybrid Journal   (Followers: 6)
Journal of Arts and Humanities     Open Access   (Followers: 20)
Journal of Bioethical Inquiry     Hybrid Journal   (Followers: 3)
Journal of Cultural Economy     Hybrid Journal   (Followers: 9)
Journal of Cultural Geography     Hybrid Journal   (Followers: 21)
Journal of Data Mining and Digital Humanities     Open Access   (Followers: 30)
Journal of Developing Societies     Hybrid Journal   (Followers: 1)
Journal of Family Theory & Review     Hybrid Journal   (Followers: 3)
Journal of Franco-Irish Studies     Open Access   (Followers: 1)
Journal of Happiness Studies     Hybrid Journal   (Followers: 26)
Journal of Interactive Humanities     Open Access   (Followers: 3)
Journal of Intercultural Communication Research     Hybrid Journal   (Followers: 15)
Journal of Intercultural Studies     Hybrid Journal   (Followers: 10)
Journal of Interdisciplinary History     Hybrid Journal   (Followers: 22)
Journal of Labor Research     Hybrid Journal   (Followers: 19)
Journal of Medical Humanities     Hybrid Journal   (Followers: 22)
Journal of Medieval and Early Modern Studies     Full-text available via subscription   (Followers: 32)
Journal of Modern Greek Studies     Full-text available via subscription   (Followers: 4)
Journal of Modern Jewish Studies     Hybrid Journal   (Followers: 14)
Journal of Open Humanities Data     Open Access   (Followers: 1)
Journal of Semantics     Hybrid Journal   (Followers: 12)
Journal of the Musical Arts in Africa     Hybrid Journal   (Followers: 1)
Journal of Visual Culture     Hybrid Journal   (Followers: 32)
Journal Sampurasun : Interdisciplinary Studies for Cultural Heritage     Open Access  
Jurisprudence     Hybrid Journal   (Followers: 18)
Jurnal Ilmu Sosial dan Humaniora     Open Access  
Jurnal Pendidikan Humaniora : Journal of Humanities Education     Open Access   (Followers: 1)
Jurnal Sosial Humaniora     Open Access   (Followers: 2)
L'Orientation scolaire et professionnelle     Open Access   (Followers: 1)
La lettre du Collège de France     Open Access   (Followers: 1)
La Revue pour l’histoire du CNRS     Open Access  
Lagos Notes and Records     Full-text available via subscription  
Language and Intercultural Communication     Hybrid Journal   (Followers: 19)
Language Resources and Evaluation     Hybrid Journal   (Followers: 4)
Law and Humanities     Hybrid Journal   (Followers: 6)
Law, Culture and the Humanities     Hybrid Journal   (Followers: 10)
Le Portique     Open Access   (Followers: 1)
Leadership     Hybrid Journal   (Followers: 35)
Legal Ethics     Hybrid Journal   (Followers: 13)
Legon Journal of the Humanities     Full-text available via subscription  
Letras : Órgano de la Facultad de Letras y Ciencias Huamans     Open Access   (Followers: 1)
Literary and Linguistic Computing     Hybrid Journal   (Followers: 5)
Litnet Akademies : 'n Joernaal vir die Geesteswetenskappe, Natuurwetenskappe, Regte en Godsdienswetenskappe     Open Access  
Lwati : A Journal of Contemporary Research     Full-text available via subscription   (Followers: 1)
Measurement     Hybrid Journal   (Followers: 2)
Medical Humanities     Full-text available via subscription   (Followers: 21)
Medieval Encounters     Hybrid Journal   (Followers: 7)
Médiévales     Open Access   (Followers: 3)
Mélanges de la Casa de Velázquez     Partially Free  
Memory Studies     Hybrid Journal   (Followers: 33)
Mens : revue d'histoire intellectuelle et culturelle     Full-text available via subscription  
Messages, Sages and Ages     Open Access  
Mind and Matter     Full-text available via subscription   (Followers: 3)
Mneme - Revista de Humanidades     Open Access   (Followers: 1)

        1 2     

Journal Cover Journal of Bioethical Inquiry
  [SJR: 0.396]   [H-I: 13]   [3 followers]  Follow
    
   Hybrid Journal Hybrid journal (It can contain Open Access articles)
   ISSN (Print) 1872-4353 - ISSN (Online) 1176-7529
   Published by Springer-Verlag Homepage  [2350 journals]
  • Correction to: Predictive Psychiatric Genetic Testing in Minors: An
           Exploration of the Non-Medical Benefits
    • Authors: Arianna Manzini; Danya F. Vears
      Pages: 121 - 121
      Abstract: The article [Title], written by [AuthorNames], was originally published electronically on the publisher’s internet portal (currently SpringerLink) on [date of OnlineFirst publication] without open access.
      PubDate: 2018-03-01
      DOI: 10.1007/s11673-018-9851-z
      Issue No: Vol. 15, No. 1 (2018)
       
  • Erratum to: Ethical Considerations of Physician Career Involvement in
           Global Health Work: A Framework
    • Authors: Lawrence Chew Loh; Sae Rom Chae; Jennifer E. Heckman; Daniel S. Rhee
      Pages: 167 - 167
      PubDate: 2018-03-01
      DOI: 10.1007/s11673-015-9633-9
      Issue No: Vol. 15, No. 1 (2018)
       
  • Erratum to: AIDS Panic in the Twenty-First Century: The Tenuous Legal
           Status of HIV-Positive Persons in America
    • Authors: Richard G. Cockerill; Lance Wahlert
      Pages: 169 - 169
      PubDate: 2018-03-01
      DOI: 10.1007/s11673-015-9660-6
      Issue No: Vol. 15, No. 1 (2018)
       
  • Erratum to: AIDS Panic in the Twenty-First Century: The Tenuous Legal
           Status of HIV-Positive Persons in America
    • Authors: Richard G. Cockerill; Lance Wahlert
      Pages: 171 - 171
      PubDate: 2018-03-01
      DOI: 10.1007/s11673-016-9722-4
      Issue No: Vol. 15, No. 1 (2018)
       
  • Erratum to: Inhospitable Healthcare Spaces: Why Diversity Training on
           LGBTQIA Issues Is Not Enough
    • Authors: Megan A. Dean; Elizabeth Victor; Laura Guidry-Grimes
      Pages: 173 - 173
      PubDate: 2018-03-01
      DOI: 10.1007/s11673-016-9745-x
      Issue No: Vol. 15, No. 1 (2018)
       
  • Ethical and Legal Concerns With Nevada’s Brain Death Amendments
    • Authors: Greg Yanke; Mohamed Y. Rady; Joseph L. Verheijde
      Abstract: In early 2017, Nevada amended its Uniform Determination of Death Act (UDDA), in order to clarify the neurologic criteria for the determination of death. The amendments stipulate that a determination of death is a clinical decision that does not require familial consent and that the appropriate standard for determining neurologic death is the American Academy of Neurology’s (AAN) guidelines. Once a physician makes such a determination of death, the Nevada amendments require the withdrawal of life-sustaining treatment within twenty-four hours with limited exceptions. Neurologists have generally supported Nevada’s amendments for clarifying the diagnostic standard and limiting the ability of family members to challenge it. However, it is more appropriate to view the Nevada amendments with concern. Even though the primary purpose of the UDDA is to ensure that all functions of a person’s entire brain have ceased, the AAN guidelines do not accurately assess this. In addition, by characterizing the determination of death as solely a clinical decision, the Nevada legislature has improperly ignored the doctrine of informed consent, as well as the beliefs of particular faiths and cultures that reject brain death. Rather than resolving controversies regarding brain death determinations, the Nevada amendments may instead instigate numerous constitutional challenges.
      PubDate: 2018-04-17
      DOI: 10.1007/s11673-018-9852-y
       
  • The Beneficence of Hope: Findings from a Qualitative Study with Gout and
           Diabetes Patients
    • Authors: Isabelle Wienand; Milenko Rakic; David Shaw; Bernice Elger
      Abstract: This paper explores the importance of hope as a determining factor for patients to participate in first-in-human trials for synthetic biology therapies. This paper focuses on different aspects of hope in the context of human health and well-being and explores the varieties of hope expressed by patients. The research findings are based on interview data collected from stable gout and diabetes patients. Three concepts of hope have emerged from the interviews: hope as certainty (H1); hope as reflective uncertainty (H2); hope as self-therapy (H3). The purpose of the paper is twofold. First, it aims to underline the significance of hope in patients’ medical decision-making, as well as the beneficence of hope for patients’ well-being, and for progress in research. Second, it shows how philosophical investigations—in particular Descartes—explore the phenomenon of hope and provide medical empirical research with profitable insights and tools.
      PubDate: 2018-04-16
      DOI: 10.1007/s11673-018-9853-x
       
  • Beyond Compliance Checking: A Situated Approach to Visual Research Ethics
    • Authors: Caroline Lenette; Jessica R. Botfield; Katherine Boydell; Bridget Haire; Christy E. Newman; Anthony B. Zwi
      Abstract: Visual research methods like photography and digital storytelling are increasingly used in health and social sciences research as participatory approaches that benefit participants, researchers, and audiences. Visual methods involve a number of additional ethical considerations such as using identifiable content and ownership of creative outputs. As such, ethics committees should use different assessment frameworks to consider research protocols with visual methods. Here, we outline the limitations of ethics committees in assessing projects with a visual focus and highlight the sparse knowledge on how researchers respond when they encounter ethical challenges in the practice of visual research. We propose a situated approach in relation to visual methodologies that encompasses a negotiated, flexible approach, given that ethical issues usually emerge in relation to the specific contexts of individual research projects. Drawing on available literature and two case studies, we identify and reflect on nuanced ethical implications in visual research, like tensions between aesthetics and research validity. The case studies highlight strategies developed in-situ to address the challenges two researchers encountered when using visual research methods, illustrating that some practice implications are not necessarily addressed using established ethical clearance procedures. A situated approach can ensure that visual research remains ethical, engaging, and rigorous.
      PubDate: 2018-03-19
      DOI: 10.1007/s11673-018-9850-0
       
  • The Voice Is As Mighty As the Pen: Integrating Conversations into Advance
           Care Planning
    • Authors: Kunal Bailoor; Leslie H. Kamil; Ed Goldman; Laura M. Napiewocki; Denise Winiarski; Christian J. Vercler; Andrew G. Shuman
      Abstract: Advance care planning allows patients to articulate preferences for their medical treatment, lifestyle, and surrogate decision-makers in order to anticipate and mitigate their potential loss of decision-making capacity. Written advance directives are often emphasized in this regard. While these directives contain important information, there are several barriers to consider: veracity and accuracy of surrogate decision-makers in making choices consistent with the substituted judgement standard, state-to-state variability in regulations, literacy issues, lack of access to legal resources, lack of understanding of medical options, and cultural disparities. Given these issues, it is vital to increase the use of patient and healthcare provider conversations as an advance care planning tool and to increase integration of such discourse into advance care planning policy as adjuncts and complements to written advance directives. This paper reviews current legislation about written advance directives and dissects how documentation of spoken interactions might be integrated and considered. We discuss specific institutional policy changes required to facilitate implementation. Finally, we explore the ethical issues surrounding the increased usage and recognition of clinician–patient conversations in advance care planning.
      PubDate: 2018-03-17
      DOI: 10.1007/s11673-018-9848-7
       
  • Can the Ethical Best Practice of Shared Decision-Making lead to Moral
           Distress'
    • Authors: Trisha M. Prentice; Lynn Gillam
      Abstract: When healthcare professionals feel constrained from acting in a patient’s best interests, moral distress ensues. The resulting negative sequelae of burnout, poor retention rates, and ultimately poor patient care are well recognized across healthcare providers. Yet an appreciation of how particular disciplines, including physicians, come to be “constrained” in their actions is still lacking. This paper will examine how the application of shared decision-making may contribute to the experience of moral distress for physicians and why such distress may go under-recognized. Appreciation of these dynamics may assist in cross-discipline sensitivity, enabling more constructive dialogue and collaboration.
      PubDate: 2018-03-14
      DOI: 10.1007/s11673-018-9847-8
       
  • Review of the Ethical Issues of a Biomarker-Based Diagnoses in the Early
           Stage of Alzheimer’s Disease
    • Authors: Gwendolien Vanderschaeghe; Kris Dierickx; Rik Vandenberghe
      Abstract: Background: Today, many healthcare or dementia organizations, clinicians, and companies emphasize the importance of detection of Alzheimer’s disease in an early phase. This idea has gained considerable momentum due to the development of biomarkers, the recent FDA and EMA approval of three amyloid tracers, and the failure of a number of recent therapeutic trials conducted in the early dementia phase. On the one hand, an early etiological diagnosis can lead to early and more efficacious intervention. On the other hand, it is questioned how early an etiological diagnosis is beneficial to the patient. Here we consider ethical issues related to the process of biomarker testing and the impact on the diagnostic disclosure to patients with mild cognitive impairment due to prodromal Alzheimer’s disease. Methods: A systematic review of the theoretical bioethics literature was performed by using electronic databases. The review was limited to articles published in English between 2003 and 2016. Results: A total of twenty articles were included in our effort to make an analysis of the ethical challenges. One of the biggest challenges was the uncertainty and the predictive value of the biomarker-based diagnosis where patients can be amyloid positive without full certainty whether or when they will develop symptomatic decline due to Alzheimer’s disease. Another challenge was the tension between the right to know versus the wish not to know, the limited efficacy of currently available treatment options, and the opportunities and consequences after receiving such an early diagnosis. Conclusion: Based on the results and the additional comments in the discussion, several unanswered questions emerged. Therefore, careful consideration of all these ethical issues is required before the disclosure of a biomarker-based diagnosis to the patient with mild cognitive impairment due to Alzheimer’s disease.
      PubDate: 2018-03-12
      DOI: 10.1007/s11673-018-9844-y
       
  • Moving Forward on Consent Practices in Australia
    • Authors: Rebekah E. McWhirter; Lisa Eckstein
      Abstract: Allowing persons to make an informed choice about their participation in research is a pre-eminent ethical and legal requirement. Almost universally, this requirement has been addressed through the provision of written patient information sheets and consent forms. Researchers and others have raised concerns about the extent to which such forms—particularly given their frequent lengthiness and complexity—provide participants with the tools and knowledge necessary for autonomous decision-making. Concerns are especially pronounced for certain participant groups, such as persons with low literacy and Indigenous persons. Multimedia strategies have the potential to usefully supplement current consent practices in Australia; however, information is needed about the need for supplementary consent practices, along with drivers for and barriers against adoption. This study initiates the required evidence base through an audit of informed consent practices for medical research in the Australian state of Tasmania to assess the need for, and current uptake of, supplementary consent strategies. Drivers for and barriers against adoption of multimedia consent practices were explored in detail through interviews with key stakeholders, including researchers, HREC chairs and members, and research participants, including Indigenous participants.
      PubDate: 2018-03-12
      DOI: 10.1007/s11673-018-9843-z
       
  • The Enduring Influence of a Dangerous Narrative: How Scientists Can
           Mitigate the Frankenstein Myth
    • Authors: Peter Nagy; Ruth Wylie; Joey Eschrich; Ed Finn
      Abstract: Reflecting the dangers of irresponsible science and technology, Mary Shelley’s Frankenstein quickly became a mythic story that still feels fresh and relevant in the twenty-first century. The unique framework of the Frankenstein myth has permeated the public discourse about science and knowledge, creating various misconceptions around and negative expectations for scientists and for scientific enterprises more generally. Using the Frankenstein myth as an imaginative tool, we interviewed twelve scientists to explore how this science narrative shapes their views and perceptions of science. Our results yielded two main conclusions. First, the Frankenstein myth may help scientists identify popular concerns about their work and offer a framework for constructing a more positive narrative. Second, finding optimistic science narratives may allow scientists to build a better relationship with the public. We argue that by showing the ethical principles and social dimensions of their work, scientists could replace a negative Frankenstein narrative with a more optimistic one.
      PubDate: 2018-03-10
      DOI: 10.1007/s11673-018-9846-9
       
  • Family Resemblances: Human Reproductive Cloning as an Example for
           Reconsidering the Mutual Relationships between Bioethics and Science
           Fiction
    • Authors: Solveig L. Hansen
      Abstract: In the traditions of narrative ethics and casuistry, stories have a well-established role. Specifically, illness narratives provide insight into patients’ perspectives and histories. However, because they tend to see fiction as an aesthetic endeavour, practitioners in these traditions often do not realize that fictional stories are valuable moral sources of their own. In this paper I employ two arguments to show the mutual relationship between bioethics and fiction, specifically, science fiction. First, both discourses use imagination to set a scene and determine a perspective. Second, bioethics and science fiction share the family resemblance of expressing moral beliefs. I then consider how understanding bioethics and science fiction as interrelated discourses can be the basis of a methodology for inquiry into relational autonomy in the context of biotechnologies and medicine. As an example of this methodology, I analyse Fay Weldon’s novel The Cloning of Joanna May (1989).
      PubDate: 2018-03-08
      DOI: 10.1007/s11673-018-9842-0
       
  • A Morally Permissible Moral Mistake' Reinterpreting a Thought
           Experiment as Proof of Concept
    • Authors: Nathan Emmerich; Bert Gordjin
      Abstract: This paper takes the philosophical notion of suberogatory acts or morally permissible moral mistakes and, via a reinterpretation of a thought experiment from the medical ethics literature, offers an initial demonstration of their relevance to the field of medical ethics. That is, at least in regards to this case, we demonstrate that the concept of morally permissible moral mistakes has a bearing on medical decision-making. We therefore suggest that these concepts may have broader importance for the discourse on medical ethics and should receive fuller consideration by those working the field. The focus of the discussion we present is on a particular thought experiment originally presented by Sulmasy and Sugarman. Their case formed the basis of an exchange about the moral equivalence of withdrawing and withholding life-saving treatment. The analysis Sulmasy and Sugarman set out is significant because, contrary to common bioethical opinion, it implies that the difference between withdrawing and withholding life-saving treatment holds, rather than lacks, moral significance. Following a brief discussion of rejoinders to Sulmasy and Sugarman’s article, we present a constructive reinterpretation of the thought experiment, one that draws on the idea of suberogatory acts or “morally permissible moral mistakes.” Our analysis, or so we suggest, accounts for the differing moral intuitions that the case prompts. However, it also calls into question the degree to which this thought experiment can be thought of as illustrating the moral (non)equivalence of withdrawing and withholding life-saving treatment. Rather, we conclude that it primarily illuminates something about the ethical parameters of healthcare when family members, particularly parents, are involved in decision-making.
      PubDate: 2018-03-07
      DOI: 10.1007/s11673-018-9845-x
       
  • Truth Disclosure Practices of Physicians in Jordan
    • Authors: Saif M. Borgan; Justin Z. Amarin; Areej K. Othman; Haya H. Suradi; Yasmeen Z. Qwaider
      Abstract: Disclosure of health information is a sensitive matter, particularly in the context of serious illness. In conservative societies—those which predominate in the developing world—direct truth disclosure undoubtedly presents an ethical conundrum to the modern physician. The aim of this study is to explore the truth disclosure practices of physicians in Jordan, a developing country. In this descriptive, cross-sectional study, 240 physicians were initially selected by stratified random sampling. The sample was drawn from four major hospitals in Amman, Jordan. A closed-ended questionnaire was distributed and completed by self-report. A total of 164 physicians completed the questionnaire. Thirty-seven physicians (23 per cent) usually withheld the diagnosis of “serious illness” from patients, while 127 physicians (77 per cent) usually divulged the information directly. Among the latter, 108 physicians (86 per cent) made exceptions to their disclosure policy. Specialists were more likely to withhold health information (p = 0.04998). Non-disclosure was primarily motivated by request from the patient’s family (seventy-one participants, 54 per cent). In twenty cases (15 per cent), non-disclosure was undertaken independently. In conclusion, most respondents opt to disclose the truth; however, the vast majority of these respondents make exceptions. Instances of non-disclosure are primarily motivated by sociocultural constructs.
      PubDate: 2018-01-24
      DOI: 10.1007/s11673-018-9837-x
       
  • Law as Clinical Evidence: A New ConstitutiveModel of Medical Education and
           Decision-Making
    • Authors: Malcolm Parker; Lindy Willmott; Ben White; Gail Williams; Colleen Cartwright
      Abstract: Over several decades, ethics and law have been applied to medical education and practice in a way that reflects the continuation during the twentieth century of the strong distinction between facts and values. We explain the development of applied ethics and applied medical law and report selected results that reflect this applied model from an empirical project examining doctors’ decisions on withdrawing/withholding treatment from patients who lack decision-making capacity. The model is critiqued, and an alternative “constitutive” model is supported on the basis that medicine, medical law, and medical ethics exemplify the inevitable entanglement of facts and values. The model requires that ethics and law be taught across the medical education curriculum and integrated with the basic and clinical sciences and that they be perceived as an integral component of medical evidence and practice. Law, in particular, would rank as equal in normative authority to the relevant clinical scientific “facts” of the case, with graduating doctors having as strong a basic command of each category as the other. The normalization of legal knowledge as part of the clinician’s evidence base to be utilized in practice may provide adequate consolation for clinicians who may initially resent further perceived incursions on their traditional independence and discretion.
      PubDate: 2018-01-18
      DOI: 10.1007/s11673-017-9836-3
       
  • Knowing, Anticipating, Even Facilitating but Still not Intending: Another
           Challenge to Double Effect Reasoning
    • Authors: S. Duckett
      Abstract: A recent administrative law decision in Victoria, Australia, applied double effect reasoning in a novel way. Double effect reasoning has hitherto been used to legitimate treatments which may shorten life but where the intent of treatment is pain relief. The situation reviewed by the Victorian tribunal went further, supporting actions where a doctor agrees to provide pentobarbitone (Nembutal) to a patient at some time in the future if the patient feels at that time that his pain is unbearable and he wants to end his life. The offer to provide the drug was described as a palliative treatment in that it gave reassurance and comfort to the patient. Double effect reasoning was extended in this instance to encompass potentially facilitating a patient’s death. This extension further muddies the murky double effect reasoning waters and creates another challenge to this concept.
      PubDate: 2017-12-11
      DOI: 10.1007/s11673-017-9827-4
       
  • Mode 2 Knowledge Production in the Context of Medical Research: A Call for
           Further Clarifications
    • Authors: Hojjat Soofi
      Abstract: The traditional researcher-driven environment of medical knowledge production is losing its dominance with the expansion of, for instance, community-based participatory or participant-led medical research. Over the past few decades, sociologists of science have debated a shift in the production of knowledge from traditional discipline-based (Mode 1) to more socially embedded and transdisciplinary frameworks (Mode 2). Recently, scholars have tried to show the relevance of Mode 2 knowledge production to medical research. However, the existing literature lacks detailed clarifications on how a model of Mode 2 knowledge production can be constructed in the context of medical research. This paper calls for such further clarifications. As a heuristic means, the advocacy for a controversial experimental stem cell therapy (Stamina) is examined. It is discussed that the example cannot be considered a step towards Mode 2 medical knowledge production. Nonetheless, the example brings to the fore some complexities of medical knowledge production that need to be further examined including: (1) the shifting landscape of defining and addressing vulnerability of research participants, (2) the emerging overlap between research and practice, and (3) public health implications of revising the standard notions of quality control and accountability.
      PubDate: 2017-12-11
      DOI: 10.1007/s11673-017-9822-9
       
  • Protecting Participants in Thought Experiments: The Role of the Research
           Ethics Committee
    • Authors: David Shaw
      PubDate: 2017-12-08
      DOI: 10.1007/s11673-017-9831-8
       
 
 
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