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Publisher: Project MUSE   (Total: 292 journals)

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Showing 1 - 200 of 292 Journals sorted alphabetically
Ab Imperio     Full-text available via subscription   (Followers: 1, SJR: 0.405, h-index: 4)
Advertising & Society Review     Full-text available via subscription   (Followers: 11)
African Economic History     Full-text available via subscription   (Followers: 10)
Alabama Review     Full-text available via subscription  
American Annals of the Deaf     Full-text available via subscription   (Followers: 13, SJR: 0.404, h-index: 31)
American Book Review     Full-text available via subscription   (Followers: 9, SJR: 0.102, h-index: 1)
American Catholic Studies     Full-text available via subscription  
American Periodicals : A J. of History, Criticism, and Bibliography     Full-text available via subscription   (Followers: 7, SJR: 0.129, h-index: 2)
American Studies     Full-text available via subscription   (Followers: 20)
Anales Galdosianos     Full-text available via subscription  
Anthropological Quarterly     Full-text available via subscription   (Followers: 56, SJR: 0.995, h-index: 30)
Appalachian Heritage     Full-text available via subscription   (Followers: 4)
Archives of Asian Art     Full-text available via subscription   (Followers: 9, SJR: 0.101, h-index: 3)
Arizona J. of Hispanic Cultural Studies     Full-text available via subscription   (Followers: 3)
Arizona Quarterly: A J. of American Literature, Culture, and Theory     Full-text available via subscription   (Followers: 15)
Arthuriana     Full-text available via subscription   (Followers: 5, SJR: 0.172, h-index: 4)
ASEAN Economic Bulletin     Full-text available via subscription   (Followers: 5)
Asia Policy     Full-text available via subscription   (Followers: 7)
Asian Bioethics Review     Full-text available via subscription   (Followers: 3)
Asian Music     Full-text available via subscription   (Followers: 12)
Asian Perspectives     Full-text available via subscription   (Followers: 9, SJR: 0.165, h-index: 21)
Asian Theatre J.     Full-text available via subscription   (Followers: 5, SJR: 0.1, h-index: 6)
AUDEM : The Intl. J. of Higher Education and Democracy     Full-text available via subscription   (Followers: 10)
Azalea: J. of Korean Literature & Culture     Full-text available via subscription   (Followers: 4)
Biography     Full-text available via subscription   (Followers: 17, SJR: 0.23, h-index: 14)
Brookings Trade Forum     Full-text available via subscription   (Followers: 3)
Brookings-Wharton Papers on Financial Services     Full-text available via subscription   (Followers: 3)
Brookings-Wharton Papers on Urban Affairs     Full-text available via subscription   (Followers: 6)
Buddhist-Christian Studies     Full-text available via subscription   (Followers: 5)
Buildings & Landscapes: J. of the Vernacular Architecture Forum     Full-text available via subscription   (Followers: 13, SJR: 0.101, h-index: 2)
Bulletin of Medieval Canon Law     Full-text available via subscription   (Followers: 3)
Bulletin of the Comediantes     Full-text available via subscription   (Followers: 2, SJR: 0.1, h-index: 4)
Calíope : J. of the Society for Renaissance and Baroque Hispanic Poetry     Full-text available via subscription   (Followers: 1)
Canadian Ethnic Studies     Full-text available via subscription   (Followers: 2)
Canadian J. of Information and Library Science     Full-text available via subscription   (Followers: 292, SJR: 0.197, h-index: 12)
Canadian J. of Linguistics / La revue canadienne de linguistique     Full-text available via subscription   (Followers: 9, SJR: 0.139, h-index: 14)
Canadian J. of Philosophy     Full-text available via subscription   (Followers: 18, SJR: 0.265, h-index: 14)
Canadian Review of Comparative Literature / Revue Canadienne de Littérature Comparée     Full-text available via subscription   (Followers: 1, SJR: 0.1, h-index: 1)
Canadian Theatre Review     Full-text available via subscription   (Followers: 3, SJR: 0.101, h-index: 3)
Caribbean Studies     Full-text available via subscription   (Followers: 11)
Catholic Historical Review     Full-text available via subscription   (Followers: 14, SJR: 0.102, h-index: 8)
Cervantes : Bulletin of the Cervantes Society of America     Full-text available via subscription   (Followers: 1)
China : An Intl. J.     Full-text available via subscription   (Followers: 19, SJR: 0.181, h-index: 7)
China Review Intl.     Full-text available via subscription   (Followers: 8)
Cinema J.     Full-text available via subscription   (Followers: 24)
Civil War History     Full-text available via subscription   (Followers: 19, SJR: 0.176, h-index: 10)
Colorado Review     Full-text available via subscription   (Followers: 1)
Comitatus : A J. of Medieval and Renaissance Studies     Full-text available via subscription   (Followers: 17)
Comparative Drama     Full-text available via subscription   (Followers: 4, SJR: 0.114, h-index: 5)
Comparative Technology Transfer and Society     Full-text available via subscription   (Followers: 3)
Conradiana     Full-text available via subscription   (Followers: 1, SJR: 0.101, h-index: 3)
Conservative Judaism     Full-text available via subscription   (Followers: 5)
Contagion : J. of Violence, Mimesis, and Culture     Full-text available via subscription   (Followers: 5, SJR: 0.101, h-index: 2)
Contemporary Pacific     Full-text available via subscription   (Followers: 7, SJR: 0.345, h-index: 25)
Contemporary Southeast Asia: A J. of Intl. and Strategic Affairs     Full-text available via subscription   (Followers: 21, SJR: 0.277, h-index: 4)
CR : The New Centennial Review     Full-text available via subscription   (Followers: 3, SJR: 0.15, h-index: 12)
Criticism     Full-text available via subscription   (Followers: 9, SJR: 0.1, h-index: 13)
Cross-Currents : East Asian History and Culture Review     Full-text available via subscription   (Followers: 3)
Cuban Studies     Full-text available via subscription   (Followers: 5)
Cultural Critique     Full-text available via subscription   (Followers: 9, SJR: 0.124, h-index: 16)
Demokratizatsiya: The J. of Post-Soviet Democratization     Full-text available via subscription   (Followers: 8, SJR: 0.414, h-index: 15)
Diaspora: A J. of Transnational Studies     Full-text available via subscription   (Followers: 10)
Dickens Quarterly     Full-text available via subscription   (Followers: 1, SJR: 0.1, h-index: 4)
Dictionaries : J. of the Dictionary Society of North America     Full-text available via subscription  
Digital Philology : A J. of Medieval Cultures     Full-text available via subscription   (Followers: 6)
Discourse     Full-text available via subscription   (Followers: 10)
Dublin James Joyce J.     Full-text available via subscription   (Followers: 1)
Early American Literature     Full-text available via subscription   (Followers: 6, SJR: 0.139, h-index: 10)
Economía     Full-text available via subscription   (Followers: 13)
Ecotone     Full-text available via subscription  
Education and Treatment of Children     Full-text available via subscription   (Followers: 2, SJR: 0.619, h-index: 25)
Éire-Ireland     Full-text available via subscription   (Followers: 7, SJR: 0.124, h-index: 8)
ELH     Full-text available via subscription   (Followers: 18, SJR: 0.168, h-index: 14)
Emily Dickinson J.     Full-text available via subscription   (Followers: 2, SJR: 0.111, h-index: 4)
English Literature in Transition 1880-1920     Full-text available via subscription   (Followers: 6, SJR: 0.131, h-index: 5)
ESC: English Studies in Canada     Full-text available via subscription   (Followers: 3, SJR: 0.101, h-index: 6)
ESQ: A J. of the American Renaissance     Full-text available via subscription   (Followers: 1, SJR: 0.157, h-index: 6)
Essays in Medieval Studies     Full-text available via subscription   (Followers: 16)
Eudora Welty Review     Full-text available via subscription  
Feminist Formations     Full-text available via subscription   (Followers: 4)
Film & History: An Interdisciplinary J. of Film and Television Studies     Full-text available via subscription   (Followers: 36, SJR: 0.1, h-index: 2)
Forum J.     Full-text available via subscription   (Followers: 1)
Fourth Genre: Explorations in Nonfiction     Full-text available via subscription   (Followers: 1, SJR: 0.1, h-index: 1)
Framework : The J. of Cinema and Media     Full-text available via subscription   (Followers: 22)
Franciscan Studies     Full-text available via subscription   (Followers: 4, SJR: 0.101, h-index: 1)
French Colonial History     Full-text available via subscription   (Followers: 19, SJR: 0.101, h-index: 3)
Future Anterior     Full-text available via subscription   (SJR: 0.101, h-index: 2)
Future of Children     Full-text available via subscription   (Followers: 5, SJR: 1.68, h-index: 62)
George Herbert J.     Full-text available via subscription  
German Studies Review     Full-text available via subscription   (Followers: 27, SJR: 0.116, h-index: 9)
Ghana Studies     Full-text available via subscription   (Followers: 15)
Goethe Yearbook     Full-text available via subscription   (Followers: 6)
Harvard J. of Asiatic Studies     Full-text available via subscription   (Followers: 14)
Hebrew Studies     Full-text available via subscription   (Followers: 6, SJR: 0.13, h-index: 2)
Helios     Full-text available via subscription   (Followers: 2, SJR: 0.111, h-index: 8)
Hemingway Review     Full-text available via subscription   (Followers: 4)
Henry James Review     Full-text available via subscription   (Followers: 3, SJR: 0.178, h-index: 8)
High School J.     Full-text available via subscription   (Followers: 2)
Hispania     Full-text available via subscription   (Followers: 7, SJR: 0.258, h-index: 5)
Hispanic Review     Full-text available via subscription   (Followers: 11, SJR: 0.177, h-index: 5)
Hispanófila     Full-text available via subscription   (Followers: 3, SJR: 0.1, h-index: 3)
Histoire sociale/Social history     Full-text available via subscription   (Followers: 8, SJR: 0.115, h-index: 8)
Historically Speaking     Full-text available via subscription   (Followers: 4)
Hopscotch: A Cultural Review     Full-text available via subscription   (Followers: 1)
Human Biology     Full-text available via subscription   (Followers: 9, SJR: 0.562, h-index: 45)
Human Rights Quarterly     Full-text available via subscription   (Followers: 68, SJR: 0.428, h-index: 46)
Humanity : An Intl. J. of Human Rights, Humanitarianism, and Development     Full-text available via subscription   (Followers: 17)
Information & Culture : A J. of History     Full-text available via subscription   (Followers: 31)
Intertexts     Full-text available via subscription   (Followers: 6)
Islamic Africa     Full-text available via subscription   (Followers: 3)
J. for the Study of Radicalism     Full-text available via subscription   (Followers: 7, SJR: 0.137, h-index: 3)
J. of American Folklore     Full-text available via subscription   (Followers: 3, SJR: 0.198, h-index: 15)
J. of Asian American Studies     Full-text available via subscription   (Followers: 3)
J. of Burma Studies     Full-text available via subscription   (Followers: 4, SJR: 0.175, h-index: 3)
J. of Canadian Studies/Revue d'études canadiennes     Full-text available via subscription   (Followers: 3, SJR: 0.175, h-index: 10)
J. of College Student Development     Full-text available via subscription   (Followers: 6, SJR: 0.615, h-index: 47)
J. of Colonialism and Colonial History     Full-text available via subscription   (Followers: 20)
J. of Democracy     Full-text available via subscription   (Followers: 49, SJR: 1.815, h-index: 56)
J. of Developing Areas     Full-text available via subscription   (Followers: 5)
J. of Dramatic Theory and Criticism     Full-text available via subscription   (Followers: 5)
J. of Early Christian Studies     Full-text available via subscription   (Followers: 16, SJR: 0.252, h-index: 15)
J. of Health Care for the Poor and Underserved     Full-text available via subscription   (Followers: 6, SJR: 0.569, h-index: 42)
J. of Higher Education, The     Full-text available via subscription   (Followers: 35, SJR: 1.189, h-index: 57)
J. of Individual Psychology     Full-text available via subscription   (Followers: 6)
J. of Japanese Studies     Full-text available via subscription   (Followers: 15, SJR: 0.182, h-index: 13)
J. of Jewish Identities     Full-text available via subscription   (Followers: 11)
J. of Korean Religions     Full-text available via subscription   (Followers: 3, SJR: 0.101, h-index: 1)
J. of Korean Studies     Full-text available via subscription   (Followers: 11, SJR: 0.169, h-index: 3)
J. of Late Antiquity     Full-text available via subscription   (Followers: 5)
J. of Latin American Geography     Full-text available via subscription   (Followers: 4, SJR: 0.165, h-index: 15)
J. of Military History     Full-text available via subscription   (Followers: 27)
J. of Modern Greek Studies     Full-text available via subscription   (Followers: 4, SJR: 0.205, h-index: 11)
J. of Narrative Theory     Full-text available via subscription   (Followers: 24, SJR: 0.11, h-index: 7)
J. of Policy History     Full-text available via subscription   (Followers: 13, SJR: 0.116, h-index: 2)
J. of Shi'a Islamic Studies     Full-text available via subscription   (Followers: 5, SJR: 0.119, h-index: 2)
J. of Slavic Linguistics     Full-text available via subscription   (Followers: 2)
J. of Song-Yuan Studies     Full-text available via subscription   (Followers: 8, SJR: 0.102, h-index: 1)
J. of the Civil War Era     Full-text available via subscription   (Followers: 10)
J. of the Early Republic     Full-text available via subscription   (Followers: 10, SJR: 0.144, h-index: 11)
J. of the History of Childhood and Youth     Full-text available via subscription   (Followers: 3)
J. of the History of Ideas     Full-text available via subscription   (Followers: 138, SJR: 0.143, h-index: 24)
J. of the History of Philosophy     Full-text available via subscription   (Followers: 43, SJR: 0.482, h-index: 15)
J. of the History of Sexuality     Full-text available via subscription   (Followers: 24, SJR: 0.102, h-index: 21)
J. of the Malaysian Branch of the Royal Asiatic Society     Full-text available via subscription   (Followers: 4)
J. of the Society of Christian Ethics     Full-text available via subscription   (Followers: 5, SJR: 0.108, h-index: 6)
J. of the Southwest     Full-text available via subscription   (SJR: 0.109, h-index: 6)
J. of Women's History     Full-text available via subscription   (Followers: 22, SJR: 0.119, h-index: 15)
J. of World History     Full-text available via subscription   (Followers: 25, SJR: 0.137, h-index: 25)
J19 : The J. of Nineteenth-Century Americanists     Full-text available via subscription   (Followers: 4)
Jeunesse: Young People, Texts, Cultures     Full-text available via subscription   (Followers: 4)
Joyce Studies Annual     Full-text available via subscription   (Followers: 2)
Kennedy Institute of Ethics J.     Full-text available via subscription   (Followers: 5, SJR: 0.473, h-index: 32)
Korean Studies     Full-text available via subscription   (Followers: 10)
Kritika: Explorations in Russian and Eurasian History     Full-text available via subscription   (Followers: 11, SJR: 0.432, h-index: 16)
L'Esprit Créateur     Full-text available via subscription   (Followers: 2, SJR: 0.103, h-index: 5)
La corónica : A J. of Medieval Hispanic Languages, Literatures, and Cultures     Full-text available via subscription   (Followers: 4)
Language     Full-text available via subscription   (Followers: 23, SJR: 1.678, h-index: 54)
Late Imperial China     Full-text available via subscription   (Followers: 9, SJR: 0.104, h-index: 8)
Latin American Music Review     Full-text available via subscription   (Followers: 4)
Latin American Research Review     Full-text available via subscription   (Followers: 14, SJR: 0.266, h-index: 33)
Latin American Theatre Review     Full-text available via subscription   (Followers: 1, SJR: 0.1, h-index: 2)
Le mouvement social     Full-text available via subscription   (Followers: 1, SJR: 0.125, h-index: 7)
Leviathan : A J. of Melville Studies     Full-text available via subscription   (Followers: 2, SJR: 0.1, h-index: 2)
Library Trends     Full-text available via subscription   (Followers: 409, SJR: 0.357, h-index: 34)
Literature and Medicine     Full-text available via subscription   (Followers: 7, SJR: 0.117, h-index: 12)
Logos: A J. of Catholic Thought and Culture     Full-text available via subscription   (Followers: 12, SJR: 0.102, h-index: 4)
Magic, Ritual, and Witchcraft     Full-text available via subscription   (Followers: 7)
Manoa     Full-text available via subscription  
Marvels & Tales     Full-text available via subscription   (Followers: 3)
Mechademia     Full-text available via subscription   (Followers: 2)
Mediaevalia     Full-text available via subscription   (Followers: 1)
Merrill-Palmer Quarterly     Full-text available via subscription   (Followers: 1, SJR: 0.79, h-index: 52)
MFS Modern Fiction Studies     Full-text available via subscription   (Followers: 25, SJR: 0.13, h-index: 15)
Milton Studies     Full-text available via subscription   (Followers: 3, SJR: 0.12, h-index: 7)
Missouri Review     Full-text available via subscription   (Followers: 2)
MLN     Full-text available via subscription   (Followers: 10, SJR: 0.139, h-index: 9)
Modernism/modernity     Full-text available via subscription   (Followers: 33, SJR: 0.129, h-index: 14)
Monumenta Nipponica     Full-text available via subscription   (Followers: 7, SJR: 0.101, h-index: 8)
Mosaic : a journal for the interdisciplinary study of literature     Full-text available via subscription   (Followers: 8, SJR: 0.126, h-index: 9)
Mouseion: J. of the Classical Association of Canada     Full-text available via subscription   (Followers: 14)
Nabokov Studies     Full-text available via subscription  
Narrative     Full-text available via subscription   (Followers: 24, SJR: 0.215, h-index: 17)
Narrative Inquiry in Bioethics     Full-text available via subscription   (Followers: 2)
New England Review     Full-text available via subscription   (SJR: 0.104, h-index: 2)
New Hibernia Review     Full-text available via subscription   (Followers: 1)
New Literary History     Full-text available via subscription   (Followers: 35, SJR: 0.84, h-index: 21)
Northeast African Studies     Full-text available via subscription   (Followers: 2, SJR: 0.148, h-index: 4)
Notes     Full-text available via subscription   (Followers: 11, SJR: 0.131, h-index: 6)
Nuevo Texto Crítico     Full-text available via subscription   (Followers: 1)
Oceanic Linguistics     Full-text available via subscription   (Followers: 5, SJR: 0.175, h-index: 13)
Ohio History     Full-text available via subscription   (Followers: 5)
Ohio Valley History     Full-text available via subscription  
Oral Tradition     Full-text available via subscription   (Followers: 2)
Palimpsest : A J. on Women, Gender, and the Black Intl.     Full-text available via subscription  
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Partial Answers: J. of Literature and the History of Ideas     Full-text available via subscription   (Followers: 4, SJR: 0.111, h-index: 7)
Perspectives in Biology and Medicine     Full-text available via subscription   (Followers: 4, SJR: 0.295, h-index: 38)
Philip Roth Studies     Full-text available via subscription   (Followers: 2)
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philoSOPHIA     Full-text available via subscription   (Followers: 4)

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Journal Cover Narrative Inquiry in Bioethics
  [2 followers]  Follow
    
   Full-text available via subscription Subscription journal
   ISSN (Print) 2157-1732 - ISSN (Online) 2157-1740
   Published by Project MUSE Homepage  [292 journals]
  • Editors' Note
    • Abstract: We are pleased to publish the first issue of volume eight of Narrative Inquiry in Bioethics (NIB). The symposium includes 12 narratives detailing the experience of navigating personal and professional roles when family members are ill. Twelve stories appear in print and an additional six are available in the online supplement. Dr. Lauren Smith, the narrative symposium editor for the issue, along with members of the NIB editorial staff, wrote the call for stories and invited three commentary authors John C. Moskop, Arthur W. Frank, and Joanna Weinberg. The three have expertise in physician-patient relations, decision making, clinical ethics, narrative inquiry, health law and policy, and end-of-life care.The research ... Read More
      PubDate: 2018-04-16T00:00:00-05:00
       
  • Doctor in the Family: Stories and Dilemmas Surrounding Illness in
           Relatives
    • Abstract: Physicians often face challenges in balancing personal and professional roles when illness strikes a family member. Many memoirs have been written about physicians navigating the "sick role" when confronted with their own serious illnesses such as cancer; however, this issue seeks to clarify how physicians cope with medical problems in family members. Many hospital policies and the AMA code of ethics are written to deter physicians from treating family members; however, even without a formal doctor-patient relationship, difficulties arise when relatives ask for advice, medications, or other expertise (American Medical Association, 2016). In addition to these requests, physicians with ill relatives may feel alone ... Read More
      PubDate: 2018-04-16T00:00:00-05:00
       
  • Family Portrait
    • Abstract: When I last saw my dad he was propped up on a gurney smiling at us. He turned to us and simply said, "What a beautiful family portrait." We smiled back, told him we loved him and that we'd see him soon. Then he was off to the ambulance that would take him to Manhattan to repair the 9 centimeter abdominal aortic aneurysm that was discovered earlier that morning.No big deal, right' It was going to be an endovascular repair and he was stable. He was coming to the academic medical center where I work and they do this sort of thing all the time. Yes, he was 93 but otherwise in great health. His mind was keen and his memory sharp. The vascular surgeon, who was a colleague, and a father of my son's classmate, would slip ... Read More
      PubDate: 2018-04-16T00:00:00-05:00
       
  • Found in the Translation
    • Abstract: "They told us she was cured, and then all of a sudden they told us there was nothing more they could do," Dad repeatedly told me in the first months after we lost my mother to stomach cancer. That, of course, was not quite true: in fact, there had been no evidence of tumor recurrence, until there was.I am a cardiothoracic surgeon, the oldest of three "kids" in the family. My youngest brother is a Catholic priest. Both of us deal with life and death every day, and for years we had been trying to get our parents to formalize advanced directives. Finally, once my mother was in hospice, we got them done, with Mom and Dad both, who at that time were in their early 80s. They had been married for 57 years and Mom was ... Read More
      PubDate: 2018-04-16T00:00:00-05:00
       
  • Let Me Hold the Wheel, Daddy!
    • Abstract: I have been in Family Practice for 30 years now, out of which 23 in the same office that used to be my grandmother's home. In spite of the rule that a doctor should not treat his family members, I do it all the time. Even before I graduated from residency, I wrote prescriptions for narcotics to help my mother who died of Multiple Myeloma at the age of 69. So when I opened my practice, in the same neighborhood where I grew up, it was only natural that other members of my family would become my patients. My father, my four children, my wife and her parents, my brother and two of my aunts, were all my patients, not to mention many friends, old and new, who live in the area.My rationale for doing so was that I felt I ... Read More
      PubDate: 2018-04-16T00:00:00-05:00
       
  • Caution Ahead—Physician Parent
    • Abstract: The benefits of being a practicing physician were immediately obvious to me when peripheral members of my family or acquaintances had medical questions or became ill. Friends and family clearly appreciated when I shared my medical knowledge as an internist, or helped them navigate the complicated institutional structure of hospitals and clinics, or simply provided context and background information about their illnesses. I was able to be helpful even if their question didn't involve my specific area of medical expertise because I could piece together how to be helpful simply by providing a framework for thinking about their problem. What did they understand about their illness' What had their doctor told them ... Read More
      PubDate: 2018-04-16T00:00:00-05:00
       
  • A Family Affair
    • Abstract: My sister Connie was recently diagnosed with a rare tumor, a myxofibrosarcoma, that had taken up residence near the right brachial plexus. Usually a benign tumor, its location increases the risk of arm dysfunction, recurrence, and metastasis. Her care may be further complicated by the presence of three physicians in her family.The shiny anticipation of unwrapped gifts had dulled and the last of the raviolis and turkey had been packed away. My sister Connie and I sat on the floor in my parent's family room, as the final game of the night ended. She pulled back her hair and asked, "Is this something I should be worried about'"The loud chatter of our surrounding family receded and time held its breath with me. A mass. ... Read More
      PubDate: 2018-04-16T00:00:00-05:00
       
  • PICU Doctor in the Family
    • Abstract: Twenty years ago, when I was a fellow in pediatric critical care medicine, I got a call from my brother. It was one of those calls you never want to get, and a call I'm sure my brother never imagined he would make. His school–aged daughter, who was bright, beautiful, and always completely healthy had started having seizures. Her absence seizures had started a few weeks back, and they were getting more frequent. My brother had taken her to see her pediatrician, and she prescribed some anti–seizure medication and wanted a follow–up appointment in a few months. My brother was concerned that it could be something more serious, and he worried that starting medication and waiting to see what happened might not be best ... Read More
      PubDate: 2018-04-16T00:00:00-05:00
       
  • For the Love of Tomatoes and Movies: Lessons from a Grandfather's Passing
    • Abstract: Near the end of 2009, I started working as a primary care physician in a private practice in Belgium. Requests from family members followed shortly thereafter."Would you be our doctor'" "Can we come to your practice'"Admittedly, I was in doubt about how to handle these requests. They usually came with high expectations. Surely a doctor who was also a family member would put extra effort into providing the best possible care. My medical school professors, however, had been very clear about this type of request and advised against treating close relatives. An intense emotional involvement could cloud one's medical objective judgment, they believed, possibly leading to irresponsible decisions and issues, such as an ... Read More
      PubDate: 2018-04-16T00:00:00-05:00
       
  • A Family Physician: My Role and My Specialty
    • Abstract: "What lies behind us and what lies before us are tiny matters compared to what lies within us."This is the quote I wrote in my father's birthday card the year he was diagnosed with cancer. I was a senior in college and was struggling for ways to communicate. I wanted him to know that I truly believed he could beat this disease. However, at the age of 20, I had yet to learn the delicate manner of discussing the emotional upheaval that follows a terminal diagnosis. I wanted to ask him if he was scared, if he was confident, or if his brave and calm demeanor was solely for our sake. I desperately wished to talk to him about this journey. But this was my father, my protector, and I was too frightened to bring up his ... Read More
      PubDate: 2018-04-16T00:00:00-05:00
       
  • My Father, My Patient
    • Abstract: "Education is the only thing that they can't take away from you."These were the words my father would utter innumerable times during my childhood and adolescence. Over the years I came to know the meaning of those words and why this conviction ran so deeply inside of him. A man who survived the anti–Semitism of pre–World War II Poland and then the horrors of the Holocaust deserved better than to suffer from a physician error that led him to become totally dependent on others for his daily care. How could this independent, strong and intelligent man who had survived unspeakable horrors in the concentrations camps, in an instant become, in essence, my third child'Before this event, other than using my neurological ... Read More
      PubDate: 2018-04-16T00:00:00-05:00
       
  • Recognising Illness in a Loved One: The Obligation to Speak, the Pull of
           Silence
    • Abstract: The day Marcus died the jasmine scented wind sent blossoms eddying along the footpaths. The day before I had watched him sleeping on the fold out sofa bed in the family room. With the covers pulled up and his dark lashes resting on his pale cheeks he looked like any other sleeping child. When he was awake his lack of motor control told another story. He could not hold his head and torso steady, he slumped in his wheelchair, he could no longer talk and often used his feet to communicate. Watching him sleep I was reminded of how much he looked like his mother, same fine bone structure, same dark lashes and almond shaped eyes. I remembered him as a baby in the park, smiling up at Stacey; the amazement I felt seeing my ... Read More
      PubDate: 2018-04-16T00:00:00-05:00
       
  • Abdicating the Role of Physician, Losing the Role of Loved One
    • Abstract: I am a pediatric intensivist and the only person in a medical profession in my family. My mom passed away from complications of endometrial cancer when I was in college (and far too young to really have any idea about what it meant to have endometrial cancer, let alone what it meant to have died from complications of it). Though not yet even a medical student, my dad sent me a copy of my mom's autopsy results and asked me to go through them with him. Despite not having had the opportunity to go to college, my dad has basically had a career as a mechanical engineer. In hindsight, to have someone so self–motivated and intelligent ask me to interpret an autopsy report with just my college–level interest in medicine ... Read More
      PubDate: 2018-04-16T00:00:00-05:00
       
  • Between a Father and a Son
    • Abstract: I held my stethoscope, as I had hundreds of times, on the chest of my patient. My fingertips making contact with the thin rugose skin that uttered signs of unrest. His laborious raspy breaths forged a backdrop to the tachycardic and irregular rhythm I knew clamored portending demise. With his face flushed and his nares faring, he took his last breath. His heart refusing to rest, but losing its battle to the silent stillness of no more.I looked at my patient–father's lifeless face. I had lost numerous patients in the past. Some I had cared for and known for years, their death imparting a feeling of loss and insecurity of alternate decisions not taken. Now studying his inanimate body, an ominous void of familial loss ... Read More
      PubDate: 2018-04-16T00:00:00-05:00
       
  • DNR for a Survivor
    • Abstract: The forms sat on my kitchen table for months. As the days went by, mail, newspapers, bills and various household items slowly covered them, like an archeological dig. Hidden but not forgotten, the DNR forms gnawed at me, even as my procrastination grew to monstrous size. How—how—could I make my mother DNR' How could I make this woman, a Holocaust survivor, who endured unimaginable horrors, who held on to life with legendary ferocity, how could I officially stop her fight for life' Yet I knew better, as a doctor, as a teacher of medical ethics, I knew what to do. The trouble was doing it.My mother lived through the Warsaw Ghetto, the Majdanek death camp, starvation and degradation. But could she survive the nursing ... Read More
      PubDate: 2018-04-16T00:00:00-05:00
       
  • Everyone should have a physician in the family
    • Abstract: Over the past 35 years, I have told friends and family that everyone should have a physician in the family. I did not mean to suggest that the familial physician should provide medical care, formal or informal, to loved ones. Indeed, I have avoided such things as diagnosing or prescribing for family members. As a physician and academic–medicine educator, my recommendation (actually, more a wish) that families should have a physician member was driven by my first–hand experiences in witnessing the downside of expediency, cost containment, and high care volumes in today's healthcare. These pressures have diminished U.S. healthcare routinely, not just exceptionally. One need only consider the ongoing crisis in medical ... Read More
      PubDate: 2018-04-16T00:00:00-05:00
       
  • Watershed and Intersections: The Doctor in the Family
    • Abstract: "The practice of medicine in an art . . . a calling in which your heart will be exercised equally with your head."Nowhere in the practice of medicine is this aphorism tested more than with the illness and death of a family member. In the 1970's, my exposure to the bioethics of treating and deciding for a family member was limited to: "never treat a family member." We were led to believe it was unethical. The rationale was that we could not be objective enough to treat in the best interest of the patient. Without formal readings, that was just theory. Today we understand the difference between autonomy and beneficence. The patient is, if able to do so, to be an active participant in decision making. But in the ... Read More
      PubDate: 2018-04-16T00:00:00-05:00
       
  • The Doctor in the Family
    • Abstract: There is a saying in the Talmud: "A man cannot say to the Angel of Death, I wish to arrange my affairs before I die." When swift and sudden, death gives us no time to sign papers and pack our bags. But sometimes, the Angel of Death loiters and lingers. He acts like an unwelcome house guest who takes over the spare room, but bides his time—even sitting at the family dinner table with a self–satisfied smirk.That's how it was in my mother's final days, as she endured, over many months, the slow, choking off of life–blood that is aortic stenosis. Despite many discussions with me—her "son the doctor"—my mother refused potentially life–saving valve surgery. At the age of 88, she was not about to—as she put it—"let some ... Read More
      PubDate: 2018-04-16T00:00:00-05:00
       
  • Doctor in the Family or Family Doctor'
    • Abstract: On a cold, snowy winter day in the northern part of Germany, my father 69 years old at the time, was walking our German Shepherd Jamu. The next day when talking to him on the phone, he mentioned that he fell onto the back of his head the night before during the walk (ice below the snow that lead to a "slip and fall").Upon further questioning, he sounded like his usual self, he did state he had a little bit of a headache, he denied any other symptoms, and he seemed not very concerned, but rather quite content that he did not have any obvious fractures. About three weeks passed without any new events and no complaints. Jamu and he shortly thereafter few to the US to where he had recently moved.One late afternoon ... Read More
      PubDate: 2018-04-16T00:00:00-05:00
       
  • Moving Through and Moving Forward
    • Abstract: On the five hour drive home after my father–in–law, Mike's, initial hospitalization for renal failure resulting in a diagnosis of aggressive multiple myeloma, my head seemed too tight, the radio too loud, and the DJ's too rambunctious. The tension in my head built, hammering, getting more severe over the evening. I slept fitfully that night, my head pounding every time I rolled over. The headache continued into the next day, when I went into work as I was scheduled to teach a clinical reasoning small group. I was horribly irritable, and didn't understand the headache. Mike was suffering with an illness, and medical school and residency trained me to deal with illness, so why was I so tense' I could deal with any ... Read More
      PubDate: 2018-04-16T00:00:00-05:00
       
  • When Professional Rightness is Personal
    • Abstract: "At that moment, I was more a loving son than an analytical physician, buoyed by my dad's resilience, but stricken by impending loss." So writes Joseph Fins in his contribution to this collection of stories. Like all the other physician authors, Fins structures his narrative on the binary opposition between "analytical", the professional attitude, and "loving", the attitude appropriate to a family member. The dramatic tension of these stories—the tension that pulls the protagonist in different directions and creates suspense over what she or he will do—depends on that opposition. Suspense over how the illness will turn out seems secondary, because the ill person is the object of the narrator and protagonist's ... Read More
      PubDate: 2018-04-16T00:00:00-05:00
       
  • Doctor in, and for, the Family': Physicians Reflect on Care for Loved
           Ones
    • Abstract: Like virtually all human beings who live long enough, physicians encounter the serious illness and death of beloved family members and close friends. Unlike the rest of us, however, physicians have expert knowledge of human illness, and most physicians provide medical care for their patients nearly every working day of their lives. In the personal narratives published in this issue of Narrative Inquiry in Bioethics, twelve physicians reflect on their experiences as family members or close friends of patients with grave illnesses. These narratives make clear that physicians face many of the same challenges as other family members in these situations, including dealing with heavy emotional burdens and making major ... Read More
      PubDate: 2018-04-16T00:00:00-05:00
       
  • The Dilemma of the "Doctor in the Family"
    • Abstract: In Leo Tolstoy's novella The Death of Ivan Ilyich (1886) Ivan Ilyich, the story's protagonist, is dying a slow and painful death. His family avoids the subject of his death and instead pretends Ilyich is only sick and not dying.Recalling Tolstoy's story, Atul Gawande writes in Being Moral (2014):"As we medical students saw it, the failure of those around Ivan Ilyich to offer comfort or to acknowledge what was happening was a failure of character and culture . . . Just as we believed that modern medicine could probably have cured Ivan Ilyich of whatever disease he had, so too we took for granted that honesty and kindness were basic responsibilities of a modern doctor. We were confident that in such a situation we ... Read More
      PubDate: 2018-04-16T00:00:00-05:00
       
  • Views of Low-Income Women of Color at Increased Risk for Breast Cancer
    • Abstract: Cancer prevention education has been increasing its emphasis on the importance of knowing one's individual risk. This emphasis is particularly strong in breast cancer prevention because the disease is not monolithic and risk may vary greatly among diverse groups of women across the life span (Kurian, Fish, Shema, & Clarke, 2010). Screening and prevention recommendations are also risk dependent (Saslow et al., 2007; Visvanathan et al., 2013). Therefore, individual risk assessment (IRA) for breast cancer is being introduced into primary care settings with the aim of increasing adherence to risk-appropriate screening and prevention measures (Hoskins, Zwaagstra, & Ranz, 2006; Kaplan et al., 2014; Moyer et al., 2013 ... Read More
      PubDate: 2018-04-16T00:00:00-05:00
       
  • A Personal Narrative on Living and Dealing with Psychiatric Symptoms after
           DBS Surgery
    • Abstract: Deep brain stimulation (DBS) has been regarded as an efficient and safe treatment for Parkinson's disease (PD) for the last 25 years (Schultz, 2002). During this time, several thousands of people with PD have received DBS therapy. In terms of clinical ethics, it is worth asking whether the use of DBS may have unanticipated negative effects similar to those associated with other types of neurosurgery: in particular, how postoperative neuropsychiatric effects may impact upon a patient's sense of self (Gilbert, Cook, O'Brien, & Illes, 2017; Gilbert, Goddard, Viaña, Carter, & Horne, 2017; Gilbert, Vranic, 2015; Gilbert, Harris, Kapsa, 2014). In some instances, symptoms are alleviated but patients do not cope well with ... Read More
      PubDate: 2018-04-16T00:00:00-05:00
       
  • Editors' Note
    • Abstract: In March of 2014 the editors of Narrative Inquiry in Bioethics opened a call for stories entitled Veterans' Health Care on the Home Front. In the call for stories we sought a collection of narratives from war veterans, including both combatant and non-combatant individuals, about meeting their health care needs.We were interested in both positive and negative experiences with health care systems and aimed to learn about what could have been done, or could be done, differently to improve the health care experiences of veterans. We encouraged authors to share advice for veterans about to return home.The call for stories was announced in the NIB newsletter and on the NIB Website. Additionally, the call was posted on ... Read More
      PubDate: 2018-04-16T00:00:00-05:00
       
  • The Price of Dependence
    • Abstract: In the early 1990's I was signing out of Ft. Campbell, KY, and there was a person sitting at a small folding table just a few feet before door that led off the base and to where I was going next. I was at the end of my time with the 502nd Infantry, 101st Airborne Division, nine months back from combat in Desert Storm, and at the end of my enlistment. I walked up to the folding table, already kind of looking past it, and the person there asked me about any health problems I'd had while I was in the Army—anything that ached, pained, any injuries, anything I'd been treated for by Army medical personnel. I told him whatever I could recall, thinking that this was some sort of requirement before getting the hell out of ... Read More
      PubDate: 2018-04-16T00:00:00-05:00
       
  • Blindsided Abroad
    • Abstract: It has been said that an out-of-body experience has little lasting effects, but a near-death experience is capable of changing a person's life in the most dramatic ways. I had such an experience while visiting China in 2006, and can vouch for the truth in that saying. There were no warnings that I was up for a heart attack. Heart disease doesn't generally run in the family and my high blood pressure seemed to be under control by using the medicine issued by the VA pharmacy. However, it did happen and there was nothing I could do but go through the experience.It began on a hot, steamy summer night just three days before I was due to fly back to the U.S.A. My gracious hosts wanted to make sure I had a good send-off ... Read More
      PubDate: 2018-04-16T00:00:00-05:00
       
  • What We Miss, or Ignore, or Refuse to See
    • Abstract: Blake never felt any pain in Iraq. It wasn't until he and the rest of the 147th made their requisite stop in Kuwait. It wasn't until the weight of war—Kevlar helmets and vests, weapons and ammunition—was lifted that for the first time in his life, Blake's back hurt.Stateside, Blake was diagnosed with a service-related injury, degenerative disk disorder, a ten percent disability. Blake laughed about it at the time. His friends and family teased him about living off the government, soaking them for all they were worth. Even as the pain increased, we joked. When he wore a battery-operated box with patches he could place on his back to zap his pain with low pulses of electricity, we called him the bionic man. We ... Read More
      PubDate: 2018-04-16T00:00:00-05:00
       
  • Shitbag! An Autobigraphical Essay
    • Abstract: In the year before 9/11, you could've found me after school working as a cook at LaRosa's Pizza, a Cincinnati chain restaurant. I was biding my time until college. I was all set to go to Ohio State with a scholarship, when life changed.Change came in the form of a phone call from my congressman's office: I had been accepted at West Point. I put in my two weeks' notice—if I possess an inborn superpower, it is the ability to adapt to, accept, and adopt great change at a moment's notice. It was about to rain when my career as pizza-maker ended. Instead of going home, I drifted, and drove my mother's car through the night, listening to the radio. It is in my nature to wander. As I remember it, I found myself trolling ... Read More
      PubDate: 2018-04-16T00:00:00-05:00
       
  • From Army service to physician to patient
    • Abstract: If my experience were a script for Clint Eastwood, the title would be, "The High-5, the Good, & the Bad." I have not experienced what some other vets unfortunately have, " . . . , & the Ugly."After graduating from college and my 2 ½ year stint in the Peace Corps in Colombia, and during the early U.S. buildup in Vietnam, I volunteered for the US Army and the Army's Special Forces ("Green Berets"), received intensive one year training as a Special Forces Independent Duty Medic to function as a physician where there was none, and was in Vietnam for two one-year tours. My four years of service did not result in any need for health care after discharge in December, 1968.My experiences as an Independent Duty Medic in ... Read More
      PubDate: 2018-04-16T00:00:00-05:00
       
  • Limited patient choice within the Military Health System
    • Abstract: In the military you are told what to do, however, when you fight for your choice as it applies to your own health, be prepared for a long fight. I was rather severely injured in an automobile accident driving to work one morning. What would follow were a grueling two years of therapy and a decision that I had to make with limited knowledge and experience to draw from. Like most young service members this was my first exposure to a medical system from the patient side. We all tried to remain positive even though we were immersed in a quagmire of pain and hurt, and like all things in the military we had each other to keep us going.Near the end of second year of my recovery from a crushed pelvis, something began to go ... Read More
      PubDate: 2018-04-16T00:00:00-05:00
       
  • Fighting for Freedom by Killing the Pain
    • Abstract: As I pondered the narratives in this symposium, I remembered a marine saying to me: "Pain is weakness leaving the body." This marine prided himself on being able to endure and inure himself to anything as a sign of a rough and tough warrior. Warriors are known for sucking up and ignoring pain. Both the military and the civilian community enjoy imagining legends of an indestructible warrior. Accordingly, the ability and willingness to take on enormous levels of pain without flinching or complaining is the mark of true excellence and military genius. Such fables are strongly embedded in both the individual warrior's psyche and the collective consciousness of the United States. Legends from Achilles to Thor love ... Read More
      PubDate: 2018-04-16T00:00:00-05:00
       
  • Narrative Symposium: Doctor in the Family: Stories and Dilemmas
           Surrounding Illness in Relatives
    • Abstract: Family PortraitFound in the TranslationLet Me Hold the Wheel, Daddy!Caution Ahead—Physician ParentA Family AffairPICU Doctor in the FamilyFor the Love of Tomatoes and Movies: Lessons from a Grandfather's PassingA Family Physician: My Role and My SpecialtyMy Father, My PatientRecognising Illness in a Loved One: The Obligation to Speak, the Pull of SilenceAbdicating the Role of Physician, Losing the Role of Loved OneBetween a Father and a SonDNR for a SurvivorMoving Through and Moving ForwardEveryone should have a physician in the familyWatershed and Intersections: The Doctor in the FamilyThe Doctor in the FamilyDoctor in the Family or Family ... Read More
      PubDate: 2018-04-16T00:00:00-05:00
       
  • Supplement: Veterans’ Health Care on the Home Front
    • Abstract: The Price of DependenceBlindsided AbroadWhat We Miss, or Ignore, or Refuse to SeeShitbag! An Autobigraphical EssayFrom Army service to physician to patientLimited patient choice within the Military Health ... Read More
      PubDate: 2018-04-16T00:00:00-05:00
       
 
 
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