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Publisher: Elsevier   (Total: 3030 journals)

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Showing 1 - 200 of 3030 Journals sorted alphabetically
AASRI Procedia     Open Access   (Followers: 15)
Academic Pediatrics     Hybrid Journal   (Followers: 20, SJR: 1.402, h-index: 51)
Academic Radiology     Hybrid Journal   (Followers: 16, SJR: 1.008, h-index: 75)
Accident Analysis & Prevention     Partially Free   (Followers: 79, SJR: 1.109, h-index: 94)
Accounting Forum     Hybrid Journal   (Followers: 22, SJR: 0.612, h-index: 27)
Accounting, Organizations and Society     Hybrid Journal   (Followers: 27, SJR: 2.515, h-index: 90)
Achievements in the Life Sciences     Open Access   (Followers: 4)
Acta Anaesthesiologica Taiwanica     Open Access   (Followers: 5, SJR: 0.338, h-index: 19)
Acta Astronautica     Hybrid Journal   (Followers: 303, SJR: 0.726, h-index: 43)
Acta Automatica Sinica     Full-text available via subscription   (Followers: 3)
Acta Biomaterialia     Hybrid Journal   (Followers: 25, SJR: 2.02, h-index: 104)
Acta Colombiana de Cuidado Intensivo     Full-text available via subscription  
Acta de Investigación Psicológica     Open Access   (Followers: 2)
Acta Ecologica Sinica     Open Access   (Followers: 8, SJR: 0.172, h-index: 29)
Acta Haematologica Polonica     Free   (SJR: 0.123, h-index: 8)
Acta Histochemica     Hybrid Journal   (Followers: 3, SJR: 0.604, h-index: 38)
Acta Materialia     Hybrid Journal   (Followers: 196, SJR: 3.683, h-index: 202)
Acta Mathematica Scientia     Full-text available via subscription   (Followers: 5, SJR: 0.615, h-index: 21)
Acta Mechanica Solida Sinica     Full-text available via subscription   (Followers: 9, SJR: 0.442, h-index: 21)
Acta Oecologica     Hybrid Journal   (Followers: 9, SJR: 0.915, h-index: 53)
Acta Otorrinolaringologica (English Edition)     Full-text available via subscription   (Followers: 1)
Acta Otorrinolaringológica Española     Full-text available via subscription   (Followers: 3, SJR: 0.311, h-index: 16)
Acta Pharmaceutica Sinica B     Open Access   (Followers: 2)
Acta Poética     Open Access   (Followers: 4)
Acta Psychologica     Hybrid Journal   (Followers: 21, SJR: 1.365, h-index: 73)
Acta Sociológica     Open Access  
Acta Tropica     Hybrid Journal   (Followers: 5, SJR: 1.059, h-index: 77)
Acta Urológica Portuguesa     Open Access  
Actas Dermo-Sifiliograficas     Full-text available via subscription   (Followers: 4)
Actas Dermo-Sifiliográficas (English Edition)     Full-text available via subscription   (Followers: 3)
Actas Urológicas Españolas     Full-text available via subscription   (Followers: 3, SJR: 0.383, h-index: 19)
Actas Urológicas Españolas (English Edition)     Full-text available via subscription   (Followers: 2)
Actualites Pharmaceutiques     Full-text available via subscription   (Followers: 5, SJR: 0.141, h-index: 3)
Actualites Pharmaceutiques Hospitalieres     Full-text available via subscription   (Followers: 4, SJR: 0.112, h-index: 2)
Acupuncture and Related Therapies     Hybrid Journal   (Followers: 4)
Ad Hoc Networks     Hybrid Journal   (Followers: 11, SJR: 0.967, h-index: 57)
Addictive Behaviors     Hybrid Journal   (Followers: 15, SJR: 1.514, h-index: 92)
Addictive Behaviors Reports     Open Access   (Followers: 5)
Additive Manufacturing     Hybrid Journal   (Followers: 7, SJR: 1.039, h-index: 5)
Additives for Polymers     Full-text available via subscription   (Followers: 20)
Advanced Drug Delivery Reviews     Hybrid Journal   (Followers: 120, SJR: 5.2, h-index: 222)
Advanced Engineering Informatics     Hybrid Journal   (Followers: 11, SJR: 1.265, h-index: 53)
Advanced Powder Technology     Hybrid Journal   (Followers: 16, SJR: 0.739, h-index: 33)
Advances in Accounting     Hybrid Journal   (Followers: 8, SJR: 0.299, h-index: 15)
Advances in Agronomy     Full-text available via subscription   (Followers: 15, SJR: 2.071, h-index: 82)
Advances in Anesthesia     Full-text available via subscription   (Followers: 24, SJR: 0.169, h-index: 4)
Advances in Antiviral Drug Design     Full-text available via subscription   (Followers: 3)
Advances in Applied Mathematics     Full-text available via subscription   (Followers: 6, SJR: 1.054, h-index: 35)
Advances in Applied Mechanics     Full-text available via subscription   (Followers: 10, SJR: 0.801, h-index: 26)
Advances in Applied Microbiology     Full-text available via subscription   (Followers: 21, SJR: 1.286, h-index: 49)
Advances In Atomic, Molecular, and Optical Physics     Full-text available via subscription   (Followers: 16, SJR: 3.31, h-index: 42)
Advances in Biological Regulation     Hybrid Journal   (Followers: 4, SJR: 2.277, h-index: 43)
Advances in Botanical Research     Full-text available via subscription   (Followers: 3, SJR: 0.619, h-index: 48)
Advances in Cancer Research     Full-text available via subscription   (Followers: 26, SJR: 2.215, h-index: 78)
Advances in Carbohydrate Chemistry and Biochemistry     Full-text available via subscription   (Followers: 9, SJR: 0.9, h-index: 30)
Advances in Catalysis     Full-text available via subscription   (Followers: 5, SJR: 2.139, h-index: 42)
Advances in Cellular and Molecular Biology of Membranes and Organelles     Full-text available via subscription   (Followers: 12)
Advances in Chemical Engineering     Full-text available via subscription   (Followers: 24, SJR: 0.183, h-index: 23)
Advances in Child Development and Behavior     Full-text available via subscription   (Followers: 10, SJR: 0.665, h-index: 29)
Advances in Chronic Kidney Disease     Full-text available via subscription   (Followers: 8, SJR: 1.268, h-index: 45)
Advances in Clinical Chemistry     Full-text available via subscription   (Followers: 28, SJR: 0.938, h-index: 33)
Advances in Colloid and Interface Science     Full-text available via subscription   (Followers: 18, SJR: 2.314, h-index: 130)
Advances in Computers     Full-text available via subscription   (Followers: 16, SJR: 0.223, h-index: 22)
Advances in Developmental Biology     Full-text available via subscription   (Followers: 11)
Advances in Digestive Medicine     Open Access   (Followers: 4)
Advances in DNA Sequence-Specific Agents     Full-text available via subscription   (Followers: 5)
Advances in Drug Research     Full-text available via subscription   (Followers: 22)
Advances in Ecological Research     Full-text available via subscription   (Followers: 39, SJR: 3.25, h-index: 43)
Advances in Engineering Software     Hybrid Journal   (Followers: 25, SJR: 0.486, h-index: 10)
Advances in Experimental Biology     Full-text available via subscription   (Followers: 7)
Advances in Experimental Social Psychology     Full-text available via subscription   (Followers: 38, SJR: 5.465, h-index: 64)
Advances in Exploration Geophysics     Full-text available via subscription   (Followers: 3)
Advances in Fluorine Science     Full-text available via subscription   (Followers: 8)
Advances in Food and Nutrition Research     Full-text available via subscription   (Followers: 41, SJR: 0.674, h-index: 38)
Advances in Fuel Cells     Full-text available via subscription   (Followers: 14)
Advances in Genetics     Full-text available via subscription   (Followers: 15, SJR: 2.558, h-index: 54)
Advances in Genome Biology     Full-text available via subscription   (Followers: 11)
Advances in Geophysics     Full-text available via subscription   (Followers: 6, SJR: 2.325, h-index: 20)
Advances in Heat Transfer     Full-text available via subscription   (Followers: 18, SJR: 0.906, h-index: 24)
Advances in Heterocyclic Chemistry     Full-text available via subscription   (Followers: 8, SJR: 0.497, h-index: 31)
Advances in Human Factors/Ergonomics     Full-text available via subscription   (Followers: 22)
Advances in Imaging and Electron Physics     Full-text available via subscription   (Followers: 2, SJR: 0.396, h-index: 27)
Advances in Immunology     Full-text available via subscription   (Followers: 33, SJR: 4.152, h-index: 85)
Advances in Inorganic Chemistry     Full-text available via subscription   (Followers: 9, SJR: 1.132, h-index: 42)
Advances in Insect Physiology     Full-text available via subscription   (Followers: 3, SJR: 1.274, h-index: 27)
Advances in Integrative Medicine     Hybrid Journal   (Followers: 4)
Advances in Intl. Accounting     Full-text available via subscription   (Followers: 4)
Advances in Life Course Research     Hybrid Journal   (Followers: 7, SJR: 0.764, h-index: 15)
Advances in Lipobiology     Full-text available via subscription   (Followers: 1)
Advances in Magnetic and Optical Resonance     Full-text available via subscription   (Followers: 8)
Advances in Marine Biology     Full-text available via subscription   (Followers: 16, SJR: 1.645, h-index: 45)
Advances in Mathematics     Full-text available via subscription   (Followers: 10, SJR: 3.261, h-index: 65)
Advances in Medical Sciences     Hybrid Journal   (Followers: 5, SJR: 0.489, h-index: 25)
Advances in Medicinal Chemistry     Full-text available via subscription   (Followers: 5)
Advances in Microbial Physiology     Full-text available via subscription   (Followers: 4, SJR: 1.44, h-index: 51)
Advances in Molecular and Cell Biology     Full-text available via subscription   (Followers: 21)
Advances in Molecular and Cellular Endocrinology     Full-text available via subscription   (Followers: 10)
Advances in Molecular Toxicology     Full-text available via subscription   (Followers: 6, SJR: 0.324, h-index: 8)
Advances in Nanoporous Materials     Full-text available via subscription   (Followers: 3)
Advances in Oncobiology     Full-text available via subscription   (Followers: 3)
Advances in Organometallic Chemistry     Full-text available via subscription   (Followers: 15, SJR: 2.885, h-index: 45)
Advances in Parallel Computing     Full-text available via subscription   (Followers: 7, SJR: 0.148, h-index: 11)
Advances in Parasitology     Full-text available via subscription   (Followers: 7, SJR: 2.37, h-index: 73)
Advances in Pediatrics     Full-text available via subscription   (Followers: 20, SJR: 0.4, h-index: 28)
Advances in Pharmaceutical Sciences     Full-text available via subscription   (Followers: 14)
Advances in Pharmacology     Full-text available via subscription   (Followers: 13, SJR: 1.718, h-index: 58)
Advances in Physical Organic Chemistry     Full-text available via subscription   (Followers: 7, SJR: 0.384, h-index: 26)
Advances in Phytomedicine     Full-text available via subscription  
Advances in Planar Lipid Bilayers and Liposomes     Full-text available via subscription   (Followers: 3, SJR: 0.248, h-index: 11)
Advances in Plant Biochemistry and Molecular Biology     Full-text available via subscription   (Followers: 8)
Advances in Plant Pathology     Full-text available via subscription   (Followers: 5)
Advances in Porous Media     Full-text available via subscription   (Followers: 4)
Advances in Protein Chemistry     Full-text available via subscription   (Followers: 18)
Advances in Protein Chemistry and Structural Biology     Full-text available via subscription   (Followers: 17, SJR: 1.5, h-index: 62)
Advances in Psychology     Full-text available via subscription   (Followers: 56)
Advances in Quantum Chemistry     Full-text available via subscription   (Followers: 5, SJR: 0.478, h-index: 32)
Advances in Radiation Oncology     Open Access  
Advances in Small Animal Medicine and Surgery     Hybrid Journal   (Followers: 1, SJR: 0.1, h-index: 2)
Advances in Space Research     Full-text available via subscription   (Followers: 332, SJR: 0.606, h-index: 65)
Advances in Structural Biology     Full-text available via subscription   (Followers: 7)
Advances in Surgery     Full-text available via subscription   (Followers: 6, SJR: 0.823, h-index: 27)
Advances in the Study of Behavior     Full-text available via subscription   (Followers: 28, SJR: 1.321, h-index: 56)
Advances in Veterinary Medicine     Full-text available via subscription   (Followers: 14)
Advances in Veterinary Science and Comparative Medicine     Full-text available via subscription   (Followers: 12)
Advances in Virus Research     Full-text available via subscription   (Followers: 5, SJR: 1.878, h-index: 68)
Advances in Water Resources     Hybrid Journal   (Followers: 42, SJR: 2.408, h-index: 94)
Aeolian Research     Hybrid Journal   (Followers: 5, SJR: 0.973, h-index: 22)
Aerospace Science and Technology     Hybrid Journal   (Followers: 304, SJR: 0.816, h-index: 49)
AEU - Intl. J. of Electronics and Communications     Hybrid Journal   (Followers: 8, SJR: 0.318, h-index: 36)
African J. of Emergency Medicine     Open Access   (Followers: 4, SJR: 0.344, h-index: 6)
Ageing Research Reviews     Hybrid Journal   (Followers: 7, SJR: 3.289, h-index: 78)
Aggression and Violent Behavior     Hybrid Journal   (Followers: 390, SJR: 1.385, h-index: 72)
Agri Gene     Hybrid Journal  
Agricultural and Forest Meteorology     Hybrid Journal   (Followers: 15, SJR: 2.18, h-index: 116)
Agricultural Systems     Hybrid Journal   (Followers: 29, SJR: 1.275, h-index: 74)
Agricultural Water Management     Hybrid Journal   (Followers: 36, SJR: 1.546, h-index: 79)
Agriculture and Agricultural Science Procedia     Open Access  
Agriculture and Natural Resources     Open Access   (Followers: 1)
Agriculture, Ecosystems & Environment     Hybrid Journal   (Followers: 48, SJR: 1.879, h-index: 120)
Ain Shams Engineering J.     Open Access   (Followers: 5, SJR: 0.434, h-index: 14)
Air Medical J.     Hybrid Journal   (Followers: 3, SJR: 0.234, h-index: 18)
AKCE Intl. J. of Graphs and Combinatorics     Open Access   (SJR: 0.285, h-index: 3)
Alcohol     Hybrid Journal   (Followers: 9, SJR: 0.922, h-index: 66)
Alcoholism and Drug Addiction     Open Access   (Followers: 5)
Alergologia Polska : Polish J. of Allergology     Full-text available via subscription   (Followers: 1)
Alexandria Engineering J.     Open Access   (Followers: 1, SJR: 0.436, h-index: 12)
Alexandria J. of Medicine     Open Access  
Algal Research     Partially Free   (Followers: 7, SJR: 2.05, h-index: 20)
Alkaloids: Chemical and Biological Perspectives     Full-text available via subscription   (Followers: 3)
Allergologia et Immunopathologia     Full-text available via subscription   (Followers: 1, SJR: 0.46, h-index: 29)
Allergology Intl.     Open Access   (Followers: 5, SJR: 0.776, h-index: 35)
ALTER - European J. of Disability Research / Revue Européenne de Recherche sur le Handicap     Full-text available via subscription   (Followers: 6, SJR: 0.158, h-index: 9)
Alzheimer's & Dementia     Hybrid Journal   (Followers: 45, SJR: 4.289, h-index: 64)
Alzheimer's & Dementia: Diagnosis, Assessment & Disease Monitoring     Open Access   (Followers: 5)
Alzheimer's & Dementia: Translational Research & Clinical Interventions     Open Access   (Followers: 3)
American Heart J.     Hybrid Journal   (Followers: 45, SJR: 3.157, h-index: 153)
American J. of Cardiology     Hybrid Journal   (Followers: 47, SJR: 2.063, h-index: 186)
American J. of Emergency Medicine     Hybrid Journal   (Followers: 34, SJR: 0.574, h-index: 65)
American J. of Geriatric Pharmacotherapy     Full-text available via subscription   (Followers: 6, SJR: 1.091, h-index: 45)
American J. of Geriatric Psychiatry     Hybrid Journal   (Followers: 14, SJR: 1.653, h-index: 93)
American J. of Human Genetics     Hybrid Journal   (Followers: 32, SJR: 8.769, h-index: 256)
American J. of Infection Control     Hybrid Journal   (Followers: 25, SJR: 1.259, h-index: 81)
American J. of Kidney Diseases     Hybrid Journal   (Followers: 31, SJR: 2.313, h-index: 172)
American J. of Medicine     Hybrid Journal   (Followers: 48, SJR: 2.023, h-index: 189)
American J. of Medicine Supplements     Full-text available via subscription   (Followers: 3)
American J. of Obstetrics and Gynecology     Hybrid Journal   (Followers: 174, SJR: 2.255, h-index: 171)
American J. of Ophthalmology     Hybrid Journal   (Followers: 51, SJR: 2.803, h-index: 148)
American J. of Ophthalmology Case Reports     Open Access   (Followers: 2)
American J. of Orthodontics and Dentofacial Orthopedics     Full-text available via subscription   (Followers: 6, SJR: 1.249, h-index: 88)
American J. of Otolaryngology     Hybrid Journal   (Followers: 22, SJR: 0.59, h-index: 45)
American J. of Pathology     Hybrid Journal   (Followers: 23, SJR: 2.653, h-index: 228)
American J. of Preventive Medicine     Hybrid Journal   (Followers: 21, SJR: 2.764, h-index: 154)
American J. of Surgery     Hybrid Journal   (Followers: 32, SJR: 1.286, h-index: 125)
American J. of the Medical Sciences     Hybrid Journal   (Followers: 13, SJR: 0.653, h-index: 70)
Ampersand : An Intl. J. of General and Applied Linguistics     Open Access   (Followers: 5)
Anaerobe     Hybrid Journal   (Followers: 4, SJR: 1.066, h-index: 51)
Anaesthesia & Intensive Care Medicine     Full-text available via subscription   (Followers: 52, SJR: 0.124, h-index: 9)
Anaesthesia Critical Care & Pain Medicine     Full-text available via subscription   (Followers: 3)
Anales de Cirugia Vascular     Full-text available via subscription  
Anales de Pediatría     Full-text available via subscription   (Followers: 2, SJR: 0.209, h-index: 27)
Anales de Pediatría (English Edition)     Full-text available via subscription  
Anales de Pediatría Continuada     Full-text available via subscription   (SJR: 0.104, h-index: 3)
Analytic Methods in Accident Research     Hybrid Journal   (Followers: 2, SJR: 2.577, h-index: 7)
Analytica Chimica Acta     Hybrid Journal   (Followers: 38, SJR: 1.548, h-index: 152)
Analytical Biochemistry     Hybrid Journal   (Followers: 154, SJR: 0.725, h-index: 154)
Analytical Chemistry Research     Open Access   (Followers: 7, SJR: 0.18, h-index: 2)
Analytical Spectroscopy Library     Full-text available via subscription   (Followers: 10)
Anesthésie & Réanimation     Full-text available via subscription  
Anesthesiology Clinics     Full-text available via subscription   (Followers: 21, SJR: 0.421, h-index: 40)
Angiología     Full-text available via subscription   (SJR: 0.124, h-index: 9)
Angiologia e Cirurgia Vascular     Open Access  
Animal Behaviour     Hybrid Journal   (Followers: 143, SJR: 1.907, h-index: 126)
Animal Feed Science and Technology     Hybrid Journal   (Followers: 5, SJR: 1.151, h-index: 83)
Animal Reproduction Science     Hybrid Journal   (Followers: 5, SJR: 0.711, h-index: 78)
Annales d'Endocrinologie     Full-text available via subscription   (SJR: 0.394, h-index: 30)
Annales d'Urologie     Full-text available via subscription  
Annales de Cardiologie et d'Angéiologie     Full-text available via subscription   (SJR: 0.177, h-index: 13)
Annales de Chirurgie de la Main et du Membre Supérieur     Full-text available via subscription  
Annales de Chirurgie Plastique Esthétique     Full-text available via subscription   (Followers: 2, SJR: 0.354, h-index: 22)
Annales de Chirurgie Vasculaire     Full-text available via subscription   (Followers: 1)

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Journal Cover ALTER - European Journal of Disability Research / Revue Européenne de Recherche sur le Handicap
  [SJR: 0.158]   [H-I: 9]   [6 followers]  Follow
    
   Full-text available via subscription Subscription journal  (Not entitled to full-text)
   ISSN (Print) 1875-0672
   Published by Elsevier Homepage  [3030 journals]
  • Le care dans l’éducation préscolaire, S. Rayna, G. Brougère (Eds.).
           P.I.E. Peter Lang, Bruxelles (2015), ISBN: 978-2-87574-314-5
    • Authors: Plaisance
      Abstract: Publication date: Available online 5 April 2017
      Source:ALTER - European Journal of Disability Research / Revue Européenne de Recherche sur le Handicap
      Author(s): Éric Plaisance


      PubDate: 2017-04-11T11:45:18Z
       
  • Transformer le handicap. Au fil des expériences de vie, A.-L. Chabert.
           Éditions Érès (2017)
    • Authors: Henri-Jacques Stiker
      Abstract: Publication date: Available online 1 April 2017
      Source:ALTER - European Journal of Disability Research / Revue Européenne de Recherche sur le Handicap
      Author(s): Henri-Jacques Stiker


      PubDate: 2017-04-11T11:45:18Z
       
  • Medical selection upon hiring and the applicant's right to lie about his
           health status: A comparative study of French and Quebec Law
    • Authors: Sophie Fantoni-Quinton; Anne-Marie Laflamme
      Abstract: Publication date: Available online 24 March 2017
      Source:ALTER - European Journal of Disability Research / Revue Européenne de Recherche sur le Handicap
      Author(s): Sophie Fantoni-Quinton, Anne-Marie Laflamme
      As democracies respecting human rights, France and Quebec both prohibit discrimination in hiring on the grounds of disabilities. On the other hand, businesses wish to select the most effective job applicants possible in light of the physical and psychological demands of the job. In order to avoid being eliminated from the selection process, applicants may be tempted to hide or even lie about their health status. Consequently, the law has been put to the test, seeking a delicate balance regarding the consequences of applicants’ silence or false declarations concerning their health status. The legal consequences of this situation have been viewed differently in France and Quebec. In Quebec, contractual synallagmatic obligations appear to take precedence over rules limiting the collection of discriminatory information, allowing for a selection that is nevertheless prohibited by the laws protecting human rights. By contrast, in France, the employer has no right to intrude in matters of worker health and the withholding of information or even lies on the part of applicants can only rarely be used to justify a dismissal. This interpretation poses great challenges in view of the “safety obligation of result” that is imposed on the French employer. Through a comparative analysis of French and Quebec positive law, this paper explores the limits of the employer's ability to investigate an applicant's health during the hiring process. It then turns to the question of the right to lie as a way to avoid being discriminated against on the basis of disability and the consequences of this right on the employment relationship.

      PubDate: 2017-04-11T11:45:18Z
      DOI: 10.1016/j.alter.2017.03.001
       
  • L’aura de la déficience, A. Blanc. Éditions Presses universitaires de
           Grenoble, Collection Handicap Vieillissement Société (2016)
    • Authors: Henri-Jacques Stiker
      Abstract: Publication date: Available online 15 March 2017
      Source:ALTER - European Journal of Disability Research / Revue Européenne de Recherche sur le Handicap
      Author(s): Henri-Jacques Stiker


      PubDate: 2017-04-11T11:45:18Z
      DOI: 10.1016/j.alter.2017.02.001
       
  • Les coûts du handicap au Québec : que font les ménages et comment les
           soutenir équitablement ?
    • Authors: Lucie Dumais; Marie-Noëlle Ducharme
      Abstract: Publication date: Available online 6 March 2017
      Source:ALTER - European Journal of Disability Research / Revue Européenne de Recherche sur le Handicap
      Author(s): Lucie Dumais, Marie-Noëlle Ducharme
      Le présent article présente les résultats d’une enquête sur les coûts du handicap au Québec et aborde certains enjeux de politique sociale. Il tient compte d’une diversité d’habitudes de vie, de types d’incapacités et de ménages. Trois domaines de dépenses sont souvent rapportés : l’habitation, les soins de santé et les déplacements. Des facteurs de variation entre les ménages ressortent aussi fortement, comme la classe de revenus, la composition de la famille et le type d’incapacité. Sur le plan conceptuel, l’article met en relief la distinction entre les coûts supplémentaires généraux et spécifiques, révélatrice de la très grande gamme de coûts du handicap et des effets du dispositif étatique de compensation et de soutien des personnes. This article presents the findings of a research about disability costs conducted in the province of Quebec, Canada. It also addresses issues related to social policy. Our findings encompass a wide variety of life activities experienced by different categories of disabled people and their families. Using this qualitative framework, we surveyed over two hundreds types of expenses, but three domains came out strongly: housing, health or personal care, and transportation. Disability costs vary according to types of disability but also relate to socioeconomic status and family configuration. Disability costs, general or specific, are good indicators of special needs and may be useful to design social programs, but they underestimate “deprivation” amongst the poorest. Overall, they underline the limitations of our current social security system and appeals for a new regime of solidarity in order to attain equality.

      PubDate: 2017-03-08T18:56:12Z
      DOI: 10.1016/j.alter.2016.10.001
       
  • From the monstrous to the human
    • Authors: Hannah Davis Taïeb
      Abstract: Publication date: Available online 6 February 2017
      Source:ALTER - European Journal of Disability Research / Revue Européenne de Recherche sur le Handicap
      Author(s): Hannah Davis Taïeb


      PubDate: 2017-02-10T16:53:45Z
      DOI: 10.1016/j.alter.2016.12.006
       
  • Du monstrueux à l’humain
    • Authors: Hannah Davis Taïeb
      Abstract: Publication date: Available online 6 February 2017
      Source:ALTER - European Journal of Disability Research / Revue Européenne de Recherche sur le Handicap
      Author(s): Hannah Davis Taïeb


      PubDate: 2017-02-10T16:53:45Z
      DOI: 10.1016/j.alter.2016.12.004
       
  • Et le monstre rêva qu’il était un homme
    • Authors: Simone Korff-Sausse
      Abstract: Publication date: Available online 3 February 2017
      Source:ALTER - European Journal of Disability Research / Revue Européenne de Recherche sur le Handicap
      Author(s): Simone Korff-Sausse
      Le handicap évoque toujours une image de monstruosité. L’auteur se propose d’étudier comment les représentations du monstrueux et du handicap ont évolué. Le monstrueux, à l’ère moderne, se situe dans une relation de réciprocité qui fonde une autre manière de concevoir l’altérité. Une personne monstrueuse est un miroir dans lequel l’homme contemporain pourra reconnaître un semblable. L’auteur fait l’hypothèse qu’actuellement le monstrueux n’exclut pas la subjectivité. Cette hypothèse sera étayée par plusieurs exemples, issus de la littérature (Kenzaburô Oe, Richard III), la mythologie (Le Minotaure) et la clinique (un enfant de quatre ans atteint d’une maladie génétique qui provoque une dysmorphie faciale). La définition du monstre est d’être sans semblable et sans descendance. Dans le domaine du handicap, cela correspond à trois représentations inconscientes collectives : une filiation fautive, une transmission dangereuse et une procréation interdite. La monstruosité soulève la question de l’intériorité et de l’apparence : le monstre physique est-il un monstre moral ? Le monstre peut-il prendre conscience de sa monstruosité ? Et si oui, selon quels processus psychiques, en rapport avec le regard de l’autre. Disability always evokes an image of monstrosity. The author proposes to study how representations of the monstrous and of disability have evolved. The monstrous, in the modern era, is situated in a relationship of reciprocity that founds another way to conceive of alterity. A monstrous person is a mirror in which contemporary man might be able to recognize a fellow creature. The author makes the hypothesis that the monstrous does not preclude subjectivity. This hypothesis is backed up with several examples, from literature (Kenzaburô Oe, Richard III), mythology (the Minotaur) and clinical cases (a four-year-old child suffering from a genetic disease causing facial deformation). The definition of the monster is to be without fellow creatures and without descendants. In terms of disability, this corresponds to three unconscious collective representations: faulty filiation, dangerous transmission and forbidden procreation. Monstrosity raises the question of interiority and appearance: is the physical monster a moral monster? Can the monster become conscious of his monstrosity? And if so, through what psychic processes, in relation with the gaze of the other?

      PubDate: 2017-02-05T16:08:48Z
      DOI: 10.1016/j.alter.2016.12.002
       
  • Malformation du visage et défiguration : prise en charge psychologique
           dans la clinique de la monstruosité faciale
    • Authors: Caroline Demeule
      Abstract: Publication date: Available online 1 February 2017
      Source:ALTER - European Journal of Disability Research / Revue Européenne de Recherche sur le Handicap
      Author(s): Caroline Demeule
      Le visage représente symboliquement le support de l’identité. Dans un service de chirurgie maxillo-faciale, les visages malformés et défigurés constituent une clinique de la monstruosité faciale. Fréquemment verbalisée, la référence à la monstruosité apparaît comme une évidence et partage avec la difformité faciale ses caractéristiques principales : archaïsme, démesure, paradoxe et hybridité. La catégorie du monstrueux éclaire les processus psychiques pris au cœur de la difformité faciale, où la subjectivité se retrouve souvent mise à mal. Pour s’approprier ce visage monstrueux, les patients peuvent mettre en œuvre leurs capacités créatrices à travers des théories somatiques infantiles où émergent des processus archaïques accueillis dans l’écoute clinique. Dans cette clinique si particulière, la dimension spéculaire est prégnante, et le psychologue doit alors repenser sa posture clinique : si la rencontre avec le sujet constitue l’occasion d’une mise en mots du visage monstrueux, le clinicien remplit aussi un rôle de miroir symbolique. Des cas cliniques illustrent la pertinence de ce double mouvement dans l’espace psychothérapeutique, s’appuyant sur le langage et le regard, pour soutenir un travail de (re)subjectivation et de reconstruction narcissique, et accompagner le sujet vers une (ré)appropriation de son visage. The face symbolically represents the underpinning of identity. In a department of maxillofacial surgery, deformed and disfigured faces make up a clinical practice of facial monstrosity. Frequently verbalized, the reference to monstrosity seems self-evident and the notion of the monster shares with facial deformity its principal characteristics: archaism, excess, paradox and hybridity. The category of the monster illuminates the psychic processes at the heart of facial deformity, where subjectivity is often in difficulty. To appropriate this monstrous face, patients may bring to bear their creative capacities through infantile somatic theories from which archaic processes emerge which are received in therapeutic listening. In this very particular therapeutic situation, the specular dimension is significant, and the psychologist must thus rethink his or her clinical posture; if the encounter with the subject constitutes the occasion for the articulation in words of the monstrous face, the clinician also plays the role of a symbolic mirror. Clinical case studies here illustrate the pertinence of this double movement in psychotherapeutic space, based on language and gaze, to support the work of (re)subjectivation and narcissistic reconstruction, and to accompany the subject towards the (re)appropriation of his or her face.

      PubDate: 2017-02-05T16:08:48Z
      DOI: 10.1016/j.alter.2016.10.004
       
  • Julia Pastrana, the “extraordinary lady”
    • Authors: Rosemarie Garland-Thomson
      Abstract: Publication date: Available online 30 January 2017
      Source:ALTER - European Journal of Disability Research / Revue Européenne de Recherche sur le Handicap
      Author(s): Rosemarie Garland-Thomson
      Julia Pastrana was a Mexican woman whose “extraordinary” appearance led to her being displayed throughout Europe and America, first as a freak, then as a specimen. Recently, she was reburied in her birthplace. This essay considers the ways that Pastrana's display both reinforces and challenges the lines between the self and other, human and non-human, ordinary and extraordinary that such spectacles rely upon. It further suggests how discursive systems, such as race, gender, normativity, and humanness intertwine in the social practices that constitute them. By analyzing how Pastrana's display and recent repatriation and burial in Sinaloa invest her body with different meanings, this essay traces more complexly the processes that socially mark human bodies in order to reveal and explicate the inner workings of representational systems, such as race, gender, ethnicity, and disability.

      PubDate: 2017-02-05T16:08:48Z
      DOI: 10.1016/j.alter.2016.12.001
       
  • Le déni de déviance. La gestion des interactions tendues par les
           porteurs de handicap visible
    • Authors: Fred Davis
      Abstract: Publication date: Available online 26 January 2017
      Source:ALTER - European Journal of Disability Research / Revue Européenne de Recherche sur le Handicap
      Author(s): Fred Davis


      PubDate: 2017-01-29T15:00:46Z
      DOI: 10.1016/j.alter.2016.09.002
       
  • Handicap visible : de la reconnaissance du stigmate et du déni de
           déviance à la revendication de droits
    • Authors: Daniel
      Abstract: Publication date: Available online 23 January 2017
      Source:ALTER - European Journal of Disability Research / Revue Européenne de Recherche sur le Handicap
      Author(s): Daniel Cefaï
      Cet article propose un autre cadrage de la relation des disability studies à la sociologie du handicap comme « déviance » ou « stigmate ». On montrera leur héritage direct du travail de dénaturalisation engagé par les chercheurs qui, à partir de la fin des années 1950, ont dynamité cette notion de « déviance » et ont enquêté de façon nouvelle sur la délinquance, la toxicomanie, la folie, l’homosexualité… Eliot Freidson (1966) a déplacé le regard du « handicapé », traité comme un malade à réhabiliter, vers les « faiseurs de handicap » : quelles sont les juridictions professionnelles des spécialistes habilités à l’identifier et à le soigner et dans quelles arènes publiques le handicap s’est-il institutionnalisé en problème social ? Fred Davis (1961) a, de son côté, exploré une autre voie, proche de celle d’Erving Goffman (1963) : comment dans des situations de coprésence entre personnes avec et sans handicap visible, le stigmate est-il coproduit, réifié ou neutralisé ? Une troisième voie, celle de la revendication politique, portée par le disability rights movement, a été retravaillée par John Kitsuse en 1980 avec sa notion de « déviance tertiaire ». Tout en assumant l’héritage des années 1960, ce concept prend acte de la capacité d’agir des personnes en situation de handicap, de revendiquer des droits, d’inventer une expérience collective et d’aménager des environnements de vie. This article brings new insight into the relationship between disability studies and the sociology of handicap as “deviance” and “stigma”. Disability studies grew up in a tight connection with the disability rights movement, but one of their roots was the new way of conceiving delinquency, addiction, madness, homosexuality, and handicap, which emerged in the 1960s. Eliot Freidson (1966) shifted the attention from the “disabled”, treated as patients to rehabilitate, to “handicap makers”. The relevant question was then: which are the professional jurisdictions of specialists appointed to “cure” disabled people? In which organizational arenas is disability institutionalized as a problem to be solved? Fred Davis (1961), for his part, explored another dimension, closer to Erving Goffman (1963): how are stigma co-produced, reified, or denied in encounter situations between people with and without disabilities? More specifically, how is the “visible handicap” handled in such face-to-face interactions? A third way has been worked by John Kitsuse in 1980 with his concept of “tertiary deviance.” In line with the 1960s sociology of deviance as “secondary deviation”, this concept of “tertiary deviance” recognizes the ability of persons with disabilities to act, to claim rights, to invent collective identities, and to experience and create new life ecologies.

      PubDate: 2017-01-29T15:00:46Z
       
  • Agent orange, monsters, and we humans
    • Authors: Susan Schweik
      Abstract: Publication date: Available online 18 January 2017
      Source:ALTER - European Journal of Disability Research / Revue Européenne de Recherche sur le Handicap
      Author(s): Susan Schweik
      This paper recounts the work of the American artist collective Yelling Clinic, a group of artists who have direct experience of disability and war, in collaboration with Vietnamese disabled artists and activists in Vietnam in 2011. Focusing on the toxic ecological effects of the herbicide Agent Orange, the essay explores the ethics of Agent Orange representation, focusing on a series of art pieces (and the collaborations that produced them) that work not as documentary evidence of the ravages of dioxin, not as an archive of monstrosity, but as vibrant expressions of and within a complex nexus of disability arts cultures.

      PubDate: 2017-01-23T14:08:43Z
      DOI: 10.1016/j.alter.2016.12.005
       
  • Close encounters: “Monstrous” bodies and literary knowledge in
           early modern France
    • Authors: Timothy Hampton
      Abstract: Publication date: Available online 13 January 2017
      Source:ALTER - European Journal of Disability Research / Revue Européenne de Recherche sur le Handicap
      Author(s): Timothy Hampton
      In this essay, I study a series of moments from early modern literature in which characters confront “monstrous” bodies or abnormal bodies. I study how these scenes raise issues about the reading of the non-normal body. I trace the ways in which the interpretation of the non-normal body poses problems for fiction, and for the relationship between epistemological authority, on the one hand, and the knowledge generated by literature, on the other hand. I suggest that one way to understand the enduring appeal of the “monstrous” is as a motivating factor that generates innovation, both thematic and formal, in art. I argue that the “monstrous” both motivates literary originality and threatens the categories through which literary authority is articulated. My general argument is that we cannot understand the history of the monstrous without attention to the history of literature – and vice versa.

      PubDate: 2017-01-16T13:16:44Z
      DOI: 10.1016/j.alter.2016.12.003
       
  • Acknowledgment to reviewers
    • Abstract: Publication date: Available online 11 January 2017
      Source:ALTER - European Journal of Disability Research / Revue Européenne de Recherche sur le Handicap


      PubDate: 2017-01-16T13:16:44Z
       
  • Vivre avec le handicap. L’expérience de l’incapacité motrice
           majeure, A. Beyrie. Presses Universitaires de Rennes (2015)
    • Authors: Berthou
      Abstract: Publication date: Available online 29 December 2016
      Source:ALTER - European Journal of Disability Research / Revue Européenne de Recherche sur le Handicap
      Author(s): Aurélien Berthou


      PubDate: 2017-01-09T13:02:25Z
       
  • Barriers and facilitators to societal participation of people with
           disabilities: A scoping review of studies concerning European countries
    • Authors: Elisabeth Hästbacka; Mikael Nygård; Fredrica Nyqvist
      Pages: 201 - 220
      Abstract: Publication date: Available online 7 April 2016
      Source:ALTER - European Journal of Disability Research / Revue Européenne de Recherche sur le Handicap
      Author(s): Elisabeth Hästbacka, Mikael Nygård, Fredrica Nyqvist
      The aim of this scoping review is to explore previous scientific studies relating to the scholarly understanding of societal participation of people with disabilities. Six relevant databases within social science were searched using societal participation of people with disabilities, or different combinations thereof, as search words. The criteria for inclusion were: working-age people with disabilities; societal participation; accounting for facilitators or/and barriers of participation; geographical focus on or link to Europe, peer-reviewed studies using quantitative or qualitative methods published in English between January 2012 and December 2013. Thirty-two studies met these inclusion criteria. Each study was analysed relating to four measures: identity of the participator group, type of participation; type of facilitators; type of barriers. The findings show that there is a dominating focus on labour market participation and that societal participation was studied mostly concerning disabled people in general instead of any specific group. The main barriers identified were related to financial factors, attitudes, health issues and unemployment. The most frequently identified facilitators were related to legislation and disability policies, as well as to support from people in close contact with disabled people, attitudes in society and employment opportunities for people with disabilities.

      PubDate: 2016-04-09T14:36:04Z
      DOI: 10.1016/j.alter.2016.02.002
      Issue No: Vol. 10, No. 3 (2016)
       
  • Comparison of Turkish Disability Policy, the United Nations Convention on
           the Rights of Persons with Disabilities, and the core concepts of U.S.
           disability policy
    • Authors: Bekir Fatih Meral; H. Rutherford Turnbull
      Pages: 221 - 235
      Abstract: Publication date: Available online 15 March 2016
      Source:ALTER - European Journal of Disability Research / Revue Européenne de Recherche sur le Handicap
      Author(s): Bekir Fatih Meral, H. Rutherford Turnbull
      This article compares Turkey's Constitution and its Disabled Persons Act with the United Nations Convention on the Rights of Persons with Disabilities (UNCRPD) and the core concepts of United States (U.S.) disability policy. Conclusions are that Turkey's Constitution and statutes are remarkably congruent with the UNCRPD and the core concepts. They are not, however, identical. This fact suggests that Turkey can still improve its statutes to reflect more closely the UNCRPD and core concepts. The review of these policy documents suggests that there are other steps Turkey can take to improve disability policy and its implementation. They are to amend Turkey's laws, determine the status of individuals and families affected by disability, and pursue vigorous implementation of their rights.

      PubDate: 2016-03-19T04:24:37Z
      DOI: 10.1016/j.alter.2016.02.001
      Issue No: Vol. 10, No. 3 (2016)
       
  • Exploring the social lives of young adults with disabilities
    • Authors: Cornelia Schneider; Brenda Hattie
      Pages: 236 - 247
      Abstract: Publication date: Available online 25 March 2016
      Source:ALTER - European Journal of Disability Research / Revue Européenne de Recherche sur le Handicap
      Author(s): Cornelia Schneider, Brenda Hattie
      This article explores the social lives of young adults with disabilities as they were transitioning from school to adult life. The young adults were former participants of the Access to Community Employment and Education Program (ACEE) in Halifax, Nova Scotia, Canada, a program, which focuses on the transition of young people with disabilities from school and youth to adulthood, employment, and independent living. The data in the article were drawn from a mixed method research project that explored, through a survey and follow-up focus groups and interviews, the impact of the ACEE program and the lived experiences of its alumni in the years after having completed the program. The study highlights the alumni's social lives, their leisure activities and their relationships and the different ways the participants are living their lives in the community several years after having completed the ACEE program. The data shows that the program is playing an important role in creating lasting friendships and a sense of belonging amongst its peers.

      PubDate: 2016-03-28T12:51:17Z
      DOI: 10.1016/j.alter.2016.02.003
      Issue No: Vol. 10, No. 3 (2016)
       
  • Expériences et effets biographiques du sport adapté de haut niveau.
           Étude de trajectoires sportives et professionnelles d’athlètes
           catégorisés comme ayant une déficience intellectuelle
    • Authors: Yann Beldame; Elise Lantz; Anne Marcellini
      Pages: 248 - 262
      Abstract: Publication date: Available online 30 March 2016
      Source:ALTER - European Journal of Disability Research / Revue Européenne de Recherche sur le Handicap
      Author(s): Yann Beldame, Elise Lantz, Anne Marcellini
      Au cours de l’année 2009, deux événements modifièrent l’organisation du sport des personnes dites handicapées mentales et psychiques : d’abord la reconnaissance ministérielle des sportifs d’élite de la Fédération française du sport adapté (FFSA) comme athlètes de haut niveau, ensuite leur réintégration dans le mouvement paralympique. C’est dans un tel contexte que naissent en 2010 des structures d’entraînement appelées « pôles France » destinées aux athlètes de haut niveau de la FFSA. Cet article propose à partir d’une enquête ethnographique de mettre au jour les éventuels infléchissements ou transformations des parcours de vie et de l’identité que peut générer chez des sportifs, catégorisés comme déficients intellectuels, l’entrée dans une carrière de « sportif de haut niveau » et son déroulement. L’expérience de l’intensification, de l’amélioration et de la réussite compétitive de la pratique sportive conduit à l’expression d’une fierté sportive qui, en dehors du monde sportif, reste souvent discrète et concomitante du maintien d’une certaine stigmatisation. Pour la plupart des athlètes, leur expérience au sein du pôle France se traduit par une distanciation vis-à-vis du monde médico-social et par un désir d’inscription et de participation sur la longue durée au sein du sport adapté, démentant ainsi un supposé désir d’inclusion de leur part au sein du monde ordinaire. During year 2009, the organization of sport for people labeled as intellectual or psychic disabled has been modified by two events: elite athletes of the French federation of adapted sport (FFSA) were recognized officially as high-level athletes by the government, then they were reintegrated to the paralympic movement. In this context, in 2010, training structures called “pôle France” were created for the high-level athletes from the FFSA. This article, based on an ethnographic research, offers to update any inflection or changes in life course and identity that can be generated for athletes labeled as intellectually disabled, by joining a career of “high-level sport”. The experience of sport intensification, improvement of success of competitive practice, leads to the expression of a pride that, outside the sport world, is often discreet, and concomitantly some stigma perdure. For most athletes, their experience in the France Center result in a distancing towards medico-social world, and create a desire for participation in adapted sport in long-term, contradicting their supposed desire for inclusion in the ordinary world.

      PubDate: 2016-04-02T13:32:40Z
      DOI: 10.1016/j.alter.2016.03.002
      Issue No: Vol. 10, No. 3 (2016)
       
  • Le problème public de l’autisme dans la presse française
    • Authors: Florence Vallade
      Pages: 263 - 276
      Abstract: Publication date: Available online 24 June 2016
      Source:ALTER - European Journal of Disability Research / Revue Européenne de Recherche sur le Handicap
      Author(s): Florence Vallade
      Cet article se propose d’étudier les représentations de l’autisme dans la presse française au prisme du cadre théorique des problèmes publics (Gusfield, 1981/2009). Le corpus Définir, Compter, Polémiquer est composé de 326 articles de la presse française régionale et nationale (1988–2008), sélectionnés à partir de la base de données Europresse. Il ressort de cette analyse de presse l’utilisation récurrente d’un fonds discursif commun (Lahire, 1999) composé des thèmes suivants : le flou des définitions, l’augmentation exponentielle des chiffres, le parent bouc émissaire, la corrélation stratégies comportementales/causes biologiques/handicap (au sens de déficit), la rhétorique de l’efficacité ainsi que le retard de la France. Ce fonds discursif commun de revendications est directement inspiré par les écrits de Schopler. Les entrepreneurs de morale (Becker, 1963/1985) partent en croisade à la fois contre le modèle de type psychanalytique et pour la promotion d’un modèle de type comportemental symbolisé par les solutions TEACCH et ABA et portent le problème sur la scène médiatique et politique. This article aims to study the representations of autism in the French press to the prism of the theoretical framework of public problems (Gusfield, 1981/2009). The corpus Defining, Counting, Arguing is composed of 326 articles of the regional and national French press (1988–2008), selected from the Europresse database. According to that press analysis, recurrent use of a common discursive background includes the following topics: the fuzziness of definitions, the sharp increase in numbers, the parent's scapegoating, the correlation behavioral strategies/biological causes/handicap (in a deficit sense), the rhetoric of efficiency and of France's backwardness. This common discursive background (Lahire, 1999) of claims is directly inspired by the writings of Schopler. The morality promoters (Becker, 1963/1985) simultaneously go on a crusade against the “psychoanalytical model” and for the promotion of a behavioral model represented by the TEACCH and ABA solutions and they carry this fight to the media and political arena.

      PubDate: 2016-07-01T20:01:23Z
      DOI: 10.1016/j.alter.2016.05.001
      Issue No: Vol. 10, No. 3 (2016)
       
  • Repenser le handicap : leçons du passé, questions pour l’avenir.
           Apports et limites du modèle social, de la sociologie des sciences et des
           techniques, de l’éthique du care
    • Authors: Myriam Winance
      Abstract: Publication date: Available online 21 April 2016
      Source:ALTER - European Journal of Disability Research / Revue Européenne de Recherche sur le Handicap
      Author(s): Myriam Winance
      Dans cet article, j’analyse l’une des évolutions des recherches sur le handicap depuis 30 ans : le passage d’une approche individuelle à une approche sociale du handicap. Si actuellement, la majorité des recherches sur le handicap ont « socialisé » le handicap, ou du moins, situent la personne handicapée dans un contexte social, toutes ne le font pas de la même manière, ni à partir des mêmes présupposés. Elles aboutissent à des conceptions différentes de la personne et de la société, à des conceptions différentes du handicap et de la normalité. J’analyse cette évolution en m’intéressant à trois approches du handicap: le modèle social, l’approche de la sociologie des sciences et des techniques, l’éthique du care. Je montre la manière dont chacune, en renouvelant l’analyse du handicap, a été porteuse de transformations pour les personnes handicapées et d’une transformation des formes du « vivre ensemble », de « faire société ». Je montre également les limites de ces approches et propose des pistes de réflexion pour la suite de nos recherches, notamment autour de la question de l’autonomie. Je propose de repenser celle-ci à partir de la notion de « récalcitrance ». In this article, I analyze one evolution in disability research over the past 30 years: the shift from an individual to a social approach to disability. While most disability research has currently “socialized” disability or at the least situates disabled people within a social context, not all do so in the same way nor based on the same assumptions. They lead to different concepts of the person and society and different concepts of disability and normalcy. I analyze this evolution by looking at three approaches to disability: the social model, the approach taken in the sociology of science and technology, and the ethics of care. I show how each, by renewing the analysis of disability, has brought about changes for disabled people and transformed ways of “living together” and “making society”. I also show the limits of these approaches and propose lines of thought for the continuation of our research, notably around the question of autonomy. I propose that we rethink autonomy from the standpoint of the notion of “recalcitrance”.

      PubDate: 2016-04-22T17:51:59Z
      DOI: 10.1016/j.alter.2016.03.008
      Issue No: Vol. 10, No. 2 (2016)
       
  • Fourth Alter conference 2015
    • Authors: Isabelle Ville; Noémie Rapegno
      Pages: 91 - 94
      Abstract: Publication date: Available online 25 April 2016
      Source:ALTER - European Journal of Disability Research / Revue Européenne de Recherche sur le Handicap
      Author(s): Isabelle Ville, Noémie Rapegno


      PubDate: 2016-04-27T18:44:54Z
      DOI: 10.1016/j.alter.2016.03.010
      Issue No: Vol. 10, No. 2 (2016)
       
  • Rethinking disability: Lessons from the past, questions for the future.
           Contributions and limits of the social model, the sociology of science and
           technology, and the ethics of care
    • Authors: Myriam Winance
      Pages: 99 - 110
      Abstract: Publication date: Available online 1 April 2016
      Source:ALTER - European Journal of Disability Research / Revue Européenne de Recherche sur le Handicap
      Author(s): Myriam Winance
      In this article, I analyze one evolution in disability research over the past 30 years: the shift from an individual to a social approach to disability. While most disability research has currently “socialized” disability or at the least situates disabled people within a social context, not all do so in the same way nor based on the same assumptions. They lead to different concepts of the person and society and different concepts of disability and normalcy. I analyze this evolution by looking at three approaches to disability: the social model, the approach taken in the sociology of science and technology, and the ethics of care. I show how each, by renewing the analysis of disability, has brought about changes for disabled people and transformed ways of “living together” and “making society”. I also show the limits of these approaches and propose lines of thought for the continuation of our research, notably around the question of autonomy. I propose that we re-think autonomy from the standpoint of the notion of “recalcitrance”.

      PubDate: 2016-04-02T13:32:40Z
      DOI: 10.1016/j.alter.2016.02.005
      Issue No: Vol. 10, No. 2 (2016)
       
  • Active citizenship for persons with psychosocial disabilities in Sweden
    • Authors: Rafael Lindqvist; Marie Sépulchre
      Pages: 124 - 136
      Abstract: Publication date: Available online 26 April 2016
      Source:ALTER - European Journal of Disability Research / Revue Européenne de Recherche sur le Handicap
      Author(s): Rafael Lindqvist, Marie Sépulchre
      As it is the case in many European countries, psychosocial disabilities have become an important concern in Sweden. Persons with psychosocial disabilities’ experiences of various societal domains such as school, work, family life, leisure activities and contact with welfare agencies need a complex analysis which takes into account both personal and contextual factors. This article draws on 15 interviews with informants with psychosocial disabilities and discusses their experiences and the difficulties that they met during their lives. These experiences are conceptualised with the framework of “active citizenship” developed by Hvinden et al. (2016), which distinguishes three core dimensions of active citizenship: security, influence and autonomy. The empirically grounded article discusses the opportunities and barriers that encourage or hamper persons with psychosocial disabilities to be active citizens in the Swedish welfare state and underlines some of the main challenges that stand in the way of their “full and effective participation in society” (CRPD, article 1).

      PubDate: 2016-04-27T18:44:54Z
      DOI: 10.1016/j.alter.2016.03.004
      Issue No: Vol. 10, No. 2 (2016)
       
  • Out of the shadows: Violence against girls and women with disabilities in
           Portugal
    • Authors: Paula Campos Pinto
      Pages: 137 - 147
      Abstract: Publication date: Available online 26 April 2016
      Source:ALTER - European Journal of Disability Research / Revue Européenne de Recherche sur le Handicap
      Author(s): Paula Campos Pinto
      To live a life free from abuse and violence is a fundamental human right. Yet for many girls and women with disabilities, this remains a difficult goal to achieve. This paper examines the issue of violence against girls and women with disabilities in Portugal, by addressing three key questions: what forms of violence against girls and women with disabilities are more prevalent? How significant is the issue in Portugal? How to ensure the right of girls and women with disabilities to protection against violence? Drawing from 60 semi-structured interviews with women and men with various types of disabilities, the study reveals a high prevalence of situations of abuse among girls and women with disabilities including psychological, physical, sexual, financial and social violence. Results are discussed in light of human rights principles and suggestions are made to develop a research agenda and continue exploring the topic in the near future.

      PubDate: 2016-04-27T18:44:54Z
      DOI: 10.1016/j.alter.2016.03.009
      Issue No: Vol. 10, No. 2 (2016)
       
  • At the crossroads of care and disability: historical variations and
           international perspectives
    • Authors: Aurélie Damamme; Emmanuelle Fillion; Myriam Winance
      Pages: 1 - 4
      Abstract: Publication date: Available online 20 January 2016
      Source:ALTER - European Journal of Disability Research / Revue Européenne de Recherche sur le Handicap
      Author(s): Aurélie Damamme, Emmanuelle Fillion, Myriam Winance


      PubDate: 2016-01-24T18:48:27Z
      DOI: 10.1016/j.alter.2016.01.001
      Issue No: Vol. 10, No. 1 (2016)
       
  • La situation socioéconomique des personnes en situation de handicap au
           Maroc et en Tunisie : inégalités, coût et stigmatisation
    • Authors: Jean-François Trani; Parul Bakhshi; Dominique Lopez; Fiona Gall; Derek Brown
      Abstract: Publication date: Available online 23 November 2016
      Source:ALTER - European Journal of Disability Research / Revue Européenne de Recherche sur le Handicap
      Author(s): Jean-François Trani, Parul Bakhshi, Dominique Lopez, Fiona Gall, Derek Brown
      Deux enquêtes ménages, complétées par des entretiens qualitatifs, ont été menées en 2013 et 2014 au Maroc et en Tunisie, deux pays ayant ratifiés la convention des Nations-Unies relative aux droits des personnes handicapées et résolument engagés dans des politiques innovantes destinées à promouvoir les droits de ces dernières. Ces enquêtes portent sur les inégalités dont font l’objet les personnes en situation de handicap en matière de capabilités, c’est-à-dire les opportunités réelles que possède une personne de vivre la vie qu’elle choisit de vivre. S’appuyant sur le cadre conceptuel des capabilités d’Amartya Sen, les analyses présentées dans cette étude démontrent un important déficit en matière d’éducation, d’emploi et de qualité de la vie liée à la santé – une vision plus restrictive du bien-être que celle proposée par Sen, mais néanmoins intéressante pour comparer deux populations – pour les personnes en situation de handicap par rapport au reste de la population dans ces deux pays. Si la situation s’est améliorée pour la jeune génération comparée à celle de leurs parents, l’accès à l’éducation – qui est un droit pour les enfants en situation de handicap au Maroc comme en Tunisie – reste loin d’être acquis dans les deux pays. De même, l’accès a l’emploi des personnes en situation de handicap reste incertain, dans des emplois plus précaires et a des salaires inférieurs que le reste de la population en âge de travailler. L’exclusion sociale dont sont largement victimes les personnes en situation de handicap – comme le montrent les exemples de l’éducation et de l’emploi – ont un coût considérable en termes de qualité de vie liée à la santé évalué comme étant l’équivalent d’une réduction de 20 et 18ans, respectivement au Maroc et en Tunisie, de l’espérance de vie moyenne des personnes en bonne santé et sans handicap. Les politiques récentes de lutte contre les discriminations et la promotion des droits des personnes en situation de handicap vont dans la bonne direction mais une volonté politique forte est nécessaire pour qu’elles s’inscrivent dans la durée. La société civile a un important rôle à jouer pour maintenir la dynamique actuelle. Two household surveys completed with qualitative interviews were carried out in 2013 and 2014 in Morocco and Tunisia, two countries which ratified the United Nations convention of the rights of persons with disabilities and actively engaged in innovative policies to promote those rights. The two surveys look at inequalities among persons with disabilities in terms of capabilities, i.e. real opportunities a person has to live the life she values. Based on the capability approach of Amartya Sen, analysis presented in this study show an important gap in terms of education, employment and health related quality of life – a somehow more narrow perspective on wellbeing than the one proposed by Sen, but nevertheless interesting to compare two populations – for persons with disabilities compared to the rest of the population in both countries. If the situation seems improved for the new generation compared to their parents’ generation, access to education – which is a right for children with disabilities in Morocco and Tunisia – is far from being secured in both countries. Similarly, access to employment of persons with disabilities remains uncertain, in more precarious jobs and for lower wages than the rest of the working age population. Social exclusion that persons with disabilities face – as shown in the case of education and employment – have a considerable cost in terms of health related quality of life estimated to be the equivalent of a reduction of 20 and 18 years, respectively in Morocco and Tunisia, of the average life expectancy of persons in good health and without a disability. The recent policy against discrimination and for the promotion of the rights of the persons with disabilities are going in the right direction but a strong political will is required for them to become long term. Civil society has an important role to play to keep the current momentum.

      PubDate: 2016-11-29T10:15:52Z
      DOI: 10.1016/j.alter.2016.09.005
       
  • 6e Conférence annuelle d’ALTER 2017, 6th Annual conference of ALTER
           2017, université de Lausanne – Suisse / Switzerland, 6 & 7 juillet
           2017 / 6th & 7th of July 2017
    • Abstract: Publication date: October–December 2016
      Source:ALTER - European Journal of Disability Research / Revue Européenne de Recherche sur le Handicap, Volume 10, Issue 4


      PubDate: 2016-11-29T10:15:52Z
       
  • « Ni fou, ni gogol ! ». Orientation et vie en ITEP, H. Dupont.
           Presses universitaires de Grenoble, Coll. « Handicap, Vieillissement,
           Société » (2016)
    • Authors: Melaine Cervera
      Abstract: Publication date: Available online 20 October 2016
      Source:ALTER - European Journal of Disability Research / Revue Européenne de Recherche sur le Handicap
      Author(s): Melaine Cervera


      PubDate: 2016-10-25T19:12:22Z
       
  • Field testing a draft version of the UNICEF/Washington Group Module on
           child functioning and disability. Background, methodology and preliminary
           findings from Cameroon and India
    • Authors: Islay Mactaggart; Claudia Cappa; Hannah Kuper; Mitchell Loeb; Sarah Polack
      Abstract: Publication date: Available online 17 October 2016
      Source:ALTER - European Journal of Disability Research / Revue Européenne de Recherche sur le Handicap
      Author(s): Islay Mactaggart, Claudia Cappa, Hannah Kuper, Mitchell Loeb, Sarah Polack
      Background Global child disability data are generally non-comparable, comprising different tools, methodologies and disability definitions. UNICEF and The Washington Group on Disability Statistics (WG) have developed a new tool on child functioning and disability to address this need. Aims The aim of this paper is to describe the development of the new module, and to present an independent field test of the draft module in two contrasting settings. Methods UNICEF and the WG developed a parent-reported survey module to identify children aged 2–17 years with functional difficulties in population-based surveys through: review of existing documentation, consultation with experts and cognitive testing. A field test of the draft module was undertaken in Cameroon and India within a population-based survey. Functional limitation in each of 14 domains was scored on a scale comprising “no difficulty”, “some difficulty”, “a lot of difficulty” and “cannot do”. Results In all, 1713 children in Cameroon and 1101 children in India were assessed. Sixty-four percent of children in Cameroon and 35% of children in India were reported to have at least some difficulty in one or more domain. The proportion reported to have either “a lot of difficulty” or “cannot do” was 9% in Cameroon and 4% in India. There were no significant differences in reported functional difficulties by sex but children aged 2–4 were reported to have fewer functional difficulties of any kind compared with older children in both countries. Conclusion Comparable estimates were generated between the two countries, providing an initial overview of the tool's outputs. The continued development of this standardised questionnaire for the collection of robust and reliable data on child disability is essential.

      PubDate: 2016-10-25T19:12:22Z
      DOI: 10.1016/j.alter.2016.09.003
       
  • Plurality and continuity—Understanding self-identity of persons with
           intellectual disability
    • Authors: Anders Gustavsson; Catarina Nyberg; Charles Westin
      Abstract: Publication date: Available online 15 October 2016
      Source:ALTER - European Journal of Disability Research / Revue Européenne de Recherche sur le Handicap
      Author(s): Anders Gustavsson, Catarina Nyberg, Charles Westin
      The objective of this article is to explore the complexity and continuity of self-identities of persons with intellectual disability. This is done by close reading of four life stories. The findings are that intellectually disabled people's self-identities are basically plural and fluid. A fruitful approach to understanding this plurality is given by “positioning theory” developed by Harré & Langenhove. We analyze the subject's sense of continuity in terms of our own concept of “inner dialogue”. Our point of departure is a review of literature with special focus on multiple identities. We distinguish between three strands of knowledge within this field: (1) sociological studies of other-defined, identities, which are hard to change; (2) psychological studies of dynamic, self-defined identities characterized by adaptation and continuity, and (3) discursive studies of fluid and plural self- and other-defined identities. The third strand has contributed significantly to the field of disability studies by transcending the classic dichotomy of normalcy or deviancy (of identity) of persons with intellectual disabilities. In our aim to probe deeper into the issues of plurality and continuity of self-defined identities, we turn to Stuart Hall's noteworthy text: ‘Who needs identity?’ (Hall & Du Gay, 1996). Hall proposes that a new direction for a theory of identity needs to build on input from discursive studies, but it should also embrace the question of how the subject maintains a sense of personal continuity.

      PubDate: 2016-10-17T01:37:53Z
      DOI: 10.1016/j.alter.2016.06.003
       
  • Dix ans de droit à la scolarisation en France, quels changements ? Point
           de vue des enseignants référents
    • Authors: Matthieu Laville
      Abstract: Publication date: Available online 14 September 2016
      Source:ALTER - European Journal of Disability Research / Revue Européenne de Recherche sur le Handicap
      Author(s): Matthieu Laville
      En France, le droit à la scolarisation des enfants et adolescents handicapés est une notion centrale de la loi du 11 février 2005. Les perspectives ouvertes par cette loi invitent à développer de nouveaux ajustements collectifs entre les secteurs de l’Éducation nationale, du médicosocial et du sanitaire. Dans ce contexte changeant, le législateur a spécifié une nouvelle fonction, celle d’enseignant référent, chargé de coordonner les parcours de scolarisation des élèves handicapés. Le point de vue de ces professionnels constitue, du fait de leur position charnière, un indicateur des mouvements en cours. L’article analyse le regard porté par les enseignants référents sur les dimensions structurelles des évolutions de la scolarisation depuis dix ans. Il s’agit d’appréhender l’articulation entre les principes législatifs généraux qui engagent la France vers la voie de l’inclusion scolaire et les applications concrètes qui en découlent sur le terrain. Nous nous appuyons ici sur les réponses à un questionnaire adressé, au cours de l’année scolaire 2012–2013, à l’ensemble des représentants de ce groupe professionnel. Ces réponses sont illustrées par des propos recueillis par entretiens semi-directifs conduits auprès d’une vingtaine d’enseignants référents. In France, the “right to schooling” for disabled children and teenagers is a central concept of the law of 11th February 2005. The prospects opened by this law call for the development of new collective adjustments between the sectors of national education, sociomedical and health. In these changing circumstances, the legislator specified the new position of “teacher-referent”, who would be in charge of coordinating the schooling of disabled students. The opinion of these new professionals and their pivotal role is an indicator of the progress so far. This article analyses the views held by the teacher-referents on the changing framework of schooling over the last 10 years. It is a question of understanding the relationship between the general legislative principles which commit France to an inclusive education and these applications in practice. In order to demonstrate our point, we are relying on responses given to a questionnaire sent to all the representatives of this new profession in 2012–2013. These answers are illustrated by semi-directive interviews conducted with around 20 teacher-referents.

      PubDate: 2016-09-17T21:30:05Z
      DOI: 10.1016/j.alter.2016.08.001
       
  • The convention on the rights of persons with disabilities and mental
           health law: A critical review
    • Authors: Sergio Ramos Pozón
      Abstract: Publication date: Available online 29 July 2016
      Source:ALTER - European Journal of Disability Research / Revue Européenne de Recherche sur le Handicap
      Author(s): Sergio Ramos Pozón
      The Convention on the Rights of Persons with Disabilities is an international treatise about human rights that was adopted by the United Nations in 2006. Although it is a welcome articulation of the rights of persons with disabilities, a detailed review of the text detects some insufficiencies and challenges, especially when analyzed in light of people with mental illness. This paper aims at revising critically the text of the Convention in order to detect such troubles. It would allow us a better understanding of the text if we really want to protect and defend rights of persons with disabilities. Thus, in this paper the author will revise concepts used by the Committee and the Convention such as “disability”, “legal capacity” and “mental capacity”, “discrimination”. Moreover, according to the concept of “safeguards”, this paper will introduce psychiatric advance directives and shared decision-making as two tools in order to defend persons with mental illness. Both preserve the background of the Convention, such as respect for the dignity and autonomy, provide care without discrimination, and encourage rehabilitation, which implies a better quality of life.

      PubDate: 2016-07-29T19:44:14Z
      DOI: 10.1016/j.alter.2016.07.001
       
  • Hybrid structures and cultural diversity in welfare services for people
           with intellectual disabilities. The case of inclusive education and
           disability arts in Sweden
    • Authors: Jens Ineland
      Abstract: Publication date: Available online 11 July 2016
      Source:ALTER - European Journal of Disability Research / Revue Européenne de Recherche sur le Handicap
      Author(s): Jens Ineland
      In this article, I deal with the professional and ethical implications within welfare organizations that are characterized by having what I refer to as a hybrid structure in inclusive education and disability arts in Sweden. The article is predominantly theoretical in its character and excerpts from empirical research are used primarily as illustrations of the theoretical issues and themes addressed. Empirical data was collected using qualitative research interviews and a digital web survey. The article suggests that hybrid structures carry both opportunities and threats, as such structures expose (welfare-) organizations to different sets of values and expectations. Both inclusive education and disability arts are constituted by somewhat antagonistic institutional logics. It is argued that this may cause professional ambiguity, considering that institutional logics inform the organizations about what is appropriate in relation to the daily work, e.g. aims, methods, ambitions, and professional relations. An important implication for further research is how teachers and school organizations, as well as cultural workers within social work organizations, deal with the risk of people with ID being stigmatized—through labelling, differentiation, or compensatory arrangements—without failing to address the fact that some individuals have, and always will have, special needs due to their ID.

      PubDate: 2016-07-11T21:54:34Z
      DOI: 10.1016/j.alter.2016.06.002
       
  • Comment reconnaître autrui, C. Huyard. Les Éditions de la Maison des
           Sciences de l’Homme, collection « Le (bien) commun », Paris (2015)
    • Authors: Rapegno
      Abstract: Publication date: Available online 8 July 2016
      Source:ALTER - European Journal of Disability Research / Revue Européenne de Recherche sur le Handicap
      Author(s): Noémie Rapegno


      PubDate: 2016-07-11T21:54:34Z
       
  • Individual support planning with people with ID in The Netherlands:
           Official requirements and stakeholders’ expectations
    • Authors: Marjolein A. Herps; Wil H.E. Buntinx; Leopold M.G. Curfs
      Abstract: Publication date: Available online 21 June 2016
      Source:ALTER - European Journal of Disability Research / Revue Européenne de Recherche sur le Handicap
      Author(s): Marjolein A. Herps, Wil H.E. Buntinx, Leopold M.G. Curfs
      Introduction Individualized support planning (ISP) has become a key aspect of supports for people with ID and is mandated in several countries. Different stakeholders develop policies and expectations regarding ISP. In this study, we report on requirements as found in Dutch official ID policy and on the results of consultations of panels of stakeholders and experts working in the field of ID. It was intended to describe, summarize and discuss these requirements for the purpose of enhancing ISP practices. Method A combination of desk research of policy documents and consultation of two expert panels was performed. Results A variety of criteria on content, procedures, quality and person-centeredness of ISP is being used by different stakeholders. These criteria were described and summarized. Discussion The broad range of inconsistent requirements and sometimes conflicting expectations from different stakeholders hamper a clear conceptualization of ISP and affect the use of ISP in practice.

      PubDate: 2016-07-01T20:01:23Z
      DOI: 10.1016/j.alter.2016.05.002
       
  • Colonialism and disability: The situation of blind people in colonised
           Algeria
    • Authors: Gildas
      Abstract: Publication date: Available online 26 April 2016
      Source:ALTER - European Journal of Disability Research / Revue Européenne de Recherche sur le Handicap
      Author(s): Gildas Brégain
      Our article analyses the mode of assistance to the blind in Algeria from the beginning of the 20th century until the Declaration of Independence of the country (1962). If Muslim blinds face discriminatory practices, all the blind – French citizens and subjects – are victims of unequal treatment because they are not entitled to the social measures granted to the blind in metropolitan France. Nevertheless, during the first decades of the 20th century many actors travel between metropolitan France and the Algerian colony and introduce on the Algerian territory innovating practices developed in France (Braille schools for the blind, eye clinics, promotion of manual work). They thus disrupt traditional practices of assistance to the blind, which are intrinsically related to Islam. Moreover, we want to underline the agency of the blind in the context of colonial Algeria, since blind association leaders take part in the colonial policy making of assistance to the blind. From the 1930's, they start to claim the equality of rights of the blind of Algeria with those of metropolitan France. This research allows to reflect on the construction of the citizenship of the blind in a colonial context.

      PubDate: 2016-04-27T18:44:54Z
       
  • Quatrième conférence d’Alter 2015
    • Authors: Isabelle Ville; Rapegno
      Abstract: Publication date: Available online 25 April 2016
      Source:ALTER - European Journal of Disability Research / Revue Européenne de Recherche sur le Handicap
      Author(s): Isabelle Ville, Noémie Rapegno


      PubDate: 2016-04-27T18:44:54Z
       
  • Scandinavian disability policy: From deinstitutionalisation to
           non-discrimination and beyond
    • Authors: Jan
      Abstract: Publication date: Available online 23 April 2016
      Source:ALTER - European Journal of Disability Research / Revue Européenne de Recherche sur le Handicap
      Author(s): Jan Tøssebro
      This article discusses recent significant moves in disability policy in two Scandinavian countries, Norway and Sweden. The aim is to outline the Scandinavian twist on ongoing international developments. The analyses are limited to two major reforms: (i) the shift towards community living and full deinstitutionalisation in the 1990s, and (ii) the introduction of social regulation as part of the disability policy system in the first decade after 2000, particularly legislation on non-discrimination and accessibility. Changes during the reform years and beyond are discussed, and current challenges regarding the two significant moves are outlined.

      PubDate: 2016-04-27T18:44:54Z
       
  • Colonialisme et handicap : la situation des aveugles dans
           l’Algérie colonisée
    • Authors: Gildas
      Abstract: Publication date: Available online 20 April 2016
      Source:ALTER - European Journal of Disability Research / Revue Européenne de Recherche sur le Handicap
      Author(s): Gildas Brégain
      Notre article analyse le régime de prise en charge des aveugles en Algérie, du début du XXe siècle jusqu’à la déclaration d’indépendance du pays (1962). Si les aveugles musulmans sont l’objet de pratiques discriminatoires, tous les aveugles – citoyens et sujets français – sont victimes d’un traitement inégalitaire car ils ne bénéficient pas des mesures de protection sociale accordées aux aveugles de la métropole. Néanmoins, de nombreux acteurs circulent entre la métropole et la colonie algérienne dès les premières décennies du XXe siècle, et insèrent sur le territoire algérien des pratiques innovantes développées dans la métropole (écoles spécialisées d’enseignement du braille, dispensaire ophtalmologique, promotion des activités professionnelles manuelles). Ils bouleversent ainsi des pratiques traditionnelles d’assistance aux aveugles, dont certaines sont intrinsèquement liées à l’Islam. De plus, nous tenons à souligner la capacité d’action autonome des aveugles dans le contexte de l’Algérie colonisée, puisque les dirigeants associatifs aveugles participent largement à la construction de la politique coloniale d’assistance aux aveugles. Dès les années 1930, des revendications émergent en faveur de l’égalité des droits des aveugles d’Algérie avec ceux de la métropole française. Cette recherche permet de réfléchir à la construction de la citoyenneté des aveugles dans un contexte colonial. Our article analyses the mode of assistance to the blind in Algeria from the beginning of the 20th century until the Declaration of Independence of the country (1962). If Moslem blinds face discriminatory practices, all the blind – French citizens and subjects – are victims of unequal treatment because they are not entitled to the social measures granted to the blind in mainland France. Nevertheless, during the first decades of the 20th century, many actors travel between mainland France and the Algerian colony and introduce on the Algerian territory innovating practices developed in mainland France (Braille schools for the blind, eye clinics, promotion of manual work). They thus disrupt traditional practices of assistance to the blind, which are intrinsically related to Islam. Moreover, we want to underline the agency of the blind in the context of colonial Algeria, since blind association leaders take part in the colonial policy making of assistance to the blind. From the 1930s, they start to claim the equality of rights of the blind of Algeria with those of mainland France. This research allows to reflect on the construction of the citizenship of the blind in a colonial context.

      PubDate: 2016-04-22T17:51:59Z
       
  • Éloge de l’insuffisance. Les configurations sociales de la
           vulnérabilité, J.Y. Barreyre. Érès, Toulouse (2014)
    • Authors: Plaisance
      Abstract: Publication date: Available online 23 March 2016
      Source:ALTER - European Journal of Disability Research / Revue Européenne de Recherche sur le Handicap
      Author(s): Éric Plaisance


      PubDate: 2016-03-28T12:51:17Z
       
  • Acknowledgment to reviewers
    • Abstract: Publication date: Available online 15 March 2016
      Source:ALTER - European Journal of Disability Research / Revue Européenne de Recherche sur le Handicap


      PubDate: 2016-03-19T04:24:37Z
       
  • Normativité et surdité : passer d’un déficit
           à une culture
    • Authors: Isabelle Dagneaux
      Abstract: Publication date: Available online 28 December 2015
      Source:ALTER - European Journal of Disability Research / Revue Européenne de Recherche sur le Handicap
      Author(s): Isabelle Dagneaux
      Certains sourds affirment appartenir à une minorité culturelle et linguistique. Faut-il pour cela réfuter la présence d’un handicap, voire d’un déficit, ou les deux réalités peuvent-elles se conjuguer ' Nous affirmons qu’une dialectique peut s’établir entre les visions déficitaire et culturelle de la surdité, de manière telle qu’il soit possible d’envisager la naissance d’une culture à partir de la réalité d’un déficit physiologique. Les modélisations du handicap y aident en mettant en avant l’interaction entre le déficit personnel et le milieu de vie. La notion de normativité chez Canguilhem invite à penser la création de normes par le vivant. Ces nouvelles normes sont à la fois biologiques et sociales chez l’être humain, comme nous le montre en particulier l’existence des langues signées. Some deaf people present themselves as being members of a linguistic and cultural minority. Does it become necessary then to refute the existence of a disability or even an impairment, or can the two realities exist simultaneously' We assert that a dialectic can arise from the impairment-based and cultural views on deafness, potentially paving the way for a culture based on the existence of a physiological impairment. Disability models – by underlining the interaction between impairment and environment – contribute to this dialectic. Canguilhem's normativity is an invitation to consider the creation of norms by the living. For humans, those new norms are both biological and social, as shown by the use of sign language, for example.

      PubDate: 2016-01-07T16:40:35Z
       
 
 
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